Guest guest Posted June 7, 2002 Report Share Posted June 7, 2002 Hello List Mates, This note is long overdue, but time has a way of slipping away from me. I just want to provide some words of encouragement for any parents out there that are questioning whether or not to go through the hassle of filling out all of Dr. G's paperwork, being put on a very long waiting list and looking at having a first appointment in 8 or 9 months. The answer is a resounding YES! I too questioned whether taking my son to see Dr. G was the right thing to do. I had consulted with several doctors and spent a lot of money for very little result. I was making special foods and ordering supplements on a weekly basis. I spent countless hours on the computer reading about Autism and surfing the web to find the latest and greatest treatments. Let me start from the beginning. was a sickly little boy from about six weeks of age when he had his first ear infection. At the age of 6 months we had tubes put into 's ears because his ear infections were non-stop. Once the tubes were in things got much better. was happy, sleeping through the night and just much happier in general. At about 12 months old came down with a very stubborn ear infection. After about 30 days and 5 different types of antibiotics we finally took him to see an ENT, who was able to stop the infection. Five days after his ears began clearing, had a sever asthma attack which landed him in the emergency room (we were unaware that was prone to Asthma before this). A few days after the Asthma attack I took in to meet his new pediatrician (we had moved in the middle of all of this). The new pediatrician insisted that have his MMR because his previous doctor had not given it to him at his 12-month check-up. I was unsure because was still sick, but the doctor assured me that it was very safe regardless of recent illness. Well, things changed at that point. The child that was so demanding began to change. He went from wanting to be held all of the time to sitting alone without making much noise. He looked off into space and didn't turn his head when called. He was slipping away. I did my best to ignore that anything was going wrong with my son, but family soon brought me to the reality that something was not right. Finally I took to see a developmental pediatrician who informed me that my son had PDD or Autism. I decided to do everything I could to help my son have a normal life. After much reading and networking I found Dr. Goldberg. We filled out all of the paperwork and sent it back hoping to have an appointment in 8 months. To my surprise we received a call asking us if we wanted to take a cancellation in 4 weeks. Of course we agreed and I proceeded to get all of the blood work done and have as much information as possible for our consultation. After reviewing some of the lab work Dr. Goldberg felt that had a viral issue and put him in Valtrex. At first he was as hyper as could be. The kid would bounce up and down in bed and could not get to sleep before 10 or 11 (usually he fell asleep at 8). I called Dr. G's office and asked what to do. I was told that the virus was fighting back and I needed to increase the dosage. When we increased the dosage settled down and WOW what a change. His vocabulary soared and his social interaction improved and best of all he started using the potty (he had just turned 4). My husband and I could not get over the progress that he was making but his teacher was the one who was most impressed. One day she pulled me aside and said, " what are you doing differently, I can't get over 's improvement " . Well the floodgates opened and I told her all about Dr. G. About three months after starting the Valtrex we had re-tested by his speech therapist. went from the 1% for expressive language to the 76%!!!!!! His speech therapist continues to be blown away at the weekly improvement. Recently Dr. G started on an SSRI (Paxil) and once again the improvement is beyond works. Yesterday was reaching for something and I walked into the room he turn to me and said " I want the puzzle book " . I could go on and on with examples but I think I have made this long enough. Don't get me wrong, still has a long way to go but he continues to make steady daily progress. I feel like my son, who was slipping ways, is slowly coming back to me. I just want to encourage anyone who is wondering if this really works. I thank God everyday for my little blessing known as who has taught me so much and I'm so grateful for Dr. Goldberg and all that he is doing to help our children. If your story is anything close to ours, don't give up. You can find help and is a great place to start. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2002 Report Share Posted June 8, 2002 Thanks Otilia! We just came back from LA and waiting for our test results. Your story is just what we needed!!! Our story Hello List Mates, This note is long overdue, but time has a way of slipping away from me. I just want to provide some words of encouragement for any parents out there that are questioning whether or not to go through the hassle of filling out all of Dr. G's paperwork, being put on a very long waiting list and looking at having a first appointment in 8 or 9 months. The answer is a resounding YES! I too questioned whether taking my son to see Dr. G was the right thing to do. I had consulted with several doctors and spent a lot of money for very little result. I was making special foods and ordering supplements on a weekly basis. I spent countless hours on the computer reading about Autism and surfing the web to find the latest and greatest treatments. Let me start from the beginning. was a sickly little boy from about six weeks of age when he had his first ear infection. At the age of 6 months we had tubes put into 's ears because his ear infections were non-stop. Once the tubes were in things got much better. was happy, sleeping through the night and just much happier in general. At about 12 months old came down with a very stubborn ear infection. After about 30 days and 5 different types of antibiotics we finally took him to see an ENT, who was able to stop the infection. Five days after his ears began clearing, had a sever asthma attack which landed him in the emergency room (we were unaware that was prone to Asthma before this). A few days after the Asthma attack I took in to meet his new pediatrician (we had moved in the middle of all of this). The new pediatrician insisted that have his MMR because his previous doctor had not given it to him at his 12-month check-up. I was unsure because was still sick, but the doctor assured me that it was very safe regardless of recent illness. Well, things changed at that point. The child that was so demanding began to change. He went from wanting to be held all of the time to sitting alone without making much noise. He looked off into space and didn't turn his head when called. He was slipping away. I did my best to ignore that anything was going wrong with my son, but family soon brought me to the reality that something was not right. Finally I took to see a developmental pediatrician who informed me that my son had PDD or Autism. I decided to do everything I could to help my son have a normal life. After much reading and networking I found Dr. Goldberg. We filled out all of the paperwork and sent it back hoping to have an appointment in 8 months. To my surprise we received a call asking us if we wanted to take a cancellation in 4 weeks. Of course we agreed and I proceeded to get all of the blood work done and have as much information as possible for our consultation. After reviewing some of the lab work Dr. Goldberg felt that had a viral issue and put him in Valtrex. At first he was as hyper as could be. The kid would bounce up and down in bed and could not get to sleep before 10 or 11 (usually he fell asleep at 8). I called Dr. G's office and asked what to do. I was told that the virus was fighting back and I needed to increase the dosage. When we increased the dosage settled down and WOW what a change. His vocabulary soared and his social interaction improved and best of all he started using the potty (he had just turned 4). My husband and I could not get over the progress that he was making but his teacher was the one who was most impressed. One day she pulled me aside and said, " what are you doing differently, I can't get over 's improvement " . Well the floodgates opened and I told her all about Dr. G. About three months after starting the Valtrex we had re-tested by his speech therapist. went from the 1% for expressive language to the 76%!!!!!! His speech therapist continues to be blown away at the weekly improvement. Recently Dr. G started on an SSRI (Paxil) and once again the improvement is beyond works. Yesterday was reaching for something and I walked into the room he turn to me and said " I want the puzzle book " . I could go on and on with examples but I think I have made this long enough. Don't get me wrong, still has a long way to go but he continues to make steady daily progress. I feel like my son, who was slipping ways, is slowly coming back to me. I just want to encourage anyone who is wondering if this really works. I thank God everyday for my little blessing known as who has taught me so much and I'm so grateful for Dr. Goldberg and all that he is doing to help our children. If your story is anything close to ours, don't give up. You can find help and is a great place to start. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2002 Report Share Posted June 8, 2002 Children have started speaking at 10. Kathy -NNY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2002 Report Share Posted June 8, 2002 Hello Listmates, I just joined this group last week. After reading your story my heart sank- 9 months!? I feel deeply in my heart that my son doesn't have nine months to give if he has a chance at full recovery. From all I've read it seems to me that he is hitting a critical age when it comes to speaking (5 in August). I can see how hard he tries and how frustrated he gets and I am afraid that if we wait too long his brain will not be able to gain back his speech. My wife and I are completing all the paper work over this weekend and will send it on Monday to Dr. G. We are presently doing everything we can for him, ABA, OT, speech, supplements.... I feel very strongly that Dr. G. could have the key to helping Tommy. I just hope we're not too late... Tom Our story Hello List Mates, This note is long overdue, but time has a way of slipping away from me. I just want to provide some words of encouragement for any parents out there that are questioning whether or not to go through the hassle of filling out all of Dr. G's paperwork, being put on a very long waiting list and looking at having a first appointment in 8 or 9 months. The answer is a resounding YES! I too questioned whether taking my son to see Dr. G was the right thing to do. I had consulted with several doctors and spent a lot of money for very little result. I was making special foods and ordering supplements on a weekly basis. I spent countless hours on the computer reading about Autism and surfing the web to find the latest and greatest treatments. Let me start from the beginning. was a sickly little boy from about six weeks of age when he had his first ear infection. At the age of 6 months we had tubes put into 's ears because his ear infections were non-stop. Once the tubes were in things got much better. was happy, sleeping through the night and just much happier in general. At about 12 months old came down with a very stubborn ear infection. After about 30 days and 5 different types of antibiotics we finally took him to see an ENT, who was able to stop the infection. Five days after his ears began clearing, had a sever asthma attack which landed him in the emergency room (we were unaware that was prone to Asthma before this). A few days after the Asthma attack I took in to meet his new pediatrician (we had moved in the middle of all of this). The new pediatrician insisted that have his MMR because his previous doctor had not given it to him at his 12-month check-up. I was unsure because was still sick, but the doctor assured me that it was very safe regardless of recent illness. Well, things changed at that point. The child that was so demanding began to change. He went from wanting to be held all of the time to sitting alone without making much noise. He looked off into space and didn't turn his head when called. He was slipping away. I did my best to ignore that anything was going wrong with my son, but family soon brought me to the reality that something was not right. Finally I took to see a developmental pediatrician who informed me that my son had PDD or Autism. I decided to do everything I could to help my son have a normal life. After much reading and networking I found Dr. Goldberg. We filled out all of the paperwork and sent it back hoping to have an appointment in 8 months. To my surprise we received a call asking us if we wanted to take a cancellation in 4 weeks. Of course we agreed and I proceeded to get all of the blood work done and have as much information as possible for our consultation. After reviewing some of the lab work Dr. Goldberg felt that had a viral issue and put him in Valtrex. At first he was as hyper as could be. The kid would bounce up and down in bed and could not get to sleep before 10 or 11 (usually he fell asleep at 8). I called Dr. G's office and asked what to do. I was told that the virus was fighting back and I needed to increase the dosage. When we increased the dosage settled down and WOW what a change. His vocabulary soared and his social interaction improved and best of all he started using the potty (he had just turned 4). My husband and I could not get over the progress that he was making but his teacher was the one who was most impressed. One day she pulled me aside and said, " what are you doing differently, I can't get over 's improvement " . Well the floodgates opened and I told her all about Dr. G. About three months after starting the Valtrex we had re-tested by his speech therapist. went from the 1% for expressive language to the 76%!!!!!! His speech therapist continues to be blown away at the weekly improvement. Recently Dr. G started on an SSRI (Paxil) and once again the improvement is beyond works. Yesterday was reaching for something and I walked into the room he turn to me and said " I want the puzzle book " . I could go on and on with examples but I think I have made this long enough. Don't get me wrong, still has a long way to go but he continues to make steady daily progress. I feel like my son, who was slipping ways, is slowly coming back to me. I just want to encourage anyone who is wondering if this really works. I thank God everyday for my little blessing known as who has taught me so much and I'm so grateful for Dr. Goldberg and all that he is doing to help our children. If your story is anything close to ours, don't give up. You can find help and is a great place to start. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2002 Report Share Posted June 9, 2002 Hi Tom, As soon as you get your forms filled in and book an appointment you can request to go on the cancellation list. I have spoken to three people recently who all got in within two months due to cancellations. The shorter the notice you need, the quicker you can get in. You can have all your bloodwork done at Dr.G's. Our story > > > Hello List Mates, > > This note is long overdue, but time has a way of slipping away > from me. > > I just want to provide some words of encouragement for any > parents out there that are questioning whether or not to go > through the hassle of filling out all of Dr. G's paperwork, being > put on a very long waiting list and looking at having a first > appointment in 8 or 9 months. The answer is a resounding YES! > > I too questioned whether taking my son to see Dr. G was the > right thing to do. I had consulted with several doctors and spent > a lot of money for very little result. I was making special foods > and ordering supplements on a weekly basis. I spent countless > hours on the computer reading about Autism and surfing the > web to find the latest and greatest treatments. > > Let me start from the beginning. was a sickly little boy > from about six weeks of age when he had his first ear infection. > At the age of 6 months we had tubes put into 's ears > because his ear infections were non-stop. Once the tubes were > in things got much better. was happy, sleeping through > the night and just much happier in general. At about 12 months > old came down with a very stubborn ear infection. After > about 30 days and 5 different types of antibiotics we finally took > him to see an ENT, who was able to stop the infection. Five days > after his ears began clearing, had a sever asthma attack > which landed him in the emergency room (we were unaware that > was prone to Asthma before this). A few days after the > Asthma attack I took in to meet his new pediatrician (we > had moved in the middle of all of this). The new pediatrician > insisted that have his MMR because his previous doctor > had not given it to him at his 12-month check-up. I was unsure > because was still sick, but the doctor assured me that it > was very safe regardless of recent illness. Well, things changed > at that point. The child that was so demanding began to change. > He went from wanting to be held all of the time to sitting alone > without making much noise. He looked off into space and didn't > turn his head when called. He was slipping away. > > I did my best to ignore that anything was going wrong with my > son, but family soon brought me to the reality that something > was not right. Finally I took to see a developmental > pediatrician who informed me that my son had PDD or Autism. > > I decided to do everything I could to help my son have a normal > life. After much reading and networking I found Dr. Goldberg. > We filled out all of the paperwork and sent it back hoping to have > an appointment in 8 months. To my surprise we received a call > asking us if we wanted to take a cancellation in 4 weeks. Of > course we agreed and I proceeded to get all of the blood work > done and have as much information as possible for our > consultation. > > After reviewing some of the lab work Dr. Goldberg felt that > had a viral issue and put him in Valtrex. At first he was as hyper > as could be. The kid would bounce up and down in bed and > could not get to sleep before 10 or 11 (usually he fell asleep at > 8). I called Dr. G's office and asked what to do. I was told > that > the virus was fighting back and I needed to increase the dosage. > When we increased the dosage settled down and WOW > what a change. His vocabulary soared and his social interaction > improved and best of all he started using the potty (he had just > turned 4). My husband and I could not get over the progress that > he was making but his teacher was the one who was most > impressed. One day she pulled me aside and said, " what are > you doing differently, I can't get over 's > improvement " . Well > the floodgates opened and I told her all about Dr. G. > > About three months after starting the Valtrex we had > re-tested by his speech therapist. went from the 1% for > expressive language to the 76%!!!!!! His speech therapist > continues to be blown away at the weekly improvement. > Recently Dr. G started on an SSRI (Paxil) and once again > the improvement is beyond works. Yesterday was > reaching for something and I walked into the room he turn to me > and said " I want the puzzle book " . > > I could go on and on with examples but I think I have made this > long enough. Don't get me wrong, still has a long way to > go but he continues to make steady daily progress. I feel like my > son, who was slipping ways, is slowly coming back to me. > I just want to encourage anyone who is wondering if this really > works. I thank God everyday for my little blessing known as > who has taught me so much and I'm so grateful for Dr. > Goldberg and all that he is doing to help our children. If your > story is anything close to ours, don't give up. You can find > help > and is a great place to start. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2002 Report Share Posted June 10, 2002 <<From all I've read it seems to me that he is hitting a critical age when it comes to speaking (5 in August).>> Tom, I just want to tell you NOT to get discouraged by your son's age. My son is 7 years old and has improved a great deal since he was 5. I had also heard about that " window of opportunity " closing after the age of 5. But, again, let me reassure you, my son has improved since the age of 5 and continues to improve daily. NEVER GIVE UP! God bless you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2002 Report Share Posted June 10, 2002 Hi, Do not be so frustrated. I've never heard about anyone waiting that long. There are always cancellations and it took us only two month (or even less) since we sent out the papers. Be sure to mention that you'd like to take cancellation Good luck Regina nikkitom <nikkitom@...> wrote: Hello Listmates, I just joined this group last week. After reading your story my heart sank- 9 months!? I feel deeply in my heart that my son doesn't have nine months to give if he has a chance at full recovery. From all I've read it seems to me that he is hitting a critical age when it comes to speaking (5 in August). I can see how hard he tries and how frustrated he gets and I am afraid that if we wait too long his brain will not be able to gain back his speech. My wife and I are completing all the paper work over this weekend and will send it on Monday to Dr. G. We are presently doing everything we can for him, ABA, OT, speech, supplements.... I feel very strongly that Dr. G. could have the key to helping Tommy. I just hope we're not too late... Tom Our story Hello List Mates, This note is long overdue, but time has a way of slipping away from me. I just want to provide some words of encouragement for any parents out there that are questioning whether or not to go through the hassle of filling out all of Dr. G's paperwork, being put on a very long waiting list and looking at having a first appointment in 8 or 9 months. The answer is a resounding YES! I too questioned whether taking my son to see Dr. G was the right thing to do. I had consulted with several doctors and spent a lot of money for very little result. I was making special foods and ordering supplements on a weekly basis. I spent countless hours on the computer reading about Autism and surfing the web to find the latest and greatest treatments. Let me start from the beginning. was a sickly little boy from about six weeks of age when he had his first ear infection. At the age of 6 months we had tubes put into 's ears because his ear infections were non-stop. Once the tubes were in things got much better. was happy, sleeping through the night and just much happier in general. At about 12 months old came down with a very stubborn ear infection. After about 30 days and 5 different types of antibiotics we finally took him to see an ENT, who was able to stop the infection. Five days after his ears began clearing, had a sever asthma attack which landed him in the emergency room (we were unaware that was prone to Asthma before this). A few days after the Asthma attack I took in to meet his new pediatrician (we had moved in the middle of all of this). The new pediatrician insisted that have his MMR because his previous doctor had not given it to him at his 12-month check-up. I was unsure because was still sick, but the doctor assured me that it was very safe regardless of recent illness. Well, things changed at that point. The child that was so demanding began to change. He went from wanting to be held all of the time to sitting alone without making much noise. He looked off into space and didn't turn his head when called. He was slipping away. I did my best to ignore that anything was going wrong with my son, but family soon brought me to the reality that something was not right. Finally I took to see a developmental pediatrician who informed me that my son had PDD or Autism. I decided to do everything I could to help my son have a normal life. After much reading and networking I found Dr. Goldberg. We filled out all of the paperwork and sent it back hoping to have an appointment in 8 months. To my surprise we received a call asking us if we wanted to take a cancellation in 4 weeks. Of course we agreed and I proceeded to get all of the blood work done and have as much information as possible for our consultation. After reviewing some of the lab work Dr. Goldberg felt that had a viral issue and put him in Valtrex. At first he was as hyper as could be. The kid would bounce up and down in bed and could not get to sleep before 10 or 11 (usually he fell asleep at 8). I called Dr. G's office and asked what to do. I was told that the virus was fighting back and I needed to increase the dosage. When we increased the dosage settled down and WOW what a change. His vocabulary soared and his social interaction improved and best of all he started using the potty (he had just turned 4). My husband and I could not get over the progress that he was making but his teacher was the one who was most impressed. One day she pulled me aside and said, " what are you doing differently, I can't get over 's improvement " . Well the floodgates opened and I told her all about Dr. G. About three months after starting the Valtrex we had re-tested by his speech therapist. went from the 1% for expressive language to the 76%!!!!!! His speech therapist continues to be blown away at the weekly improvement. Recently Dr. G started on an SSRI (Paxil) and once again the improvement is beyond works. Yesterday was reaching for something and I walked into the room he turn to me and said " I want the puzzle book " . I could go on and on with examples but I think I have made this long enough. Don't get me wrong, still has a long way to go but he continues to make steady daily progress. I feel like my son, who was slipping ways, is slowly coming back to me. I just want to encourage anyone who is wondering if this really works. I thank God everyday for my little blessing known as who has taught me so much and I'm so grateful for Dr. Goldberg and all that he is doing to help our children. If your story is anything close to ours, don't give up. You can find help and is a great place to start. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2002 Report Share Posted June 11, 2002 Tom, Try not to stress... remember, you may well get in earlier on a cancellation. I want to tell you, too, that I recently met the mother of a child who started with Dr. G at about age 9. She has been with Dr. Goldberg for around two years and is now starting to talk. Don't despair. Age 5 is not over the hill. Also, remember that even if a child responds well to Dr. Goldberg's treatment plan, the brain still has to develop and go through all of the developmental phases it has missed (it's not an overnight miracle). Dr. G once told me that on average, it takes him about two years to get the brain functioning as he wants it to. That doesn't mean that nothing happens for two years... we saw MAJOR improvement after a short time on the first medicine (for us it was Nizoral). We have seen incredible improvements in our own child since our first visit in January of this year... we still have a way to go, but we are thrilled with the progress. So are our local doctors. Hang in there. Caroline >On 6/8/02 8:02 AM, " nikkitom " <nikkitom@...> wrote: > Hello Listmates, > > I just joined this group last week. > After reading your story my heart sank- 9 months!? I feel deeply in my heart > that my son doesn't have nine months to give if he has a chance at full > recovery. From all I've read it seems to me that he is hitting a critical age > when it comes to speaking (5 in August). > I can see how hard he tries and how frustrated he gets and I am afraid that if > we wait too long his brain will not be able to gain back his speech. > > My wife and I are completing all the paper work over this weekend and will > send it on Monday to Dr. G. We are presently doing everything we can for him, > ABA, OT, speech, supplements.... I feel very strongly that Dr. G. could have > the key to helping Tommy. > I just hope we're not too late... > > > Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2002 Report Share Posted June 11, 2002 Hi Tom, If you haven't already started dietary intervention, that is something you can do now, while you are waiting for your appointment. Look at the Do's and Dont's of Diet on Dr. G's website. Good luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2002 Report Share Posted June 11, 2002 what is Dr. G's website address? Re: Our story Hi Tom, If you haven't already started dietary intervention, that is something you can do now, while you are waiting for your appointment. Look at the Do's and Dont's of Diet on Dr. G's website. Good luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2002 Report Share Posted June 11, 2002 www.neuroimunedr.com. Do not forget to check section Regina Chuck Loy <charlesloy@...> wrote: what is Dr. G's website address? Re: Our story Hi Tom, If you haven't already started dietary intervention, that is something you can do now, while you are waiting for your appointment. Look at the Do's and Dont's of Diet on Dr. G's website. Good luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2002 Report Share Posted June 11, 2002 Dr. G's website: www.neuroimmunedr.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2002 Report Share Posted June 12, 2002 Thank you all for your information and supportive words. My wife and I have been working through this mostly on our own for so long (over 2 years) that we forget at times that their are others out there like us. The strain on our whole family is incredible, and the financial burden is really taking it's toll. I'm sure I'm stating nothing that hasn't been said before. Anyway, Thank you Tom Re: Our story Hi Tom, If you haven't already started dietary intervention, that is something you can do now, while you are waiting for your appointment. Look at the Do's and Dont's of Diet on Dr. G's website. Good luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2002 Report Share Posted June 12, 2002 I found the website, but I did not see the diet anywhere. I would like to see what the diet looks like. Is there somewhere I can find the protocol for the way Dr. G treats these kids. I have a dr willing to look at it. Thanks Melyssa Re: Our story Hi Tom, If you haven't already started dietary intervention, that is something you can do now, while you are waiting for your appointment. Look at the Do's and Dont's of Diet on Dr. G's website. Good luck! Quote Link to comment Share on other sites More sharing options...
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