Guest guest Posted June 9, 2002 Report Share Posted June 9, 2002 Tom, After all your paperwork is in, call Laurie (the office manager) and she can put you on the cancellation list. My son started with Dr. G just before his 5th b-day. We were doing almost everything you were doing. Most of the stuff we did was so we wouldn't have guilt later, because I never thought my son could be normal. He was so bizarre when he was the same age as yours. As you know, my son is recovered now. This recovery takes time. My kid was almost there in third grade, but not completely on his own until fifth grade. You are not too late. Just keep doing what you are doing. After Dr. G, you will see the ABA working so much faster. You just have to use every spare moment to work. For us summer time was our big work time. When other kids were playing, we were working while we played. My kid always gained in the summer when normal kids lost what they learned at school over the summer months. Educational computer games made by Edmark were wonderful because they are all linguistically based. So when your kid is doing Millie's Math House, he is also learning math and language. My favorite game is still Thinking Things. The computer was just another therapist in our house, one I didn't have to pay or encourage him to work with. A lot of our kids love computer, so use it. started on it when he was two. Use the things they love to help them succeed. Maurice once told me that. Physical things were very difficult for when he was young. So we would set up obstacle course where his reward was computer at the last station. I too always felt that sense of urgency because Kindergarten was coming and I felt I needed to have him all done before school started. But it didn't happen. That sense of urgency is important to their recovery, because it makes you work harder at ABA. But remember they have to be kids too. With my son I had so many people coming in and out of my house to help him, there were times I cancelled everyone for a week, just because I needed to be mommy and not his therapist. Can you delay Kindergarten another year? It is best if he is the oldest and not the youngest in school. This also gives you more time for Dr. G and ABA to work. Of course you worry constantly and are afraid that yours will never make it. Then one day after time you start to relax more, because even though you are not there yet, you know he will be okay. We also did supplements, OT, Speech and ABA in the beginning. But in time, all we needed to be doing is Dr. G and ABA to catch him up. Diet, lots of water ( he didn't drink much) and exercise were key for . For some reason in the early years, he was always better in the summer and after swimming. OT was good because he was interacting with other adults and exercising. Our kids don't move like other kids because they are ill. But the same can be accomplished at a pool or playing on equipment with them at a park. You have to make them interact with stuff around them and start moving like other kids. Some OT people are better at this than us, and it is a scheduled time so we do it. Just keep talking to him, whether or not he gives you any indication that he understands you. (This was the hardest thing for me to do, because I felt I was talking to myself and got no reaction from ) I was not until after he was better that I realized he had understood me even though he never showed it. We will all be there to help you. You are not alone. I felt so scared and completely alone when we went through this. I'll be gone until Thurs, but call after then if you need to talk. Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 Hi Everyone - I made a mistake when I posted this - sorry! I intended this note to go to and not the whole group. Sorry for the confustion! - if you could respond to this either to me personally or via web, I'd appreciate it! > > Hi - I have an autistic son and have been doing the nids protocol with Dr for 3 years now. I love to read your posts on the nids board - they are always so encouraging and I learn so much from them! When I read your description of your son from 18 months ago, I felt like you were describing my son in so many ways! I think you said that your son suffered seizures, however, and my son doesn't (he had a clear EEG when he was 2). Were you suggesting that anti-seizure meds would be helpful even if you didn't have seizures? > > We have an appointment with Dr next week and I wondered if you minded sharing with me what all you have done with your son so I could talk with Dr about doing some of those things. I know you do high dose probiotics, but I don't know how much is a high dose and which brand do you use? I also remember you do ibuprofen therapy for inflamation, but again I don't know how much you do there. > > My son is 7 now and I really hoped we would be further down the 'recovery road' by now. When you talked about your son wandering around the house not knowing what to do, that is so my son and I hate that nothing really brings him pleasure except stimming on rewinding the video over and over! > > I hope you don't mind me emailing you, but from the tone of your message posts, I figured you'd be glad to help. Thank you for your encouragement! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 No problem JR From: Seattlejg@... Date: Mon, 3 Aug 2009 13:11:42 +0000 Subject: Re: Your son's recovery Hi Everyone - I made a mistake when I posted this - sorry! I intended this note to go to and not the whole group. Sorry for the confustion! - if you could respond to this either to me personally or via web, I'd appreciate it! > > Hi - I have an autistic son and have been doing the nids protocol with Dr for 3 years now. I love to read your posts on the nids board - they are always so encouraging and I learn so much from them! When I read your description of your son from 18 months ago, I felt like you were describing my son in so many ways! I think you said that your son suffered seizures, however, and my son doesn't (he had a clear EEG when he was 2). Were you suggesting that anti-seizure meds would be helpful even if you didn't have seizures? > > We have an appointment with Dr next week and I wondered if you minded sharing with me what all you have done with your son so I could talk with Dr about doing some of those things. I know you do high dose probiotics, but I don't know how much is a high dose and which brand do you use? I also remember you do ibuprofen therapy for inflamation, but again I don't know how much you do there. > > My son is 7 now and I really hoped we would be further down the 'recovery road' by now. When you talked about your son wandering around the house not knowing what to do, that is so my son and I hate that nothing really brings him pleasure except stimming on rewinding the video over and over! > > I hope you don't mind me emailing you, but from the tone of your message posts, I figured you'd be glad to help. Thank you for your encouragement! > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.