Guest guest Posted July 8, 2002 Report Share Posted July 8, 2002 Lori, If you are looking for peer reviewed publications directly addressing , I don't think you will find any. However, there are abundant articles supporting the reasoning of the hypothesis. The studies being done by Dr. Vijendra Singh have been particularly interesting to me. I had the opportunity to hear both Dr. Singh and Dr. Wakefield speak in Des Moines, and I was surprised how much both of their work tied into when you really listened to all they had to say. I am not the researcher some on this list are, but I know there are good supporting articles out there. We too went through having to " persuade " our pediatrician to support us in going to see Dr. Goldberg. I brought him information printed off the website, as well as the new patient information I had received from Dr. Goldberg's office. It was not that he was against the ideas, but it was completely new to him. Thankfully our local pediatrician was open-minded enough to call Dr. Goldberg's office and speak with him. That conversation was very helpful in removing the doubts of our pediatrician and, although to my knowledge it has not changed his own practice, he has been very supportive to date about ordering tests and supporting us in our decision to pursue treatment. It's hard to argue with what makes sense. may not be mainstream medicine to date, which sometimes makes it difficult. However I have never had Dr. Goldberg put my child on a medication just because it was part of the " protocol. " He has always been able to give me sound, logical reasons why initiating a particular medication was necessary for my child. At this point in my child's treatment, my son's teachers and therapists can tell if his medication is " off. " For him, it truly makes a difference. Unfortunately, we live in a time when many doctors are afraid to treat our children in any way. Rather than look into logical possibilities, they hide behind the fear of malpractice. An unfortunate side-effect of the world we live in...... Just my thoughts, Sharon Unlocking Autism's Wings for Little Angels Program " Helping Those with Autism Soar " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2002 Report Share Posted July 9, 2002 Lori Check Dr Goldberg's website www.neuroimmunedr.com and the website, www.nids.net - many of Dr Goldberg's articles have peer reviewed citations all supportng the hypothesis in some way. The hypothesis has 62 peer reviewed citations. best wishes Peer Reviewed Publications Hi. I am new to and looking for some information...I am surrounded by friends and colleagues - Doctors - that are skeptical of the theory and was wondering if anyone can direct me to some Peer Reviewed articles that Dr. Goldberg has had published. If I could get some of these people on board, my life, and conscience would be easier to manage. I am quite certain that has the answers that I have been looking for, but some personal and professional support from these very conservative and cautious loved ones would be most helpful. Thank you in advance for any information that you can send my way. Yours very truly, Lori , Mom to Hudson, age 3 1/2, PDD and Holden 14 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2002 Report Share Posted July 9, 2002 Sharon You are absolutely right. We live in a time where parents are more knowledgeable in medical issues concerning their child than the local ped. I always tell parents to keep looking till they find a ped. who is willing to read the info you pass on and listen to your concerns. Aut2BMiracles@... wrote: >Lori, > >If you are looking for peer reviewed publications directly addressing , I >don't think you will find any. However, there are abundant articles >supporting the reasoning of the hypothesis. The studies being done by >Dr. Vijendra Singh have been particularly interesting to me. I had the >opportunity to hear both Dr. Singh and Dr. Wakefield speak in Des Moines, and >I was surprised how much both of their work tied into when you really >listened to all they had to say. I am not the researcher some on this list >are, but I know there are good supporting articles out there. > >We too went through having to " persuade " our pediatrician to support us in >going to see Dr. Goldberg. I brought him information printed off the >website, as well as the new patient information I had received from Dr. >Goldberg's office. It was not that he was against the ideas, but it >was completely new to him. Thankfully our local pediatrician was open-minded >enough to call Dr. Goldberg's office and speak with him. That conversation >was very helpful in removing the doubts of our pediatrician and, although to >my knowledge it has not changed his own practice, he has been very supportive >to date about ordering tests and supporting us in our decision to pursue >treatment. It's hard to argue with what makes sense. > > may not be mainstream medicine to date, which sometimes makes it >difficult. However I have never had Dr. Goldberg put my child on a >medication just because it was part of the " protocol. " He has always been >able to give me sound, logical reasons why initiating a particular medication >was necessary for my child. At this point in my child's treatment, my son's >teachers and therapists can tell if his medication is " off. " For him, it >truly makes a difference. > >Unfortunately, we live in a time when many doctors are afraid to treat our >children in any way. Rather than look into logical possibilities, they hide >behind the fear of malpractice. An unfortunate side-effect of the world we >live in...... > >Just my thoughts, > >Sharon > >Unlocking Autism's >Wings for Little Angels Program > " Helping Those with Autism Soar " > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2002 Report Share Posted July 9, 2002 Lori- That is a really good question. I know that he backs up the theories but has not published the findings in any peer reviewed journal. I have been told that the stuff he does is cutting edge so there is no real research, just what success he has had in his practice. Shellet --- Lori <LB@...> wrote: > Hi. > > I am new to and looking for some > information...I am surrounded by > friends and colleagues - Doctors - that are > skeptical of the theory > and was wondering if anyone can direct me to some > Peer Reviewed articles > that Dr. Goldberg has had published. If I could get > some of these people on > board, my life, and conscience would be easier to > manage. I am quite > certain that has the answers that I have been > looking for, but some > personal and professional support from these very > conservative and cautious > loved ones would be most helpful. Thank you in > advance for any information > that you can send my way. > > Yours very truly, > > > Lori , > Mom to Hudson, age 3 1/2, PDD and Holden 14 months > > > [Non-text portions of this message have been > removed] > > ===== Bell __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2002 Report Share Posted July 10, 2002 Lori: For every article you find that supports the theory you can probally find one that contradicts it. I am in the same position as you and have an appt to see Dr. G soon. If you truly believe that his protocol fits your child you have to go for it regardless of what the people around you think. This is the first group that has given true testimony about full recovery and given me renewed hope about finding a solution for my child. Sure it is costly to see him etc. but the way I look at it I have wasted more money on the doctors etc. then what it will cost to see if Dr. G can help. I give this guy credit, he is the first person I have known to stand up and say I think I can help your child. Go for it. Peer Reviewed Publications Hi. I am new to and looking for some information...I am surrounded by friends and colleagues - Doctors - that are skeptical of the theory and was wondering if anyone can direct me to some Peer Reviewed articles that Dr. Goldberg has had published. If I could get some of these people on board, my life, and conscience would be easier to manage. I am quite certain that has the answers that I have been looking for, but some personal and professional support from these very conservative and cautious loved ones would be most helpful. Thank you in advance for any information that you can send my way. Yours very truly, Lori , Mom to Hudson, age 3 1/2, PDD and Holden 14 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2002 Report Share Posted July 10, 2002 Lori, I can't help you on the peer reviewed publications, but just wanted to comment that if you decide to do " the diet " (see Dr. Goldberg's website... article called " The Do's and Don't's of Diet " ), you may want to start Holden on it, too. We started our " normal " toddler on it at 12 months (he is now 24 months) when we realized we might be able to prevent problems before they started by doing so. When I took him in for his 2 year checkup and we were looking at his growth curve, his pediatrician pointed at the dramatic upward change on the growth chart and said " Is this where you took him off of milk based formula? " . I hadn't ever thought about that before...actually, he never had milk formula, but I was drinking milk when I nursed him. We weaned him to soy formula, and at that point on his chart he takes off. Maybe coincidence, maybe not. I have been very fortunate to have a pediatrician and another specialist who are very excited about Dr. Goldberg's work. It has spoken for itself here, as my PDD son jumped from being consistently at the 80% for gross motor skills from age 1 to age 6 (evaluated by the same person annually), then amazingly to the 98% after 12 months on the diet and 6 months on the other meds as well (we did the diet for 6 months before seeing Dr. G). My son also became the first child ever in his pediatric specialist's office to gain reflexes after not having them. This is a specialist who treats tons of kids with CP, and she was so impressed that she called Dr. Goldberg herself and had a great conversation. These are just two of the wonderful changes we have seen in our son. Another is that his white blood cells (consistently low) look like they are moving up toward normal. I mentioned these things because these are measurable things that are not as subjective as the autism part, which we have also seen fantastic improvements in. Anyway, hang in there... keep asking around. You might even want to call around to some local pediatricians and ask if any of them have patients who are seeing Dr. Goldberg. Then maybe your son's Dr. could talk to them and get an inside scoop. I have been amazed to find 5 people in my medium sized town of Kokomo, IN who have taken their children to Dr. Goldberg. Another great resource to share is the video set. That's all... hope I didn't bore you. Take care and best all luck. We're all rooting for each other. Caroline > > Peer Reviewed Publications > > > Hi. > > I am new to and looking for some information...I am surrounded by > friends and colleagues - Doctors - that are skeptical of the theory > and was wondering if anyone can direct me to some Peer Reviewed articles > that Dr. Goldberg has had published. If I could get some of these people on > board, my life, and conscience would be easier to manage. I am quite > certain that has the answers that I have been looking for, but some > personal and professional support from these very conservative and cautious > loved ones would be most helpful. Thank you in advance for any information > that you can send my way. > > Yours very truly, > > > Lori , > Mom to Hudson, age 3 1/2, PDD and Holden 14 months > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 Thanks Candi for you kind words of wisdom and encouragement. I am having a very hard time with my ped and really want him on board to monitor Hudson's health and order the bloodwork. Being Canadian, it will cost us a fortune if we have to pay for it all ourselves in US$. I also needed to make sure that these theories were backed up by research and not just something that sounds good. I don't trust my instincts any more since I didn't even think there was anything wrong with my son in the first place. This is all very emotional stuff and if I am going to seriously jeopardize my families financial future I needed some concrete research and evidence. I am satisfied with what I have read and am very grateful to everyone who forwarded me sound medical evidence as well as parent testimonies. Lori Peer Reviewed PUBLICATIONS LORI.. I was in the same position you are in about one year ago ...we took all the info to two local doctors we use and trust ...our son's doctor and our family allergist...both we have used over 11years...one doctor was great and fully supportive and still is ...he does all the blood work,helped me learn to give a shot and writes any letters i need...the other doctor was not supportive and she did not agree with much in the nids theory...however we still use her and she asks about Steel and is always giving me medical reading about ASD. My son is a very different boy than one year ago ...we still have a way to go but baby we are thrilled at the progress he has made with DR.GOLDBERG. we are heading back out to california in two weeks to see the good doctor...we still get some grief from people that think we should be chelating sorry my spelling is bad....but we only do what the doctor says .....i agree with steve if you believe go for it .....it was the best thing we did for our son .....i trust dr goldberg with my son as if it was his son .....take care candi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 Thanks Caroline for having the insight to advise me on my 1 year old. I had been looking around and asking alot of people what to do about his diet for so long and no one seemed to take it very seriously. I did about 6 weeks ago, start both my boys on the GFCF diet and have noticed huge changes in my 3 1/2 year old. I am holding my breath about my baby...He seems fine, but so did Hudson at this age. Thank you for your encouragement and taking the time to think about my baby as well. The support here from parents is wonderful and I am so grateful to everyone for caring about my children as well as well as there own. Sincerely, Lori Peer Reviewed Publications > > > Hi. > > I am new to and looking for some information...I am surrounded by > friends and colleagues - Doctors - that are skeptical of the theory > and was wondering if anyone can direct me to some Peer Reviewed articles > that Dr. Goldberg has had published. If I could get some of these people on > board, my life, and conscience would be easier to manage. I am quite > certain that has the answers that I have been looking for, but some > personal and professional support from these very conservative and cautious > loved ones would be most helpful. Thank you in advance for any information > that you can send my way. > > Yours very truly, > > > Lori , > Mom to Hudson, age 3 1/2, PDD and Holden 14 months > Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 You are right Steve. But it eases my mind and increases my hope when I know there is concrete research done by scientists/doctors that support the theories. It takes away the emotion so that I can concentrate on the hard core biology of what is wrong and have a greater understanding of what needs to be done. It is so very hard when we are literally making life and death decisions for our children. I need to know facts and am satisfied that has enough research behind it to give it credibility. Thanks for taking the time to answer my post. Yours truly, Lori Peer Reviewed Publications Hi. I am new to and looking for some information...I am surrounded by friends and colleagues - Doctors - that are skeptical of the theory and was wondering if anyone can direct me to some Peer Reviewed articles that Dr. Goldberg has had published. If I could get some of these people on board, my life, and conscience would be easier to manage. I am quite certain that has the answers that I have been looking for, but some personal and professional support from these very conservative and cautious loved ones would be most helpful. Thank you in advance for any information that you can send my way. Yours very truly, Lori , Mom to Hudson, age 3 1/2, PDD and Holden 14 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 Thanks . This is the kind of stuff that I want to hear...But how do you know this? I didn't see any peer reviewed citations when I read the articles. Where should I be looking? Lori > Peer Reviewed Publications > > > Hi. > > I am new to and looking for some information...I am surrounded by > friends and colleagues - Doctors - that are skeptical of the theory > and was wondering if anyone can direct me to some Peer Reviewed articles > that Dr. Goldberg has had published. If I could get some of > these people on > board, my life, and conscience would be easier to manage. I am quite > certain that has the answers that I have been looking for, but some > personal and professional support from these very conservative > and cautious > loved ones would be most helpful. Thank you in advance for any > information > that you can send my way. > > Yours very truly, > > > Lori , > Mom to Hudson, age 3 1/2, PDD and Holden 14 months > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 Sharon, Thanks for replying to my post. The thing that I like most about the theory is that each child is treated individually, not chelated because it is " the next thing " to do on the list. I have been reading some " stuff " by Dr. Singh. Does Dr. Goldberg use this research to base his treatments on? This will all be helpful to get my sons doctors to give me some credibility and help me through this part of our journey. Lori Re: Peer Reviewed Publications Lori, If you are looking for peer reviewed publications directly addressing , I don't think you will find any. However, there are abundant articles supporting the reasoning of the hypothesis. The studies being done by Dr. Vijendra Singh have been particularly interesting to me. I had the opportunity to hear both Dr. Singh and Dr. Wakefield speak in Des Moines, and I was surprised how much both of their work tied into when you really listened to all they had to say. I am not the researcher some on this list are, but I know there are good supporting articles out there. We too went through having to " persuade " our pediatrician to support us in going to see Dr. Goldberg. I brought him information printed off the website, as well as the new patient information I had received from Dr. Goldberg's office. It was not that he was against the ideas, but it was completely new to him. Thankfully our local pediatrician was open-minded enough to call Dr. Goldberg's office and speak with him. That conversation was very helpful in removing the doubts of our pediatrician and, although to my knowledge it has not changed his own practice, he has been very supportive to date about ordering tests and supporting us in our decision to pursue treatment. It's hard to argue with what makes sense. may not be mainstream medicine to date, which sometimes makes it difficult. However I have never had Dr. Goldberg put my child on a medication just because it was part of the " protocol. " He has always been able to give me sound, logical reasons why initiating a particular medication was necessary for my child. At this point in my child's treatment, my son's teachers and therapists can tell if his medication is " off. " For him, it truly makes a difference. Unfortunately, we live in a time when many doctors are afraid to treat our children in any way. Rather than look into logical possibilities, they hide behind the fear of malpractice. An unfortunate side-effect of the world we live in...... Just my thoughts, Sharon Unlocking Autism's Wings for Little Angels Program " Helping Those with Autism Soar " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 Lori, You're right - the citations are not listed on the website versions ...hmmm!! - although the article Autism and the Immune Connection lists in the text many references to peer reviewed research. I do however have a hard copy of the Hypothesis statement - the text of which is exactly as it appears on the website, and also includes the 62 citations I referred to. I'll see if we can get this version with the citations posted. Peer Reviewed Publications > > > Hi. > > I am new to and looking for some information...I am surrounded by > friends and colleagues - Doctors - that are skeptical of the theory > and was wondering if anyone can direct me to some Peer Reviewed articles > that Dr. Goldberg has had published. If I could get some of > these people on > board, my life, and conscience would be easier to manage. I am quite > certain that has the answers that I have been looking for, but some > personal and professional support from these very conservative > and cautious > loved ones would be most helpful. Thank you in advance for any > information > that you can send my way. > > Yours very truly, > > > Lori , > Mom to Hudson, age 3 1/2, PDD and Holden 14 months > > > Quote Link to comment Share on other sites More sharing options...
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