Guest guest Posted June 16, 2002 Report Share Posted June 16, 2002 Kutapressin was the best medication my son ever took. We still think it was the reason he recovered. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 what was it like giving injections? Did you see a difference right away? That is probubly the next step fo rus and my husband does not want to do it. Just thought you could elaborate on it.... --- cwither43@... wrote: > Kutapressin was the best medication my son ever > took. We still think it was > the reason he recovered. > > > ===== Bell __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 Hi , Search Internet, you'd find plenty of information about it. That's what I did, just did not keep any web sites. Regina whcmccain@... wrote: Hi, I am wondering if anyone can send me some information about Kutapressin. My doctor here claims he couldn't find any info about it. I asked my pharmacist and all she could find was a small amount of info in one of her books. I am looking for what kind of a drug it is, what it is normally prescribed for, and contraindications and possible side affects. The stuff normally on the package insert. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2002 Report Share Posted June 17, 2002 Hi , Send me your addy and I'll send you a copy of the insert. whcmccain@... wrote: > Hi, > I am wondering if anyone can send me some information about > Kutapressin. My > doctor here claims he couldn't find any info about it. I asked my > pharmacist > and all she could find was a small amount of info in one of her > books. I am > looking for what kind of a drug it is, what it is normally prescribed > for, > and contraindications and possible side affects. The stuff normally on > the > package insert. Thanks. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2002 Report Share Posted June 18, 2002 Been doing it for 18 months now - for us it was a gradual difference - after a few practices on an orange its ok. First month is toughest when its daily - then foes to 3x per week. He wiggles his butt for a second or two then settles, a slight 'oooo' and its all over in seconds - but mostly laughs/giggles through it. Re: KUTAPRESSIN what was it like giving injections? Did you see a difference right away? That is probubly the next step fo rus and my husband does not want to do it. Just thought you could elaborate on it.... --- cwither43@... wrote: > Kutapressin was the best medication my son ever > took. We still think it was > the reason he recovered. > > > ===== Bell __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2002 Report Share Posted June 18, 2002 Its a porcine liver peptide and amino acid extract, originally used for treating acne vulgaris and other skin diseases to reduce inflammation - eczema's, severe rashes, herpes zoster, etc can also be treated. Marketed by Schwart, Milwaukee and made by Pharmaceuticals, Ill. Kutapressin Hi, I am wondering if anyone can send me some information about Kutapressin. My doctor here claims he couldn't find any info about it. I asked my pharmacist and all she could find was a small amount of info in one of her books. I am looking for what kind of a drug it is, what it is normally prescribed for, and contraindications and possible side affects. The stuff normally on the package insert. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2002 Report Share Posted June 21, 2002 Hi , my son may be starting Kutapressin soon depending on whether or not I can get it over here. I would like to ask you a few questions regarding kutapressin as seeing your post (below) gives us hope. Is your son still taking kutapressin or any other medications on the protocol? How long was your son taking kutapressin before the major changes began? If your son is no longer taking kutapressin how long was he on it altogether? I know this medication is extremely expensive and very difficult for us to get a hold of. But if it is the difference between autism and normal functioning it will be well worth the effort and expense to get it. Thanks Cherie. --- Original Message ----- From: <cwither43@...> < > Sent: Sunday, June 16, 2002 10:28 PM Subject: Re: KUTAPRESSIN > Kutapressin was the best medication my son ever took. We still think it was > the reason he recovered. > > > > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2002 Report Share Posted June 21, 2002 Hi , I think it's wonderful that your son has recovered. We have just started with Dr.G and are just getting going. We have seen improvements since our son has started four weeks ago. He is sleeping through the night (hasn't for two years), receptive language has improved and he has spoken 10 words in the last 2 weeks. That is more than he has said in a year! Would you mind telling me a little bit about your sons starting point to where he is now? I would really appreciate it. Sincerely, Re: KUTAPRESSIN > The injections are much harder for the parent than the child. My son had no > problems with it-we gave it in his thigh and switched thighs each time. > > It took about 2-3 months to notice any changes. > > This is definitely worth trying-best thing we ever did > > > > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2002 Report Share Posted June 23, 2002 Cherie My son no longer takes Kutapressin because he doesn't need it. He took it for a total of probably 2 1/2 years. It was 2-3 months before we began to notice any changes, and then it was continous gradual improvement from that point. Currently, my son only takes a small amount of Celexa a day. there are no residual signs of autism at all Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2002 Report Share Posted June 23, 2002 We started with my son when he was 2. He " recovered " around age 5 or so. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2002 Report Share Posted June 23, 2002 , thank you for your reply. It's great to hear that your son has recovered. It's also good to hear from those who have recovered children every so often to keep hope alive. How old was your son when you started? We often worry that maybe we started too late to expect recovery with our son. Again thanks for your time Cherie. Re: KUTAPRESSIN > Cherie > > My son no longer takes Kutapressin because he doesn't need it. He took it for > a total of probably 2 1/2 years. It was 2-3 months before we began to notice > any changes, and then it was continous gradual improvement from that point. > > Currently, my son only takes a small amount of Celexa a day. there are no > residual signs of autism at all > > > > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2002 Report Share Posted June 23, 2002 , If you don't mind my asking, how much other therapy did your son get--ie ABA hours, floortime, Son-Rise, OT, etc? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2002 Report Share Posted June 24, 2002 Hi , thanks again for your reply. It is always great to hear of children beating autism. I think that starting at 2 and recovering by 5 is using that 'window of opportunity' we all hear about. That is when most recoveries happen but is less encouraging for the one's who start when they are over 5. We'll give it our best shot but I think recovery may be a little out of reach for our boy. But any improvements make it worthwhile. Thanks again Cherie. Re: KUTAPRESSIN > We started with my son when he was 2. He " recovered " around age 5 or so. > > > > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2002 Report Share Posted June 24, 2002 Hi Cherie, There are many people on this list who started with children after the age of five. I know one patient who started at the age of ten and has made tremendous gains For some it was the Kutapressin that made all the difference. On the neuroimmunedr site, in the presentations section there are slides of a patients neurospect results in their late teens who showed improvements after being on the protocol Hang in there. Re: KUTAPRESSIN > > > > We started with my son when he was 2. He " recovered " around age 5 or so. > > > > > > > > > > Responsibility for the content of this message lies strictly with > > the original author, and is not necessarily endorsed by or the > > opinion of the Research Institute. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2002 Report Share Posted June 24, 2002 Thanks , As I say I'm expecting major improvements just thinking recovery may be expecting too much. I just want to be realistic - not so far to fall. We have been on the protocol now for 8 months and are seeing improvements that are definately attributable to protocol. ABA has always given him progress but it was slow and now the progress is speeding up. I agree Dr. Goldberg's protocol is great I don't doubt it at all, but in the young children between 2 - 5 it will give the best results. What happens if the virus (HHV6??) has done permanent damage? And stopping now may prevent further deteriation but not necessarily fix damage already done. Like seizures?? There are cases of viral infection that have done irrepairable harm. But of course you'd want to prevent more from occuring. I'm no doctor, I don't really know, just a parent who doesn't want to get unrealistic hope, but I do want to stop any further damage/regression if there is a low grade smouldering virus in my boy. Cherie Re: KUTAPRESSIN > > > > > > > We started with my son when he was 2. He " recovered " around age 5 or so. > > > > > > > > > > > > > > > Responsibility for the content of this message lies strictly with > > > the original author, and is not necessarily endorsed by or the > > > opinion of the Research Institute. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2002 Report Share Posted June 24, 2002 We did ABA for about 1 year, about 30 hours a week, and were never really happy with it (I don't want to get into an ABA debate again). We then used floor time, as well as the approach used by the Koegel's in Santa Barbara. We stayed with that for 1 1/2 to 2 years. We had much better success with those therapies because we explored the emotional and interactive side of our son, which taught him skills he could then use to learn on his own, which he began to do. That is what the Koegel's teach. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2002 Report Share Posted June 24, 2002 To group: I happen to be one of those parents who didn't hear about Dr. Goldberg and his medical treatment plan until my daughter was nearly 7 years old. She has been medicated thru Protocol since March 2000. Although she is no longer in any pain, the progress is in fact, very slow. I haven't given up hope, nor do I feel that she won't make a full recovery. I believe once the body is given a chance to function at full capacity...the possibilities are endless. Although it is time-consuming and much patience is required, it can still be accomplished. I'd like to hear from any parents who have found the protocol when their child was over 5 years old. Thank you, Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2002 Report Share Posted June 24, 2002 Hi Cherie, Good points, I wish you and your family the best possible outcome. Re: KUTAPRESSIN > > > > > > > > > > We started with my son when he was 2. He " recovered " around age 5 or > so. > > > > > > > > > > > > > > > > > > > > Responsibility for the content of this message lies strictly with > > > > the original author, and is not necessarily endorsed by or the > > > > opinion of the Research Institute. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2002 Report Share Posted June 24, 2002 How do I get in touch with the Koegel's? Can you tell me more about their approach? My son gets floortime, which has been excellent, but I'd like to explore additional therapies. Thanks! Donna Re: KUTAPRESSIN We did ABA for about 1 year, about 30 hours a week, and were never really happy with it (I don't want to get into an ABA debate again). We then used floor time, as well as the approach used by the Koegel's in Santa Barbara. We stayed with that for 1 1/2 to 2 years. We had much better success with those therapies because we explored the emotional and interactive side of our son, which taught him skills he could then use to learn on his own, which he began to do. That is what the Koegel's teach. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Hi, Is Kutapressin usually give with Dr. Goldberg's protocol? Why would you need to give Kutapressin along with an antiviral? Thanks for any input! Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2002 Report Share Posted July 22, 2002 Gretchen Heinrich wrote: > Hi, > Is Kutapressin usually give with Dr. Goldberg's protocol? I don't know about " usually " , but I know it is given when necessary. > Why would you > need to give Kutapressin along with an antiviral? I don' t know, but I can tell you that when we tried to wean my son off the anti-viral he became sick within days and was just a mess (the " old days " revisited!) is still on Famvir (anti-viral) and Kutapressin and doing just great. I hope someone else can answer your above question as to " why " . > > Thanks for any input! > Gretchen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 Kutapressin is a older anti-viral (comprised of peptides and amino acids) that is used in the treatment of acne vulgaris - in " enhancing the resolution of inflammation and edema " . It has also been useful for the same in Herpes Zoster, eczema and other dermatitis conditions. It has also been reported that it is effective against HHV6 invitro. Dr G says it assists oral anti-viral in reducing the immune response to viruses in patients. Not always given - depends on the need. Haven't tried weaning our son of it just yet. Hope this helps, Re: Kutapressin Gretchen Heinrich wrote: > Hi, > Is Kutapressin usually give with Dr. Goldberg's protocol? I don't know about " usually " , but I know it is given when necessary. > Why would you > need to give Kutapressin along with an antiviral? I don' t know, but I can tell you that when we tried to wean my son off the anti-viral he became sick within days and was just a mess (the " old days " revisited!) is still on Famvir (anti-viral) and Kutapressin and doing just great. I hope someone else can answer your above question as to " why " . > > Thanks for any input! > Gretchen > Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 At 6:51 AM +0000 7/23/02, wrote: >Kutapressin is a older anti-viral (comprised of peptides and amino acids) >that is used in the treatment of acne vulgaris - in " enhancing the >resolution of inflammation and edema " . It has also been useful for the same >in Herpes Zoster, eczema and other dermatitis conditions. Is it used topically? I had assumed it was taken orally. > It has also been >reported that it is effective against HHV6 invitro. Dr G says it assists >oral anti-viral in reducing the immune response to viruses in patients. So is it an antiviral, or is an antiinflammatory used as an adjunct with an antiviral? Quote Link to comment Share on other sites More sharing options...
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