Die Off

[Guest guest]

Bella,

You are never barging in when you are trying to help your child. The reason I

posted this conversation to the list is so it might help others that are going

thought what Sue was experiencing. But when I did post, I was referring to the

die-off from the antifungal medicines like Nizoral, Diflucan and Lamisol. For

my child the die-off reaction from the antifungals has always been severe. I

dread end of the six month period when it is time to switch anifungals. It is

necessary to switch every six months so the child doesn't build up a tolerance

to the medication and it continues to be effective.

I have read on the list that some people have die-off to the Valtrex or Famvir,

but my son was not one of them. But it is important to note that my child

started the antivirals much later in his treatment, after he was much improved.

Initially, I was under the impression that they didn't do much, but I was wrong.

We had been on Valtrex for a few years when we moved into a new house. In the

chaos of moving, I forgot to refill my son's Valtrex. Within days, I witnessed

my son exhibit " very autistic behaviors " that I hadn't seen for years.

Fortunately, I quickly started the Valtrex again and within a week my son was

back. It is funny that as parents we tend to not notice the improvements our

children make, but definitely see when they are going backwards. The changes

are sometimes so subtle, that we forget where we started. So when you go into

that panic we all feel when we think our child is not improving fast enough,

try to sit back and list in your head all the small changes they have made.

When my child was in elementary school and still receiving

assistance at school, each year I would write a note to the new teacher listing

all the things still needed to learn. The time I would notice most how far

we had come was when I would look at last year's list to see what was left to

do. The year he entered fifth grade, it was no longer necessary to write that

note to the teacher. Although sometimes a little quirky, was there.

is now 13, gets straight " A's " except for art. He is in all the

accelerated classes without any assistance. As a matter of fact his friends and

teachers have no idea he was ever diagnosed autistic. The recovery wouldn't

have happened without Dr. G, ABA, and the hard work it took to teach him the

things other kids just seemed to learn effortlessly.

Maurice once gave me some very good advice, she said use what your

child likes to motivate him to do the things that are hard for him. For

that was computers. I considered the computer another ABA therapist. (One I

didn't have to pay). Our kids love the predictable because their worlds are so

confusing. Computers are that. The Edmark programs like Thinking

Things,Millie's Math House, Sammy's Science House etc. are all linguistically

based. Our children are learning language, math, and other subjects without even

knowing it because they are so fun to do.

I have lots of info to share if any of you new parents need it, just email me

and I will forward the info that put in an email for me. I, unlike am

not a Bill Gates, and rely on him for all my computer needs.

Marcia Hinds

Message: 1

Date: Sun, 21 Jul 2002 08:25:42 -0500

From: " bella " <bellastip@...>

Subject: Re: Die Off

Sorry to barging in on your conversation. I just have one question: does

everybody have a die off reaction? My daughter has been on Valtrex for 7 days

and I did not notice any die off reaction, but I did notice that her tantrums

became shorter and she became much calmer. Just lucky or Valtrex does not work?

Die Off

Sue,

The die of usually occurs after days to two weeks. It is like all the

autistic symptoms are ten times worse. Die off is awful. It is especially

difficult because you feel like you are going backwards. But after die off, you

see a kid that is much clearer. The silly and drunken behavior starts to go

away. Now they can learn to stop pinching or biting. (Or whatever your child

does. Before it was impossible to teach) I tried the pills myself just to see

what it was like. You feel like PMS times twenty. During that time we didn't

do any thing complicated. They feel sick. Tylenol helps along with doing

things they find relaxing. If it is really bad call Dr. G. He may tell you to

either increase or decrease the dosage. You can also use some activated

charcoal, but be careful when you give it, because it will absorb all

medications too. Hope that helps.

Marcia Hinds

[Guest guest]

----- Original Message -----

From: bella

My daughter has been on Valtrex for 7 days and I did not notice any die off

reaction, but I did notice that her tantrums became shorter and she became much

calmer.

Our daughter didn't have a die-off reaction to anything she's taken. But,

we've seen steady improvements. I think for some kids it's a slower die-off

which makes for a less traumatic time.

, mom to

(12) - AS

Jeanette (10)

Marissa (6)

Emma (4) - ASD

[Guest guest]

Steve,

I would recommend you check ' web site. He runs an

investment bank for the energy industry and was an advisor to Vice

President Cheney's, 2001 National Energy Policy Group.

http://www.simmonsco-intl.com/

You can click on R. , then Speeches & Papers for his

latest presentations.

As for the Club of Rome and " The Limits to growth " report, you can

read paper " Revisiting The Limits to Growth: Could The Club

of Rome Have Been Correct, After All? " . The link is:

http://www.greatchange.org/ov-simmons,club_of_rome_revisted.html

Marieta

>>

-- In , STEVEN CARROLL

<STEVEN.CARROLL@w...> wrote:

> This is, I am afraid to say it, OLD news. Would you believe it

that in the

> sixties 'they' had already worked this out. You might look into

the Club of

> Roam and the 'Limits to growth report'. For those of whom remember

this

> report carried out by the MIT, you may also be aware that since

publication

> of this scientific doomsday prophecy, that no solution has yet

been found to

> this global crisis.