Re: Hi! I'm new here

October 20, 1999

Welcome to our club! There is another good web

site at www.about.com, use the search for thyroid

disease and you will find a wealth of information

there. As far as your inability to gain weight I thought

that was a symptom of hyperthyroid. Have you had your

levels checked lately? Maybe your medication is too

high? I myself have lots of weight to lose. I don't

feel hypothyroid has made me fat, eating too much and

too often has done that. I do feel however, that

having hypothyroidism makes it harder for me to lose

weight than the average person. I look forward to

getting to know you. We have a nice group of ladies here

so please post with any questions or problems you

may have. Tyra

October 20, 1999

Hi ! This is a nice, friendly forum, isn't

it? :-) That's one of the things I like about

it! Your low weight is odd, for hypothyroidism; like Tyra,

I also have a weight problem, with which I'm

dealing. And since you're displaying a symptom that is the

opposite of most hypothyroid people, I have to ask...do

you find that your symptomology is rather changeable?

Like have you ever changed abruptly from feeling

sluggish and achy to being heart-racingly jumpy, shaky and

overly-anxious? If so, have your doctor test your antibodies,

because you could have the autoimmune disease Hashimoto's

Thyroiditis. You might also suspect it if you have any other

autoimmune disorders, such as Lupus, Fibromyalgia and/or

CFS...because having one autoimmune disease makes you more

susceptible to developing others. Autoimmune diseases

systematically attack - and eventually destroy - different areas

of the body. Hashimoto's, in particular, slowly

destroys the thyroid gland. While the gland is being

destroyed, the patient can suffer with wildly varying

symptoms. This is because the damaged thyroid becomes

inefficient, literally making the sufferer experience symptoms

of both hyPOthyroidism and hyPERthyroidism. In this

stage it can be very difficult to control. Eventually

the antibodies will kill the thyroid off completely;

at that point the patient can usually be treated

very successfully with a Levothyroxine (T4) medication

or (more rarely) Armour Thyroid...and they usually

begin to feel MUCH BETTER! :-) The worst of the

suffering seems to come while the thyroid is being

destroyed. From what I understand, early diagnosis and treatment

of Hashimoto's can be very helpful. It's especially

important for those who have it to avoid stress of every

sort, as stress can rile up the hormones and make those

" mood extremes " much, much worse. Many

Hashimoto's patients suffer with these wildly changeable

symptoms so badly that they consider having their thyroids

removed surgically. From what I've read, this is usually

a waste of time & money...because even though the

thyroid itself is gone, the antibodies that were

attacking it will remain IN the body, possibly attacking

other organs/tissues! So even though these antibodies

are usually very organ-specific, there would be

nothing stopping the thyroid antibodies from " rousing "

other (possibly dormant) antibodies that would - in

turn - start attacking other tissues. So you might get

rid of some of the symptoms of Hashimoto's, just to

develop Lupus, Fibromyalgia, or some other autoimmune

disease. I don't mean to scare you, ...but Hashimoto's

is rather common, and I thought you might want to be

alerted to some of the symptoms I mentioned. You know

what they say... " forewarned is forearmed " !

:-) Keep smilin',

October 21, 1999

Hello, everyone! Thanks for your responses to my

message. Actually, I was diagnosed with Hashimoto's, but

as I said in my original post, I know so little

about the disease, I didn't think there was much of a

difference between Hashimoto's & hypo. Also, my

mother had hyperthyroidism, but was operated on a few

months before I was born. She says she only has 10%

thyroid, & now has more symptoms of

hypothyroidism. I know I probably sound really stupid, but I have a

lot to learn about this disease. It's really nice to

know you're all here! Take care,

October 21, 1999

Sheesh...I forgot to mention something! Another

wonderful place to communicate with other TD sufferers is

Woodstock's Thyroid Disease Forum, which is on Delphi Forums.

I'm a chat moderator there (when I have time), and

it's just so friendly and informative! Come & join us

sometime! I have a link to it at

<a href=http://members.delphi.com/jwthompson

target=new>http://members.delphi.com/jwthompson</a> ...which is my homepage,

JWT's Thyroid Journal.

You can also get a link to it by entering

" Woodstock's Thyroid " in the search engine. Hope this

helps!

October 21, 1999

Hi, , welcome to the club, I can't speak for

everyone here but I too am learning something new everyday

about this disease, I was diagnoised this past March,

so it is all new to me too! This is a freindly

place, with lots of input I hope you and I get a chance

to chat soetime. Sunflower

April 14, 2000

Hi Jo Ann

Welcome to the list! I have a good friend called Jo-Ann from the USA also

with CFS. I had that too plus a cuoople of other severe health problems..

that are chronic too.

If you need anything, I'm always here.

April 14, 2000

Have you ever thought of doing tissue cleansing through colonics?

I would recommend you the book: Tissue Cleansing through Bowel Management

by Bernard Jensen. By getting rid of all the toxins, bacteria, parasites,

etc. accumulated in this part of our bodies,

we can not only alleviate, but even eliminate a lot of health problems.

- Hi! I'm New Here

Hi! My name is Jo Ann. I'm 48 years old. I've had a severe case of

CFS for over 12 years. When I was first diagnosed, I was also

diagnosed with candidiasis. For about 2 years, I followed Dr.

Crook's diet perfectly. Then my doc took a candida titer, and I was

back to normal. Years went on. 2 years ago I was diagnosed with

severe iron deficiency anemia, which we're still correcting with

ferrous sulfate. A year ago, I came down with a chronic bladder

infection, which means, of course, large doses of antibiotics. I

even had to be hospitalized for IV antibiotics, because the oral ones

weren't killing off the bacteria (3 strains!). Now I know I am just

loaded with candida. So back to the diet, nystatin, and

acidophilous ;-)

However, 2 questions: 1) Could my severe iron def. anemia be caused

in some strange way by candida? 2) I have edema. Is that a symptom

of candida, too? The edema usually comes on when the bladder is

getting infected again.

Thanks for listening, and for being here! I just found this site

today, Thank God! Any help would be deeply appreciated.

Hugs,

Jo Ann

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April 14, 2000

Hi Jo Ann. Yes - Candida can cause severe iron deficiency anemia - I have it too. It's also given me a lovely case of hypothyroidism, mood swings, constipation, and a baaaaad attitude. I don't know about edema but I know that Urinary tract infections stem from candida at times. Good luck. This is a long-term disease as you well know and maintaining a proactive attitude helps a lot.

Hi! I'm New HereHi! My name is Jo Ann. I'm 48 years old. I've had a severe case ofCFS for over 12 years. When I was first diagnosed, I was alsodiagnosed with candidiasis. For about 2 years, I followed Dr.Crook's diet perfectly. Then my doc took a candida titer, and I wasback to normal. Years went on. 2 years ago I was diagnosed withsevere iron deficiency anemia, which we're still correcting withferrous sulfate. A year ago, I came down with a chronic bladderinfection, which means, of course, large doses of antibiotics. Ieven had to be hospitalized for IV antibiotics, because the oral onesweren't killing off the bacteria (3 strains!). Now I know I am justloaded with candida. So back to the diet, nystatin, andacidophilous ;-)However, 2 questions: 1) Could my severe iron def. anemia be causedin some strange way by candida? 2) I have edema. Is that a symptomof candida, too? The edema usually comes on when the bladder isgetting infected again.Thanks for listening, and for being here! I just found this sitetoday, Thank God! Any help would be deeply appreciated.Hugs,Jo Ann------------------------------------------------------------------------eLertsIt's Easy. It's Fun. Best of All, it's Free!1/3080/6/_/469673/_/955663512/------------------------------------------------------------------------Send blank message to candidiasis-unsubscribeonelist if you want toUNSUBSCRIBE !

November 25, 2001

Dear Dear ,

It sounds like you and Blake have been through the ringer!!! I can only pray

that it gets better for all of you. My son was born 3 months early and

suffered pretty much every problem a preemie can (Grade 4+ bilateral IVH, BPD,

CLD, Pneumonia, Bacterial Meningitus X2, ROP, 2 seizures in the NICU,

Hydrocephalus (severe), Cerebral Palsy, etc.etc.etc...) except NEC. He came

home after 9 weeks 6 days only to be back in the hospital two weeks later with

his first of 5 shunt revisons in that 1 1/2 month period. The nurses failed to

give him his meds, to include his iron which made him more anemic than he was so

he needed yet another blood transfusion. He left the NICU on July 14, and on

the 29th developed a severe rash that we saw 26 doctors over the next 10 months

to find out what it was...they kept saying excema (NOT)!! Then we walked in to

the immuno's clinic one day...she did allergy testing...he turned up allergic to

everything but Nutramigen formula and sweet potatoes, and she did blood work.

The day before he turned 1 (May 5, 1999) he was diagnosed with

Hypogammaglobulinemia (IgA, IgG) and elavated IgE levels to about 200. He was

started on IViG. He was on it until we moved this past June/July. We got here

to Hawaii and they (the incompetant doctors here) continued him on it. I

requested blood work and his IgE is up to almost 1000 now, his IgG is low

normal, with a IgG2 of 322 (H) and low other ones. And for the first time in

his life his IgA is 123 (normal). So I requested that he go on an IViG holiday

after he got out of the hospital in October (he has been sick and having

surgerys since May). It has been about 8 weeks since his last infusion (he has

had a port since July 99 so we get it flushed only). So far he hasn't been

really sick. He has had a little tiny cold, and his asthma has started

bothering him again (sign of low levels in him), and he is hiving to foods that

he has been fine with previously. Did I mention that he would get Severe full

body hives (swollen and really red) with the IViG and it stopped when they

diluted it more AND slowed it down. So anyhow, tomorrow, I am going to call the

pulmonary doctor and request that we try singular again (he came off pulmacort

for his asthma in October when they finally realized that I was right that he

was not getting it through the MDI they gave him, but was doing fine) and see if

that helps. I am going to wait until we have his port flushed in Dec. to get

his levels taken again. And if they are ok, we will do it again in about 3-4

months and if they are still ok, then again 6 months later.

Well, sorry for being winded here...just thought that I would give some history.

Welcome to the group. This is the best place to get support and find some

answers!!

November 25, 2001