Guest guest Posted April 12, 2003 Report Share Posted April 12, 2003 Hi AmyD & everyone else, :-) I live in the Midwest, married for 16 years, 2 boys (10 & 1) & 1 dog who thinks he's a sibling to the boys! I'm a reformed cardio queen who used to push girly weights around while chatting it up with my friends. No longer! Now I am a POWERLIFTING SUPER WOMAN! (like Seattle lady!) I am finishing the 2nd week of my 2nd challenge. So we are on the same time frame. :-) This group is a great place to get motivation. It is how I kept my focus throughout the 1st challenge! Post often! Amethyst Hi! I'm new here > Hi! My name is Amy and I just joined this group. I have been working > on my first challenge in years. I completed the second Challenge > Bill ever had and now I'm back. I just keep letting myself slip > little by little and in order to get myself to stop I entered the > Challenge again. I am on my second week. I have stopped and > restarted twice and was ready to stop again. I am lacking motivating. > I am hoping that getting involved with this group will help. I took > a look at the members page and saw that there was a lot of people who > may not be involved anymore because they haven't updated in a while. > So, I was wondering if those who are still moving on toward their > goals and still involved with the group could post or email me > (AmyD1825@...) directly with a short message about themselves > (like I did above) so I can get to know everyone. > > Thanks, > AmyD > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2003 Report Share Posted April 12, 2003 Hi Amy...I'm a relative newbie here,too-- but you'll find everyone is so helpful and encouraging you can't help but succeed at this!! I am 30 years old and live in Virginia with my boyfriend our black lab/great dane mix (1yr. old-oh my he's a terror). I'm a dental assistant, and have no kids. I'm on my very first challenge...Day 13 and I love it...got into it cuz a friend of mine told me about it! I think this group will help you stay on track!! Welcome...and good idea about everyone sending an email about themselves...i think it helps everyone get a better idea of who everyone is! good luck Kendra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2003 Report Share Posted April 12, 2003 Kathi! I love your kid's names! How did you choose them?? Sunshine Re: Hi! I'm new here ---WHELLOOOOOO Amy!!!! My name is Kathi Felix. I am 26 years old and just finished up challenge one for this year. I did bfl 2 years ago but gained weight back...soooo I am at it again this time seriously! I have a 3 year old girl named Ezri and a 5 year old boy named Ammon. I have a computer geek husband named Evan who is just awesomeness!!! We live in Richland wAshington..it is all desert like an stuff here cause we are on the other side of the Cascades. I tend to talk about my favorite band Lifehouse very very often! I just got back from seeing them in concert last week and meeting them!! It was my treat for finishing challenge one! ANd I am hoping they come to the west coast so I can see them waaagain after challenge 2! I tend to freak out and be hyper....soooo...uhhhh..WELCOME TO THE BOARD! OH and you will definately luv it here...these people are my only friends....*sniff* Kathi (who's just another name) In , " Amy " <AmyD1825@a...> wrote: > Hi! My name is Amy and I just joined this group. I have been working > on my first challenge in years. I completed the second Challenge > Bill ever had and now I'm back. I just keep letting myself slip > little by little and in order to get myself to stop I entered the > Challenge again. I am on my second week. I have stopped and > restarted twice and was ready to stop again. I am lacking motivating. > I am hoping that getting involved with this group will help. I took > a look at the members page and saw that there was a lot of people who > may not be involved anymore because they haven't updated in a while. > So, I was wondering if those who are still moving on toward their > goals and still involved with the group could post or email me > (AmyD1825@a...) directly with a short message about themselves > (like I did above) so I can get to know everyone. > > Thanks, > AmyD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2003 Report Share Posted April 12, 2003 Hi Amy, I'm Robin and have been doing BFL since the beginning of 2001. Like you, I started slipping and I put on about 10 lbs. this winter. My workouts were still good, but I slowly just started eating anything I wanted. So I started a new challenge March 24 to get myself back on track. I've been doing even better at my workouts, and eating and feeling much better. I've been bad about record keeping though. I pretty much cook the same 5 or 6 meals all the time, so I can run to the store and stay in the habit of eating well, but I know not writing things down can lead to cheating that gets unnoticed until I don't get the results I want, so I gotta get that part back on track. I'm 41 years old, 5'5, 140 lbs., size 8. Have lost about 4 lbs since starting, and my clothes aren't tight anymore. My goal is to wear a size 4 by June 16. I really want to get a belly ring. Okay, am I having a mid-life crisis? Maybe. But I feel good anyway LOL. Good luck on your new challenge! Robin (from N. Little Rock, AR) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2003 Report Share Posted April 13, 2003 I had to remove my belly ring at about 5 months pregnant. I put it back in when my girl was 18 MONTHS old. Ouch. I really should've got it re-pierced rather than just going... " I'm sure this will go back if I push hard enough. " DUH! How dumb am I? Oh well, it went in eventually and it didn't get infected so it's all good! I missed it and I'm glad it's back. Phoenix > I had to take mine out too. ( Now I have an ugly scar there. ( > Sunshine > Re: Hi! I'm new here > > > A belly ring? Cool. I had to lose mine when I got pregnant (wouldn't THAT have been cute?), and I really want it back!! Come June 30, I'm gettin' another one! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2003 Report Share Posted April 13, 2003 OUCH!!!! That sounds so painful!!!!!!!!!!!!!!! Wonder if I can get mine back in?? Hee hee hee!!! Re: Hi! I'm new here > > > A belly ring? Cool. I had to lose mine when I got pregnant (wouldn't THAT have been cute?), and I really want it back!! Come June 30, I'm gettin' another one! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2003 Report Share Posted April 13, 2003 Hi Amy, I'm . I'm 40 and just started C2 on April 7th. I just did C1 this Jan-Mar, and while the " evil scale " only showed a loss of 12 pounds, I can see and feel a difference. My pictures are in the album zookeeper08. I did lose a bunch of inches and bodyfat. This challenge, my dd is with me, on her C1. Our pictures (digital) for this challenge are in zookeeper08C2, until I can figure out how to give her her own album or rename the album so that she's included in the name too. We also just got back the regular camera ones, so we might add them if they're useful. I don't mind lifting weights, but cardio isn't enjoyable for me. This week I'm trying something new. Yesterday I went to my dd's gym with her for cardio, and the machines about killed me. Guess I'm still very unfit, cardio-wise. It was fun trying out various machines again. I am usually at home with my dumbbells. BTW, I have eight kids, (19 to 4) and attempted the challenge with my dh a few years ago. He only made it to about week 6, I made it through week 9 or so. Of course, back then, we had virtually no support. This time 'round, we have this wonderful group that helps keep me on track. Oh, and dh is faithfully going to the gym, but eats " different " from BFL and gets different results than those on BFL get. I'm working on him. Well, this is much more than you asked for, so I need to stop. Glad you're back --- So, what are YOUR goals? >Hi! My name is Amy and I just joined this group. I have been working >on my first challenge in years. I completed the second Challenge >Bill ever had and now I'm back. I just keep letting myself slip >little by little and in order to get myself to stop I entered the >Challenge again. I am on my second week. I have stopped and >restarted twice and was ready to stop again. I am lacking motivating. >I am hoping that getting involved with this group will help. I took >a look at the members page and saw that there was a lot of people who >may not be involved anymore because they haven't updated in a while. >So, I was wondering if those who are still moving on toward their >goals and still involved with the group could post or email me >(AmyD1825@...) directly with a short message about themselves >(like I did above) so I can get to know everyone. > >Thanks, >AmyD > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2003 Report Share Posted April 13, 2003 Hey, , we'd love to hear more from you! You and I did our C1 together, and now we're on C2 together! Great! And you've had incredible results. This time around, get some pictures. Either take some digitals or take some " real " ones and find a very good friend with a scanner who would help out with loading them... >Welcome, and congrats on starting again. This group >has helped me tons. I usually don't post much, but I >always feel like a dork when I just come out of >nowhere and post something, so I'm gonna start doing >it more often. > >I'm 28, live in Kansas City, and have 2 kids and a >lawyer-wannabe husband (he's in his 1st year of law >school at KU). I'm 5'6 " , 165 lbs. and about 20% bf. I >lost 20 lbs of fat in C1 and gained 3 lbs of lean wt. >This go-round, I want to lose 12 more lbs. > >There are a lot of peole on this board who started >challenges on Jan. 6, so a lot of us have either just >finished or are just starting new ones. I finished on >March 30 and am just about to finish week 2 of C2. I >haven't posted pictures yet because I didn't take >digital photos and my scanner's broken. I think I >remember someone saying you can take them to one of >those Kodak picture-maker thingies and put them on a >CD, but then my picture would be on a computer screen >for the whole store to see. So...ummm...no. If I can >figure out how to fix my scanner this weekend, I'll >post them. > _________________________________________________________________ Add photos to your messages with MSN 8. Get 2 months FREE*. http://join.msn.com/?page=features/featuredemail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2003 Report Share Posted April 13, 2003 Hey, Pat, I'm in Southern California too! In the San valley...You? And I love siamese cats...they've got attitude! >I forgot to add my " stats " ...I am 5'3 " and weigh about 134....I live >in Southern Calif....I have two siamese cats...hmmmmmm that's all I >can think of right now.... >Pat > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2003 Report Share Posted April 14, 2003 I'm not worried about the pregnant part (re: belly ring). My kids are 18 and 20, and I'm 41. I'm worried about the pain of piercing part! Still want to do it though. Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 I think the pain level depends on the person. I'm a HUGE wuss, really pathetic about pain, and for me it hurt like blazes, but only for a couple of seconds. I figure if you can hit a " 10 " doing weights, you can manage a piercing, no trouble!!! Oh, one thing, don't get a gold ring. Get the surgical steel, or whatever it is. I got gold, it turned out to be gold plate and after a couple of months it started to flake, INSIDE my body. Sharp little metal bits under the skin is a very ugly situation. You can get gold once it's all healed if you prefer (I did), but get steel for actually piercing yourself. Phoenix > I'm not worried about the pregnant part (re: belly ring). My kids are 18 and 20, and I'm 41. I'm worried about the pain of piercing part! Still want to do it though. > > Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 Hi and welcome! Your nephew is very lucky to have an aunt like you! What type and amount of therapy is the school providing your nephew? What type and amount of early intervention was provided - and at what age did the therapy start? Has there been any progress? Has there been any outside evaluations by SLPs/OTs and neurodevelopmental MDs? I'm guessing yes only since your nephew has the diagnosis of apraxia. If so -who gave the diagnosis and when? And is he receiving private therapy as well? A five year old who has never spoken a word is severe. Typically if you don't see results in 6 months it is time to try alternative ways of therapy -or a different therapist -or both. Children with apraxia do not respond to group therapy -nor do they respond to traditional speech therapy -both of which are auto provided by the typical school's preschool disabled program unless a parent (or aunt) advocates for what is appropriate for the child. Here is why it's great you stepped in -and please let us know how much of this picture (up to five) describes your nephew's situation -or what does if this doesn't. A typical apraxic child at 2 or 3 is looked at as " just a late talker " if outside of speech other developmental milestones are on time -by almost all families, friends, and even the pediatrician at times. You may hear the word " receptive " delay in addition to expressive in some cases -which should not be there if not appropriate. They may begin early intervention sometime around three or four -but typically it's not enough -nor appropriate if the child is apraxic. By four -the school will up the therapy to perhaps include some one on one time -but still not enough. Five seems to be the panic age that everyone is trying " everything " -but if still not appropriate and intensive therapy -no progression -or very little. The danger period for a nonverbal child with apraxia is around 7 to 9 when they typically begin to use inappropriate verbal based IQ tests and put the child (who may be above average intelligence) into a learning disabled class and tell the parents there are some " cognitive " delays and that speech therapy doesn't appear to be the answer (try to pull therapy services since they're not working) Soon after, too many of these still nonverbal apraxic children completely slip through the cracks into the classification of trainable mentally retarded or TMR. I won't go on from there -but that is the picture. Good news is that it doesn't have to be -and it's caring people like you that can change it. Is your nephew still in preschool -or is he in kindergarten -and in what type of placement, mainstreamed with pull out services or in a special school/class? Is he being provided alternative ways of communication such as sign language or picture exchange -or augmentative devices? Have you heard about The Late Talker book? http://www.speechville.com/late.talker.html This would be an excellent book to get since it covers step by step what you and others can do to help. Let us know -and again -thanks for being a concerned and loving Aunt! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 Hi , Glad to see you made it to . You're in good hands now! Keep up the good work and take care. Kris from Colorado Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2003 Report Share Posted July 1, 2003 Hi Dena, I am new as well. I have a 2 1/2 year old boy with a speech delay. I myself just placed my first order for PROEFA yesterday. I've read so many things about it, that I thought I would give it a try. What does ST stand for? My son has a neorogist appt next month to see if he has verbal appraxia. He is in Early Intervention at the moment. They are helping but I think the most help comes from family and lots of love! madlymad99 <warners3@...> wrote:Hi! My name is Dena. We have 4 year old dd that has been in ST since she was around 2. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2003 Report Share Posted July 1, 2003 Dear Dena, I am also new to the website. My daughter is 5 years old and was diagnosed with apraxia at 3. Her to everything is fine except for her speech. We taught her some sign language to help her commumicate, I just bought a book, I also made a big poster board with numerous pictures on it, like food, colors,etc. and laminated it and put it on the refrigderator which she uses all the time. I also made her a communication book to take along with her I used a small photo album and put pictures in it. Kaylin started going to a special needs school here at the age of 3 she also has small hands and get OT there and of course speech thearpy. This school has helped very much. Kaylin has been of the pro-efa for about 2 years now I give her 3 in the morning. Has it helped? I am not sure. She is getting older now and the words seem to becoming easier now. What state do you live in? We live in Wisconsin and there is a program called the Beckett Fund this fund is like a Title 19 Medicaid it does not go by your income it goes by your childs disablitly. You have to qualify for it on a yearly bases. We have had it for the past year and now she is also receiving private speech therapy,which we could not afford before the Medicaid program, and that has help the best. Hope some of this helps, Lynn [ ] Hi! I'm new here > Hi! > > My name is Dena. We have 4 year old dd that has been in ST since she > was around 2. We started in the Early intervention program, > transferred to the public school program and are currently in summer > school. She is making progress but very very slowly. We are just > getting started with a neurologist and have several test scheduled > (MRI, EEG, Nerve conduction, eyes, hearing...) Speech seems to be > her only significant delay. She tested high in all other areas with > the early intervention and public school testing. She is very > friendly, loving and social but very very head strong! > > I am looking for any addition help we can find. I have been reading > up on the Proefa and just placed an order for it this morning. I > have also been reading previous post and have already gained much > info! Thanks for being here! > > Looking forward to " meeting " all of you! > > Dena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 Hi everyone I, also, am new here. My name is Karyn, I am from Bucks County, PA. My youngest son, Jordan, I BELIEVE has apraxia (although nobody else agrees.) That big huge " autistic spectrum " umbrella seems to be a real novelty here in Bucks County, a local newspaper reported that the " incidence of autism rose 2,000% in the past 3 years " ....ok.....<sigh> and we all believe that, right? Jordan has sensory issues, and language delay, which I believe is apraxia. All other " operations are functioning normally " , lol. Very bright child, has our familial ADHD, as do his two siblings...a " gift " from their mama, so to speak. He's in special education classes through the intermediate unit here, but they LOVE that word autism, and I continue to get reports on how " he didn't flap his hands all day.....hurray! " ....well he hasn't flapped his hands in 4 years, why should today be different?????? Great deal of frustration here....any ideas are always appreciated. Great to be a part of a wonderful, caring group Karyn [ ] Hi! I'm new here > Hi! > > My name is Dena. We have 4 year old dd that has been in ST since she > was around 2. We started in the Early intervention program, > transferred to the public school program and are currently in summer > school. She is making progress but very very slowly. We are just > getting started with a neurologist and have several test scheduled > (MRI, EEG, Nerve conduction, eyes, hearing...) Speech seems to be > her only significant delay. She tested high in all other areas with > the early intervention and public school testing. She is very > friendly, loving and social but very very head strong! > > I am looking for any addition help we can find. I have been reading > up on the Proefa and just placed an order for it this morning. I > have also been reading previous post and have already gained much > info! Thanks for being here! > > Looking forward to " meeting " all of you! > > Dena > New book on late talking! http://www.speechville.com/late.talker.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2003 Report Share Posted August 2, 2003 Welcome to the group, ! Methotrexate does sound scary, but, used and monitored properly, it can be a very effective medication. Untreated disease also can have very serious consequences. Try not to worry. We have many people here who have used methotrexate safely and successfully. [ ] Hi! I'm new here > Hi! I am completely new at this. I was diagnosed yesterday, after a > year and a half of uncertainty, with Rhupus. An overlap of RA and > SLE with RA being the more prevalent of the two. I was just > wondering if there is anyone else out there with this disorder? And > if they know what the treatments are like. I started methotrexate > and Vioxx. The side effects from the methotrexate sound so awful and > scary. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2003 Report Share Posted August 2, 2003 the side effects do sound scary. i am on mtx too. i've been on it since last november. it was a rough start. but once i got past the first 6 weeks it's not that bad!! i actually feel like i have some life back. i work part time, do all my housework including mowing the lawn. help a friend who broke his neck with errands shopping and laundry, plus have a social life. please stick with it if you can. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Hi -- I am new to this website as well. I don't have Rhupus but I have had RA for 5 years now. I have been on Methotrexate for 4 years and have had none of the side effects. I get blood tests every 6 weeks to 3 months but have had no difficulty. But my doc put me on Enbrel because the metho wasn't working by itself. All these drugs have scary side effects--just make sure your doc is checking your labs! --- In , " " <smileygirlbta@y...> wrote: > Hi! I am completely new at this. I was diagnosed yesterday, after a > year and a half of uncertainty, with Rhupus. An overlap of RA and > SLE with RA being the more prevalent of the two. I was just > wondering if there is anyone else out there with this disorder? And > if they know what the treatments are like. I started methotrexate > and Vioxx. The side effects from the methotrexate sound so awful and > scary. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Welcome to the group! [ ] Re: Hi! I'm new here > Hi -- > > I am new to this website as well. I don't have Rhupus but I have had > RA for 5 years now. I have been on Methotrexate for 4 years and have > had none of the side effects. I get blood tests every 6 weeks to 3 > months but have had no difficulty. But my doc put me on Enbrel > because the metho wasn't working by itself. All these drugs have > scary side effects--just make sure your doc is checking your labs! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 Welcome to the group, Eva! Your daughter is the same age as my youngest grandson. JoAnn > > I'd like to introduce myself) > I live in Moscow, Russia. > I'm 30. I've got a daughter. She is 1 year and 9 month old. > I'm on Glivec for exactly one year. > And now I've got cytogenic answer) > As for PCR, it was 0.07% in Aug 09. I'm going to do another test in a 3 months. > Thank you for your attention) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 > > I'd like to introduce myself) > I live in Moscow, Russia. > I'm 30. I've got a daughter. She is 1 year and 9 month old. > I'm on Glivec for exactly one year. > And now I've got cytogenic answer) > As for PCR, it was 0.07% in Aug 09. I'm going to do another test in a 3 months. > Thank you for your attention) _____________________________ Greetings Eva, It is nice that you found this group. We look forward to you participating in the conversation. You have a good response to Gleevec (this is the spelling in the USA). Is it hard for you to get the drug in Moscow, because of expense? or can you get some assistance from Novartis (the drug company) there? It sounds like you will be doing a PCR test about every 6 months, which is probably enough because of the good response that you have. Here in the US, it is more common to have this test every 3 months to monitor the disease. Let us know what kind of things your oncologist tells you. Best to you and your family, C. diagnosed in 1998 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 O!!! YIPPEEE!!! Number 1300 in the Zero Club Zavie Zavie (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem Tel in FL: 561-429-5507 _____ From: [mailto: ] On Behalf Of Eva Sent: January-28-10 7:07 AM Subject: [ ] Hi! I'm new here I'd like to introduce myself) I live in Moscow, Russia. I'm 30. I've got a daughter. She is 1 year and 9 month old. I'm on Glivec for exactly one year. And now I've got cytogenic answer) As for PCR, it was 0.07% in Aug 09. I'm going to do another test in a 3 months. Thank you for your attention) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 I was lucky to detect my CML at the very beginnig. There were around 50,000 white cells in my blood and they had increased to 80 000 in a few days, and after that I started to take medicine to lower white cells and after two weeks started gleevec. Another lucky thing is that gleevec is included in the necessary for life medicine list that are supported by the government. They have an agreement with Novartis in some way I think. You know I've been never glad and satisfied with the level of free medicine in our country. This system has stayed almost immutable from the time of the USSR. But still I was surprised to get this free service and free support in the Moscow Hematology Scientific Center. As for my oncologist she said that yes I'm lucky enough to be in right time in right place etc) Also I'm lucky to have a healthy baby) And I want another one in a few years. She adviced the main thing is to stay positive, keep having healthy diet, doing exercises, etc. It's good to take more greenery and especially parsley to get rid of edema. So I try to keep following this way. I started jogging in summer but now it's impossible when it is around minus 20 degrees centigrade)) By the way I was vegeterian for 7 years before but I eat milk products, fish and seafood. And I didn't eat meat even when I was pregnant. I don't know if it is important.. My doctor said that it couldn't be the reason of disease.. Now I have some problem with shortage of calcium according to blood cells. My doc said this is because of pregnancy and long time of feeding baby with breast milk (9 months). I take vitamins to improve this. So, that's it. If you have questions please feel free to ask) > > > > I'd like to introduce myself) > > I live in Moscow, Russia. > > I'm 30. I've got a daughter. She is 1 year and 9 month old. > > I'm on Glivec for exactly one year. > > And now I've got cytogenic answer) > > As for PCR, it was 0.07% in Aug 09. I'm going to do another test in a 3 months. > > Thank you for your attention) > > _____________________________ > > Greetings Eva, > It is nice that you found this group. We look forward to you participating in the conversation. > > You have a good response to Gleevec (this is the spelling in the USA). Is it hard for you to get the drug in Moscow, because of expense? or can you get some assistance from Novartis (the drug company) there? > > It sounds like you will be doing a PCR test about every 6 months, which is probably enough because of the good response that you have. Here in the US, it is more common to have this test every 3 months to monitor the disease. Let us know what kind of things your oncologist tells you. > > Best to you and your family, > C. > diagnosed in 1998 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 Nice to know it and to be here) Where is my prize?))) > > O!!! YIPPEEE!!! > Number 1300 in the Zero Club > Zavie > > > > > Zavie (age 71) > 67 Shoreham Avenue > Ottawa, Canada, K2G 3X3 > dxd AUG/99 > INF OCT/99 to FEB/00, CHF > No meds FEB/00 to JAN/01 > Gleevec since MAR/27/01 (400 mg) > CCR SEP/01. #102 in Zero Club > 2.8 log reduction Sep/05 > 3.0 log reduction Jan/06 > 2.9 log reduction Feb/07 > 3.6 log reduction Apr/08 > 3.6 log reduction Sep/08 > 3.7 log reduction Jan/09 > 3.8 log reduction May/09 > 3.8 log reduction Aug/09 > 4.0 log reduction Dec/09 > e-mail: zmiller@ > Tel: 613-726-1117 > Fax: 613-482-4801 > Cell: 613-282-0204 > ID: zaviem > Tel in FL: 561-429-5507 > > > > > > _____ > > From: [mailto: ] On Behalf Of Eva > Sent: January-28-10 7:07 AM > > Subject: [ ] Hi! I'm new here > > > > > I'd like to introduce myself) > I live in Moscow, Russia. > I'm 30. I've got a daughter. She is 1 year and 9 month old. > I'm on Glivec for exactly one year. > And now I've got cytogenic answer) > As for PCR, it was 0.07% in Aug 09. I'm going to do another test in a 3 > months. > Thank you for your attention) > > > > > > > Quote Link to comment Share on other sites More sharing options...
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