Guest guest Posted December 2, 2009 Report Share Posted December 2, 2009 Yes I think that is normal and should not be to much of a worry. The lab test is very very sensitive and I bet in three months you will be back to being undectable. Sharon _____ From: [mailto: ] On Behalf Of carolyn_kuptz2000 Sent: Wednesday, December 02, 2009 6:47 AM Subject: [ ] PCR Dear CML experts, I have a question for all of you that have reached PCRU. My last three PCR tests showed undectable. This last one show a small amount. My Ono said this can happen and he is not going to get upset or change my med (Sprycel 20mg. ) They will check again in 3 months. He said this can happen and does not mean I am coming out of cytogenic response. Has anyone had this experience. I am not to upset well maybe a little. Thanks for any information information you can give me. carolyn_kuptz2000@ <mailto:carolyn_kuptz2000%40> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2009 Report Share Posted December 2, 2009 Hi Carolyn, It takes 3 consecutive PCR results to determine a trend. Make sure that you get a copy of all the results. It is nice for your doctor to say that it shows a small amount, but you really want to know the exact number so that you can do the comparison yourself. Also, if you are nervous, why not ask your doctor to check again in 1 month. I can't imagine waiting 3 months to have the test and then another couple of weeks waiting for results. Most test results will fluctuate in and out of PCRU. It is the nature of the test. I hope this helps, Zavie Zavie (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem _____ From: [mailto: ] On Behalf Of carolyn_kuptz2000 Sent: December 2, 2009 9:47 AM Subject: [ ] PCR Dear CML experts, I have a question for all of you that have reached PCRU. My last three PCR tests showed undectable. This last one show a small amount. My Ono said this can happen and he is not going to get upset or change my med (Sprycel 20mg. ) They will check again in 3 months. He said this can happen and does not mean I am coming out of cytogenic response. Has anyone had this experience. I am not to upset well maybe a little. Thanks for any information information you can give me. carolyn_kuptz2000@ <mailto:carolyn_kuptz2000%40> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2009 Report Share Posted December 3, 2009 Hi Carolyn, My PCR's have consistently bounced between negative and positive for years. It's all part of the process. Tracey > > Dear CML experts, > > I have a question for all of you that have reached PCRU. My last three PCR tests showed undectable. This last one show a small amount. My Ono said this can happen and he is not going to get upset or change my med (Sprycel 20mg. ) They will check again in 3 months. He said this can happen and does not mean I am coming out of cytogenic response. Has anyone had this experience. I am not to upset well maybe a little. Thanks for any information information you can give me. > carolyn_kuptz2000@... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 Tomorrow I have my Dr. appointment with Dr. Tallman at Northwestern. This is my 3rd visit with him. When I saw him in September a PCR was done and the result was 42. When I went back in October it was 10. I will have another run tomorrow. My question is why isn't it reported in a decimal like everyone elses? Does anyone else have theirs reported in a non-percentage? Wish me luck tomorrow. Hopefully everything is going smoothly. Thanks! Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 Hi , PCR results are reported several different ways. I don't think it matters which way it is reported. What is important is that the PCR is done at the same lab and there is no change done to the procedure. Some labs report in %, others report as a whole number and others report as a log reduction. Also remember that you want to look at 3 consecutive results to establish a trend. Do you have any results from the time that you were diagnosed in May? Iw ould be interesting to compare them to the lab at Northwestern. Zavie Zavie (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem Tel in FL: 561-429-5507 _____ From: [mailto: ] On Behalf Of Sent: January-28-10 9:25 PM Subject: [ ] PCR Tomorrow I have my Dr. appointment with Dr. Tallman at Northwestern. This is my 3rd visit with him. When I saw him in September a PCR was done and the result was 42. When I went back in October it was 10. I will have another run tomorrow. My question is why isn't it reported in a decimal like everyone elses? Does anyone else have theirs reported in a non-percentage? Wish me luck tomorrow. Hopefully everything is going smoothly. Thanks! Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 Zavie My number is 878 can you tell me what date I got it? Sharon T _____ From: [mailto: ] On Behalf Of Zavie Sent: Thursday, January 28, 2010 8:13 PM Subject: RE: [ ] PCR Hi , PCR results are reported several different ways. I don't think it matters which way it is reported. What is important is that the PCR is done at the same lab and there is no change done to the procedure. Some labs report in %, others report as a whole number and others report as a log reduction. Also remember that you want to look at 3 consecutive results to establish a trend. Do you have any results from the time that you were diagnosed in May? Iw ould be interesting to compare them to the lab at Northwestern. Zavie Zavie (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem Tel in FL: 561-429-5507 _____ From: groups (DOT) <mailto:%40> com [mailto:groups (DOT) <mailto:%40> com] On Behalf Of Sent: January-28-10 9:25 PM groups (DOT) <mailto:%40> com Subject: [ ] PCR Tomorrow I have my Dr. appointment with Dr. Tallman at Northwestern. This is my 3rd visit with him. When I saw him in September a PCR was done and the result was 42. When I went back in October it was 10. I will have another run tomorrow. My question is why isn't it reported in a decimal like everyone elses? Does anyone else have theirs reported in a non-percentage? Wish me luck tomorrow. Hopefully everything is going smoothly. Thanks! Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 Hi Sharon, I can't give you an exact date. It would have been in August of 2005. I'm away from my main computer and wont be near it until April sometimes. Zavie Zavie (age 71)I 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem Tel in FL: 561-429-5507 _____ From: [mailto: ] On Behalf Of Sharon Teichera Sent: January-28-10 11:17 PM Subject: RE: [ ] PCR Zavie My number is 878 can you tell me what date I got it? Sharon T _____ From: groups (DOT) <mailto:%40> com [mailto:groups (DOT) <mailto:%40> com] On Behalf Of Zavie Sent: Thursday, January 28, 2010 8:13 PM groups (DOT) <mailto:%40> com Subject: RE: [ ] PCR Hi , PCR results are reported several different ways. I don't think it matters which way it is reported. What is important is that the PCR is done at the same lab and there is no change done to the procedure. Some labs report in %, others report as a whole number and others report as a log reduction. Also remember that you want to look at 3 consecutive results to establish a trend. Do you have any results from the time that you were diagnosed in May? Iw ould be interesting to compare them to the lab at Northwestern. Zavie Zavie (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem Tel in FL: 561-429-5507 _____ From: groups (DOT) <mailto:%40> com [mailto:groups (DOT) <mailto:%40> com] On Behalf Of Sent: January-28-10 9:25 PM groups (DOT) <mailto:%40> com Subject: [ ] PCR Tomorrow I have my Dr. appointment with Dr. Tallman at Northwestern. This is my 3rd visit with him. When I saw him in September a PCR was done and the result was 42. When I went back in October it was 10. I will have another run tomorrow. My question is why isn't it reported in a decimal like everyone elses? Does anyone else have theirs reported in a non-percentage? Wish me luck tomorrow. Hopefully everything is going smoothly. Thanks! Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 That is good enough-thank you so much _____ From: [mailto: ] On Behalf Of Zavie Sent: Thursday, January 28, 2010 8:48 PM Subject: RE: [ ] PCR Hi Sharon, I can't give you an exact date. It would have been in August of 2005. I'm away from my main computer and wont be near it until April sometimes. Zavie Zavie (age 71)I 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem Tel in FL: 561-429-5507 _____ From: groups (DOT) <mailto:%40> com [mailto:groups (DOT) <mailto:%40> com] On Behalf Of Sharon Teichera Sent: January-28-10 11:17 PM groups (DOT) <mailto:%40> com Subject: RE: [ ] PCR Zavie My number is 878 can you tell me what date I got it? Sharon T _____ From: groups (DOT) <mailto:%40> com [mailto:groups (DOT) <mailto:%40> com] On Behalf Of Zavie Sent: Thursday, January 28, 2010 8:13 PM groups (DOT) <mailto:%40> com Subject: RE: [ ] PCR Hi , PCR results are reported several different ways. I don't think it matters which way it is reported. What is important is that the PCR is done at the same lab and there is no change done to the procedure. Some labs report in %, others report as a whole number and others report as a log reduction. Also remember that you want to look at 3 consecutive results to establish a trend. Do you have any results from the time that you were diagnosed in May? Iw ould be interesting to compare them to the lab at Northwestern. Zavie Zavie (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem Tel in FL: 561-429-5507 _____ From: groups (DOT) <mailto:%40> com [mailto:groups (DOT) <mailto:%40> com] On Behalf Of Sent: January-28-10 9:25 PM groups (DOT) <mailto:%40> com Subject: [ ] PCR Tomorrow I have my Dr. appointment with Dr. Tallman at Northwestern. This is my 3rd visit with him. When I saw him in September a PCR was done and the result was 42. When I went back in October it was 10. I will have another run tomorrow. My question is why isn't it reported in a decimal like everyone elses? Does anyone else have theirs reported in a non-percentage? Wish me luck tomorrow. Hopefully everything is going smoothly. Thanks! Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 Thank you Zavie. I did not have a PCR done with my previous Dr. So this was my 3rd PCR. I should have the results in about a week. I also found out that my Dr, Dr. Tallman, will be leaving Northwestern for a new job in New York. He has referred me to another Dr. at Northwestern. Just when I thought I found a keeper, he leaves. I am scheduled to have a bmb on Feb. 8th. This will be my 2nd one. If this one comes back good, he said I shouldn't need another. Jen > > Hi , > > PCR results are reported several different ways. I don't think it matters > which way it is reported. What is important is that the PCR is done at the > same lab and there is no change done to the procedure. Some labs report in > %, others report as a whole number and others report as a log reduction. > > Also remember that you want to look at 3 consecutive results to establish a > trend. > > Do you have any results from the time that you were diagnosed in May? Iw > ould be interesting to compare them to the lab at Northwestern. > > Zavie > > > > > > Zavie (age 71) > 67 Shoreham Avenue > Ottawa, Canada, K2G 3X3 > dxd AUG/99 > INF OCT/99 to FEB/00, CHF > No meds FEB/00 to JAN/01 > Gleevec since MAR/27/01 (400 mg) > CCR SEP/01. #102 in Zero Club > 2.8 log reduction Sep/05 > 3.0 log reduction Jan/06 > 2.9 log reduction Feb/07 > 3.6 log reduction Apr/08 > 3.6 log reduction Sep/08 > 3.7 log reduction Jan/09 > 3.8 log reduction May/09 > 3.8 log reduction Aug/09 > 4.0 log reduction Dec/09 > e-mail: zmiller@ > Tel: 613-726-1117 > Fax: 613-482-4801 > Cell: 613-282-0204 > ID: zaviem > Tel in FL: 561-429-5507 > > > > > > _____ > > From: [mailto: ] On Behalf Of > > Sent: January-28-10 9:25 PM > > Subject: [ ] PCR > > > > > Tomorrow I have my Dr. appointment with Dr. Tallman at Northwestern. This is > my 3rd visit with him. When I saw him in September a PCR was done and the > result was 42. When I went back in October it was 10. I will have another > run tomorrow. My question is why isn't it reported in a decimal like > everyone elses? Does anyone else have theirs reported in a non-percentage? > > Wish me luck tomorrow. Hopefully everything is going smoothly. > > Thanks! > > Jen > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 Zavie My PCR results have always been reported in % and log reduction. All of a sudden I get a " negative " result. I don't feel comfortable with that. Should I be concerned? Sharon T _____ From: [mailto: ] On Behalf Of Sent: Saturday, January 30, 2010 8:24 AM Subject: Re: [ ] PCR Thank you Zavie. I did not have a PCR done with my previous Dr. So this was my 3rd PCR. I should have the results in about a week. I also found out that my Dr, Dr. Tallman, will be leaving Northwestern for a new job in New York. He has referred me to another Dr. at Northwestern. Just when I thought I found a keeper, he leaves. I am scheduled to have a bmb on Feb. 8th. This will be my 2nd one. If this one comes back good, he said I shouldn't need another. Jen > > Hi , > > PCR results are reported several different ways. I don't think it matters > which way it is reported. What is important is that the PCR is done at the > same lab and there is no change done to the procedure. Some labs report in > %, others report as a whole number and others report as a log reduction. > > Also remember that you want to look at 3 consecutive results to establish a > trend. > > Do you have any results from the time that you were diagnosed in May? Iw > ould be interesting to compare them to the lab at Northwestern. > > Zavie > > > > > > Zavie (age 71) > 67 Shoreham Avenue > Ottawa, Canada, K2G 3X3 > dxd AUG/99 > INF OCT/99 to FEB/00, CHF > No meds FEB/00 to JAN/01 > Gleevec since MAR/27/01 (400 mg) > CCR SEP/01. #102 in Zero Club > 2.8 log reduction Sep/05 > 3.0 log reduction Jan/06 > 2.9 log reduction Feb/07 > 3.6 log reduction Apr/08 > 3.6 log reduction Sep/08 > 3.7 log reduction Jan/09 > 3.8 log reduction May/09 > 3.8 log reduction Aug/09 > 4.0 log reduction Dec/09 > e-mail: zmiller@ > Tel: 613-726-1117 > Fax: 613-482-4801 > Cell: 613-282-0204 > ID: zaviem > Tel in FL: 561-429-5507 > > > > > > _____ > > From: groups (DOT) <mailto:%40> com [mailto:groups (DOT) <mailto:%40> com] On Behalf Of > > Sent: January-28-10 9:25 PM > groups (DOT) <mailto:%40> com > Subject: [ ] PCR > > > > > Tomorrow I have my Dr. appointment with Dr. Tallman at Northwestern. This is > my 3rd visit with him. When I saw him in September a PCR was done and the > result was 42. When I went back in October it was 10. I will have another > run tomorrow. My question is why isn't it reported in a decimal like > everyone elses? Does anyone else have theirs reported in a non-percentage? > > Wish me luck tomorrow. Hopefully everything is going smoothly. > > Thanks! > > Jen > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 Hi Sharon, I don't think so. Negative means that using their test they could not detect any CML. In other words you are PCRU. What you might do is ask them what the sensitivity of their test is. The more sensitive the test is, deeper the remission is. If you have a good relation with Dr. Tallman, I would ask him to continue following your treatment. He is one of the top CML specialists in the country. Zavie Zavie (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem Tel in FL: 561-429-5507 _____ From: [mailto: ] On Behalf Of Sharon Teichera Sent: January-30-10 11:34 AM Subject: RE: [ ] PCR Zavie My PCR results have always been reported in % and log reduction. All of a sudden I get a " negative " result. I don't feel comfortable with that. Should I be concerned? Sharon T _____ From: groups (DOT) <mailto:%40> com [mailto:groups (DOT) <mailto:%40> com] On Behalf Of Sent: Saturday, January 30, 2010 8:24 AM groups (DOT) <mailto:%40> com Subject: Re: [ ] PCR Thank you Zavie. I did not have a PCR done with my previous Dr. So this was my 3rd PCR. I should have the results in about a week. I also found out that my Dr, Dr. Tallman, will be leaving Northwestern for a new job in New York. He has referred me to another Dr. at Northwestern. Just when I thought I found a keeper, he leaves. I am scheduled to have a bmb on Feb. 8th. This will be my 2nd one. If this one comes back good, he said I shouldn't need another. Jen > > Hi , > > PCR results are reported several different ways. I don't think it matters > which way it is reported. What is important is that the PCR is done at the > same lab and there is no change done to the procedure. Some labs report in > %, others report as a whole number and others report as a log reduction. > > Also remember that you want to look at 3 consecutive results to establish a > trend. > > Do you have any results from the time that you were diagnosed in May? Iw > ould be interesting to compare them to the lab at Northwestern. > > Zavie > > > > > > Zavie (age 71) > 67 Shoreham Avenue > Ottawa, Canada, K2G 3X3 > dxd AUG/99 > INF OCT/99 to FEB/00, CHF > No meds FEB/00 to JAN/01 > Gleevec since MAR/27/01 (400 mg) > CCR SEP/01. #102 in Zero Club > 2.8 log reduction Sep/05 > 3.0 log reduction Jan/06 > 2.9 log reduction Feb/07 > 3.6 log reduction Apr/08 > 3.6 log reduction Sep/08 > 3.7 log reduction Jan/09 > 3.8 log reduction May/09 > 3.8 log reduction Aug/09 > 4.0 log reduction Dec/09 > e-mail: zmiller@ > Tel: 613-726-1117 > Fax: 613-482-4801 > Cell: 613-282-0204 > ID: zaviem > Tel in FL: 561-429-5507 > > > > > > _____ > > From: groups (DOT) <mailto:%40> com [mailto:groups (DOT) <mailto:%40> com] On Behalf Of > > Sent: January-28-10 9:25 PM > groups (DOT) <mailto:%40> com > Subject: [ ] PCR > > > > > Tomorrow I have my Dr. appointment with Dr. Tallman at Northwestern. This is > my 3rd visit with him. When I saw him in September a PCR was done and the > result was 42. When I went back in October it was 10. I will have another > run tomorrow. My question is why isn't it reported in a decimal like > everyone elses? Does anyone else have theirs reported in a non-percentage? > > Wish me luck tomorrow. Hopefully everything is going smoothly. > > Thanks! > > Jen > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 Hi Zavie I am very happy with my treatment so far. I have a great Doctor-Dr. Russin but my favorite medical person is an oncologist Pharmacist Dr. that is so on top of everything. She knows as much as my Doctor if not more. She calls me and goes over everything after I have my tests done. And there is no way I could switch to Dr. Tallman I have Kaiser and I would not be covered. Where does he practice? Sharon _____ From: [mailto: ] On Behalf Of Zavie Sent: Saturday, January 30, 2010 1:27 PM Subject: RE: [ ] PCR Hi Sharon, I don't think so. Negative means that using their test they could not detect any CML. In other words you are PCRU. What you might do is ask them what the sensitivity of their test is. The more sensitive the test is, deeper the remission is. If you have a good relation with Dr. Tallman, I would ask him to continue following your treatment. He is one of the top CML specialists in the country. Zavie Zavie (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem Tel in FL: 561-429-5507 _____ From: groups (DOT) <mailto:%40> com [mailto:groups (DOT) <mailto:%40> com] On Behalf Of Sharon Teichera Sent: January-30-10 11:34 AM groups (DOT) <mailto:%40> com Subject: RE: [ ] PCR Zavie My PCR results have always been reported in % and log reduction. All of a sudden I get a " negative " result. I don't feel comfortable with that. Should I be concerned? Sharon T _____ From: groups (DOT) <mailto:%40> com [mailto:groups (DOT) <mailto:%40> com] On Behalf Of Sent: Saturday, January 30, 2010 8:24 AM groups (DOT) <mailto:%40> com Subject: Re: [ ] PCR Thank you Zavie. I did not have a PCR done with my previous Dr. So this was my 3rd PCR. I should have the results in about a week. I also found out that my Dr, Dr. Tallman, will be leaving Northwestern for a new job in New York. He has referred me to another Dr. at Northwestern. Just when I thought I found a keeper, he leaves. I am scheduled to have a bmb on Feb. 8th. This will be my 2nd one. If this one comes back good, he said I shouldn't need another. Jen > > Hi , > > PCR results are reported several different ways. I don't think it matters > which way it is reported. What is important is that the PCR is done at the > same lab and there is no change done to the procedure. Some labs report in > %, others report as a whole number and others report as a log reduction. > > Also remember that you want to look at 3 consecutive results to establish a > trend. > > Do you have any results from the time that you were diagnosed in May? Iw > ould be interesting to compare them to the lab at Northwestern. > > Zavie > > > > > > Zavie (age 71) > 67 Shoreham Avenue > Ottawa, Canada, K2G 3X3 > dxd AUG/99 > INF OCT/99 to FEB/00, CHF > No meds FEB/00 to JAN/01 > Gleevec since MAR/27/01 (400 mg) > CCR SEP/01. #102 in Zero Club > 2.8 log reduction Sep/05 > 3.0 log reduction Jan/06 > 2.9 log reduction Feb/07 > 3.6 log reduction Apr/08 > 3.6 log reduction Sep/08 > 3.7 log reduction Jan/09 > 3.8 log reduction May/09 > 3.8 log reduction Aug/09 > 4.0 log reduction Dec/09 > e-mail: zmiller@ > Tel: 613-726-1117 > Fax: 613-482-4801 > Cell: 613-282-0204 > ID: zaviem > Tel in FL: 561-429-5507 > > > > > > _____ > > From: groups (DOT) <mailto:%40> com [mailto:groups (DOT) <mailto:%40> com] On Behalf Of > > Sent: January-28-10 9:25 PM > groups (DOT) <mailto:%40> com > Subject: [ ] PCR > > > > > Tomorrow I have my Dr. appointment with Dr. Tallman at Northwestern. This is > my 3rd visit with him. When I saw him in September a PCR was done and the > result was 42. When I went back in October it was 10. I will have another > run tomorrow. My question is why isn't it reported in a decimal like > everyone elses? Does anyone else have theirs reported in a non-percentage? > > Wish me luck tomorrow. Hopefully everything is going smoothly. > > Thanks! > > Jen > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2010 Report Share Posted February 4, 2010 Dear Zavie, and all of my fellow CMLrs. I got my PCR test results back from OHSU. This is the first time my Oncologist has used OHSU, after problems from the previous lab we used.  I am now at 0.69. The previous results were 7.49, then we increased my Gleevec to 600mg. and my results were then 1.06. OHSU runs an international scale also, and I'm curious, how many of you get results from the international scale? Have a great day everyone! Dx. 5/08 ________________________________ From: Zavie <zmiller@...> Sent: Sat, January 30, 2010 1:26:34 PM Subject: RE: [ ] PCR  Hi Sharon, I don't think so. Negative means that using their test they could not detect any CML. In other words you are PCRU. What you might do is ask them what the sensitivity of their test is. The more sensitive the test is, deeper the remission is. If you have a good relation with Dr. Tallman, I would ask him to continue following your treatment. He is one of the top CML specialists in the country. Zavie Zavie (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem Tel in FL: 561-429-5507 _____ From: groups (DOT) com [mailto:groups (DOT) com] On Behalf Of Sharon Teichera Sent: January-30-10 11:34 AM groups (DOT) com Subject: RE: [ ] PCR Zavie My PCR results have always been reported in % and log reduction. All of a sudden I get a " negative " result. I don't feel comfortable with that. Should I be concerned? Sharon T _____ From: groups (DOT) <mailto:% 40groups. com> com [mailto:@ groups. <mailto:% 40groups. com> com] On Behalf Of Sent: Saturday, January 30, 2010 8:24 AM groups (DOT) <mailto:% 40groups. com> com Subject: Re: [ ] PCR Thank you Zavie. I did not have a PCR done with my previous Dr. So this was my 3rd PCR. I should have the results in about a week. I also found out that my Dr, Dr. Tallman, will be leaving Northwestern for a new job in New York. He has referred me to another Dr. at Northwestern. Just when I thought I found a keeper, he leaves. I am scheduled to have a bmb on Feb. 8th. This will be my 2nd one. If this one comes back good, he said I shouldn't need another. Jen > > Hi , > > PCR results are reported several different ways. I don't think it matters > which way it is reported. What is important is that the PCR is done at the > same lab and there is no change done to the procedure. Some labs report in > %, others report as a whole number and others report as a log reduction. > > Also remember that you want to look at 3 consecutive results to establish a > trend. > > Do you have any results from the time that you were diagnosed in May? Iw > ould be interesting to compare them to the lab at Northwestern. > > Zavie > > > > > > Zavie (age 71) > 67 Shoreham Avenue > Ottawa, Canada, K2G 3X3 > dxd AUG/99 > INF OCT/99 to FEB/00, CHF > No meds FEB/00 to JAN/01 > Gleevec since MAR/27/01 (400 mg) > CCR SEP/01. #102 in Zero Club > 2.8 log reduction Sep/05 > 3.0 log reduction Jan/06 > 2.9 log reduction Feb/07 > 3.6 log reduction Apr/08 > 3.6 log reduction Sep/08 > 3.7 log reduction Jan/09 > 3.8 log reduction May/09 > 3.8 log reduction Aug/09 > 4.0 log reduction Dec/09 > e-mail: zmiller@ > Tel: 613-726-1117 > Fax: 613-482-4801 > Cell: 613-282-0204 > ID: zaviem > Tel in FL: 561-429-5507 > > > > > > _____ > > From: groups (DOT) <mailto:% 40groups. com> com [mailto:@ groups. <mailto:% 40groups. com> com] On Behalf Of > > Sent: January-28-10 9:25 PM > groups (DOT) <mailto:% 40groups. com> com > Subject: [ ] PCR > > > > > Tomorrow I have my Dr. appointment with Dr. Tallman at Northwestern. This is > my 3rd visit with him. When I saw him in September a PCR was done and the > result was 42. When I went back in October it was 10. I will have another > run tomorrow. My question is why isn't it reported in a decimal like > everyone elses? Does anyone else have theirs reported in a non-percentage? > > Wish me luck tomorrow. Hopefully everything is going smoothly. > > Thanks! > > Jen > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.