Guest guest Posted January 13, 2010 Report Share Posted January 13, 2010 Hello, Just wanted to share the news I recieved yesterday..I am PCRU...0% PH detected..I was Dx May 08 and started on Gleevec 400mg.Bummed up to 600mg after a few months.Had many issues with gleevec.In August 09 I switched drugs to Sprycel(100mg) and in less than 4 months reached PCRU.. Hope to retain this same level for life now..Thanks for all the help and support I have recieved from so many wonderful people here.. Thanks SharonS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2010 Report Share Posted January 13, 2010 YES!!! On Wed, Jan 13, 2010 at 1:20 PM, Serenity <serenitywon@...> wrote: > > > Hello, > Just wanted to share the news I recieved yesterday..I am PCRU...0% PH > detected..I was Dx May 08 and started on Gleevec 400mg.Bummed up to 600mg > after a few months.Had many issues with gleevec.In August 09 I switched > drugs to Sprycel(100mg) and in less than 4 months reached PCRU.. > > Hope to retain this same level for life now..Thanks for all the help and > support I have recieved from so many wonderful people here.. > > Thanks > SharonS > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2010 Report Share Posted January 13, 2010 congratulations! as someone newly dx'd - it truly brings tears to my eyes that this is possible...thanks and blessings Cheryl > > Hello, > Just wanted to share the news I recieved yesterday..I am PCRU...0% PH detected..I was Dx May 08 and started on Gleevec 400mg.Bummed up to 600mg after a few months.Had many issues with gleevec.In August 09 I switched drugs to Sprycel(100mg) and in less than 4 months reached PCRU.. > > Hope to retain this same level for life now..Thanks for all the help and support I have recieved from so many wonderful people here.. > > Thanks > SharonS > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2010 Report Share Posted January 14, 2010 So happy to hear of your wonderful news Sharon S. Congrats!!!!! Eva From: Serenity Sent: Wednesday, January 13, 2010 4:20 PM Subject: [ ] PCRU reached Hello, Just wanted to share the news I recieved yesterday..I am PCRU...0% PH detected..I was Dx May 08 and started on Gleevec 400mg.Bummed up to 600mg after a few months.Had many issues with gleevec.In August 09 I switched drugs to Sprycel(100mg) and in less than 4 months reached PCRU.. Hope to retain this same level for life now..Thanks for all the help and support I have recieved from so many wonderful people here.. Thanks SharonS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2010 Report Share Posted January 14, 2010 I did reach it and in only 19 months..Sorry to hear of your DX but you too will get through just as many others here have..There is hope and we can't loss sight of that.. SharonS > > > > Hello, > > Just wanted to share the news I recieved yesterday..I am PCRU...0% PH detected..I was Dx May 08 and started on Gleevec 400mg.Bummed up to 600mg after a few months.Had many issues with gleevec.In August 09 I switched drugs to Sprycel(100mg) and in less than 4 months reached PCRU.. > > > > Hope to retain this same level for life now..Thanks for all the help and support I have recieved from so many wonderful people here.. > > > > Thanks > > SharonS > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2010 Report Share Posted January 14, 2010 Thank you Eva and everyone else for the warm wishes..I truely appreciate all the support here.. SharonS > > So happy to hear of your wonderful news Sharon S. Congrats!!!!! > Eva > > > From: Serenity > Sent: Wednesday, January 13, 2010 4:20 PM > > Subject: [ ] PCRU reached > > > > Hello, > Just wanted to share the news I recieved yesterday..I am PCRU...0% PH detected..I was Dx May 08 and started on Gleevec 400mg.Bummed up to 600mg after a few months.Had many issues with gleevec.In August 09 I switched drugs to Sprycel(100mg) and in less than 4 months reached PCRU.. > > Hope to retain this same level for life now..Thanks for all the help and support I have recieved from so many wonderful people here.. > > Thanks > SharonS > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2010 Report Share Posted January 14, 2010 Fabulous, fabulous, fabulous SharonS!!!!!!! Hugs, JoAnn > > Hello, > Just wanted to share the news I recieved yesterday..I am PCRU...0% PH detected..I was Dx May 08 and started on Gleevec 400mg.Bummed up to 600mg after a few months.Had many issues with gleevec.In August 09 I switched drugs to Sprycel(100mg) and in less than 4 months reached PCRU.. > > Hope to retain this same level for life now..Thanks for all the help and support I have recieved from so many wonderful people here.. > > Thanks > SharonS > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2010 Report Share Posted January 14, 2010 I am thrilled for you Sharon. One Sharon to another Sharon-way to go girl!!!!! Sharon T #878 Tasigna 2 years PCRU _____ From: [mailto: ] On Behalf Of JoAnn Sent: Wednesday, January 13, 2010 6:02 PM Subject: [ ] Re: PCRU reached Fabulous, fabulous, fabulous SharonS!!!!!!! Hugs, JoAnn > > Hello, > Just wanted to share the news I recieved yesterday..I am PCRU...0% PH detected..I was Dx May 08 and started on Gleevec 400mg.Bummed up to 600mg after a few months.Had many issues with gleevec.In August 09 I switched drugs to Sprycel(100mg) and in less than 4 months reached PCRU.. > > Hope to retain this same level for life now..Thanks for all the help and support I have recieved from so many wonderful people here.. > > Thanks > SharonS > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2010 Report Share Posted January 14, 2010 Great news. For those of us that are not at yet PCRU, keep in mind that it is not necessary to achieve this level to insure that the CML will never rear its ugly head again. Dr. Duker has assured us that maintaing CCR (the milestone that gets you into the Zero Club) for several years is a good as getting to PCRU when it comes to insuring that you will not relapse with your CML. So, get to CCR, maintain it and you will live a full and productive life. Zavie Zavie (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem Tel in FL: 561-429-5507 _____ From: [mailto: ] On Behalf Of Serenity Sent: January-13-10 4:20 PM Subject: [ ] PCRU reached Hello, Just wanted to share the news I recieved yesterday..I am PCRU...0% PH detected..I was Dx May 08 and started on Gleevec 400mg.Bummed up to 600mg after a few months.Had many issues with gleevec.In August 09 I switched drugs to Sprycel(100mg) and in less than 4 months reached PCRU.. Hope to retain this same level for life now..Thanks for all the help and support I have recieved from so many wonderful people here.. Thanks SharonS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2010 Report Share Posted January 14, 2010 Congratulations awesome news ________________________________ From: Serenity <serenitywon@...> Sent: Wed, January 13, 2010 3:20:09 PM Subject: [ ] PCRU reached Hello, Just wanted to share the news I recieved yesterday..I am PCRU...0% PH detected..I was Dx May 08 and started on Gleevec 400mg.Bummed up to 600mg after a few months.Had many issues with gleevec.In August 09 I switched drugs to Sprycel(100mg) and in less than 4 months reached PCRU.. Hope to retain this same level for life now..Thanks for all the help and support I have recieved from so many wonderful people here.. Thanks SharonS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2010 Report Share Posted January 14, 2010 Zavie, I was very happy with the level that I had reached prior to PCRU..I was 000.24 and lower..I thought that was great..I was completely surprised by 0%.I am also hoping that a cure will be found but am thankful that drugs exsist to keep us alive..I was not aware that reaching PCRU increased your odds for the PH Chrom,of not returning.That is good neews..I know not a guarantee but very encouraging news.. Thank You SharonS #1226 > > Great news. > > For those of us that are not at yet PCRU, keep in mind that it is not > necessary to achieve this level to insure that the CML will never rear its > ugly head again. Dr. Duker has assured us that maintaing CCR (the milestone > that gets you into the Zero Club) for several years is a good as getting to > PCRU when it comes to insuring that you will not relapse with your CML. > > So, get to CCR, maintain it and you will live a full and productive life. > > Zavie > > Zavie (age 71) > 67 Shoreham Avenue > Ottawa, Canada, K2G 3X3 > dxd AUG/99 > INF OCT/99 to FEB/00, CHF > No meds FEB/00 to JAN/01 > Gleevec since MAR/27/01 (400 mg) > CCR SEP/01. #102 in Zero Club > 2.8 log reduction Sep/05 > 3.0 log reduction Jan/06 > 2.9 log reduction Feb/07 > 3.6 log reduction Apr/08 > 3.6 log reduction Sep/08 > 3.7 log reduction Jan/09 > 3.8 log reduction May/09 > 3.8 log reduction Aug/09 > 4.0 log reduction Dec/09 > e-mail: zmiller@ > Tel: 613-726-1117 > Fax: 613-482-4801 > Cell: 613-282-0204 > ID: zaviem > Tel in FL: 561-429-5507 > > > _____ > > From: [mailto: ] On Behalf Of > Serenity > Sent: January-13-10 4:20 PM > > Subject: [ ] PCRU reached > > > > > Hello, > Just wanted to share the news I recieved yesterday..I am PCRU...0% PH > detected..I was Dx May 08 and started on Gleevec 400mg.Bummed up to 600mg > after a few months.Had many issues with gleevec.In August 09 I switched > drugs to Sprycel(100mg) and in less than 4 months reached PCRU.. > > Hope to retain this same level for life now..Thanks for all the help and > support I have recieved from so many wonderful people here.. > > Thanks > SharonS > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2010 Report Share Posted January 15, 2010 Congratulations Sharon on your PCRU. There are a lot of people doing very well on Sprycel, and all the other treatments that are now available. We are blessed with all the new advances in the fight for a cure. #293 > > > > Hello, > > Just wanted to share the news I recieved yesterday..I am PCRU...0% PH > detected..I was Dx May 08 and started on Gleevec 400mg.Bummed up to 600mg > after a few months.Had many issues with gleevec.In August 09 I switched > drugs to Sprycel(100mg) and in less than 4 months reached PCRU.. > > > > Hope to retain this same level for life now..Thanks for all the help and > support I have recieved from so many wonderful people here.. > > > > Thanks > > SharonS > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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