Test Results

December 9, 2003

Dear Caroline,

The more I read about your sons labs, the more I'm amazed by the similarities

between our boys. If I remember correctly, you recently said that your sons MCV,

MCH levels are high, WBC a bit low, sed rate little high and viral tests are

neg. We have the exact same labs with . His WBC is low, the only viral

titer that is high is sackie-but he had the virus last summer, MCV and MCH

are always low. How were your sons MMR titers? 's were high-but there is

nothing to do about this, so I'm told.

Did you mention that you once lived on a golf course and you thought that you

were being affected by the chemicals used to treat the grass? I'm not sure if

this was your post or not?

We also live on a golf course and it seems so odd that our boys labs as well as

there symptoms are are so similar. also developed normal muscle tone after

antivirals as well as other meds on the protocol.. Please write back on or

off list . Thank you,

Re: test results

Anne-Marie,

The only things that were flagged as abnormal in my son's first labs 2 years

ago were his antigliadin antibodies and his sed rate (the sed rate was a

little high but not extremely high). His WBC was a bit low but still in the

normal range, and Dr. G commented on that possibly indicating a viral

connection (even though none of the viral tests had come back positive).

The WBC count has been a continued focus in our case, even though it is

usually right at the low end of " normal " .

The labs are not the only thing Dr. G looks at... the child's own medical

history and family history also weigh heavily. The fact that my child had

hypotonia (low muscle tone) and HORRIBLE motor skills (at age 6 when he

started with Dr. G he could even not blow his nose) was, Dr. Goldberg said,

an indicator of possible underlying viral involvement. Dr. Goldberg was

right. Within a couple of months of starting the protocol, my son could

blow his nose. After being on Valtrex (and other meds) for a while, my

son's muscle tone NORMALIZED. He had never had reflexes and he developed

normal reflexes. To quote the pediatric specialist he was seeing " This just

doesn't happen! " . She called Dr. Goldberg and after the conversation, she

started referring some of her patients in Indiana out to see Dr. Goldberg in

CA.

The whole picture is a puzzle and it manifests in different ways in

different kids. That is part of why it has been so hard to figure out.

Hang in there... there is great hope for these children.

Caroline

Responsibility for the content of this message lies strictly with

the original author, and is not necessarily endorsed by or the

opinion of the Research Institute.

December 9, 2003

Hi Jess,

We saw immediate results with the antivirals as I said before. After a period of

die-off (three weeks if I remember correctly) went from not being able to

ride a tricycle to riding a two-wheel bike(w/training wheels set at the top so

he had to balance). His language also improved greatly. His motor planning was

much improved also.

Hope this helps,

Re: test results

That's what I was told about her Candida being negative. That since

she had thrush as an infant it is impossible for her not to have any

antibodies in her system. So either the test was wrong or she has a

fungal infection and her body is not doing anything to fight it.

Can you tell me about die off. I was told that since her HHV-6 is

high, the first thing will be anti-virals. I've read in post about

die off with anti-fungals, but I don't know if I saw it relating to

anti-virals. Is there a difference in reaction. What were some of

the things all of you saw? And is there anyone who saw immediate

progress?

Responsibility for the content of this message lies strictly with

the original author, and is not necessarily endorsed by or the

opinion of the Research Institute.

December 10, 2003

,

You're right about the WBC being a bit low, sed rate little high and viral

tests being negative...

but the MCV and MCH levels on my son are right in middle range. That must

have been someone else. I also remember someone saying they had lived on a

golf course, but that wasn't me (but I'm sure the view was lovely!).

Funny you should mention the MMR titer. That is one test I don't believe we

have ever run on my son, but my " NT " daughter had to be vaccinated this year

(kindergarten shots... we wanted to follow Dr. G's advice and wait 'til she

was older to do the MMR) because we had those titers run on her and she

didn't show immunity. That reminds me that Dr. G suggested that we have

those titers run again to see if the new vaccines took. I should buy stock

in the company that makes Emla... or Ela-Max.

By the way, my son is evidently a PANDAS kiddo... his strep antibodies were

high and after watching them for many months, Dr. G decided to put him on

Erythromycin and we had a great improvement in focus within a few days

(obvious enough that the teacher called me from school in the middle of the

day to express her delight). BTW , if you're reading this, I forgot to

mention that one to you.

I'm so glad is doing well. I find it an interesting twist of fate that

my child had hypotonia and that if he hadn't *also* had an ASD diagnosis

(which led us to Dr. Goldberg), he would still be hypotonic. Every cloud

does have a silver lining.

Hope that helps!

Caroline

> On 12/9/03 6:02 PM, " LINDA ANAGNOSTAKOS " <lsa5885@...> wrote:

> Dear Caroline,

>

> The more I read about your sons labs, the more I'm amazed by the similarities

> between our boys. If I remember correctly, you recently said that your sons

> MCV, MCH levels are high, WBC a bit low, sed rate little high and viral tests

> are neg. We have the exact same labs with . His WBC is low, the only

> viral titer that is high is sackie-but he had the virus last summer, MCV

> and MCH are always low. How were your sons MMR titers? 's were high-but

> there is nothing to do about this, so I'm told.

> Did you mention that you once lived on a golf course and you thought that you

> were being affected by the chemicals used to treat the grass? I'm not sure if

> this was your post or not?

> We also live on a golf course and it seems so odd that our boys labs as well

> as there symptoms are are so similar. also developed normal muscle tone

> after antivirals as well as other meds on the protocol.. Please write

> back on or off list . Thank you,

>

September 29, 2004

LISA - I'm so glad your test results were good news! I hope you can

get into to see a new rheumy soon!

Jennie

--- In , " lisaplumeria " <lisamolino@h...>

wrote:

> HI everyone...

> I got my test results.... they are soooo good. The function has

> dropped down dramatically and I am on the road back to functioning

> great. She tested fro this smooth tissue something or another

that

> has to do with connective tissue something so I have to talk to

her

> about what that is all about because I guess I tested higher in

that

> but all I care about right now is MY LIVER IS DOING SO GOOD!

>

> I will never ever take a tyelenol again - in fact, I don't think I

> will even give my kids it - it scares me...livers are just to

fragile

> and too special.

>

> So thank you all for your outpouring of support, hugs and love!

You

> all are so wonderful. Now I am waiting for my referall to a new

> rheumie for follow up cause the flare is FLARING!!!

September 30, 2004

Great news !

a

> HI everyone...

> I got my test results.... they are soooo good. The function has

> dropped down dramatically and I am on the road back to functioning

> great. She tested fro this smooth tissue something or another that

> has to do with connective tissue something so I have to talk to her

> about what that is all about because I guess I tested higher in that

> but all I care about right now is MY LIVER IS DOING SO GOOD!

>

> I will never ever take a tyelenol again - in fact, I don't think I

> will even give my kids it - it scares me...livers are just to fragile

> and too special.

>

> So thank you all for your outpouring of support, hugs and love! You

> all are so wonderful. Now I am waiting for my referall to a new

> rheumie for follow up cause the flare is FLARING!!!

>

September 30, 2004

Glad to hear some good news , hugs Tawny

--- In , " lisaplumeria " <lisamolino@h...>

wrote:

> HI everyone...

> I got my test results.... they are soooo good. The function has

> dropped down dramatically and I am on the road back to functioning

> great. She tested fro this smooth tissue something or another that

> has to do with connective tissue something so I have to talk to her

> about what that is all about because I guess I tested higher in

that

> but all I care about right now is MY LIVER IS DOING SO GOOD!

>

> I will never ever take a tyelenol again - in fact, I don't think I

> will even give my kids it - it scares me...livers are just to

fragile

> and too special.

>

> So thank you all for your outpouring of support, hugs and love!

You

> all are so wonderful. Now I am waiting for my referall to a new

> rheumie for follow up cause the flare is FLARING!!!

March 31, 2005

Hello Everyone,

Yet again I have hit another road block! I had another round of blood tests done, including the FREE T3 and T4 that everyone told me to have checked. Again, I am as healthy as any women would want to be! Great News, but what about the HAIR LOSS? I can't be too healthy if I am losing my freaking hair!

I don't know where to go next. I'm trying to see a Dermatologist but the only one I would trust, is not taking any new patients. I don't want to go to just any Derm.

I am going to get started on a healing program and vitamins from a Wellness specialist. It can't hurt! Who knows, maybe the vit. will help the hair loss...doubt it!

Does anyone think I should have my test results faxed to Dr. Melmed or Kolb for a second opinion? Or anyone else for that matter?

Any info would be appreciated!

Marie

March 31, 2005

Hi Marie,

Do you have a good ND in your area? ND’s look at test results differently and what is normal to an MD isn’t always to an ND. You know your body and you know something isn’t right. I wouldn’t give up. Definitely fax the results to Dr. Melmed or Dr. Kolb. They know implants and related problems better than any other docs out there. Have you done a hair analysis?

Kenda

Hello Everyone,

Yet again I have hit another road block! I had another round of blood tests done, including the FREE T3 and T4 that everyone told me to have checked. Again, I am as healthy as any women would want to be! Great News, but what about the HAIR LOSS? I can't be too healthy if I am losing my freaking hair!

I don't know where to go next. I'm trying to see a Dermatologist but the only one I would trust, is not taking any new patients. I don't want to go to just any Derm.

I am going to get started on a healing program and vitamins from a Wellness specialist. It can't hurt! Who knows, maybe the vit. will help the hair loss...doubt it!

Does anyone think I should have my test results faxed to Dr. Melmed or Kolb for a second opinion? Or anyone else for that matter?

Any info would be appreciated!

Marie

Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment.

" Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world. " - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

March 31, 2005

Kenda,

I don't think Dr. Melmed gets into treating - or even

understanding - the illnesses caused by implants. Dr.

Kolb would be the best information source.

Hugs,

Rogene

December 4, 2006

>

> Anyone know anything about Glucose Serum? Mine came back pretty low

on my most recent tests.

>

I know that my son had one run the other day by Quest. It came back

32! That would mean he would be in a coma. He wasn't even feeling

bad that day. I don't trust them with glucose levels anymore.

Certainly seems like they need to calibrate their machines more

frequently.

Do you tend to have low blood sugar symptoms?

December 5, 2006

Hmmm, mine was done at labcorp (same company as Quest now). I don't have any overt symptoms right now. And I think my symptoms of faintness & light headedness when I do have them are more related to neurally mediated hypotension than blood sugar problems or hypoglycemia. Who knows? I may up the chromium intake. I've noticed an improvement in my overal cravings when I take chromium. And I know some docs believe you can prevent diabetes with chromium, so might be worth a shot. Thanks, though. I'll just get it retested and I guess you get some additional tests for hypoglycemia and diabetes as well? penny kgg12003 <kgenest@...> wrote: >> Anyone know anything about Glucose Serum? Mine came back pretty lowon my most recent tests. > I know that my son had one run the other day by Quest. It came back32! That would mean he would be in a coma. He wasn't even feelingbad that day. I don't trust them with glucose levels anymore. Certainly seems like they need to calibrate their machines morefrequently.Do you tend to have low blood sugar symptoms?

Need a quick answer? Get one in minutes from people who know. Ask your question on

Answers.

December 5, 2006

>

> Thanks, though. I'll just get it retested and I guess you get some

additional tests for hypoglycemia and diabetes as well?

>

> penny

>

Penny, what a friend of mine did when Quest came up with some results

that looked like she was becoming diabetic was to use her husband

glucose monitor. This woman had a super clean diet so it was

incredible to think that she was diabetic. Anyway,do you have a

friend or relative who uses a home monitor? She did some random

fastings and 1-2 hours after meals. No results showed that she was

diabetic or even running high.

Best,

January 13, 2010

I just received results from a BCR/ABL FISH study and my results came back 0.0%.

I am not sure if this is the same type of test that many of you have done and

should I have additional tests done to dig further to see if I am actually free

of the Ph gene? I am such a newbie when it comes to understanding the medical

side of CML.

Margie Nance

Charlotte, NC

09/09 Gleevec 400mg

January 13, 2010

Hi Margie, FANTASTIC... that's the kind of good news we all love to hear!

Don't worry, stick around this group and you will soon impress your friends

and family as you become a science wizard! Ha Ha! The're others here who are

really good at explaining things in terms most of us can understand. Your

next test will probably be what's called an RT-PCR, or PCR for short. That

is a very sensitive test when it comes to looking for signs of CML. From

your point of view it is just another blood draw but it takes some real

wizards to complete the process. Your goal is to become PCR-U

" Undetectable " , and stay that way!

Stay in touch with the group, these are ALL great people!

Troxel

Dx 2/2003

On Wed, Jan 13, 2010 at 7:42 AM, margie <margie@...> wrote:

>

> I just received results from a BCR/ABL FISH study and my results came back

> 0.0%. I am not sure if this is the same type of test that many of you have

> done and should I have additional tests done to dig further to see if I am

> actually free of the Ph gene? I am such a newbie when it comes to

> understanding the medical side of CML.

>

> Margie Nance

> Charlotte, NC

> 09/09 Gleevec 400mg

>

January 13, 2010

Margie you should be getting a number from Zavie with a big yippee!!!!!!!

Sharon

#878

Tasagna 2 years in March

Doing wonderful

Re: [ ] Test Results