Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Marie, what wonderful news! You must be walking on air today! Marilyn Great news Hi everyone, Great news, my treatment is working. My doctor sent a little note with the blood test results saying. Hepatitis C ? What Hepatitis C ? Congratulations! Treatment is working! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 WOW Marie!! That is the BEST news I've had in over 2 weeks. I'm so glad to hear you are doing so great. Keep up the good work! Glad to hear the RBC has come back into the normal range and the thyroid is behaving too. LeighAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Marie, Like the Hippy-Dippy Weatherman would say, " Like wow, man, do drugs, they work! " Glenn > Hi everyone, > Great news, my treatment is working. My doctor sent a little note with the > blood test results saying. > > Hepatitis C ? > What Hepatitis C ? > Congratulations! Treatment is working! > > > The results of my PCR (viral load test) is LESS THAN 50, which is as low as > the test goes. That's a great improvement over 1.8 million! > > I guess this means I continue my treatment. Oh, well, at least I know it's > working. 15 weeks down, 33 to go. > > The doctor also gave me a prescription for a lower dose of my thyroid > medicine. He said I don't need as much, because my thyroid is working > better. Another bit of good news. > > My red blood cell count is also back to normal. Imagine that. For some > reason there was no liver function test done this month, but with everything > else OK, I'm sure they're normal, too. It was all normal last month. > Platelets normal, too. > > Well, gotta go spread the good news. > > Marie in FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2003 Report Share Posted August 21, 2003 > / 4makelas@s... > Way, Way Up in Northern Ontario > > TREATMENT > Eves Government Builds Bridge To The Future For Older Children With Autism > http://www.newswire.ca/releases/August2003/11/c9317.html > CNW- The Ernie Eves government is delivering on its promise to help > older children with autism, making Ontario the first province to develop a > program aimed at meeting the unique needs of these children. , That's exciting news. Do you live in this area? Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2003 Report Share Posted August 21, 2003 , That's exciting news. Maybe we will be able to learn from them some ideas as we too are building a pilot plan here! F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 That's great news! That's got to be a great load off your mind. -dz-rick <r_martin85@...> wrote: Will all dr. called today and last blood test was neg. again. WOOOOOHOOOO said looks like they was wrong and i never had hep c.Still have to go see him on the 16th. I do want to stay in this group you all have became good friends. Rick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 This is a major milestone!!I am so happy for you! R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 - That is great news !!! At least you can get some help. It sounds weird, but I have to realize how greatfull my problem was not related to any work issues, and I had no problem with my insurance (other than I owe a ton of money to the hospital). I have always heard such horror stories about workers comp, my only experience was a broken foot, which was pretty hard to deny it was broken !!! Back stuff is hard enough to diagnose, much less prove how it happenend. I am really nervous, living in California with our new Governator and his ideas on Workers Comp reform how many people will be denied the help they need. Of course, there is an incredable amount of abuse in the system, both ways !!! If you don't mind if I ask, what caused your spondy...I have absolutely no idea of any injury or anything that caused mine. I distinctly remember when I blew a disc, but no injuries/accidents that would have caused the spondy. Hopefully, you will be up and " running " soon. Kris > Ok all, for those of you who listened to my complaining about the > insurance (Workers Comp) denying my claim and I was basically on my > own, well that adjuster was either fired (this is what I think) or > quit, I was given a new adjuster and they have APPROVED me to go back > to the Dr. approved my meds and approved the MRI for the possiblity > of surgery. For those who dont know what is going on with me, I have > a grade 2-3 (now) spondylothesis, pars defect @ L5 S1 now with a 3 mm > displacement at L5 S1. I have since been told that any wrong move > will place my sorry butt in a wheel chair for the rest of my life, > the vertabrae has twisted and is now pulling on the spinal cord. > Ahhh yes I know when it is to because I could easily become a cat and > hang from the ceiling when it hits me. > > I sympathize with all of you whos lives have been disrupted by your > wonderful back. I have been placed on bed or chair restriction, no > movement that isnt necessary at all. I feel like some kind of a > vegatable, just lying around, watching the world go past me as I > sit/lie and wait. > > Have a good one all. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 Glad that you are finally progressing...just be careful. I am surprised they didn't take you in as an emergency. Viv in GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Good news Connie. Didn't you have all those other symptoms before? I had most of that stuff when I was sick, everything except ankle pain. I figured it was all lyme related. The blood type diet is good if you are from a true blood line. Nowadays this is not too accurate because of the interbreeding and all. Most doctors use the metabolic typing tests now to see how you should eat, have you heard of these? Diet makes a huge difference, if more people could just realize this. Well anyway, glad you don't have to start all over again. -- [ ] great news Hi Everyone, I heard from my LLMD today. My Dr. ran the blood test twice to make sure... ....both came back negative for lyme disease. I am so, so, happy. Most of my symptoms can be explained....most of which I have found out this past week. My ankle pain, are bone spurs, my hip pain is an inflamed S-I joint. My sweating is low blood sugar. My fatigue is a thyroid problem. My abnormal bp and pulse.......have yet to be explained. I did have an echocardiogram today...so we will see. Isn't it odd.........but I'm happy that I have these other health issues and it isn't lyme disease. I can take care of these health problems so much easier than dealing with lyme disease. The only symptom I can't explain was the short period of time with teeth pain........that has totally subsided.........but was always a barometer when I had lyme.........I think that is why my LLMD ran the blood tests twice. Anyway..........I feel better and better, as we get these other health issues taken care of. I even started following Dr. D'Adamo's diet. Eating according to your blood type. Staying away from the foods I'm allergic to......is making me feel better and I'm losing weight. Well, it's too hot to sit at my computer........taking the dogs down to the lake, so we can all take a swim and cool off. Hope everyone else is doing ok today. Connieknwnj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2005 Report Share Posted July 12, 2005 Thanks , I had some of these symptoms with lyme. Especially the hip pain..........for years I haven't been able to find a Dr. that could explain the hip pain. They all kept saying it was coming from my back. Well, I finally went down to a more populated area, where Drs. see many, many, patients with lots of different problems.........through my Physical Therapist and my Dr.....I was dx with an inflamed S-I joint of the Hip. It has taken seven months of PT, and three S-I joints injections to get the pain to completely resolve. I am so glad something I have suffered from for 8 years has finally been resolved. I am feeling better..........I do much better on the Blood type diet too. I had some blood testing done (to the tune of $500), and found which foods I have an allergy to. Some of them are the ones that type O's are allergic to according to Dr. D'adamo........Like Dairy. I don't touch dairy anymore........drink rice milk, eat sheep cheese, use soy butter........etc. I believe when you eat foods that you are intolerant to or allergic to........you cause your immune system to weaken and also end up with symptoms like join pain, cough, diarrhea, sleeplessness and sleepiness, etc. I don't believe I have had the metabolic typing test done.......next time I go into NY, I'll ask about it. I have been on the thyroid meds for almost a week now and regulating my body's sugar levels through food.....it's amazing how different I am starting to feel. I hope I don't encounter any more ticks this summer..... Connieknwnj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2005 Report Share Posted July 12, 2005 Glad to hear about your hip. You would not think that would be hard to figure out for a doctor. I had another friend that had been thru 2 years of testing with pain in leg. The way she described to me, I kept saying it sounds like your sciatica. They put her through hell, with MRI's and test after test. They even made her think she had cancer at one point. Then just recently she tells me it was my sciatica. She also found out with all the testing that she had heavy metals. thousands of dollars to find out 2 simple things. So where on earth to you get sheep cheese?? I have used goat cheese but never sheep. I think the problem with dairy is what they feed the cows, the hormones and the antibiotics and also the pasteurization. I am not sure what has come first the weak immune system and then we cant tolerate foods, or the foods cause us to have a weak immune. Our ancestors ate the dairy and gluten, I think there are so many factors in this crazy world we live in. My thyroid was wrecked with the lyme also, but I have brought it back with supplements. The metabolic typing test is just a series of questions about how certain foods makes you feel, about energy during the day and stuff like that. They are easy to take. They will then tell you is you should be eating mostly protein, mostly carbs, or mixed. Then they will have explanations of the different types. Too bad that once you have lyme disease you do not become immune to it, like in other things. -- Re: [ ] great news Thanks , I had some of these symptoms with lyme. Especially the hip pain..........for years I haven't been able to find a Dr. that could explain the hip pain. They all kept saying it was coming from my back. Well, I finally went down to a more populated area, where Drs. see many, many, patients with lots of different problems.........through my Physical Therapist and my Dr.....I was dx with an inflamed S-I joint of the Hip. It has taken seven months of PT, and three S-I joints injections to get the pain to completely resolve. I am so glad something I have suffered from for 8 years has finally been resolved. I am feeling better..........I do much better on the Blood type diet too. I had some blood testing done (to the tune of $500), and found which foods I have an allergy to. Some of them are the ones that type O's are allergic to according to Dr. D'adamo........Like Dairy. I don't touch dairy anymore........drink rice milk, eat sheep cheese, use soy butter........etc. I believe when you eat foods that you are intolerant to or allergic to...... ..you cause your immune system to weaken and also end up with symptoms like join pain, cough, diarrhea, sleeplessness and sleepiness, etc. I don't believe I have had the metabolic typing test done.......next time I go into NY, I'll ask about it. I have been on the thyroid meds for almost a week now and regulating my body s sugar levels through food.....it's amazing how different I am starting to feel. I hope I don't encounter any more ticks this summer..... Connieknwnj Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2005 Report Share Posted July 13, 2005 Hi Connie, What kind of diet are you on? I am trying so hard to eat right because my Lyme disease is pretty much out of control at this time. I heard that eating anything with sugar will fuel the Lyme disease, have you heard anything about that? Thank You!! > Hi Everyone, > > I heard from my LLMD today. My Dr. ran the blood test twice to make sure.......both came back negative for lyme disease. > > I am so, so, happy. Most of my symptoms can be explained....most of which I have found out this past week. My ankle pain, are bone spurs, my hip pain is an inflamed S-I joint. My sweating is low blood sugar. My fatigue is a thyroid problem. > My abnormal bp and pulse.......have yet to be explained. I did have an echocardiogram today...so we will see. > > Isn't it odd.........but I'm happy that I have these other health issues and it isn't lyme disease. I can take care of these health problems so much easier than dealing with lyme disease. > > The only symptom I can't explain was the short period of time with teeth pain........that has totally subsided.........but was always a barometer when I had lyme.........I think that is why my LLMD ran the blood tests twice. > > Anyway..........I feel better and better, as we get these other health issues taken care of. > I even started following Dr. D'Adamo's diet. > Eating according to your blood type. Staying away from the foods I'm allergic to......is making me feel better and I'm losing weight. > > Well, it's too hot to sit at my computer........taking the dogs down to the lake, so we can all take a swim and cool off. > > Hope everyone else is doing ok today. > Connieknwnj > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2005 Report Share Posted July 13, 2005 In a message dated 07/13/2005 2:59:21 PM Central Daylight Time, lindamerkich@... writes: Hi ... yes the lyme spirochete THRIVE on sugar.. it will make you hurt worse.it will make everything worse... i about died when i found out no more gummi bears! also starchy foods.. > Hi Connie, > > What kind of diet are you on? I am trying so hard to eat right > because my Lyme disease is pretty much out of control at this time. > I heard that eating anything with sugar will fuel the Lyme disease, > have you heard anything about that? > > Thank You!! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2005 Report Share Posted August 23, 2005 Congrats, Deb! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2005 Report Share Posted August 23, 2005 In a message dated 8/23/2005 10:39:42 PM Eastern Daylight Time, dd21597@... writes: I wanted to share some good news. We just got a call from the regional center, They are taking our dd on as a client finaly after along battle. They say that they dont think its as they believe she does have a devolmental delay and that she needs services. We meet with them again on the 30th to determin what they feel she needs. We are already paying for ot/si and speech . The person whom found her eligable said that we are in need of a behaviorlist. I am so pleased that she will be getting other service that she needs. I dont care if they disagree with her dx . Thank you Deb yeah, Deb! COngrats! I am sure this is a load off your mind! Roxanna ô¿ò Autism Happens... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2007 Report Share Posted June 8, 2007 > > I just heard from the Dr. My viral load after 12 weeks is > undetectable. I have had 1a for 28 years, Today is my first virus > free day! > congrats because i am going to start my treatments by july and i would b excited to here that Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2008 Report Share Posted February 17, 2008 CONGRATULATIONS! That is awesome! I hope that our insurance will do the same for us. That is a great amount to get back. And, I know you son is definitely worth the initial cost. Kim -----Original Message-----From: Plagiocephaly [mailto:Plagiocephaly ]On Behalf Of Sent: Sunday, February 17, 2008 2:27 PMPlagiocephaly Subject: Great News I just opened my mail and Cigna approved my sons first helmet. We still have 2 more we hope to get approval for but what a relief to know we are getting back $2500 of the $7500 we already spent. I am ecstatic. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2008 Report Share Posted February 17, 2008 Congratulations!!!! Hopefully they will cover the others as continuation of treatment. Angie Great News I just opened my mail and Cigna approved my sons first helmet. We still have 2 more we hope to get approval for but what a relief to know we are getting back $2500 of the $7500 we already spent. I am ecstatic. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2008 Report Share Posted February 17, 2008 That's awesome...hopefully, they will pay for the other 2. > > I just opened my mail and Cigna approved my sons first helmet. We > still have 2 more we hope to get approval for but what a relief to know > we are getting back $2500 of the $7500 we already spent. I am > ecstatic. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2008 Report Share Posted October 14, 2008 Cheryl, I am so happy that you found a good rheummy. I did try adding Arava to the mix, but I had problems with my blood pressure going up. Keep an eye on yours. Don't panic over it, because it is one of the side effects that most people do not have. I sure hope this works for you. Shirley --- In , " cheryl.dines " <cheryl.dines@...> wrote: > > Hi Clora and group > > Just wanted to let you know that I have been to my new Rheumy - soooooo > nice. Even gives out his home number in case I need him. Anyway, I > have to take Arava for a period of 3 months before the Aus govt will > allow me to go on the biologics. I have been on it now for 5 weeks so > only 2 months to go before I can change. I will no longer feel left > out - hehehehhe (just for you Clora) > > He took me of my pyralin so I am a bit scared about that. Hoping it > will all stay under control. He thinks mtx, plaquenil and Arava will > be enough for now. If the pyralin hasn't worked now it probably won't. > Has anyone done this? Very frightened of what is to come..... > > Cheryl > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2009 Report Share Posted December 29, 2009 I just opened my emails late this afternoon and found one from MDACC. 20 out of 20 normal diploids was the message. O.K. Zavie, now you can get your megaphone out and I want my number sprinkled with stardust if that is not too much trouble. Now there is a project, printing Zero numbers on T-shirts. Zavie has his on his cap and he's never without it, but I don't look so good in a hat. LOL Just wanted to share my good news, I waited 14.5 years to claim it and announce it. Another FYI, Lottie Duthu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2009 Report Share Posted December 29, 2009 YIPEE YIPEEEEEEEEEEEEEEEEEEEEEEEEEEE LOVE YOU SHARON T _____ From: [mailto: ] On Behalf Of Lottie Duthu Sent: Monday, December 28, 2009 5:03 PM CML Subject: [ ] Great News I just opened my emails late this afternoon and found one from MDACC. 20 out of 20 normal diploids was the message. O.K. Zavie, now you can get your megaphone out and I want my number sprinkled with stardust if that is not too much trouble. Now there is a project, printing Zero numbers on T-shirts. Zavie has his on his cap and he's never without it, but I don't look so good in a hat. LOL Just wanted to share my good news, I waited 14.5 years to claim it and announce it. Another FYI, Lottie Duthu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2009 Report Share Posted December 29, 2009 Oh Lottie! what great news! - I know how much you wanted this & it couldn't have happened to a nicer person! Years of watching others achieve the big zero & now you've got it!!! welcome to the club!!!! XXXXXX > > I just opened my emails late this afternoon and found one from MDACC. > > 20 out of 20 normal diploids was the message. O.K. Zavie, now you can get your megaphone out and I want my number sprinkled with stardust if that is not too much trouble. Now there is a project, printing Zero numbers on T-shirts. Zavie has his on his cap and he's never without it, but I don't look so good in a hat. LOL Just wanted to share my good news, I waited 14.5 years to claim it and announce it. > > Another FYI, > Lottie Duthu > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2009 Report Share Posted December 29, 2009 LOTTIE, I AM SO HAPPY FOR YOU. IT SURE TOOK YOU LONG ENOUGH, BUT YOU SHOWED THOSE LITTLE BEASTIES WHO'S THE BOSS!!!!! WOW! CONGRATULATIONS AND YIPPEE, AND ALL THOSE GOOD WORDS, AND HOW WONDERFUL FOR YOU, I AM SO EXCITED FOR YOU....DID YOU DANCE A JIG? DID YOU TAKE A SWIG? THAT'S THE BEST NEWS EVER, AND WHAT A XMAS PRESENT FOR YOU AND JIMMY AND YOUR FAMILY. DOESN'T GET ANY BETTER THAN THAT MY FRIEND, PRINT THAT EMAIL AND FRAME IT , EVEN HANG ONE IN EVERY ROOM!!!! LOVE, BOBBY a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years o2/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 #840 Zavie's Zero Club From: Lottie Duthu <lotajam@...> Subject: [ ] Great News " CML " < > Date: Monday, December 28, 2009, 8:03 PM  I just opened my emails late this afternoon and found one from MDACC. 20 out of 20 normal diploids was the message. O.K. Zavie, now you can get your megaphone out and I want my number sprinkled with stardust if that is not too much trouble. Now there is a project, printing Zero numbers on T-shirts. Zavie has his on his cap and he's never without it, but I don't look so good in a hat. LOL Just wanted to share my good news, I waited 14.5 years to claim it and announce it. Another FYI, Lottie Duthu Quote Link to comment Share on other sites More sharing options...
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