Re: Re: elevated platelet counts

[Guest guest]

,

Thanks for writing back.  I will have to email Dr Druker.  I did post on the

other web site so we will see if I get any feedback there.  She is on 40mg and

could and may possibly have to be increased.  She is just extremely sensitive

to all meds and is really worn down on this dose.  She has to go back to the

doctor on the 4th so we will see.  We reviewed the past counts and there were

times she was extremely elevated and no action was taken then, so we have some

questions to ask.  Hope all is well with you.

God Bless,

Mackenzie

Missouri

From: hey00nanc <ncogan@...>

Subject: [ ] Re: elevated platelet counts

Date: Thursday, December 24, 2009, 5:41 PM

 

>

> Hello, My name is Mackenzie and my Grandmother has had CML for fifteen plus

years. She started with enterferon, then gleevec, and now sprycel. They told us

that she would last 6mths and she has fought this long..so in my opinion she has

done well. We are experiencing elevated platelet counts now, and they are

telling us that she needs to increase the sprycel because it is a sign of

acceration in the CML. They have elevated and returned back to normal previously

without medication adjustment.. so we just don't know what to think. Does anyone

have any thoughts, advice, personal experience with this? We would love any

input that you could give us. Hope you all have a Merry Christmas... Mackenzie

____________ _________ ____

Hi Mackenzie,

First, I would put that question to a cml specialist, like Dr. Druker, who will

answer a question from you and give his opinion. E-mail him at drukerboshu (DOT) edu

I see him and know that he is on vacation until the first of the year, but he

will answer you. Just give him enough specific information.

Also, there is an older woman (Jeannie ?) who posts on Jerrys website,

www.newcmldrug. com....click on Sprycel Talk. She was dealing with high

platelets on Gleevec and has gone onto Sprycel and she is doing fine

now....maybe she can share some information with you.

What is your Grandmother' s dose on Sprycel? is she having problems with that

dose, or could it be increased?

Best wishes to you both,

C.