BMB

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Dear ,

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This does NOT sound like a cml specialist to me. No one is doing FISH any more,

not when you have a string of PCR tests to compare. FISH is not a sensitive test

and someone who is pcru or close...FISH is not going to show anything. (reply to

Sue)

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I have had 47 BMB/BMAs over the years and every time I go for my appointment, it

is on my list of " to do " things at the clinic. Is it because I am continually

in a trial and the drug company requires it in the trial? I feel like if I

refused, they would take me out of the trial. It just seems excessive to me,

but perhaps if I was PCRU, I would not need it. I have been diagnosed as late

chronic for a very long time now. It used to bother me when I would hear that,

but I find it is no consequence as long as you are stable. I had a myelogram

this week and the attending doctor wanted to know why I had so many scars from

BMAs. He was blown away by the number. I just wonder when too much is really

too much.

Thank you for your responses, they are worth their weight in gold.

Hands & hearts,

Lottie Duthu