Re: Got a Message From Dr. Druker

[Guest guest]

I'll pray with you ... but in my book it is an easy choice, go for the

second opinion! Since you have some time, look around for one of the better

CML doctors within your range. If you want suggestions, ask the group... you

know how shy they are to make suggestions! ;o)

Troxel

On Wed, Jan 20, 2010 at 3:54 PM, A <suzzienovember@...> wrote:

>

>

> Hi: I was so frustrated with that visit with the new doctor, and I wrote to

> Dr. Druker. He agreed with me. He said if there was something going on in

> the marrow then there would be a change in the PCR numbers to give a

> warning. Also, if there was a change in the marrow, it would be monitored

> more closely to be able to do whatever necessary to get the PCR back to

> where it was. I guess he meant change in treatment.

> He did not feel that this required me to go through the discomfort of a

> BMB. His exact words.

> I have plenty of time to think this over,or maybe get another consult from

> another doctor. This doctor only met me for the first time, and I really do

> not know much about him. I only know he took over my Oncologist's practice.

> That is not enough for me.

> Really need to pray about this one. Hope this helps others with the same

> decisions they might face.

>

>

>

>

[Guest guest]

Hi : I am going for that second opinion. I found out that this doctor

that I saw went to Swami College in India, then onto a 3 star hospital in

Brooklyn. He only has 5 years experience, and I feel like I was just given to

him with no choice of my own. I did go and give it a try, but I think my

instincts were right on track. I will be seeing another Oncologist who has come

highly recommended to me. I really appreciate all the feedback from everyone.

IT really helped a lot.

>

> >

> >

> > Hi: I was so frustrated with that visit with the new doctor, and I wrote to

> > Dr. Druker. He agreed with me. He said if there was something going on in

> > the marrow then there would be a change in the PCR numbers to give a

> > warning. Also, if there was a change in the marrow, it would be monitored

> > more closely to be able to do whatever necessary to get the PCR back to

> > where it was. I guess he meant change in treatment.

> > He did not feel that this required me to go through the discomfort of a

> > BMB. His exact words.

> > I have plenty of time to think this over,or maybe get another consult from

> > another doctor. This doctor only met me for the first time, and I really do

> > not know much about him. I only know he took over my Oncologist's practice.

> > That is not enough for me.

> > Really need to pray about this one. Hope this helps others with the same

> > decisions they might face.

> >

> >

> >

> >

>

>

>

[Guest guest]

>

> Hi : I am going for that second opinion. I found out that this doctor

that I saw went to Swami College in India, then onto a 3 star hospital in

Brooklyn. He only has 5 years experience, and I feel like I was just given to

him with no choice of my own. I did go and give it a try, but I think my

instincts were right on track. I will be seeing another Oncologist who has come

highly recommended to me. I really appreciate all the feedback from everyone.

IT really helped a lot.

>

_____________________________

Hi ,

Good for you for taking care of your own needs.

I think the first clue was a doctor that wanted to do a FISH test on someone who

is already pcru......what sense does that make?

It is very possible that you were going to be his first CML patient!

One thing to ask a local level oncologist is " how many CML patients have you

treated/followed? " and also " how comfortable would he be in taking direction

from a cml specialist if that were ever needed " .

C.