Guest guest Posted January 22, 2010 Report Share Posted January 22, 2010 Dear , Whever I started a trial, it was not unusual to get a rash. The last trial produced hives of gigantic proportions. They stopped the drug for 3 weeks, but I still had the rash. I went to a dermatologist and they gave me cortisone and cortisone cream. It was still not over, but the drug manufacturer wanted me back on the drug. I continued to treat the symptoms with the cortisone and it finally went away. Maybe they could start you on a lower dose, gradually increasing it. Good luck it is usually resolved with the right treatment. Hands & hearts, Lottie Duthu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 Hi , Sorry, I never had the " Gleevec " rash but I did have a rash develop from taking allopurinol as an adjunct to hydroxyurea when I was first diagnosed. The symptoms of that rash... extensive red, itchy bumps covering my entire torso. The doctors told me that was a typical allergic rash from medication. I hope this helps. Troxel dob 05/07/1944 cml 02/10/2003 On Thu, Apr 1, 2010 at 6:24 PM, Murray <mylifemyhappiness@...>wrote: > > > Hey everyone, I was just wondering if anyone has had the Gleevec rash? I am > sure someone has. What does it look like and how does it feel? Thanks, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 Awful! I used to get it inside my mouth on the right side and down the right side of my throat. Nothing seemed to ease it or speed it up. At first, right after it subsided I would get horrible pain in all my teeth. Then I started taking Acyclovir. It didn't seem to have much effect on the rash itself, but it would prevent that pain from following it. Since I've been off Gleevec, I haven't had that problem once! On Thu, Apr 1, 2010 at 6:24 PM, Murray <mylifemyhappiness@...>wrote: > > > Hey everyone, I was just wondering if anyone has had the Gleevec rash? I am > sure someone has. What does it look like and how does it feel? Thanks, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 Look in the photo section at Gleevic rash Is a photo of Bobby's rash in severe form ________________________________ From: Murray <mylifemyhappiness@...> Sent: Thu, April 1, 2010 8:24:11 PM Subject: [ ] Rash Hey everyone, I was just wondering if anyone has had the Gleevec rash? I am sure someone has. What does it look like and how does it feel? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 Hi , I got the rash about two months after starting Gleevec. It was a long time ago, but I well remember, it took prednisone pills and cortisone cream to get rid of, some of the rash ulcerated, and it lasted months. Get thee to a dermatologist ! Mine biopsied the rash and said it was definitely from the drug, so I was sure. I have terrible pictures of it, if you would like I will send them to you, but they are not nice! Bobby a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 11/2009 PCR 0.034 #840 Zavie's Zero Club From: Rosen Lum <rrosenlum@...> Subject: Re: [ ] Rash Date: Thursday, April 1, 2010, 10:05 PM Awful! I used to get it inside my mouth on the right side and down the right side of my throat. Nothing seemed to ease it or speed it up. At first, right after it subsided I would get horrible pain in all my teeth. Then I started taking Acyclovir. It didn't seem to have much effect on the rash itself, but it would prevent that pain from following it. Since I've been off Gleevec, I haven't had that problem once! On Thu, Apr 1, 2010 at 6:24 PM, Murray <mylifemyhappiness@...>wrote: > > > Hey everyone, I was just wondering if anyone has had the Gleevec rash? I am > sure someone has. What does it look like and how does it feel? Thanks, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 You know, I thought I had one there of the rash, but only see 4 pics and the rash is not one of them.... a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 11/2009 PCR 0.034 #840 Zavie's Zero Club From: anita <awristen1@...> Subject: Re: [ ] Rash Date: Thursday, April 1, 2010, 10:54 PM Â Look in the photo section at Gleevic rash Is a photo of Bobby's rash in severe form ____________ _________ _________ __ From: Murray <mylifemyhappiness> groups (DOT) com Sent: Thu, April 1, 2010 8:24:11 PM Subject: [ ] Rash Hey everyone, I was just wondering if anyone has had the Gleevec rash? I am sure someone has. What does it look like and how does it feel? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 Not sure if this will work Bobby but your Pictures were posted by Traceyin canada.. I believe you could not get them posted and she offered to do it for you /photos/album/1992584544/pic/list Gleevec Rash By: traceyincanada Number of Photos: 1 Last Modified: Mar 27, 2008 ________________________________ From: ROBERTA DOYLE <rcd1929@...> Sent: Fri, April 2, 2010 6:05:26 AM Subject: Re: [ ] Rash You know, I thought I had one there of the rash, but only see 4 pics and the rash is not one of them.... a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 11/2009 PCR 0.034 #840 Zavie's Zero Club From: anita <awristen1 (DOT) com> Subject: Re: [ ] Rash groups (DOT) com Date: Thursday, April 1, 2010, 10:54 PM Look in the photo section at Gleevic rash Is a photo of Bobby's rash in severe form ____________ _________ _________ __ From: Murray <mylifemyhappiness> groups (DOT) com Sent: Thu, April 1, 2010 8:24:11 PM Subject: [ ] Rash Hey everyone, I was just wondering if anyone has had the Gleevec rash? I am sure someone has. What does it look like and how does it feel? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 I remember that, but can't find them!!! a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 11/2009 PCR 0.034 #840 Zavie's Zero Club From: anita <awristen1 (DOT) com> Subject: Re: [ ] Rash groups (DOT) com Date: Thursday, April 1, 2010, 10:54 PM Look in the photo section at Gleevic rash Is a photo of Bobby's rash in severe form ____________ _________ _________ __ From: Murray <mylifemyhappiness> groups (DOT) com Sent: Thu, April 1, 2010 8:24:11 PM Subject: [ ] Rash Hey everyone, I was just wondering if anyone has had the Gleevec rash? I am sure someone has. What does it look like and how does it feel? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 Bobbie,  I would like to see the pictures. I am currently on Spycell but when I first was dianosed I was on Gleevec and had this horrible rash on my feet that started as little ITCHY bumps and if scratched they would pus up and spread... I just assumed it was athlete's feet and was treating it as such but to no avail. I went to a dermatologist and he was perplexed as it was not athlete's feet. It finally subsided after months of cortisone cream. After reading the loop and doing some investigation I pinned it on a side effect of Gleevec and my Dr. agreed.  I am currently on Sprycel and there have been times that I would get those little itchy bumps but they would flare minimally and then disappear. However, this last month I have broken out worst than ever on my hands and have been feeling rather toxic once again; yucky stomach, body very restless, restless nights and very sore muscles. But, I cannot take any breaks from the meds as I did in the past because I lost my response last year.  Wow, i didn't mean to write a book but I see that other's are bothered by a rash as well so I wanted to share my experience. From: Rosen Lum <rrosenlumgmail (DOT) com> Subject: Re: [ ] Rash groups (DOT) com Date: Thursday, April 1, 2010, 10:05 PM Awful! I used to get it inside my mouth on the right side and down the right side of my throat. Nothing seemed to ease it or speed it up. At first, right after it subsided I would get horrible pain in all my teeth. Then I started taking Acyclovir. It didn't seem to have much effect on the rash itself, but it would prevent that pain from following it. Since I've been off Gleevec, I haven't had that problem once! On Thu, Apr 1, 2010 at 6:24 PM, Murray <mylifemyhappiness>wrote: > > > Hey everyone, I was just wondering if anyone has had the Gleevec rash? I am > sure someone has. What does it look like and how does it feel? Thanks, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 My rash on Geevec was all over my body. Face, legs, arms torso, back---after 6 months of trying everything from cortisone to creams they took me off and onto Sprycell. It left suh bad scars on my body that I had to go to a dermatologist and they had me do an Obigi treatment that helped. It was like chicken pox. Sharon _____ From: [mailto: ] On Behalf Of mary mary Sent: Friday, April 02, 2010 10:34 AM Subject: Re: [ ] Rash Bobbie, I would like to see the pictures. I am currently on Spycell but when I first was dianosed I was on Gleevec and had this horrible rash on my feet that started as little ITCHY bumps and if scratched they would pus up and spread... I just assumed it was athlete's feet and was treating it as such but to no avail. I went to a dermatologist and he was perplexed as it was not athlete's feet. It finally subsided after months of cortisone cream. After reading the loop and doing some investigation I pinned it on a side effect of Gleevec and my Dr. agreed. I am currently on Sprycel and there have been times that I would get those little itchy bumps but they would flare minimally and then disappear. However, this last month I have broken out worst than ever on my hands and have been feeling rather toxic once again; yucky stomach, body very restless, restless nights and very sore muscles. But, I cannot take any breaks from the meds as I did in the past because I lost my response last year. Wow, i didn't mean to write a book but I see that other's are bothered by a rash as well so I wanted to share my experience. From: Rosen Lum <rrosenlumgmail (DOT) com> Subject: Re: [ ] Rash groups (DOT) com Date: Thursday, April 1, 2010, 10:05 PM Awful! I used to get it inside my mouth on the right side and down the right side of my throat. Nothing seemed to ease it or speed it up. At first, right after it subsided I would get horrible pain in all my teeth. Then I started taking Acyclovir. It didn't seem to have much effect on the rash itself, but it would prevent that pain from following it. Since I've been off Gleevec, I haven't had that problem once! On Thu, Apr 1, 2010 at 6:24 PM, Murray <mylifemyhappiness>wrote: > > > Hey everyone, I was just wondering if anyone has had the Gleevec rash? I am > sure someone has. What does it look like and how does it feel? Thanks, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2010 Report Share Posted April 2, 2010 Well, to let you know how computer illiterate I am, I cannot find the pictures. Will keep trying, Bobby a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 11/2009 PCR 0.034 #840 Zavie's Zero Club From: Rosen Lum <rrosenlumgmail (DOT) com> Subject: Re: [ ] Rash groups (DOT) com Date: Thursday, April 1, 2010, 10:05 PM Awful! I used to get it inside my mouth on the right side and down the right side of my throat. Nothing seemed to ease it or speed it up. At first, right after it subsided I would get horrible pain in all my teeth. Then I started taking Acyclovir. It didn't seem to have much effect on the rash itself, but it would prevent that pain from following it. Since I've been off Gleevec, I haven't had that problem once! On Thu, Apr 1, 2010 at 6:24 PM, Murray <mylifemyhappiness>wrote: > > > Hey everyone, I was just wondering if anyone has had the Gleevec rash? I am > sure someone has. What does it look like and how does it feel? Thanks, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2010 Report Share Posted April 3, 2010 Hi . My daughter, Robyn, is on Geevic and never had a rash. The only side effects that she gets is swelling under the eyes which she has been able to prevent by not eating salt and watching sodium content in food. Fatigue seems to be the most difficult side effect that she has. She has been on Gleevec for one year, was in complete remission in a short period of time, but the fatigue remains. Sandi > > Look in the photo section at Gleevic rash > Is a photo of Bobby's rash in severe form > > > > > ________________________________ > From: Murray <mylifemyhappiness@...> > > Sent: Thu, April 1, 2010 8:24:11 PM > Subject: [ ] Rash > > > Hey everyone, I was just wondering if anyone has had the Gleevec rash? I am sure someone has. What does it look like and how does it feel? Thanks, > > Quote Link to comment Share on other sites More sharing options...
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