Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 Has anyone heard from Marcos? We have not heard from him in a long time. Marcos if you are out there, let us know how you are doing. Some else asked about you, which prompted me to ask if you are out there somewhere?????????????? Hands & hearts, Lottie Duthu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2010 Report Share Posted January 16, 2010 Hey all, I am doing very good. Sorry for the lapse in communications, life has been pretty full these last 3 months and a very charming woman is keeping me very distracted. I still read the posts every few days and I ll try to say hi more often. I wish you all an excellent 2010 and hope this year will the one of the cure. Cheers, Marcos. On Mon, Jan 11, 2010 at 12:15 AM, Lottie Duthu <lotajam@...> wrote: > > > Has anyone heard from Marcos? We have not heard from him in a long time. > Marcos if you are out there, let us know how you are doing. Some else asked > about you, which prompted me to ask if you are out there > somewhere?????????????? > Hands & hearts, > Lottie Duthu > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2010 Report Share Posted January 16, 2010 So Marcos silence was caused by a woman. Why am I not surprised! Matt Florida Sent from my iPhone On Jan 15, 2010, at 7:37 PM, Marcos Perreau Guimaraes <montereyunderwater@... > wrote: > Hey all, > I am doing very good. Sorry for the lapse in communications, life > has been > pretty full these last 3 months and a very charming woman is keeping > me very > distracted. I still read the posts every few days and I ll try to > say hi > more often. I wish you all an excellent 2010 and hope this year will > the one > of the cure. > Cheers, > Marcos. > > On Mon, Jan 11, 2010 at 12:15 AM, Lottie Duthu <lotajam@...> > wrote: > >> >> >> Has anyone heard from Marcos? We have not heard from him in a long >> time. >> Marcos if you are out there, let us know how you are doing. Some >> else asked >> about you, which prompted me to ask if you are out there >> somewhere?????????????? >> Hands & hearts, >> Lottie Duthu >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2010 Report Share Posted January 16, 2010 That's the best reason for not posting I ever heard !!! a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years o2/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 #840 Zavie's Zero Club > >> >> >> Has anyone heard from Marcos? We have not heard from him in a long >> time. >> Marcos if you are out there, let us know how you are doing. Some >> else asked >> about you, which prompted me to ask if you are out there >> somewhere??? ????????? ?? >> Hands & hearts, >> Lottie Duthu >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2010 Report Share Posted January 17, 2010 Hi Bobby, Matt and all CMLers, I am no Don but it s good to resume a normal life in that compartment too On the CML front it is still the blue sky with PCRs alternating between PCRU and positive but too low for quantification. It would be nice to get a stable PCRU and hope to get one day rid of the gleevec, but I can't complain. I still rock climb quite a bit at least indoors, though I am not diving much lately, time being a scarcer commodity now. But my sweet lady is into martial arts so I may get back to that to optimize sport and romantic life . For the cmlers that joined recently I was dxed in March 2005 with a rather poor prognostic (high risk sokal, 250K wbc, huge spleen), and almost 5 years later I am doing very good still on 400mg/ day of gleevec, with pretty much no chance of ever relapsing and now no side effects from the drug. I remember how hard were the first months after dx and I hope this post will cheer up a bit some of the newly dxed. Marcos. n Fri, Jan 15, 2010 at 7:20 PM, ROBERTA DOYLE <rcd1929@...> wrote: > > > That's the best reason for not posting I ever heard !!! > > a ( Bobby ) Doyle, dob 12/17/29 > Brecksville, Ohio, USA > DX 5/1995 > Interferon 9 weeks/Hydroxyurea 5 years > o2/2000 to 06/2002 Gleevec trial, OHSU > 06/2002 Gleevec/Trisenox Trial, OHSU > 06/2003 Gleevec/Zarnestra Trial, OHSU > 04/2004 Sprycel Trial, MDACC, CCR in 10 months > 04/2008 XL228 Trial, U of Mich. > PCR 5.69 > 04/2009 Ariad Trial AP24534 > 09/2009 PCR 0.017 > #840 Zavie's Zero Club > > > > > > > >> > > >> > > >> Has anyone heard from Marcos? We have not heard from him in a long > > >> time. > > >> Marcos if you are out there, let us know how you are doing. Some > > >> else asked > > >> about you, which prompted me to ask if you are out there > > >> somewhere??? ????????? ?? > > >> Hands & hearts, > > >> Lottie Duthu > > >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2010 Report Share Posted January 17, 2010 Thank you for this post Marcos. That's the reason why this group exist. Emile # 527 Zavie's Club > For the cmlers that joined recently I was dxed in March 2005 with a rather > poor prognostic (high risk sokal, 250K wbc, huge spleen), and almost 5 > years > later I am doing very good still on 400mg/ day of gleevec, with pretty > much > no chance of ever relapsing and now no side effects from the drug. I > remember how hard were the first months after dx and I hope this post will > cheer up a bit some of the newly dxed. > Marcos. Quote Link to comment Share on other sites More sharing options...
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