Guest guest Posted January 5, 2002 Report Share Posted January 5, 2002 Good to hear from you Cathey. Love your sense of humor and your story. Stay in touch and don't stay away so long! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2002 Report Share Posted March 24, 2002 Very well said, Jeanette. Keep up the good work. Laurie > > Hi everyone, It seams to me that we all have the same problem with staff shortages in hospitals. It is just the same here in the UK my daughter is a pediatric staff nurse in a trama unit. The other day she phoned me up quite upset because she thought that she could not give the correct amount of care to her patients that she should due to the lack of staff. Before I found my specialist I was told many times that my disease was in my mind and rushed to get out quick, Thank God I now have a great specialist and hospital and I will not do anything without their knowledge. > > Just to let everyone know who so kindly asked how I am now yesterday I managed to get out of the house with out using my wheelchair it felt so good but come the evening I was exhausted. > > I went to church last night and said a silent prayer for everyone and sent out lots of love to you all. Jeanette UK AIH dx 1998 Cirrhosis dx 2001. > > PS Does any of this letter make sense to anyone My brain and body are not working to well today. Big Hugs > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2002 Report Share Posted March 24, 2002 Jeanette, Congratulations on getting out of the house without a wheelchair, Good for you! The exaustion I can relate to. After the first transplant surgery I seemed to be recovering my energy, but then I had the second surgery 8 weeks later (April1998) and it was September before I didn't live back and forth from the hospital. It was then almost a year before I had normal energy back. It did come back. The reason I tell you this is the exaustion, for me, was frustrating but took a really long time to get over. You have been through alot and I would not be surprised if it takes a long time. Hang in there, I am really in awe of the progress you've made and that you are still making it is inspiring. Keep it up! Patty (Miami) -----Original Message-----From: Jeanette Carpenter [mailto:jeanette_cuk@...]Sent: Sunday, March 24, 2002 7:54 AM Subject: [ ] Hospitals Hi everyone, It seams to me that we all have the same problem with staff shortages in hospitals. It is just the same here in the UK my daughter is a pediatric staff nurse in a trama unit. The other day she phoned me up quite upset because she thought that she could not give the correct amount of care to her patients that she should due to the lack of staff. Before I found my specialist I was told many times that my disease was in my mind and rushed to get out quick, Thank God I now have a great specialist and hospital and I will not do anything without their knowledge. Just to let everyone know who so kindly asked how I am now yesterday I managed to get out of the house with out using my wheelchair it felt so good but come the evening I was exhausted. I went to church last night and said a silent prayer for everyone and sent out lots of love to you all. Jeanette UK AIH dx 1998 Cirrhosis dx 2001. PS Does any of this letter make sense to anyone My brain and body are not working to well today. Big Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2003 Report Share Posted December 10, 2003 , I work in a hospital too and I know what you mean. I have seen thing and heard things that are unbelievable. One floor I worked on was so so horrible. It was more like a nursing home than a hospital floor. No one cared about the patients, everyone was so burnt out. It is very sad. Bambi Re: whooping cough test yes, I LOATH the hospitals and doctors offices...physicians don't even know how the immune system works, so instead of trying find ways to work with it, they make all this outrageous guesswork. A friend is a nurse in the ER and he said he's surprised there aren't more law suits on the hospital. Another friend moved here several years ago and got himself moved from the ER to another clinic. He had enough exposure to patients coming in and leaving in body bags. Sounds like a fabricated horror story....BUT IT'S REALITY!!! Kimberley .... HE SAID he did not have Whooping Cough because it had been nearly eradicated!!! (Guess he has not seen the news reports on the outbreaks) The Dr said, he has what they call a bad cold that won't go away!! I was steaming! I have 4 kids one of which is 4 weeks old. Anyway, I wanted to share again, while I was level headed. I am seeing why so many of you are choosing homeopathy! > Have a great day :) :) :) > Bambi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 When I first went to U of Mich., I would wait for my appointment in a rather large, but not to be compared with MDACC, waiting room. Then vitals, then taken to an examining room and pray Dr. Talpaz did not have an emergency. But since I have been in the Ariad trial, they have a different procedure. I get labs done first, on the first floor and go to another floor to check in and a nurse comes for me and takes me to a large room called Phase 1. There are at least 4-5 nurses there, it is for trials only, and there are 6 recliner chairs, with curtains if necessary. Everything is done here, vitals, ekg's Dr. visit, meds, and when necessary another blood draw for the trial. Dr. Talpaz is almost always there, waiting, as is the trial nurse. Unless it's a holiday week, we are usually in and out in 2 hours. I love it, you get to know the other patients, as well as the nurses, who are usually the same all the time. U of Mich is less than a 3 hr. drive for me, as compared to having to fly to Houston, and worse, fly to Portland, Oregon. As good as MDACC is, if I had to choose between OHSU and MDACC, i would take OHSU hands down. Mostly because it is smaller and is so right, you get to spend a lot of time with your doctor. I love Portland, it is one of the most beautiful cities and there is so much to do and see there. I had to live there for 2 months, in 3 different trials, and it sure is nice to have something to do if you're alone and stuck in a strange city. But that was then and this is now and Ann Arbor, and the U of Mich and the wonderful Dr.Talpaz are my life. As of Feb. 2000 I have been given an extra 10 good years thanks to Dr. Druker and Dr. Talpaz, my heroes. a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years o2/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2010 Report Share Posted October 11, 2010 Change yiur BC pill. I tried 3 before I found the ones I could tolerate. Or you're sick with a stomach bug. Could u be preggy? NOT a SMA thing. a WOMAN thing! J Hope u get better soon! In Hope, Maggie ( " Meg " ) W. From: [mailto: ] On Behalf Of Nichole M Sent: Monday, October 11, 2010 7:21 AM Subject: Hospitals Hey guys, it's Cortney again. I recently went to the E.R the other day for nausea and abdominal pain. They did a whole lot of test only to tell me I had cysts on my ovaries. Which I'm glad they caught that and all they did was put me on birth control and send me on my merry way. I'm still hella nauseous and wake up this way every morning. I'm constantly throwing up and I never feel hungry. My only fear is that somehow this ties into my SMA type II. I don't have the problems with gaining weight I have a decent upper body strength. I dunno anymore... any advice??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2010 Report Share Posted October 11, 2010 Hi Nichole, I'm prone to ovarian cysts. It is not related to SMA. It sounds like the doctor did the right thing if it really is a cyst. To alleviate some of the pain you can place a warm pack on your abdomen and drink herbal teas. You can also ask the doctor for a pain reliever, but I've experienced relief with most OTC drugs such as ibuprofen or tylenol. Ovarian cysts are normal for young women and most are harmless. They may develop around your menstrual cycle and pass on their own. If they do not pass, you should see the doctor again. Some cysts require a surgical procedure to remove before they become infected. You'll probably notice the cysts not develop after a few months. <3Kendra > > Hey guys, it's Cortney again. > I recently went to the E.R the other day for nausea and abdominal pain. They did a whole lot of test only to tell me I had cysts on my ovaries. Which I'm glad they caught that and all they did was put me on birth control and send me on my merry way. I'm still hella nauseous and wake up this way every morning. I'm constantly throwing up and I never feel hungry. My only fear is that somehow this ties into my SMA type II. I don't have the problems with gaining weight I have a decent upper body strength. I dunno anymore... any advice??? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2010 Report Share Posted October 11, 2010 I have SMA II and I've had polycystic ovarian syndrome I don't know if there's any connection with PCOS & SMA ?.... > > Hey guys, it's Cortney again. > I recently went to the E.R the other day for nausea and abdominal pain. They did a whole lot of test only to tell me I had cysts on my ovaries. Which I'm glad they caught that and all they did was put me on birth control and send me on my merry way. I'm still hella nauseous and wake up this way every morning. I'm constantly throwing up and I never feel hungry. My only fear is that somehow this ties into my SMA type II. I don't have the problems with gaining weight I have a decent upper body strength. I dunno anymore... any advice??? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2010 Report Share Posted October 11, 2010 FYI to all You can't be 'preggie' and have ovarian cysts at the same time An ultrasound to diagnose ovarian cysts would've found a pregnancy if that was the iissue going on Pregnancy is actually harder to achieve while having ovarian cysts The pain from a stomach bug is completely different from ovary pain Although a stomach issue can cause nausea and upset stomach, unless fevers are happening, it's not an infection Birth control pills can cause nausea at first while getting used to them Most ovarian cysts never need surgery > > Change yiur BC pill. I tried 3 before I found the ones I could tolerate. > > > > Or you're sick with a stomach bug. > > > > Could u be preggy? > > > > NOT a SMA thing. a WOMAN thing! J > > > > Hope u get better soon! > > > > In Hope, > > Maggie ( " Meg " ) W. > > > > From: [mailto: ] On > Behalf Of Nichole M > Sent: Monday, October 11, 2010 7:21 AM > > Subject: Hospitals > > > > > > Hey guys, it's Cortney again. > I recently went to the E.R the other day for nausea and abdominal pain. They > did a whole lot of test only to tell me I had cysts on my ovaries. Which I'm > glad they caught that and all they did was put me on birth control and send > me on my merry way. I'm still hella nauseous and wake up this way every > morning. I'm constantly throwing up and I never feel hungry. My only fear is > that somehow this ties into my SMA type II. I don't have the problems with > gaining weight I have a decent upper body strength. I dunno anymore... any > advice??? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2010 Report Share Posted October 11, 2010 PS- I speak from 21 years experience on this > > > > Change yiur BC pill. I tried 3 before I found the ones I could tolerate. > > > > > > > > Or you're sick with a stomach bug. > > > > > > > > Could u be preggy? > > > > > > > > NOT a SMA thing. a WOMAN thing! J > > > > > > > > Hope u get better soon! > > > > > > > > In Hope, > > > > Maggie ( " Meg " ) W. > > > > > > > > From: [mailto: ] On > > Behalf Of Nichole M > > Sent: Monday, October 11, 2010 7:21 AM > > > > Subject: Hospitals > > > > > > > > > > > > Hey guys, it's Cortney again. > > I recently went to the E.R the other day for nausea and abdominal pain. They > > did a whole lot of test only to tell me I had cysts on my ovaries. Which I'm > > glad they caught that and all they did was put me on birth control and send > > me on my merry way. I'm still hella nauseous and wake up this way every > > morning. I'm constantly throwing up and I never feel hungry. My only fear is > > that somehow this ties into my SMA type II. I don't have the problems with > > gaining weight I have a decent upper body strength. I dunno anymore... any > > advice??? > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2010 Report Share Posted October 11, 2010 ³You can't be 'preggie' and have ovarian cysts at the same time....... Pregnancy is actually harder to achieve while having ovarian cysts² Just to clarify, Anita, is it impossible to get pregnant with an ovarian cyst, or just improbable? ~Tyler On 10/11/10 9:36 PM, " charmedcripchic " <charmedcripchic@...> wrote: > > > > > > PS- I speak from 21 years experience on this > > >>> > > >>> > > Change yiur BC pill. I tried 3 before I found the ones I could >>> tolerate. >>> > > >>> > > >>> > > >>> > > Or you're sick with a stomach bug. >>> > > >>> > > >>> > > >>> > > Could u be preggy? >>> > > >>> > > >>> > > >>> > > NOT a SMA thing. a WOMAN thing! J >>> > > >>> > > >>> > > >>> > > Hope u get better soon! >>> > > >>> > > >>> > > >>> > > In Hope, >>> > > >>> > > Maggie ( " Meg " ) W. >>> > > >>> > > >>> > > >>> > > From: <mailto:%40> >>> [mailto: <mailto:%40> ] On >>> > > Behalf Of Nichole M >>> > > Sent: Monday, October 11, 2010 7:21 AM >>> > > <mailto:%40> >>> > > Subject: Hospitals >>> > > >>> > > >>> > > >>> > > >>> > > >>> > > Hey guys, it's Cortney again. >>> > > I recently went to the E.R the other day for nausea and abdominal pain. >>> They >>> > > did a whole lot of test only to tell me I had cysts on my ovaries. Which I'm >>> > > glad they caught that and all they did was put me on birth control and >>> send >>> > > me on my merry way. I'm still hella nauseous and wake up this way every >>> > > morning. I'm constantly throwing up and I never feel hungry. My only >>> fear is >>> > > that somehow this ties into my SMA type II. I don't have the problems >>> with >>> > > gaining weight I have a decent upper body strength. I dunno anymore... any >>> > > advice??? >>> > > >>> > > >>> > > >>> > > >>> > > >>> > > Quote Link to comment Share on other sites More sharing options...
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