iCMLf Launches Global Support and Partnership Program for Chronic Myeloid Leukemia (CML)]

[Guest guest]

iCMLf

To those interested in Chronic Myeloid Leukemia (CML):

we wanted to make you aware about the attached Press Release from the iCMLf,

the International CML Foundation, released at the annual meeting of the

American Society of Hematology (ASH), about the launch of its ERSAP

programme.

Best regards

Jan Geissler

iCMLf - International CML Foundation

_____

New Foundation Launches Global Support and Partnership Program for Chronic

Myeloid Leukemia (CML)

The newly formed International Chronic Myeloid Leukemia Foundation (iCMLf)

has launched the Emerging Regions Support and Partnership (ERSAP) program at

the annual meeting of the American Society of Hematology (ASH). The ERSAP

Preceptorship Project will commence in 2010, providing training, education

and support for 30 clinicians in emerging countries each year.

The iCMLf is a charitable foundation recently established by a group of

leading hematologists with a strong interest in CML. The mission of the

iCMLf is to improve the outcomes for patients with CML by fostering and

coordinating global clinical and research collaborations and therefore

improving clinical practice and disease monitoring in CML around the world.

The launch of the ERSAP preceptorship project, supporting and educating 30

clinicians in 2010 sees the first step on the journey to achieve this goal.

" The improved survival in CML directly attributable to the use of tyrosine

kinase inhibitors is so dramatic that these new agents must be made

available to the greatest possible number of eligible patients as rapidly as

possible throughout the whole world " , said Professor Goldman, Chairman

of the iCMLf.

Clinicians in emerging economic regions may not have easy access to updated

knowledge and skills regarding best practice for CML patients. The ERSAP

project launched at the annual meeting of the American Society of Hematology

(ASH) will provide training, education and support for 30 clinicians each

year. To facilitate the sharing of best practice for CML patients in

emerging regions, the project will be open to hematologists from developing

countries with an interest in therapy and monitoring of CML patients. The

preceptorships are designed to provide one-on-one tuition and practical

experience.

" Access to up to date treatment and follow-up monitoring is essential to

treat CML effectively " , said Jan Geissler, being a CML patient, co-founder

of the global patient platform 'CML Advocates Network' as well as

Communications Coordinator of the iCMLf. " We have been closely collaborating

with CML patient representatives across the globe, and we know how

challenging it can be to get access to appropriate care. As patients we very

much welcome the initiative of the iCMLf to share best practice in emerging

regions " .

Five specialist CML centers around the globe will act as hosts for up to six

visiting clinicians. The CML expert centers enrolled in 2010 include

Hammersmith Hospital, London, Royal Adelaide Hospital Australia,

S.Orsola-Malpighi University Hospital, Italy, MD Cancer Centre, USA

and OHSU Knight Cancer Institute, USA.

Another ERSAP Project in development is the Partnership Project. This iCMLf

project will partner expert CML centers with centers in developing countries

to facilitate exchange of scientists, clinicians and nurses involved in CML

care, share monitoring and research, to run joint clinical trials, share

protocols, and conduct joint training activities. This will provide vital

support and networks for clinicians treating CML in developing countries.

The ERSAP Preceptorship Project is currently funded with an unrestricted

grant from Novartis Oncology. Additional funding is currently being sought

for the ERSAP Project.

Contact

iCMLf - International Chronic Myeloid Leukemia Foundation

Nicola

Emerging Regions Support and Partnership Programme (ERSAP) Coordinator

nicola.evans@...

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OLK6B%5Cnicola.evans@...>

Mobile +61 40699 5409

http://www.cml-foundation.org <http://www.cml-foundation.org/>

info@...

More background information

http://www.cmladvocates.net