Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 Latisha, keep your chin up, there is every reason to believe that you can have a family and manage your RA. I'm 36 years old and 36 weeks pregnant with my second child. I moved from DC to IL during this pregnancy, and I was able to find two sets of OBs and rheumatologists who fully supported my infertility treatment and efforts to get pregnant. In fact, I think it's sort of fun for the rheumatologists to have some variety in their practice. My rheum was talking about my post partum follow up visit and she said in a serious tone that it was very important that I bring the baby. I thought, uh? Is that so you can examine him/her given that I've been on Enbrel and prednisone throughout? She said, no, it's so she can hold the baby. It was very cute. As for remission, I felt better in my 3rd trimester, but still take Enbrel every 3 weeks or so to keep inflammation at bay. Pooh on RA. I think you're right, you can't let this boogey man affect your life or life choices. Best wishes and welcome, Kate F [ ] pregnancy Hello all, I am 35 diagnosed 5 years ago but suspect Ive had RA for about 14 or more years. I had children before I was diagnosed in my early 20's had difficult pregnancies, severe weight loss and pre-term labor and now want to have more children I would like tips about pain meds and doctors how to deal with them i know I could go into remission but what if not??? I am concerned yet at peace with having more children and know this is going to happen just need advice. I stopped taking my MTX 6 months ago and hope to start trying in the next month or 2. I have not told my rheumatoligist I think she would frown on having more kids or at least try to talk me out of it since i already have children.my husband and I from the beginning wanted many children but stopped out of fear I dont want fear to stop my life or my choices. thank you look forward to hearing your input. Latisha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 hi latisha, i was pregnant at 26 & now im 38. i have had severe ra since i was 5, the drs. had always told me latter in life i would never be able to conceive a child. you can imagine how that made me feel. i was taking so many meds when i found out i was pregnant. however my obgyn took me off all meds except the prednisone. then later on during my pregnancy i was off all my meds!!! you know what latisha? i had never felt soo alive as i did when i was preg. i swear i was in remission for 9 months but when my beloved lil girl came, my ra was back & so BAD, that i had to get back on all my meds. you know what though i took my chances & if i could do it all over again, i SOOO WOULD DO IT!!!!! my daughter is now 11yrs.old & as honory as ever!!! i call her " MY MIRACLE BABY " . I BELIEVE GOD DOES THINGS FOR A REASON!!! SHES THE " BEST THING " that has ever happened in my life besides my WONDERFUL HUB, " peter " . im kinda curious to like janet about your weight loss. what was that all about,latisha?? well whatever you decide i will keep you in my thoughts & prayers.. heres a lil something to leave you with; I ASKED FOR ALL THINGS, THAT I MIGHT ENJOY LIFE;I RECEIVED NOTHING I ASKED FOR; BUT EVERYTHING I HOPED FOR. I AM,AMONG ALL,MOST RICHLY BLESSED......... best wishes to you & your hub!! god bless,melyndagamez 5/21/08 9:54p.m.central Re: [ ] pregnancy Hi Latisha, I am pregnant right now, and my Dr just prescribed me 3mg of prednison once I passed my first trimester. I hadn't been taking any meds before that, but I have heard that a lot of people have used this same medication and their babies have turned out fine. Can you tell me about the weight loss you experienced with your other children? Best of luck!! Janet --- latishavallone <latishavallone@...> wrote: > Hello all, I am 35 diagnosed 5 years ago but suspect > Ive had RA for > about 14 or more years. I had children before I was > diagnosed in my > early 20's had difficult pregnancies, severe weight > loss and pre-term > labor and now want to have more children I would > like tips about pain > meds and doctors how to deal with them i know I > could go into remission > but what if not??? I am concerned yet at peace with > having more > children and know this is going to happen just need > advice. I stopped > taking my MTX 6 months ago and hope to start trying > in the next month > or 2. I have not told my rheumatoligist I think she > would frown on > having more kids or at least try to talk me out of > it since i already > have children.my husband and I from the beginning > wanted many children > but stopped out of fear I dont want fear to stop my > life or my choices. > thank you look forward to hearing your input. > Latisha > > ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2008 Report Share Posted June 29, 2008 I had my RA in pretty good control when I decided to get pregnant. I was on Humira and made the decision after research to stay on Humira, although my Rheum. did not agree. I have a healthy 21 month old son:-) I did have some flare-up when I first became pregnant, before I knew I was pregnant, but that went away and I had no other RA issues throughout. Feel free to ask more questions. > > Does anyone have any experience with RA and a pregnancy? Is anyone > pregnant and taking Orencia? > > Thanks > > DKH > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2008 Report Share Posted June 30, 2008 I was lucky enough to go into remission during pregnancy and didnt have to take anything. I had terrible pelvic pain because of a misaligned pelvis but don't think this was necessarily due to the RA since I didn't hve any of my usual symptoms. My daughter is now 6 months old and I am starting with pain and stiffness again, especially as she is getting heavier, but I guess I was lucky! Good luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2008 Report Share Posted June 30, 2008 I am currently 5 months pregnant. The past 6 weeks I have been taking 3mg of prednisone and it is working really well. In the first 14 weeks, I had a severe flare in my wrist and foot, but now I am doing much better. I hope you have a great pregnancy. Will you stay on the orencia during the pregnancy? -J dkh70 <dkh70@...> wrote: Does anyone have any experience with RA and a pregnancy? Is anyone pregnant and taking Orencia? Thanks DKH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2008 Report Share Posted June 30, 2008 DKH, There isn't enough data on Orencia (abatacept) to know whether it is safe for the unborn child during pregnancy. Not an MD On Sun, Jun 29, 2008 at 7:43 PM, dkh70 <dkh70@...> wrote: > Does anyone have any experience with RA and a pregnancy? Is anyone > pregnant and taking Orencia? > > Thanks > > DKH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2008 Report Share Posted June 30, 2008 -Thanks. That is what we are finding. -- In , " " <Rheumatoid.Arthritis.Support@...> wrote: > > DKH, > > There isn't enough data on Orencia (abatacept) to know whether it is > safe for the unborn child during pregnancy. > > > > Not an MD > > > > On Sun, Jun 29, 2008 at 7:43 PM, dkh70 <dkh70@...> wrote: > > Does anyone have any experience with RA and a pregnancy? Is anyone > > pregnant and taking Orencia? > > > > Thanks > > > > DKH > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2008 Report Share Posted June 30, 2008 Just to add, if you decide to stay on your meds through pregnancy, or if you just want to speak with a researcher who can review the literature with you and address concerns, you can call OTIS at the University of California at: OTIS 877-311-8972 [ ] Re: Pregnancy -Thanks. That is what we are finding. -- In @gro ups.com, " " <Rheumatoid. Arthritis. Support@. ..> wrote: > > DKH, > > There isn't enough data on Orencia (abatacept) to know whether it is > safe for the unborn child during pregnancy. > > > > Not an MD > > > > On Sun, Jun 29, 2008 at 7:43 PM, dkh70 <dkh70@...> wrote: > > Does anyone have any experience with RA and a pregnancy? Is anyone > > pregnant and taking Orencia? > > > > Thanks > > > > DKH > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2008 Report Share Posted July 1, 2008 I stayed on Humira through my pregnancy and I took part in this study. I would highly suggest it, although you are more so helping those in the future rather than yourself! > > > Does anyone have any experience with RA and a pregnancy? Is anyone > > > pregnant and taking Orencia? > > > > > > Thanks > > > > > > DKH > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2008 Report Share Posted July 1, 2008 I also found this site for questions about breastfeeding and arthritis drugs: http://neonatal.ama.ttuhsc.edu/cgi-bin/discus/discus.cgi?pg=topics & access=guest Dr. Hale says he is unconcerned about levels of Remicade and Enbrel in human milk, which is very reassuring. I'm a low supply gal anyway, I only get 1.5 oz/pumping, but I'm giving that to the baby on top of the formula. I delivered last Wed and took a dose of Enbrel on Sat. My RA was pretty quiet, but I was getting some action in my jaw and it was getting hard to put my teeth together. Better my jaw than my knees, I suppose! While I was pregnant, I did have a few freak outs about taking Enbrel, especially at the end when I needed it, but my docs wanted me to hold off (in case of an emergency C, to lower the risk of post surgical infection). I called the OTIS line and they were just great. [ ] Re: Pregnancy I stayed on Humira through my pregnancy and I took part in this study. I would highly suggest it, although you are more so helping those in the future rather than yourself! > > > Does anyone have any experience with RA and a pregnancy? Is anyone > > > pregnant and taking Orencia? > > > > > > Thanks > > > > > > DKH > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2009 Report Share Posted February 24, 2009 > > Hi Bee, I am nowhere near getting pregnant, but do have a question > about how a no carb diet might affect a fetus, just for future > knowledge. In the SCD website I read an artcle where it said that > babies whose mothers were on low carb diets are born extremely small > and this has lead to complications with their health. The addition of > some carbs was said to be needed when pregnant to prevent this. Is > this true? Are carbs needed for an optimal pregnancy? +++Hi . If a low-carb diet were unhealthy for the fetus, then the Eskimos and Masai tribe wouldn't have had such healthy babies on all meat and fat diets and no carbs of any kind. However, of all groups studied by Dr. Weston A. Price their health was superior. Everyone was born with broad faces and hips (great for deliverying babies easily), and enough room in their jaws for all 32 teeth, with no cavities, and they had no illnesses or degenerative diseases of any kind. Smaller babies means easy delivery too, which is easier on the Mother and the baby! Babies shouldn't weigh 6 - 7 lbs. at birth. Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2009 Report Share Posted February 24, 2009 In the SCD website I read an artcle where it said that babies whose mothers were on low carb diets are born extremely small and this has lead to complications with their health. The addition of some carbs was said to be needed when pregnant to prevent this. Is this true? Are carbs needed for an optimal pregnancy? kelly HI ...I lost 36 lbs with my first pregnancy. I ate nothing for 8 months & vomited bile or water every hour. In my 9th month I was finally able to eat soft-boiled eggs. That's it. Honest. Ate nothing the first 8 months & my healthy son was born weighing 7 lbs 10 oz. I often wonder where the writers of some articles get their info. Best, Susie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2009 Report Share Posted February 24, 2009 >> > Smaller babies means easy delivery too, which is easier on the Mother > and the baby! Babies shouldn't weigh 6 - 7 lbs. at birth. +++Sorry I made a mistake. I meant to write babies shouldn't weigh much more than 6 - 7 lbs. at birth. Luv, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2009 Report Share Posted February 24, 2009 > > Bee, > My name is Christy. > You said that babies shouldn't be born 6-7 lbs. I am wondering if you > could point me toward some research showing that babies should weigh > less. I have never studied the ideal baby weight so I don't know > anything about this nor where to look. +++Hi Christy. I typed that wrong; I should have written: babies shouldn't weigh much more than 6-7 lbs. at birth. Sorry my dear. > > Also, you said that pregnant women don't need carbs for the fetus and > this is evidenced by the two people groups you mentioned who eat meat > and fat.However, aren't their lifestyles different in that they are > constantly working, in freezing temps, etc. so that they have > different physical needs to provide for their lifestyles so different > from ours? +++No, they are the same as us since there is only one human species. Actually doctors in the U.S. didn't believe an all meat and fat diet was okay for people who aren't Eskimos, so they did a year long experiment in a New York Hospital with 2 men who weren't Eskimos, who ate 80% fat and 20% meat - even after doctors monitored and tested the 2 men they could find no problems, and in fact both men had greatly improved their health - see this article for full details of the experiment: http://www.biblelife.org/stefansson1.htm +++In fact there are 4-5 members of this group doing Bee's All Meat and Fat Program now. So far everyone is doing great! +++Dr. Weston A. Price writes this: " We humans have the same rigid restrictions regarding food selection as the simpler forms of life when foods are evaluated from their chemical basis. Also, it is not necessary to adopt the foods of any particular racial stock, but only to make our nutrition adequate in all its nutritive factors to the primitive nutrition. Tooth decay is not only unnecessary, but an indication of our divergence from Nature's fundamental laws of life and health. " > Also, it is my understanding that pregnant women need carbs because > they turn to glucose, which the fetus needs. And the ketosis state > that a low or no carb diet can produce, I know, can harm a fetus. +++Carbs are not required to supple adequate glucose, since 58% of protein and 10% of good fats turn into glucose in the body. There is a lot of misunderstanding about ketosis. Ketosis is not dangerous in any way, in fact it is better for the body since the brain and heart prefer ketone bodies as a source of fuel rather than glucose anyway - see this article about ketosis: http://www.biblelife.org/ketosis.htm +++So how could ketone bodies hard a fetus when it's own body runs better on them and it is so important for the brain and heart? +++Sorry my friend but there is so much false information out there, and it is all making people sicker and sicker. > So how can a low or no carb diet be safe for an unborn baby? I am talking about whole grains, legumes, fruits here - not processed carbs or simple sugars, etc. +++There aren't any special nutrients in carbs that aren't also found in meats and good fats. In fact proteins and good fats are much easier for the body to digest and utilize, compared to any carbs that overtax the body's resources and energy. See Carb Facts articles to understand better why: http://www.healingnaturallybybee.com/articles/menu3_2_1.php > > Would you let me know about your thoughts on these issues when you > have a chance? I would appreciate any advice you may have. +++The best advice is to follow my program so you are certain you and your baby are getting the " proper nutrients " all human bodies require in order to be healthy - which follows Nature's Fundamentals Laws on Health. The best to you, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2009 Report Share Posted February 24, 2009 > Smaller babies means easy delivery too, which is easier on the Mother > and the baby! Babies shouldn't weigh 6 - 7 lbs. at birth. > > Bee Amen to that. My family has a history of producing Bigfoot... I was the smallest at 8 pounds something.. my youngest brother was 11 lbs 1 oz!!! Poor Mom! I inherited her small hips, too... andra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2009 Report Share Posted February 24, 2009 > > > Smaller babies means easy delivery too, which is easier on the Mother > > and the baby! Babies shouldn't weigh 6 - 7 lbs. at birth. > > > > Bee > > Amen to that. My family has a history of producing Bigfoot... I was > the smallest at 8 pounds something.. my youngest brother was 11 lbs 1 > oz!!! Poor Mom! I inherited her small hips, too... +++Hi andra. Bigfoot - lol! For some reason my father weighed 13 lbs. at birth and they almost lost him and my Grandma. My 2 girls weight 7 lbs 6 ounces, and 7 lbs. 12 ounces, and they both would have been delivered in 1 1/2 hours if they hadn't been faced the wrong way. My daughter had her son in 1 1/2 hours and her daughter in 3 hours. She had no drugs when she delivered , and what a high difference that made in her alertness and strength (both Mom and baby). The day after was born she pushed her hands with her arms stiff up against my shoulder, and was almost erect, turning her head around and looking with such bright eyes (no floppy neck or weakness there). She said her first word within a week, before Grandma had to go back home to Denver. lol! Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2009 Report Share Posted February 24, 2009 Bee, Thanks very much for your response. I am wondering what women who can't handle the thought, smell, texture or taste of meat during early pregnancy are supposed to do. It seems to be a physiological reaction to meats, and from what I've read it is common for women to be repelled both by meat and certain vegetables in early pregnancy. Why would the body be producing this reaction to someone accustomed to eating meats and vegetables, and how would it be dealt with? Thanks! Christy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2009 Report Share Posted February 24, 2009 My groups is acting funny, so this may come through twice... > +++Hi andra. Bigfoot - lol! For some reason my father weighed > 13 lbs. at birth and they almost lost him and my Grandma. Holy moly! That is one scary baby, LOL. > My 2 girls weight 7 lbs 6 ounces, and 7 lbs. 12 ounces, and they both > would have been delivered in 1 1/2 hours if they hadn't been faced > the wrong way. Yeah, I took a while as I was right side up, too My mom says they had her doing gymnastics during labor to get me to shift! > My daughter had her son in 1 1/2 hours and her daughter in 3 hours. > She had no drugs when she delivered , and what a high difference > that made in her alertness and strength (both Mom and baby). Truly awesome (in the original sense of the word). > She said her first word within a week, before Grandma had to > go back home to Denver. lol! Perfect timing andra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 I couldn't get enough meat throughout my pregnancy. I was like a cave man lol. On 24-Feb-09, at 5:01 PM, christymawdsley wrote: > Bee, > Thanks very much for your response. I am wondering what women who > can't handle the thought, smell, texture or taste of meat during early > pregnancy are supposed to do. It seems to be a physiological reaction > to meats, and from what I've read it is common for women to be > repelled both by meat and certain vegetables in early pregnancy. Why > would the body be producing this reaction to someone accustomed to > eating meats and vegetables, and how would it be dealt with? > Thanks! > Christy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 Well...I can't attest to low carbs during pregnancy, but I am that way now that I have this baby that is allergic to dairy and wheat, and I seem to be slightly gluten intolerant....but anyway...I had an 8lb 1oz baby au naturale, who was face up, and I had to do the gymnastics to get him to turn around. I have pictures of this baby hours old lifting his head and turning it back and forth. Bright eyed and bushy tailed. We were totally amazed! He knew from the get-go who was mom because he wanted nothing to do with the " nursery " and he has been attached ever since! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2009 Report Share Posted February 26, 2009 > > Bee, > Thanks very much for your response. I am wondering what women who > can't handle the thought, smell, texture or taste of meat during early > pregnancy are supposed to do. It seems to be a physiological reaction > to meats, and from what I've read it is common for women to be > repelled both by meat and certain vegetables in early pregnancy. Why > would the body be producing this reaction to someone accustomed to > eating meats and vegetables, and how would it be dealt with? +++Hi Christy. That's funny you mention that, since I got nauseated by the smell of meat cooking for awhile during my 2nd pregnancy. I ate meat in spite of it, and eating it seemed to settle my nausea. I don't know the " cause " of such reactions. Meat is extremely important for anyone's health, particularly during pregnancy. The best, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2009 Report Share Posted February 26, 2009 > > Well...I can't attest to low carbs during pregnancy, but I am that way > now that I have this baby that is allergic to dairy and wheat, and I > seem to be slightly gluten intolerant....but anyway...I had an 8lb 1oz > baby au naturale, who was face up, and I had to do the gymnastics to > get him to turn around. I have pictures of this baby hours old lifting > his head and turning it back and forth. Bright eyed and bushy tailed. > We were totally amazed! He knew from the get-go who was mom because he > wanted nothing to do with the " nursery " and he has been attached ever > since! +++Hi there. Is your name le? I'd like to welcome you to our group too, even though my moderator, , helped you. I'm impressed that your son was so bright-eyed when he was born. Good job Mom! The best in health, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2009 Report Share Posted February 26, 2009 Yes...sorry, my name is le. And I will try and rephrase my questions of overwhelmed-ness because I am unsure of what to do with the candida diet given the current situation of allergies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2009 Report Share Posted February 27, 2009 > > Yes...sorry, my name is le. And I will try and rephrase my > questions of overwhelmed-ness because I am unsure of what to do with > the candida diet given the current situation of allergies. +++Hi le. Allergies are very misunderstood by doctors, naturopaths and other practitioners, since they interpret them as bad, or that you should avoid anything you are " allergic " to, including good clean foods from Mother Nature. However, the list of allergic reactions is exactly the same list of healing reactions that your body produces in order to heal itself. Also allergy tests are not done correctly when it comes to foods, since labs use foods that may contain pesticides, or in the case of eggs that can be from chickens that are vaccinated, given antibiotics, etc. and also they wash foods with solvents and don't even rinse them off. In addition to the fact that the antibody theory on which allergy tests are based is totally false - see these articles to understand: http://www.healingnaturallybybee.com/articles/heal11.php http://www.healingnaturallybybee.com/articles/menu4_1.php Hopefully you are reading How to Successfully Overcome Candida, and Curing Candida, How to Get Started: http://www.healingnaturallybybee.com/candida/index.php The best in health, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2009 Report Share Posted June 16, 2009 YAY! , I had 2 babies with RA. Very good pregnancies, quiet disease state, and great deliveries. My first came in '04 and I wasn't diagnosed yet, so no treatments. I had some mild joint pain and some DeQuervain's tendonitis after his birth. I had Tommy on 6/25/08 and I took Enbrel and very low dose prednisone during the whole pregnancy. He is doing great and is actually ahead of all milestones. I would encourage you to contact the OTIS research group http://otispregnancy.org if you have any interest in participating. They need women with RA who are carrying babies even if they're not taking biologics in their studies. We participated and it was a great experience. A pediatrician from San Diego even flew out to examine Tommy. It was great to contribute to science and raise awareness and hope for women with RA who are building their families. Many congratualtions and please keep us posted! Kate F ________________________________ From: burton_rr <burton_rr@...> Sent: Tuesday, June 16, 2009 9:10:57 PM Subject: [ ] pregnancy hi all....just found out i am pregnant(yeah! !)...and was wondering if any members have experience with RA and pregnancy?? My Rheumy wants to taper me off Pred. over the next month or so and we are hoping I will go into remission during my pregnancy... .any experiences anyone is willing to share would help me a great deal! -- Quote Link to comment Share on other sites More sharing options...
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