Pregnancy

June 16, 2009

Congratulations, ! I hope you'll be in remission soon.

Not an MD

On Tue, Jun 16, 2009 at 9:10 PM, burton_rr <burton_rr@...> wrote:

> hi all....just found out i am pregnant(yeah!!)...and was wondering if any

> members have experience with RA and pregnancy?? My Rheumy wants to taper me

> off Pred. over the next month or so and we are hoping I will go into

> remission during my pregnancy....any experiences anyone is willing to share

> would help me a great deal!

>

> --

>

June 17, 2009

, Congratulations!!! There's nothing more wonderful for a woman than

haveing a baby!! When I was pregnant I felt better than I had my whole life!!!

But immediately after the birth I plunged into flare and hard! But I hadn't

been diagnosed yet and so didn't know what was happening. You know so you will

be prepared and you should be just fine!! Best of luck to you! MicheleBB

>

> hi all....just found out i am pregnant(yeah!!)...and was wondering if any

members have experience with RA and pregnancy?? My Rheumy wants to taper me off

Pred. over the next month or so and we are hoping I will go into remission

during my pregnancy....any experiences anyone is willing to share would help me

a great deal!

>

> --

>

June 17, 2009

Yay !!!!!!! Congratulations and happy, healthy pregnancy! ELizabeth

D. in hot, sunny south Louisiana

>

> hi all....just found out i am pregnant(yeah!!)...and was wondering if any

members have experience with RA and pregnancy?? My Rheumy wants to taper me off

Pred. over the next month or so and we are hoping I will go into remission

during my pregnancy....any experiences anyone is willing to share would help me

a great deal!

>

> --

>

June 17, 2009

Kate...

Thanks so much for sharing with me. I was a little unsure about taking my

prednisone while pregnant but my rheumy didn't say anything negative about

it....have you ever heard anything? I will for sure check into the research

group....and thanks sincerely again!

--

>

> YAY! , I had 2 babies with RA. Very good pregnancies, quiet disease

state, and great deliveries. My first came in '04 and I wasn't diagnosed yet,

so no treatments. I had some mild joint pain and some DeQuervain's tendonitis

after his birth. I had Tommy on 6/25/08 and I took Enbrel and very low dose

prednisone during the whole pregnancy. He is doing great and is actually ahead

of all milestones. I would encourage you to contact the OTIS research group

http://otispregnancy.org if you have any interest in participating. They need

women with RA who are carrying babies even if they're not taking biologics in

their studies. We participated and it was a great experience. A pediatrician

from San Diego even flew out to examine Tommy. It was great to contribute to

science and raise awareness and hope for women with RA who are building their

families. Many congratualtions and please keep us posted! Kate F

>

> ________________________________

> From: burton_rr <burton_rr@...>

>

> Sent: Tuesday, June 16, 2009 9:10:57 PM

> Subject: [ ] pregnancy

>

> hi all....just found out i am pregnant(yeah! !)...and was wondering if any

members have experience with RA and pregnancy?? My Rheumy wants to taper me off

Pred. over the next month or so and we are hoping I will go into remission

during my pregnancy... .any experiences anyone is willing to share would help me

a great deal!

>

> --

>

June 17, 2009

Thanks so much.....have you heard anything about taking prednisone while

pregnant?

--

> >

> > hi all....just found out i am pregnant(yeah!!)...and was wondering if any

members have experience with RA and pregnancy?? My Rheumy wants to taper me off

Pred. over the next month or so and we are hoping I will go into remission

during my pregnancy....any experiences anyone is willing to share would help me

a great deal!

> >

> > --

> >

>

June 17, 2009

...are you aware of any risks to taking prednisone while pregnant? Any

clinical studies/findings? My rheumy has me on 20mg/day and I am about 6 weeks

prego...and he wants to slowly wean me off over the next 4 weeks....

--

>

> Renata,

>

> I am in a similar situation, I was 27 when I was first diagnosed but I

> hadn't had children yet, I am now 30 and I'm pregnant for the first time

> (with twins!).I am a pharmacist so I new the risks of a lot these drugs, I

> did have to go off plaquenil, but I was put on sulfasalazine. It is one of

> the DMARDS considered safe if you get pregnant while on it. you can also be

> on prednisone while pregnant.(you can't use methotrexate or celebrex while

> pregnant) The biologicals don't have a lot of safety data at this point.

> One good thing about pregnancy is that 80% go into clinical remission. I

> did have some bad days, i will admit, but i am now in my 3rd trimester and I

> feel much better. Good luck in your decision!

>

June 17, 2009

Katy...

I am glad you found this group! I am 24 and was just diagnosed with severe

RA...and I can always count on the members of this group to answer questions I

have....it is always reassuring to get REAL answers from the actual people who

are experiencing RA. I wish you the best in your efforts on making a baby-don't

stop trying if it is what you really want to do!

--

>

> My name is Katy. I was diagnosed with RA at the age of 22 almost 3

> years ago. I got married in December last year. In December I went off

> of Mtx and Plaquinil, I remained on Prednisolone, Sulf, Naproxen. I

> went off the contraceptive pill 2 months before our wedding. My RA

> flared up very quickly, we tried to get pregnant for 7 months before

> the pain was so bad that I just couldnt do it anymore. My

> Rheumatologist said that it was the worst flare up in a woman trying

> to get pregnant he had ever seen. My Rheumatoid Factor was up to 486.

> It was so devastating, all I ever wanted to be was a Mum. I am slowly

> recovering, I am still experiencing some pain but nothing compared to

> what I went through. I dont know what to think about the future. I

> hope that some day we will be able to try again. I just found this

> group today, it has already helped to see other people going through

> RA and to realise that Im not alone.

>

June 17, 2009

Prednisone is considered safe in lower doses. It's key to have a good rheum and

a good OB. I was lucky to have both. My rheum team at Washington (yay!

go team!) was amazing as I was going thru infertility treatments. My rheum

fellow emailed me daily after I lost a pregnancy (as did this group, hugs,

everyone) and they were really excited when I got, and stayed, pregnant with

Tommy. We moved to IL and my rheum here was enormoulsy supportive of me staying

on low prednisone and Enbrel. I had a bit of a flare after he was born, but she

designed a micro burst of pred over a week that had me feeling better in no

time. My rheum had a good quote about the Enbrel to the effect of, " I can't

tell you that it's safe, but I can't tell you that it's dangerous either. " The

OTIS group actually does phone counseling and they can review the scientific

data with you. When I got nervous about taking it, I would call them and they'd

talk me down. Bottom

line is that the subject pool is small but there is no evidence that antiTNFs

are associated with more birth defects/miscarriages than the background

population rates. Remember that we are talking small numbers. Only 1% (?)

of the population has RA. Maybe 60% (?) of RA patients are female, X% are of

childbearing age, X% are family building, and X% decide to take antiTNF therapy

while pregnant. You start getting down to pretty small numbers, but I read the

studies and my doctor and I were comfortable with the risk-benefit profile. I

also went to see a perinatologist when I was 18w for a high level ultrasound.

He spent 45 min scanning Tommy, measuring the bones of his face, the ventricles

in his brain, checking his organ systems, measuring bones in his hands, all to

look for defects. He said he was more concerned about my age (37) then about

the Enbrel, he said he actually was familiar with antiTNFs and does not believe

they are harmful in

pregnancy. I also did a quad screen which was normal. The perinatologist said

that the bloodwork plus results of my scan put my risk of Downs or other defects

as the same as a 28 yr old woman. He offered to do an amnio but said the risk

of loss was higher than the risk of defects, so I declined. It was a great day

to know I was carrying a normal baby. It's great to thumb your nose at RA and

be a part of creating life. Damn the torpedoes I say. Hale the

lactation guru also says there is no evidence that it's harmful to breastfeed

and use antiTNFs. After all, if we can't take them by mouth b/c it's destroyed

by gastric juices, it makes sense that any antiTNF in milk would be destroyed in

the baby's gut. You have to work with the right docs, read the studies, call

OTIS, and decide with your partner, but staying on biologics was the right

decision for us. It kept me happy, healthy, and able to chase my little boy who

will be 1 next week!

Also, for random advice, consider hiring a doula through the DONA network. It

was the best $400 I could have spent and she was super helpful on the day of

delivery and during the pregnancy.

Big hugs, Kate F

________________________________

From: burton_rr <burton_rr@...>

Sent: Wednesday, June 17, 2009 7:42:19 PM

Subject: [ ] Re: pregnancy

Kate...

Thanks so much for sharing with me. I was a little unsure about taking my

prednisone while pregnant but my rheumy didn't say anything negative about

it....have you ever heard anything? I will for sure check into the research

group....and thanks sincerely again!

--

>

> YAY! , I had 2 babies with RA. Very good pregnancies, quiet disease

state, and great deliveries. My first came in '04 and I wasn't diagnosed yet,

so no treatments. I had some mild joint pain and some DeQuervain's tendonitis

after his birth. I had Tommy on 6/25/08 and I took Enbrel and very low dose

prednisone during the whole pregnancy. He is doing great and is actually ahead

of all milestones. I would encourage you to contact the OTIS research group

http://otispregnancy.org if you have any interest in participating. They need

women with RA who are carrying babies even if they're not taking biologics in

their studies. We participated and it was a great experience. A pediatrician

from San Diego even flew out to examine Tommy. It was great to contribute to

science and raise awareness and hope for women with RA who are building their

families. Many congratualtions and please keep us posted! Kate F

>

> ____________ _________ _________ __

> From: burton_rr <burton_rr@. ..>

> @gro ups.com

> Sent: Tuesday, June 16, 2009 9:10:57 PM

> Subject: [ ] pregnancy

>

> hi all....just found out i am pregnant(yeah! !)...and was wondering if any

members have experience with RA and pregnancy?? My Rheumy wants to taper me off

Pred. over the next month or so and we are hoping I will go into remission

during my pregnancy... .any experiences anyone is willing to share would help me

a great deal!

>

> --

>

June 18, 2009

Kate,

Even though the prevalence of RA in the US is often stated as about 1%, the

ACR states that the number of people with RA in the US is roughly 1.3

million and that around 75% are women.

Not an MD

On Wed, Jun 17, 2009 at 9:03 PM, Fair <kalfoley@...> wrote:

> Prednisone is considered safe in lower doses. It's key to have a good

> rheum and a good OB. I was lucky to have both. My rheum team at

> Washington (yay! go team!) was amazing as I was going thru infertility

> treatments. My rheum fellow emailed me daily after I lost a pregnancy (as

> did this group, hugs, everyone) and they were really excited when I got, and

> stayed, pregnant with Tommy. We moved to IL and my rheum here was

> enormoulsy supportive of me staying on low prednisone and Enbrel. I had a

> bit of a flare after he was born, but she designed a micro burst of pred

> over a week that had me feeling better in no time. My rheum had a good

> quote about the Enbrel to the effect of, " I can't tell you that it's safe,

> but I can't tell you that it's dangerous either. " The OTIS group actually

> does phone counseling and they can review the scientific data with you.

> When I got nervous about taking it, I would call them and they'd talk me

> down. Bottom

> line is that the subject pool is small but there is no evidence that

> antiTNFs are associated with more birth defects/miscarriages than the

> background population rates. Remember that we are talking small numbers.

> Only 1% (?) of the population has RA. Maybe 60% (?) of RA patients are

> female, X% are of childbearing age, X% are family building, and X% decide to

> take antiTNF therapy while pregnant. You start getting down to pretty small

> numbers, but I read the studies and my doctor and I were comfortable with

> the risk-benefit profile. I also went to see a perinatologist when I was

> 18w for a high level ultrasound. He spent 45 min scanning Tommy, measuring

> the bones of his face, the ventricles in his brain, checking his organ

> systems, measuring bones in his hands, all to look for defects. He said he

> was more concerned about my age (37) then about the Enbrel, he said he

> actually was familiar with antiTNFs and does not believe they are harmful in

> pregnancy. I also did a quad screen which was normal. The perinatologist

> said that the bloodwork plus results of my scan put my risk of Downs or

> other defects as the same as a 28 yr old woman. He offered to do an amnio

> but said the risk of loss was higher than the risk of defects, so I

> declined. It was a great day to know I was carrying a normal baby. It's

> great to thumb your nose at RA and be a part of creating life. Damn the

> torpedoes I say. Hale the lactation guru also says there is no

> evidence that it's harmful to breastfeed and use antiTNFs. After all, if we

> can't take them by mouth b/c it's destroyed by gastric juices, it makes

> sense that any antiTNF in milk would be destroyed in the baby's gut. You

> have to work with the right docs, read the studies, call OTIS, and decide

> with your partner, but staying on biologics was the right decision for us.

> It kept me happy, healthy, and able to chase my little boy who will be 1

> next week!

> Also, for random advice, consider hiring a doula through the DONA network.

> It was the best $400 I could have spent and she was super helpful on the

> day of delivery and during the pregnancy.

> Big hugs, Kate F

June 18, 2009

Hello,

I was on 10 mg of prednisone my entire pregnancy with my fourth child.

Both my rheumy and OB/GYN were fine with it. And the baby was fine, too!

Patty

September 6, 2009

Hi ,

I knew I had candida when I was pregnant, so yes, it is possible to get pregnant

when you have candida. If a woman has Polycystic Ovarian Syndrome (PCOS) as a

result of her candida overgrowth, then she will have a harder time getting

pregnant.

There are a couple of women on this forum who are currently pregnant and

following Bee's program as well as some mothers with newborns.

Bee generally does not recommend that women get pregnant until after they've

healed their candida overgrowth since children will inherit their parents'

" nutritional status " when they are conceived. See this article:

http://www.healingnaturallybybee.com/articles/baby.php

I believe that my having candida is the reason why my son has displayed

ADD/autistic-like symptoms.

Hope that helps!

>

> Hi, Bee,

> I wonder if you know if women with candida are able to get pregnant, or does

the condition usually inhibit getting pregnant? Have you ever heard of someone

with candida having a baby, and did they stay on the diet while they were

pregnant?

>

September 8, 2009

>

> Hi, Bee,

> I wonder if you know if women with candida are able to get pregnant, or does

the condition usually inhibit getting pregnant? Have you ever heard of someone

with candida having a baby, and did they stay on the diet while they were

pregnant?

>

***I am not a doc. these are our initials so please don't be mislead***

Hi ,

I have had children with candida. I didn't know that was what was causing all

of my problems however. I can tell you I don't advise having children until you

are healthy. I had 1 child die from brain cancer. And 2 of my children are

very candida symptomatic ages almost 1 and just turned 2. 1 of which has never

had any antibiotics. Please change your way of living now so you will have

children with good strong immune systems. It is best to start them out with a

strong foundation in life. Please don't think that I am saying that a candida

person will loose a child they way we did, I am just trying to point out that I

was very ill for years and didn't know why and she had a bad immune system and I

didn't have the info to help her like I would have now.) Best of wishes to you.

December 1, 2009

Yes. In fact, they *should* treat Lyme if you're pregnant, because it

will help prevent you transmitting it to your baby. (I have two kids,

and one of them got it this way.)

Definitely talk to your LLMD about this.

Sara

On Dec 1, 2009, at 11:38 58AM, bridget wrote:

> Hi there, I haven't posted in a few days, but I was diagnosed with

> late stage lymes last week, (still waiting for the Igenex results)

> my LLMD clinically diagnosed me and I am starting doxy, amoxacillin

> and a couple of supplements tomorrow. I recently had my IUD pulled

> out and have used protection with my husband since then, but I am 2

> weeks late for my period, I am going to test in the morning, I am

> obviously going to talk to my LLMD if I am pregnant, but just

> curious what you guys think, is it safe to be pregnant with lymes,

> or do they treat lymes to people when they're pregnant? just curious

> Bridget

>

> ------------------------------------

>

> Lyme Disease News continually updated from thousands of sources

> around the

> net: http://www.topix.net/health/lyme-disease

>

> MedWorm: The latest items on: Lyme Disease

> http://tinyurl.com/23dgy8

>

December 1, 2009

lyme travels through the blood and your baby is made up of you. i know mom's

to be can cut down transmission of lyme to baby by being on antibiotics but

i don't know if there is solid statistics and it is still a risk that your

child could have lyme at any age of his/her life, so you will always have to

be watching for the signs. i cried when i found this out but quickly decided

i would not have more children as i did not want to take the risk.

On Tue, Dec 1, 2009 at 11:38 AM, bridget <blueyes7648@...> wrote:

>

> Hi there, I haven't posted in a few days, but I was diagnosed with late

> stage lymes last week, (still waiting for the Igenex results) my LLMD

> clinically diagnosed me and I am starting doxy, amoxacillin and a couple of

> supplements tomorrow. I recently had my IUD pulled out and have used

> protection with my husband since then, but I am 2 weeks late for my period,

> I am going to test in the morning, I am obviously going to talk to my LLMD

> if I am pregnant, but just curious what you guys think, is it safe to be

> pregnant with lymes, or do they treat lymes to people when they're pregnant?

> just curious

> Bridget

>

December 1, 2009

Lyme also causes miscarriages (I had 10 very early ones due to Lyme... also

have 2 kids, 1 who shows some symptoms of it). My LLMD told me that if I

wanted to get pregnant again I'd need to be on antibiotics the entire

pregnancy (preferably before becoming pregnant) in order to prevent

miscarriage and lower the risk of transmitting it to the baby.