Guest guest Posted January 29, 2001 Report Share Posted January 29, 2001 Have you considered that she might not be having a good reaction to melatonin. I myself , would not pursue interventions while my child is ill. If you are trying different things at once how are you going to be able to tell what your child is reacting to. Just a thought. This might be an allergic reaction to. kelly And I kept giving her melatonin! She ended up taking about 7mg!!! Before the night was over! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2001 Report Share Posted January 29, 2001 Laurie, I have been going through the archives and it seems you did the right thing. When you start back up on the ALA half the dosage. Also were you giving it every three hours and someone said do not use the solar ray brand (I think). nne -- In @y..., Laurie Hunter <chinamom@p...> wrote: > > Ok, we did round 2 of ALA only this week, but then I got a little panicy.... > Grace was up until 10 last night then out till 12:30 and then up again until > 5:30 this am back up at 8! Only about 5 hours! And I kept giving her > melatonin! She ended up taking about 7mg!!! Before the night was over! > > She also was real itchy, her face was puffy and had little spots on her face > this am, and now has them on her trunk tonight.... Is this the Mercury rash > I keep hearing about??? > > She seems less stimmy while on the ALA, but she has done alittle regression > in language this weekend. I probably should have waited since her cold is > not yet gone! > > Anyhow, I stopped a day early! did I do the right thing? Try again next > weekend??? > > Laurie > Mom to Grace 3.9 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2001 Report Share Posted February 11, 2001 Creatinine is often low in toxic folks. As you chelate, it should get better. As I understand it, it is an indicator of how well you process protein and how well your kidneys work. When my son's first showed low, our doc did a blood creatinine test to make sure it wasn't really high and the urine really low. That would indicate some kidney problems, according to him. As we've chelated, both our creatinine levels have normalized. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2001 Report Share Posted February 11, 2001 If blood creatine is normal, does this rule out toxicity? Heidi Re: [ ] Help! Creatinine is often low in toxic folks. As you chelate, it should getbetter. As I understand it, it is an indicator of how well you processprotein and how well your kidneys work. When my son's first showed low, ourdoc did a blood creatinine test to make sure it wasn't really high and theurine really low. That would indicate some kidney problems, according tohim. As we've chelated, both our creatinine levels have normalized.Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2001 Report Share Posted February 11, 2001 This isn't significant. It means he was drinking a lot of water during the test - which most people do during a " challenge test. " Andy > I have before me a urine toxic elements test results from DDI on my > son. At the bottom it says his creatinine is 71.7 mg/dl. The > reference range is 75-200 mg/dl. At first glance, it didn't seem to > be too out of line. Then I looked to the right and saw that it is up > to two standard deviations below the norm! This is a post > provocative challenge result. What is creatinine and what do low > levels mean here? Should I be doing something to bring the levels > up? And what would that be? Andy? Bernie? Anyone? HELP! > Thanks, > Sus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2001 Report Share Posted February 13, 2001 In a message dated 2/11/01 2:53:58 PM Central Standard Time, elevatordance@... writes: << If blood creatine is normal, does this rule out toxicity? >> I don't think so. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2003 Report Share Posted December 13, 2003 Most of our children score poorly on the IQ tests, but many of them are really bright. Many IQ tests and many psychologists who administer the IQ tests do not take into consideration the child's communiation deficit. It is hard to score a child who does not respond to you even if she knows the answer. Due to this, traditionally, children with autism are thought to have mental retardation. Recent research shows that autism is primarily a deficit in social skills, with related deficits in communication and language skills. The traditional assumption of mental retardation in children with autism has given way to the understanding that these children have varied degrees of cognitive abilities, and that their scores for cognitive testing often improve once their social/communication skills improve (See Educating Chidlren with Autism, by National Research Council, 2001, pp. 27, 47-50, 168-170.). Furthermore, the previous assumption that autism is an untreatable mental condition is being replaced by the belief that children with autism can improve dramatically if they were given early and appropriate interventions (Educating Chidlren with Autism,151). Finally, the recent individualistic approach dictates that, aside from the common denominator of social-skill deficit, children with autism are unique individuals with diverse behavior and physiological patterns. A single test usually does not test a child's true ability, especially when the person who administers the test does not know the child well. Your doctor does not seem to be aware the recent research. I would definitely get a second opinion. Best, lukne2001 wrote: >I just took my 2 year old to the Oregon Health and Sciences >University for a diagnosis and they told me that not only is she >mildly autistic, but she is also mentally retarded with an IQ in the >high 60's. The developmental pediatrician said that she may face a >future living in group homes or at least she'll need special >assistance with thinks like balancing her check book, etc. > >The doctor also said that IQ scores rarely climb from the 60's to >normal range even in kids that young. > >She is 27 months old and expressively she has 20 words and >receptively she has many more. She doesn't obey commands like " Come >here " or " Sit down " . But isn't one morning of testing a two year >old jumping the gun a bit on telling me that she'll likely never go >to college? As the doctor was so kind to tell me. > >If she does have mental retardation, will an ABA program really help >her? > >My 4 year old has AS so I know about autism and ABA, but this >mentally retarded diagnosis has really thrown me for a loop. Has >anyone else ever experienced anything similar to this? > >I'm freaking . . . > > > > > > > >List moderators: Jenn - ABAqueen1@... > Steph - Stephhulshof@... > >Post message: >Subscribe: -subscribe >Unsubscribe: -unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2003 Report Share Posted December 13, 2003 I would not stress too much over a label. It's useful for getting services your child needs, and that's all it's useful for. It doesn't tell you anything about your child's future. That will be determined by your child, not a label that somebody gave him or her. Try to take advantage of the things a label DOES get your child. It might be extra services such as speech or occupational therapy, or it might be financial assistance, or an aide to give you a break. Look on the bright side, and don't let the negative associations you may have with that label get you down. If life hands you a bowl of lemons, make lemonade! P.S. When Kenny was 27 months old, I was told he would never talk and would need to be institutionalized. Well, he does talk, and he's nowhere near needing to be in an institution! So never give up! s (Cary, NC) (who seems to have lots of lemonade on hand at all times!) persistentC@... President and Executive Director The Mariposa School for Children with Autism www.MariposaSchool.org 919-461-0600 Re: [ ] HELP! Most of our children score poorly on the IQ tests, but many of them are really bright. Many IQ tests and many psychologists who administer the IQ tests do not take into consideration the child's communiation deficit. It is hard to score a child who does not respond to you even if she knows the answer. Due to this, traditionally, children with autism are thought to have mental retardation. Recent research shows that autism is primarily a deficit in social skills, with related deficits in communication and language skills. The traditional assumption of mental retardation in children with autism has given way to the understanding that these children have varied degrees of cognitive abilities, and that their scores for cognitive testing often improve once their social/communication skills improve (See Educating Chidlren with Autism, by National Research Council, 2001, pp. 27, 47-50, 168-170.). Furthermore, the previous assumption that autism is an untreatable mental condition is being replaced by the belief that children with autism can improve dramatically if they were given early and appropriate interventions (Educating Chidlren with Autism,151). Finally, the recent individualistic approach dictates that, aside from the common denominator of social-skill deficit, children with autism are unique individuals with diverse behavior and physiological patterns. A single test usually does not test a child's true ability, especially when the person who administers the test does not know the child well. Your doctor does not seem to be aware the recent research. I would definitely get a second opinion. Best, lukne2001 wrote: >I just took my 2 year old to the Oregon Health and Sciences >University for a diagnosis and they told me that not only is she >mildly autistic, but she is also mentally retarded with an IQ in the >high 60's. The developmental pediatrician said that she may face a >future living in group homes or at least she'll need special >assistance with thinks like balancing her check book, etc. > >The doctor also said that IQ scores rarely climb from the 60's to >normal range even in kids that young. > >She is 27 months old and expressively she has 20 words and >receptively she has many more. She doesn't obey commands like " Come >here " or " Sit down " . But isn't one morning of testing a two year >old jumping the gun a bit on telling me that she'll likely never go >to college? As the doctor was so kind to tell me. > >If she does have mental retardation, will an ABA program really help >her? > >My 4 year old has AS so I know about autism and ABA, but this >mentally retarded diagnosis has really thrown me for a loop. Has >anyone else ever experienced anything similar to this? > >I'm freaking . . . > > > > > > > >List moderators: Jenn - ABAqueen1@... > Steph - Stephhulshof@... > >Post message: >Subscribe: -subscribe >Unsubscribe: -unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2003 Report Share Posted December 14, 2003 and group, When Colin was three, a Ph.D. in psych/local Lovaas guru thought that if he could be tested his IQ would be in the mid thirties. About the same time a developmental pediatrician diagnosed autism making his official medical dx/autism and spastic diplegia,a type of CP. At about the same time a teacher with a Ph.D. in special education and 10 years of experience said he thought Colin was really smart. That was nearly 10 years ago. He read at age three. He has learned to make friends with no spoken language at all. He is a popular sixth grader who earned two As on his first quarter report card. Follow the child. Teach what the child wants to learn. Love and accept your child. Labels are important only if they lead you to find people who can help you help your child. , Colin P's mom Re: [ ] HELP! Most of our children score poorly on the IQ tests, but many of them are really bright. Many IQ tests and many psychologists who administer the IQ tests do not take into consideration the child's communiation deficit. It is hard to score a child who does not respond to you even if she knows the answer. Due to this, traditionally, children with autism are thought to have mental retardation. Recent research shows that autism is primarily a deficit in social skills, with related deficits in communication and language skills. The traditional assumption of mental retardation in children with autism has given way to the understanding that these children have varied degrees of cognitive abilities, and that their scores for cognitive testing often improve once their social/communication skills improve (See Educating Chidlren with Autism, by National Research Council, 2001, pp. 27, 47-50, 168-170.). Furthermore, the previous assumption that autism is an untreatable mental condition is being replaced by the belief that children with autism can improve dramatically if they were given early and appropriate interventions (Educating Chidlren with Autism,151). Finally, the recent individualistic approach dictates that, aside from the common denominator of social-skill deficit, children with autism are unique individuals with diverse behavior and physiological patterns. A single test usually does not test a child's true ability, especially when the person who administers the test does not know the child well. Your doctor does not seem to be aware the recent research. I would definitely get a second opinion. Best, lukne2001 wrote: >I just took my 2 year old to the Oregon Health and Sciences >University for a diagnosis and they told me that not only is she >mildly autistic, but she is also mentally retarded with an IQ in the >high 60's. The developmental pediatrician said that she may face a >future living in group homes or at least she'll need special >assistance with thinks like balancing her check book, etc. > >The doctor also said that IQ scores rarely climb from the 60's to >normal range even in kids that young. > >She is 27 months old and expressively she has 20 words and >receptively she has many more. She doesn't obey commands like " Come >here " or " Sit down " . But isn't one morning of testing a two year >old jumping the gun a bit on telling me that she'll likely never go >to college? As the doctor was so kind to tell me. > >If she does have mental retardation, will an ABA program really help >her? > >My 4 year old has AS so I know about autism and ABA, but this >mentally retarded diagnosis has really thrown me for a loop. Has >anyone else ever experienced anything similar to this? > >I'm freaking . . . > > > > > > > >List moderators: Jenn - ABAqueen1@... > Steph - Stephhulshof@... > >Post message: >Subscribe: -subscribe >Unsubscribe: -unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2009 Report Share Posted December 21, 2009 Tracey, I have a new computer, have lost my bookmarks, and do not remember how to get to the weight loss program. Please help, thanks, a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years o2/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
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