Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 Camille, Whatever you feel in your heart is best then that is the way to go. Should you continue to have nagging suspicions then please post to us again. Good luck to you and . Natasha --- In Plagiocephaly , " camilledc77 " <camille_dc@h...> wrote: > I just wanted to say thanks to everyone who offered much > needed support during the last few weeks as my husband and I > were wrestling with the decison to band and which kind of band > to use as well. We have come to the decision not to go ahead > with the banding process. Some of you might remember that on > our way to a casting appointment, the back passenger window > of our SUV burst in and we were unable to make that > appointment. Wondering if it were a sign from God and how to > determine if it was, we called one of our old priests who is a > good friend and he hooked us up with a pediatrician in our > parish to talk to about possible funding sources, etc. When the > doctor saw , he said he wouldn't have made a referral in > his case. He is not anti-band but he said 's case was > minor and it should look better as he gets older. I do think that > 's case is mild...we have to point it out to anyone we talk > to about it for them to see that his forehead protrudes slightly on > one side. CT didn't push us at all when we went for the > consultation and said, " well, its just a matter of how much it > bothers you " . Of course, we think our baby is beautiful...we were > just worried about his self-esteem growing up. Now I guess we > only can pray that it does improve slightly and that we can raise a > child that can find confidence and pride in himself within and not > search for perfection on the outside. I still have a nagging worry > inside about whether or not this was the right decision but I think > I feel more at peace now than when we were thinking about > going ahead with it. Thanks again for all the support and good > luck to everyone who is currently dealing with plagio. > Camille in Texas > Mom to - 7 months...was to be DOC banded, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 Camille, Thank you for letting us know. It is good to be at peace with a decision. I'm glad you found some good resources to consult. His headshape will improve in time and if it were mild then it probably would be undetectable to most people. We will be here if you need us. Take care and God bless! Sue Colin F. 11 mos. STARband 6/29 Buffalo, NY --- In Plagiocephaly , " camilledc77 " <camille_dc@h...> wrote: > I just wanted to say thanks to everyone who offered much > needed support during the last few weeks as my husband and I > were wrestling with the decison to band and which kind of band > to use as well. We have come to the decision not to go ahead > with the banding process. Some of you might remember that on > our way to a casting appointment, the back passenger window > of our SUV burst in and we were unable to make that > appointment. Wondering if it were a sign from God and how to > determine if it was, we called one of our old priests who is a > good friend and he hooked us up with a pediatrician in our > parish to talk to about possible funding sources, etc. When the > doctor saw , he said he wouldn't have made a referral in > his case. He is not anti-band but he said 's case was > minor and it should look better as he gets older. I do think that > 's case is mild...we have to point it out to anyone we talk > to about it for them to see that his forehead protrudes slightly on > one side. CT didn't push us at all when we went for the > consultation and said, " well, its just a matter of how much it > bothers you " . Of course, we think our baby is beautiful...we were > just worried about his self-esteem growing up. Now I guess we > only can pray that it does improve slightly and that we can raise a > child that can find confidence and pride in himself within and not > search for perfection on the outside. I still have a nagging worry > inside about whether or not this was the right decision but I think > I feel more at peace now than when we were thinking about > going ahead with it. Thanks again for all the support and good > luck to everyone who is currently dealing with plagio. > Camille in Texas > Mom to - 7 months...was to be DOC banded, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2005 Report Share Posted February 8, 2005 That is great news. Can you add the drs name to the dr database? mom to na DOC Grad www.thefilyaws.comamks1027 <amks1027@...> wrote: Hi, I was on the board about 3 weeks ago when my pediatrician told us that our daughter, now 10 months, should get a band. So, we went to the craniofacial plastic surgeon yesterday who did a Star Scan and told us that her case is very mild. She has a trace amount of facial assymetry - nothing noticable at all and the flat spot on her the right side of her head is not bad either. He said that because her case is so mild, he is very confident that it will improve on its own as her brain grows. It has definately gotten better over the last 3 months since she really started crawling around. He did suggest that she get PT to fix the rest of her Torticollis. I just want to say thank you to everyone who answered my questions about Plagio, as I was very nervous and knew very little. I also want to recommend this Doc here in the Chicago area. His name is Vicari and he is at Children's Memorial. He is excellent - very nice, very patient, and VERY honest. He said he has over 300 Plagio patients and he is the only doc in Illinois to use the Star Scanner, which literally took 2.5 seconds to get a picture perfect 3-D image of my daughters head.Thank you again for all your help and I hope you all have great outcomes with your babes!!For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 CONGRATS!!!! That is great!!! Thank you so very much for sharing your happy news!!!! You must be very relieved!! Christy - mom to Kennedy Brachy/plagio/tort DOC band 11/23/04 to grad 2/11/05 Tulsa, OKamks1027 <amks1027@...> wrote: Hi, I was on the board about 3 weeks ago when my pediatrician told us that our daughter, now 10 months, should get a band. So, we went to the craniofacial plastic surgeon yesterday who did a Star Scan and told us that her case is very mild. She has a trace amount of facial assymetry - nothing noticable at all and the flat spot on her the right side of her head is not bad either. He said that because her case is so mild, he is very confident that it will improve on its own as her brain grows. It has definately gotten better over the last 3 months since she really started crawling around. He did suggest that she get PT to fix the rest of her Torticollis. I just want to say thank you to everyone who answered my questions about Plagio, as I was very nervous and knew very little. I also want to recommend this Doc here in the Chicago area. His name is Vicari and he is at Children's Memorial. He is excellent - very nice, very patient, and VERY honest. He said he has over 300 Plagio patients and he is the only doc in Illinois to use the Star Scanner, which literally took 2.5 seconds to get a picture perfect 3-D image of my daughters head.Thank you again for all your help and I hope you all have great outcomes with your babes!!For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 Thank you for that information. Good luck to you as well. Sue Colin F., 16 mos. STARband grad 9/04 --- In Plagiocephaly , " amks1027 " <amks1027@y...> wrote: > > Hi, I was on the board about 3 weeks ago when my pediatrician told > us that our daughter, now 10 months, should get a band. So, we went > to the craniofacial plastic surgeon yesterday who did a Star Scan > and told us that her case is very mild. She has a trace amount of > facial assymetry - nothing noticable at all and the flat spot on her > the right side of her head is not bad either. He said that because > her case is so mild, he is very confident that it will improve on > its own as her brain grows. It has definately gotten better over > the last 3 months since she really started crawling around. He did > suggest that she get PT to fix the rest of her Torticollis. I just > want to say thank you to everyone who answered my questions about > Plagio, as I was very nervous and knew very little. > > I also want to recommend this Doc here in the Chicago area. His > name is Vicari and he is at Children's Memorial. He is > excellent - very nice, very patient, and VERY honest. He said he > has over 300 Plagio patients and he is the only doc in Illinois to > use the Star Scanner, which literally took 2.5 seconds to get a > picture perfect 3-D image of my daughters head. > > Thank you again for all your help and I hope you all have great > outcomes with your babes!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2005 Report Share Posted February 13, 2005 Thank you for sharing this wonderful news. I'm sure you are glad to hear that outcome. Please add this doctor and his contact info to our doctor database. thanks Sandy Willow's Mom Cranio Germany Grad Tort resolved http://www.geocities.com/samipa74/Willow_Lanette.html --- In Plagiocephaly , " amks1027 " <amks1027@y...> wrote: > > Hi, I was on the board about 3 weeks ago when my pediatrician told > us that our daughter, now 10 months, should get a band. So, we went > to the craniofacial plastic surgeon yesterday who did a Star Scan > and told us that her case is very mild. She has a trace amount of > facial assymetry - nothing noticable at all and the flat spot on her > the right side of her head is not bad either. He said that because > her case is so mild, he is very confident that it will improve on > its own as her brain grows. It has definately gotten better over > the last 3 months since she really started crawling around. He did > suggest that she get PT to fix the rest of her Torticollis. I just > want to say thank you to everyone who answered my questions about > Plagio, as I was very nervous and knew very little. > > I also want to recommend this Doc here in the Chicago area. His > name is Vicari and he is at Children's Memorial. He is > excellent - very nice, very patient, and VERY honest. He said he > has over 300 Plagio patients and he is the only doc in Illinois to > use the Star Scanner, which literally took 2.5 seconds to get a > picture perfect 3-D image of my daughters head. > > Thank you again for all your help and I hope you all have great > outcomes with your babes!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2005 Report Share Posted February 13, 2005 Thank you for sharing this wonderful news. I'm sure you are glad to hear that outcome. Please add this doctor and his contact info to our doctor database. thanks Sandy Willow's Mom Cranio Germany Grad Tort resolved http://www.geocities.com/samipa74/Willow_Lanette.html --- In Plagiocephaly , " amks1027 " <amks1027@y...> wrote: > > Hi, I was on the board about 3 weeks ago when my pediatrician told > us that our daughter, now 10 months, should get a band. So, we went > to the craniofacial plastic surgeon yesterday who did a Star Scan > and told us that her case is very mild. She has a trace amount of > facial assymetry - nothing noticable at all and the flat spot on her > the right side of her head is not bad either. He said that because > her case is so mild, he is very confident that it will improve on > its own as her brain grows. It has definately gotten better over > the last 3 months since she really started crawling around. He did > suggest that she get PT to fix the rest of her Torticollis. I just > want to say thank you to everyone who answered my questions about > Plagio, as I was very nervous and knew very little. > > I also want to recommend this Doc here in the Chicago area. His > name is Vicari and he is at Children's Memorial. He is > excellent - very nice, very patient, and VERY honest. He said he > has over 300 Plagio patients and he is the only doc in Illinois to > use the Star Scanner, which literally took 2.5 seconds to get a > picture perfect 3-D image of my daughters head. > > Thank you again for all your help and I hope you all have great > outcomes with your babes!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2005 Report Share Posted September 4, 2005 Dear Priscilla, I'm glad you are getting some help and that the meds are helping. I just recently started a new med and am amazed at how much better I feel, and what it does for my outlook. My husband and I (he has Parkinson's) sat in church this morning & held hands, and I got the strongest feeling that the spirit of God was present there! Our daughter sang a duet with her friend, and has NEVER sung loud enough to be heard, though she has a pretty voice. This morning it was like someone opened a gate and all the music and joy flowed out, I nearly cried. What is your fiance's name? I will add him (and you)to my prayer list, and bless him and the others for what they are doing. Our church is getting together needed items to truck down south later this week. Sisters in Christ, Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2005 Report Share Posted September 4, 2005 Dear Priscilla, I'm glad you are getting some help and that the meds are helping. I just recently started a new med and am amazed at how much better I feel, and what it does for my outlook. My husband and I (he has Parkinson's) sat in church this morning & held hands, and I got the strongest feeling that the spirit of God was present there! Our daughter sang a duet with her friend, and has NEVER sung loud enough to be heard, though she has a pretty voice. This morning it was like someone opened a gate and all the music and joy flowed out, I nearly cried. What is your fiance's name? I will add him (and you)to my prayer list, and bless him and the others for what they are doing. Our church is getting together needed items to truck down south later this week. Sisters in Christ, Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2005 Report Share Posted September 4, 2005 Thank you so much, Judi. His name is . He is a wonderful man and a great father to my 2 daughters and his son.Thank you for the prayers. We can all use them. I know that the Lord is going to use in a wonderful way. God Bless. Prisicilla nonny46 <nonny46@...> wrote: Dear Priscilla, I'm glad you are getting some help and that the meds are helping. I just recently started a new med and am amazed at how much better I feel, and what it does for my outlook. My husband and I (he has Parkinson's) sat in church this morning & held hands, and I got the strongest feeling that the spirit of God was present there! Our daughter sang a duet with her friend, and has NEVER sung loud enough to be heard, though she has a pretty voice. This morning it was like someone opened a gate and all the music and joy flowed out, I nearly cried. What is your fiance's name? I will add him (and you)to my prayer list, and bless him and the others for what they are doing. Our church is getting together needed items to truck down south later this week. Sisters in Christ, Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2005 Report Share Posted September 4, 2005 Thank you so much, Judi. His name is . He is a wonderful man and a great father to my 2 daughters and his son.Thank you for the prayers. We can all use them. I know that the Lord is going to use in a wonderful way. God Bless. Prisicilla nonny46 <nonny46@...> wrote: Dear Priscilla, I'm glad you are getting some help and that the meds are helping. I just recently started a new med and am amazed at how much better I feel, and what it does for my outlook. My husband and I (he has Parkinson's) sat in church this morning & held hands, and I got the strongest feeling that the spirit of God was present there! Our daughter sang a duet with her friend, and has NEVER sung loud enough to be heard, though she has a pretty voice. This morning it was like someone opened a gate and all the music and joy flowed out, I nearly cried. What is your fiance's name? I will add him (and you)to my prayer list, and bless him and the others for what they are doing. Our church is getting together needed items to truck down south later this week. Sisters in Christ, Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2007 Report Share Posted December 6, 2007 Yay for the emotional relief! It's a huge thing when you're going through this. And how wonderful that you were able to see the rheumotologist so quickly! I hope that you're able to fight back quickly and that you;re feeling better soon! Kim > > I just wanted to give a heartfelt thank you to all the support. Both on > board and via private messages, I heard from a lot of people who have > been where I am now, or close to it, with insight and advice and just > the " I understand " factor. It means so much to me. And I took > everyone's advice and saw a rheumatologist rather than going back to my > regular doctor. I was shocked that I called and got in the same week, > but that is great because I feel a bit better emotionally about it all. > He took a LOT of blood for more testing and I go back next week to see > if there are any answers in all those tiny vials. We even talked about > what the next steps might be, given different results, or if everything > still looks normal. I do not find it easy to click with many doctors, > but I really like this one. I am SO glad to be a part of this group! > Hugs, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2007 Report Share Posted December 6, 2007 That is great that you got in that quick i have been waiting for 2 weeks now to hear from one witht he apt.I hope everything goes ok with yours. **************************************Check out AOL's list of 2007's hottest products. (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2008 Report Share Posted October 14, 2008 Dear : I am a home school mom of 2 boys - Almost 15 and 12. The 15 year old is ADHD/PDD - NOS/ Aspergers Syndrome. I live in S.W. Wisconsin w/no help our home school groups. Any advise or insight will help. My almost 15 year old was diagnosed at 3rd grade and changes were made. I had to pull them out of school because the teachers were not trained and would locked him in a "quiet room". I now have them both at home and was wondering if you have any curriculum or know of other mom's in my area that home school, what do they use for curriculum. Thank you in advance for any info that you could supply me with. I am very isolated with no help ful resources. I am an hour drive from Madison and in the winter w/-40 degree below and 2 feet of snow on the ground it makes getting out sort of hard. I only have the computer and book resources to go to. Thank you again. A. Sterland ssterland@.... ( ) Thank you all! Just wanted to take a moment to thank each and every one of you who have responded with advice and your stories, I never expected the amount of support I have recieved on here!!! You all are wonderful! God Bless you and your wonderful Kids! BTW- Yesterday the private school went GREAT! They already have one Asperger and are more than willing to take on another! They were fantastic and Blake is VERY thrilled about his new school,we start in a few weeks!! YAY! THANK YOU THANK YOU THANK YOU!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2008 Report Share Posted October 14, 2008 Glad that it is working out! RoxannaYou're UniqueJust like everyone else... ( ) Thank you all! Just wanted to take a moment to thank each and every one of you who have responded with advice and your stories, I never expected the amount of support I have recieved on here!!! You all are wonderful! God Bless you and your wonderful Kids! BTW- Yesterday the private school went GREAT! They already have one Asperger and are more than willing to take on another! They were fantastic and Blake is VERY thrilled about his new school,we start in a few weeks!! YAY! THANK YOU THANK YOU THANK YOU!!! No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.173 / Virus Database: 270.8.0/1724 - Release Date: 10/14/2008 2:02 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2008 Report Share Posted October 14, 2008 .... We are all here for one another and I feel the same...this is a great site and everyone is so helpful. I too had and will have crises and EVERYONE here has been so supportive and helpful. I am glad you felt supported ...that is what we really need...not to feel so alone....and I am so happy for you and your son with this new school. I will pray that this continues. Keep posting and reading....we are all learning from one another.... Jan Jan Rushen Smile because it is contagious!!!! From: Yell <aspiemom8@...>Subject: ( ) Thank you all!"All Things Aspergers" <AllThingsAspergers >, "ARSC" <ARSC- >, "Aspergers PDD Parents" <Asperger_PDD_Parents >, "Aspergers Support" < >, "Auditory Processing" <AuditoryProcessing >, "Autism Insurance Information" <autism_insurance_information >, "Our Special Needs Children" <OurSpecialNeedsChildren >, "Raising Special Needs Children" <raisingspecialneedschildren >, "Sensory Integration Group" <sensoryintegrationgroup >Date: Tuesday, October 14, 2008, 10:39 AM Just wanted to take a moment to thank each and every one of you who have responded with advice and your stories, I never expected the amount of support I have recieved on here!!! You all are wonderful! God Bless you and your wonderful Kids! BTW- Yesterday the private school went GREAT! They already have one Asperger and are more than willing to take on another! They were fantastic and Blake is VERY thrilled about his new school,we start in a few weeks!! YAY! THANK YOU THANK YOU THANK YOU!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2008 Report Share Posted October 18, 2008 I don't know about cost but the e-school we belong to is using a lot of books online this year. My ds uses all HOLT books online except for a Science book, which he has here. It is kind of nice to have the books online. It takes a little bit to load, which is my only complaint. I love the Language arts book online because you can opt to have the stories read to you and we do that in Social Studies too. Then they have notebooks you can click and jot down notes, answers to questions and even a highlighter function. The math book has so many features - extra practice pages, quizes you can take at each section and even little mini-movies that teach the problem again. RoxannaYou're UniqueJust like everyone else... ( ) Thank you all! Just wanted to take a moment to thank each and every one of you who have responded with advice and your stories, I never expected the amount of support I have recieved on here!!! You all are wonderful! God Bless you and your wonderful Kids! BTW- Yesterday the private school went GREAT! They already have one Asperger and are more than willing to take on another! They were fantastic and Blake is VERY thrilled about his new school,we start in a few weeks!! YAY! THANK YOU THANK YOU THANK YOU!!! No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.173 / Virus Database: 270.8.0/1724 - Release Date: 10/14/2008 2:02 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2009 Report Share Posted December 26, 2009 Thank you all for your warm thank yous! I so appreciate it and I know that everyone here " gets it " how exciting this news was for me personally. I had an amazing Christmas and was so grateful to be with my family and enjoying time with my two nephews-- who is 3 1/2 and who is four months... Yes, this Ariad drug does appear to be something really special! Jackie--you know you will be there with me! You've just had to take a few " vacations " that I haven't had to. Hugs and love to all, Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2010 Report Share Posted October 15, 2010 Angi, congratulations!! I had mentioned that I would love to read it. Can you email me a copy ? Sent from my Verizon Wireless Phone angela <angi_400@...> wrote: >I know I don't post often in here, but I want to first say thank you to all of you. I know that we all feel alone at times with everything we have to deal with to do the best for our kids. Knowing that I can come to this board and there will be people here that DO understand, and aren't just going to patronize me and pat me on the head makes it so much easier for me at times. > >Second, I want to thank all of you for helping with the research paper I wrote for the class I just completed. I finally got a grade back on it, and got an A! Lost points since I " wasn't objective enough " about the subject, but I can handle that! > >I know someone told me they might be interested in reading it after it was done. If any of you would like to read it, let me know and I'll send it to you. > >Thanks, from our house to yours. All of you are what makes it possible for us to get through some of our rougher days. > >Angi Clifton > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 Angi, Congradulations on your paper! That is awesome. You should send it so we can read it. :-) I too am glad I joined this group not too long ago, but it has helped me to know there are people to can relate and understand. I don't get to post much, but I read. Thanks! ne From: angela <angi_400@...>Subject: ( ) Thank you all! Date: Thursday, October 14, 2010, 11:27 PM I know I don't post often in here, but I want to first say thank you to all of you. I know that we all feel alone at times with everything we have to deal with to do the best for our kids. Knowing that I can come to this board and there will be people here that DO understand, and aren't just going to patronize me and pat me on the head makes it so much easier for me at times.Second, I want to thank all of you for helping with the research paper I wrote for the class I just completed. I finally got a grade back on it, and got an A! Lost points since I "wasn't objective enough" about the subject, but I can handle that! I know someone told me they might be interested in reading it after it was done. If any of you would like to read it, let me know and I'll send it to you.Thanks, from our house to yours. All of you are what makes it possible for us to get through some of our rougher days.Angi Clifton Quote Link to comment Share on other sites More sharing options...
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