Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 Hi !! I know how " horrid " it is to try & get medicaid on a child. I went through the experience 12 yrs. ago with Blake. We had to first go through SSI. He was denied financially BUT approved Medically. So we had to go through TEFRA to get medicaid. Since they " mistakenly " mistook Blake to be an adult & beleived he could function is socoeity with ALL of his issues, the denied him. 8 Months later we were in front of a judge to proove Blake was a 4 yr. ols with many issues and needed all sorts of therapy to get by. This was successful. We he was finally approved, it ent back to his 2 surgeries when he was 3. SInce it had been almost a yr. from applying & aover a yr. since the surgeries, Medicaid wanted to " turn down " the claim. Since it was court ordered to go retro to the beginning of 1995, they HAD to cover the charges. Whatever bills that you have incurred since Aug.07 Medicaid HAS to paid. With Blake we have both insurance and medicaid.....so, insurance is first.Medicaid is secondary. We see NO bills from anything that he has done medically & dentally(they do not cover ortodontics....braces). The only places we might see a bill comein from is if that Dr. does NOT apply for secondary insurance. With Blake, since he is high risk for any thing done & his out of pocket is usally paid by Feb. 1st. They will bill medicaid & get inurance to pay medicaid back!!!! If your Dr. say your co-pay is 902.00 just give the medicaid card, & tell them this is their insurance. They should go back to Aug. 07. If you paid off any medical bills from 8/07 til approval, call the bills office at the facility you were at & tell them that medicaid will cover those bills & get your money back......that IS what we did. We had only one office not pay us back, but we took it to court & got our money & then some because the person over their billing dept. was fired after we told the Dr. about what happened & she got on the ball!!!! Good Luck with the IVIG mom to Blake 15....soon to be 16 (going on 60...my little ole man!!! http://www3.caringbridge.org/sc/blakester The Greaatest Adventure of MY lifetime!!!! ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ susan sorensen <sorensens004@...> wrote: Hi, I just received a letter stating that my kids have qualified for Medicaid and it would be retroactive to 8/07. I have a couple questions I hope somebody can answer. My insurance has determined my copay for my daughter's IVIG is $902. Can I submit that portion to Medicaid? If so, do I just forward copies of the bill from the provider from now on? What about bills already paid since August? Should I contact the hospital where she receives her IVIG to let them know of Medicaid coverage and let them bill Medicaid? It was a 7 month ordeal to get the insurance to agree to cover IVIG. Will Medicaid be just as tough (or worse) to convince? Should I continue to pay the copay and then hope Medicaid reimburses me? I'm sorry if this sounds silly, but I have no idea how this works. The letter doesn't tell me much of anything except they qualify and cards wil be issued later. Thanks for any help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 First thing is do not pay for another dime of copays. Medicaid will NOT reimburse you for the money already spent out. I owuld go ahead and let the hospital know that youi have medicaid as secondary and then let them bill the insurance. I don't believe that medicaid will be as hard to get to cover the IVIG because we did it for a year and didn't pay a dime of it and didn't have to fight the insurance to get it covered. Cassie Future Director of the Charismatic Carolers www.marykay.com/cassieredinger Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 ---We have private ins thru my DH's work, and then Medicaid as secondary. Ive never paid the bill and waited for reimbursement...I just give my card to the office to copy, and they bill private ins first, and Medicaid for what would have been my copay. Since I have three kids on IVIG, this is very much appreciated around here:) I have not ever had a problem with Medicaid paying their part.......so far, they seem happy to NOT have to pay the whole thing! valarie In , " susan sorensen " <sorensens004@...> wrote: > > Hi, > > I just received a letter stating that my kids have qualified for Medicaid and it would be retroactive to 8/07. I have a couple questions I hope somebody can answer. > > My insurance has determined my copay for my daughter's IVIG is $902. Can I submit that portion to Medicaid? If so, do I just forward copies of the bill from the provider from now on? What about bills already paid since August? Should I contact the hospital where she receives her IVIG to let them know of Medicaid coverage and let them bill Medicaid? > > It was a 7 month ordeal to get the insurance to agree to cover IVIG. Will Medicaid be just as tough (or worse) to convince? Should I continue to pay the copay and then hope Medicaid reimburses me? > > I'm sorry if this sounds silly, but I have no idea how this works. The letter doesn't tell me much of anything except they qualify and cards wil be issued later. > > Thanks for any help! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 YAY!!!!!!!!!! I would tell the hospital and have them bill all your past copays to medicaid. They should then reimburse you for what you have already paid. Then, in the future, you should not have to pay anything. My son also has private insurance as primary and Medicaid as secondary and we never pay a cent unless we choose to go to a doctor that is not a Medicaid provider. With IVIG, the primary insurance needed all kinds of info to preapprove IVIG but with Medicaid, it was no problem. Betsy - mom to Henry - 9 3/4 yr old - CVID - starting IVIG on 1/11/08 susan sorensen <sorensens004@...> wrote: Hi, I just received a letter stating that my kids have qualified for Medicaid and it would be retroactive to 8/07. I have a couple questions I hope somebody can answer. My insurance has determined my copay for my daughter's IVIG is $902. Can I submit that portion to Medicaid? If so, do I just forward copies of the bill from the provider from now on? What about bills already paid since August? Should I contact the hospital where she receives her IVIG to let them know of Medicaid coverage and let them bill Medicaid? It was a 7 month ordeal to get the insurance to agree to cover IVIG. Will Medicaid be just as tough (or worse) to convince? Should I continue to pay the copay and then hope Medicaid reimburses me? I'm sorry if this sounds silly, but I have no idea how this works. The letter doesn't tell me much of anything except they qualify and cards wil be issued later. Thanks for any help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 , You should have a caseworker You can call the DHS office and find out who it is. Also just let everyone know that gives you services about you new insurance and that it is retro to August. they will rebill and you should not have to do anything. Your bills would probably just make things more complicated. Generally, your insurance is Primary and DHS picks up the difference when you have both. I do not know what state you are in but this is generally how it works but your caseworker should be able to help you more specifically. BARBIE Medicaid questions Hi, I just received a letter stating that my kids have qualified for Medicaid and it would be retroactive to 8/07. I have a couple questions I hope somebody can answer. My insurance has determined my copay for my daughter's IVIG is $902. Can I submit that portion to Medicaid? If so, do I just forward copies of the bill from the provider from now on? What about bills already paid since August? Should I contact the hospital where she receives her IVIG to let them know of Medicaid coverage and let them bill Medicaid? It was a 7 month ordeal to get the insurance to agree to cover IVIG. Will Medicaid be just as tough (or worse) to convince? Should I continue to pay the copay and then hope Medicaid reimburses me? I'm sorry if this sounds silly, but I have no idea how this works. The letter doesn't tell me much of anything except they qualify and cards wil be issued later. Thanks for any help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 Hi , my son just got SSI and the judge wrote on his approval that it was suppose to be retro to his birth. That would be a nightmare for everyone if it included his medical bills. All I would like is payment to make up for some I have had to put out. Any way my question is that when I talked to SSI they told me that it would only go to the date we applied. It sounds like you went to court for his MEDICAID but it he also on Social Security? BARBIE Re: Medicaid questions Hi !! I know how " horrid " it is to try & get medicaid on a child. I went through the experience 12 yrs. ago with Blake. We had to first go through SSI. He was denied financially BUT approved Medically. So we had to go through TEFRA to get medicaid. Since they " mistakenly " mistook Blake to be an adult & beleived he could function is socoeity with ALL of his issues, the denied him. 8 Months later we were in front of a judge to proove Blake was a 4 yr. ols with many issues and needed all sorts of therapy to get by. This was successful. We he was finally approved, it ent back to his 2 surgeries when he was 3. SInce it had been almost a yr. from applying & aover a yr. since the surgeries, Medicaid wanted to " turn down " the claim. Since it was court ordered to go retro to the beginning of 1995, they HAD to cover the charges. Whatever bills that you have incurred since Aug.07 Medicaid HAS to paid. With Blake we have both insurance and medicaid.... .so, insurance is first.Medicaid is secondary. We see NO bills from anything that he has done medically & dentally(they do not cover ortodontics. ...braces) . The only places we might see a bill comein from is if that Dr. does NOT apply for secondary insurance. With Blake, since he is high risk for any thing done & his out of pocket is usally paid by Feb. 1st. They will bill medicaid & get inurance to pay medicaid back!!!! If your Dr. say your co-pay is 902.00 just give the medicaid card, & tell them this is their insurance. They should go back to Aug. 07. If you paid off any medical bills from 8/07 til approval, call the bills office at the facility you were at & tell them that medicaid will cover those bills & get your money back......that IS what we did. We had only one office not pay us back, but we took it to court & got our money & then some because the person over their billing dept. was fired after we told the Dr. about what happened & she got on the ball!!!! Good Luck with the IVIG mom to Blake 15....soon to be 16 (going on 60...my little ole man!!! http://www3. caringbridge. org/sc/blakester The Greaatest Adventure of MY lifetime!!!! ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~ ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~ susan sorensen <sorensens004@ hawaii.rr. com> wrote: Hi, I just received a letter stating that my kids have qualified for Medicaid and it would be retroactive to 8/07. I have a couple questions I hope somebody can answer. My insurance has determined my copay for my daughter's IVIG is $902. Can I submit that portion to Medicaid? If so, do I just forward copies of the bill from the provider from now on? What about bills already paid since August? Should I contact the hospital where she receives her IVIG to let them know of Medicaid coverage and let them bill Medicaid? It was a 7 month ordeal to get the insurance to agree to cover IVIG. Will Medicaid be just as tough (or worse) to convince? Should I continue to pay the copay and then hope Medicaid reimburses me? I'm sorry if this sounds silly, but I have no idea how this works. The letter doesn't tell me much of anything except they qualify and cards wil be issued later. Thanks for any help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 Thank you to everyone who responded! Looks like I'll be on the phone tomorrow to quite a few people. One more question...Does Medicaid cover prescriptions? If so, do I submit receipts to Medicaid? I do not have prescription coverage on our health insurance policy and although we do use Costco mostly, some of the kid's Rx's are compounded out of state and need to be sent overnight on ice ($$$). Thanks again, Medicaid questions Hi, I just received a letter stating that my kids have qualified for Medicaid and it would be retroactive to 8/07. I have a couple questions I hope somebody can answer. My insurance has determined my copay for my daughter's IVIG is $902. Can I submit that portion to Medicaid? If so, do I just forward copies of the bill from the provider from now on? What about bills already paid since August? Should I contact the hospital where she receives her IVIG to let them know of Medicaid coverage and let them bill Medicaid? It was a 7 month ordeal to get the insurance to agree to cover IVIG. Will Medicaid be just as tough (or worse) to convince? Should I continue to pay the copay and then hope Medicaid reimburses me? I'm sorry if this sounds silly, but I have no idea how this works. The letter doesn't tell me much of anything except they qualify and cards wil be issued later. Thanks for any help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 Medicaid can be difficult with some meds, we had to battle Diflucan in November. With the dr's repeated appeals, it went through, but it is a headache. Everything is billed straight to them and your primary insurance covers first. Don't know about IVIG but we are headed down that road after Mollie's next appt on the 15th I believe. Call your caseworker and become best friends with the person who files in your physicians office. They are your best helpers. Rita Wow!! Have you checked out the new books?? Introduce educational excellence with Usborne Books to your community. Host a show and earn free books! Great time to order gifts too.http://www.ubah.com/J0511/ @...: sorensens004@...: Sun, 6 Jan 2008 06:47:02 -1000Subject: Re: Medicaid questions Thank you to everyone who responded! Looks like I'll be on the phone tomorrow to quite a few people. One more question...Does Medicaid cover prescriptions? If so, do I submit receipts to Medicaid? I do not have prescription coverage on our health insurance policy and although we do use Costco mostly, some of the kid's Rx's are compounded out of state and need to be sent overnight on ice ($$$).Thanks again, Medicaid questionsHi,I just received a letter stating that my kids have qualified for Medicaid and it would be retroactive to 8/07. I have a couple questions I hope somebody can answer. My insurance has determined my copay for my daughter's IVIG is $902. Can I submit that portion to Medicaid? If so, do I just forward copies of the bill from the provider from now on? What about bills already paid since August? Should I contact the hospital where she receives her IVIG to let them know of Medicaid coverage and let them bill Medicaid?It was a 7 month ordeal to get the insurance to agree to cover IVIG. Will Medicaid be just as tough (or worse) to convince? Should I continue to pay the copay and then hope Medicaid reimburses me? I'm sorry if this sounds silly, but I have no idea how this works. The letter doesn't tell me much of anything except they qualify and cards wil be issued later.Thanks for any help![Non-text portions of this message have been removed]__________________________________________________________Looking for last minute shopping deals? Find them fast with Search. http://tools.search./newsearch/category.php?category=shopping[Non-text portions of this message have been removed][Non-text portions of this message have been removed] _________________________________________________________________ Share life as it happens with the new Windows Live. http://www.windowslive.com/share.html?ocid=TXT_TAGHM_Wave2_sharelife_012008 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 --- In MI, our medicaid also picks up our cost after ins for prescriptions. Its a big help, as our brand name cost is $40 each, and with four kids with issues, plus myself, that adds up to more per month than we even bring in. It will be the same as with the drs office...just take your Medicaid card to your pharmacy, or if its the out of state one, call and give them your Medicaid number. They should take care of all of it for you. valarie In , " susan sorensen " <sorensens004@...> wrote: > > Thank you to everyone who responded! Looks like I'll be on the phone tomorrow to quite a few people. One more question...Does Medicaid cover prescriptions? If so, do I submit receipts to Medicaid? I do not have prescription coverage on our health insurance policy and although we do use Costco mostly, some of the kid's Rx's are compounded out of state and need to be sent overnight on ice ($$$). > Thanks again, > > Medicaid questions > > Hi, > > I just received a letter stating that my kids have qualified for Medicaid and it would be retroactive to 8/07. I have a couple questions I hope somebody can answer. > > My insurance has determined my copay for my daughter's IVIG is $902. Can I submit that portion to Medicaid? If so, do I just forward copies of the bill from the provider from now on? What about bills already paid since August? Should I contact the hospital where she receives her IVIG to let them know of Medicaid coverage and let them bill Medicaid? > > It was a 7 month ordeal to get the insurance to agree to cover IVIG. Will Medicaid be just as tough (or worse) to convince? Should I continue to pay the copay and then hope Medicaid reimburses me? > > I'm sorry if this sounds silly, but I have no idea how this works. The letter doesn't tell me much of anything except they qualify and cards wil be issued later. > > Thanks for any help! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 Give the company where you got the meds from your new insurance info and if you say please please and let them know what is going on they may be willing to rebill them to medicaid. and YES they do have RX coverage. BARBIE Medicaid questions Hi, I just received a letter stating that my kids have qualified for Medicaid and it would be retroactive to 8/07. I have a couple questions I hope somebody can answer. My insurance has determined my copay for my daughter's IVIG is $902. Can I submit that portion to Medicaid? If so, do I just forward copies of the bill from the provider from now on? What about bills already paid since August? Should I contact the hospital where she receives her IVIG to let them know of Medicaid coverage and let them bill Medicaid? It was a 7 month ordeal to get the insurance to agree to cover IVIG. Will Medicaid be just as tough (or worse) to convince? Should I continue to pay the copay and then hope Medicaid reimburses me? I'm sorry if this sounds silly, but I have no idea how this works. The letter doesn't tell me much of anything except they qualify and cards wil be issued later. Thanks for any help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 Here in SC with medicaid, the childre have unlimited perscriptions. But at age 21 they start paying 3 $$'s & are limited to 4 scripts. Check with YOUR medicaid office on this one. With Blake he has ins. if they don't pay it is automatically billed to medicaid. The pharmacist can tell which they will pay for & which are not covered. With Blake it is practically " tit for tat " Hope this helps...I know having the extra ins. is a BIG help!!!! Mom to Blake 15 SCID, Asperger's, Sensory Intergration Motor Skills Delays, Central Auditory Processing Deffecit ,Gentetic Prothrombin Deffect, Factor V Leiden & MTHRF DNA Deffect. Straight A's in 9th grade!!!! http://www3.caringbridge.org/sc/blakester The Greatest Adventure of MY Lifetime!!!! ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ susan sorensen <sorensens004@...> wrote: Thank you to everyone who responded! Looks like I'll be on the phone tomorrow to quite a few people. One more question...Does Medicaid cover prescriptions? If so, do I submit receipts to Medicaid? I do not have prescription coverage on our health insurance policy and although we do use Costco mostly, some of the kid's Rx's are compounded out of state and need to be sent overnight on ice ($$$). Thanks again, Medicaid questions Hi, I just received a letter stating that my kids have qualified for Medicaid and it would be retroactive to 8/07. I have a couple questions I hope somebody can answer. My insurance has determined my copay for my daughter's IVIG is $902. Can I submit that portion to Medicaid? If so, do I just forward copies of the bill from the provider from now on? What about bills already paid since August? Should I contact the hospital where she receives her IVIG to let them know of Medicaid coverage and let them bill Medicaid? It was a 7 month ordeal to get the insurance to agree to cover IVIG. Will Medicaid be just as tough (or worse) to convince? Should I continue to pay the copay and then hope Medicaid reimburses me? I'm sorry if this sounds silly, but I have no idea how this works. The letter doesn't tell me much of anything except they qualify and cards wil be issued later. Thanks for any help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Hi Barbie Yep!!! I had to go to court twice for him to just get medicaid. We were denied SSI because of 's income. He was making $80- 90,000 (LOTS of overtime) I was told from the beginning to LET SSI deny him & apply through the TEFRA Act. That is what I did. That was When Blake was 4. He had had 3 surgeries just in 1995(age 3). This was also when they decided to test the immune system......It FAILED!!!! He had to have a central line placed & used ONLY IV antibiotics. But it was the Immuno. we used at that time that told everyone involved in Blake's care that it was NOT his immune sytem failing that he had too many irons in the fire & she believed all hearts against hearts he WOULD out grow it.....give him time....he was born weighing only 1 lb. 6oz & lost more than 50 % of body weight in the first couple of days of life Well how does that play into a 3-4 yr. old hwo gets sick each time he is near any other child let alone his grand-parents. We swithced Drs. Any way, the reason we went to court about the Medicaid was to proove WHY Blake needed the secondary ins. Just because Dad over worked this yr. did not mean he would next yr. Plus the medicaid office and vocational rehab kept telling that with all the therapy, asthma feeding tubes central lines & such, he COULD function as an adult. right after that review came back, I was livid!!! I got on the phone & put in my appeal right away. This first time I had to write a letter explaining what it was like to like with an Autistic/ADHD/OCD/ODD NOS boy living in a bubble & not know when the next infection would set in, not know what day he will be in the hospital. What time of the day we would have to deal with a MAJOR " melt down " all because the cereal was not totally covered with milk not to mention having to clean up toys shewn across the floor all because they would not line up the way they should. Then deal with IV antibiotics needing to be started every 8 hrs. To top it off having a feeding tube we had to keep hooked to a pump to maintain a guestamated weight because your child would not eat adequate amt to keep the label FTT off his plate. The Judge totally agreed with me & that is when the Medicaid was retro to the beginnig of 1995. That was 18 mos. before this court " date " . The second time we again had to deal with the way the Dr. worded Blake's health....we by then had a different Immuno plus a Pulmo. & it was mandatory for a review of his TEFRA(4 YRS, So, Blake was 8). This time Blake was actually in the hospital & had been there for 4 months!!!! It has NEVER been a question again. I just fill out the medicaid form & don't have to worry Now that Dad has decided he would have a younger woman on his side & be into her lifestyle, Blake & I were actally put out on our own with no husband to support us(long story & not done in court) I applied right away for SSI. they did not hesitate to get SSI going!!! When I did, a lot of doors were opened to me & Blake. Even our church was in the dark of all we were enduring because of dad's parents NOT wanting to admit Blake was as medically fragile as he is. But they made no bones to tell them about our split!!! The Church has set up folks to help me & Blake financially & make sure I have what is needed to get Blake ahead!!! It is amazing what people will do when they learn of the WHOLE picture & we finally admit that we need the help!!! We were able to go back to 2 yrs. ago & collect all of that. But am still ready to do battle !!!! Sorry this was too long, if you are still here & reading Thanks!! Mom to Blake, 16, SCID with Complete T-Cell Dysfunction.....lots of other stuff, too!! http://www3.caringbridge.org/sc/blakester The Greatest Adventure of MY Lifetime!!!! ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~ > > Hi , my son just got SSI and the judge wrote on his approval that it was suppose to be retro to his birth. That would be a nightmare for everyone if it included his medical bills. All I would like is payment to make up for some I have had to put out. Any way my question is that when I talked to SSI they told me that it would only go to the date we applied. It sounds like you went to court for his MEDICAID but it he also on Social Security? > > BARBIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Hi , Just wanted to add that, at least here in Massachusetts, Medicaid will also cover many over the counter meds for kids as well-- as long as you have a prescription from the doctor. We no longer pay for tylenol, benadryl, ibuprofen, multi-vitimins, even A & D ointment is covered as well, and with no co-pay. Many people don't know that Medicaid also pays for these items too, so just thought I'd throw that out there too. We only recently found out and between all three kids with issues and infusions for all three each week, we save about $85 a month just on over the counter stuff. We got a list of the covered OTC meds from our caseworker, and then emailed our immunologist with a list of which ones we use regularly. He mailed me the srcipts-- it was very easy. Good Luck! , mom to: (8) CVID, Asthma, Siezures, Neutropenia? (5) CVID, Asthma, Neutropenia? (2) CVID, Asthma, NeutropeniaOUR STORY: http://foxfamilypidd.bravehost.com/ _________________________________________________________________ Share life as it happens with the new Windows Live. http://www.windowslive.com/share.html?ocid=TXT_TAGHM_Wave2_sharelife_012008 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 thanks so much -Marie, I am not sure what will be made of it but the first time I asked for a hearing in WA state it took over 3 years to get the hearing and we had moved to OK. So I am not sure what it will take now that he has officially been approved. They are driving me crazy because they are asking me to go back and recreate the last 4 years of my life so they can verify how his money was spent and how I used my money and how it related to loans etc. So he was approved in August officially but I have not seen a dime yet. It is a bit difficult for now. I too am a single mom now which I understand is quite common for families with high risk kids or kids with chronic health care issues. I do not want to be prejudice but I guess it takes us tough moms to hang in there. BARBIE Re: Medicaid questions Hi Barbie Yep!!! I had to go to court twice for him to just get medicaid. We were denied SSI because of 's income. He was making $80- 90,000 (LOTS of overtime) I was told from the beginning to LET SSI deny him & apply through the TEFRA Act. That is what I did. That was When Blake was 4. He had had 3 surgeries just in 1995(age 3). This was also when they decided to test the immune system...... It FAILED!!!! He had to have a central line placed & used ONLY IV antibiotics. But it was the Immuno. we used at that time that told everyone involved in Blake's care that it was NOT his immune sytem failing that he had too many irons in the fire & she believed all hearts against hearts he WOULD out grow it.....give him time....he was born weighing only 1 lb. 6oz & lost more than 50 % of body weight in the first couple of days of life Well how does that play into a 3-4 yr. old hwo gets sick each time he is near any other child let alone his grand-parents. We swithced Drs. Any way, the reason we went to court about the Medicaid was to proove WHY Blake needed the secondary ins. Just because Dad over worked this yr. did not mean he would next yr. Plus the medicaid office and vocational rehab kept telling that with all the therapy, asthma feeding tubes central lines & such, he COULD function as an adult. right after that review came back, I was livid!!! I got on the phone & put in my appeal right away. This first time I had to write a letter explaining what it was like to like with an Autistic/ADHD/ OCD/ODD NOS boy living in a bubble & not know when the next infection would set in, not know what day he will be in the hospital. What time of the day we would have to deal with a MAJOR " melt down " all because the cereal was not totally covered with milk not to mention having to clean up toys shewn across the floor all because they would not line up the way they should. Then deal with IV antibiotics needing to be started every 8 hrs. To top it off having a feeding tube we had to keep hooked to a pump to maintain a guestamated weight because your child would not eat adequate amt to keep the label FTT off his plate. The Judge totally agreed with me & that is when the Medicaid was retro to the beginnig of 1995. That was 18 mos. before this court " date " . The second time we again had to deal with the way the Dr. worded Blake's health....we by then had a different Immuno plus a Pulmo. & it was mandatory for a review of his TEFRA(4 YRS, So, Blake was 8). This time Blake was actually in the hospital & had been there for 4 months!!!! It has NEVER been a question again. I just fill out the medicaid form & don't have to worry Now that Dad has decided he would have a younger woman on his side & be into her lifestyle, Blake & I were actally put out on our own with no husband to support us(long story & not done in court) I applied right away for SSI. they did not hesitate to get SSI going!!! When I did, a lot of doors were opened to me & Blake. Even our church was in the dark of all we were enduring because of dad's parents NOT wanting to admit Blake was as medically fragile as he is. But they made no bones to tell them about our split!!! The Church has set up folks to help me & Blake financially & make sure I have what is needed to get Blake ahead!!! It is amazing what people will do when they learn of the WHOLE picture & we finally admit that we need the help!!! We were able to go back to 2 yrs. ago & collect all of that. But am still ready to do battle !!!! Sorry this was too long, if you are still here & reading Thanks!! Mom to Blake, 16, SCID with Complete T-Cell Dysfunction. ....lots of other stuff, too!! http://www3. caringbridge. org/sc/blakester The Greatest Adventure of MY Lifetime!!!! ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~ ~ ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~ ~ > > Hi , my son just got SSI and the judge wrote on his approval that it was suppose to be retro to his birth. That would be a nightmare for everyone if it included his medical bills. All I would like is payment to make up for some I have had to put out. Any way my question is that when I talked to SSI they told me that it would only go to the date we applied. It sounds like you went to court for his MEDICAID but it he also on Social Security? > > BARBIE ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. 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Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Wow, that's good to know...thanks! I really appreciate everyone for taking the time to answer my questions. I called the case worker who was out for the day, but at least got the kid's ID numbers from another woman so I can pick up their Rx's....the cards won't be issued for 2 weeks. This lady said if it's retro to August, I'll have to submit the receipts I've already paid to the case worker to sort through. Then I called the hospital to give them my daughter's ID number which she verified and then said I could throw the remaining $902.00 bill for copayment for the last IVIG away :-)))))))))))))) Re: Medicaid questions Hi , Just wanted to add that, at least here in Massachusetts, Medicaid will also cover many over the counter meds for kids as well-- as long as you have a prescription from the doctor. We no longer pay for tylenol, benadryl, ibuprofen, multi-vitimins, even A & D ointment is covered as well, and with no co-pay. Many people don't know that Medicaid also pays for these items too, so just thought I'd throw that out there too. We only recently found out and between all three kids with issues and infusions for all three each week, we save about $85 a month just on over the counter stuff. We got a list of the covered OTC meds from our caseworker, and then emailed our immunologist with a list of which ones we use regularly. He mailed me the srcipts-- it was very easy. Good Luck! , mom to: (8) CVID, Asthma, Siezures, Neutropenia? (5) CVID, Asthma, Neutropenia? (2) CVID, Asthma, NeutropeniaOUR STORY: http://foxfamilypidd.bravehost.com/ __________________________________________________________ Share life as it happens with the new Windows Live. http://www.windowslive.com/share.html?ocid=TXT_TAGHM_Wave2_sharelife_012008 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Glad that you have gotten answers to your questions. Cassie Future Director of the Charismatic Carolers www.marykay.com/cassieredinger Quote Link to comment Share on other sites More sharing options...
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