Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 Hi! My name is Betty. I live in Maine, have total IgA deficiency, 2 kids with the same. I also have multiple sclerosis and my son has Aspergers Syndrome. My daughter just got a whole new immunological work-up. In addition to the total IgA deficiency, the doctor said she has significantly low level of B cells and the b cells she has aren't functioning properly. Can anybody help us understand what this means? We are considering a trial course of IV or sub-q IGg for her, even though it isn't normally used in Iga deficiency. Do any of you have low IgA kids who benefitted from IGg treatment? She - and we, her parents - are very nervous about this. The side effects look pretty awful, although it might be worth it if she finally had some healthy periods in her life. Any thoughts or experiences would be appreciated. Thank you all for being there. This group keeps me going through the tough days.....like today, below zero, cold, windy, with 2 sick kids. Thanks! Betty Quote Link to comment Share on other sites More sharing options...
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