Breakthrough Colds/Sinus

[Guest guest]

This morning he was feeling a little warm, no real fever, but very nasty

attitude and still had some pretty thick stuff, so I broke down and

mixed the antibiotic and he started it.

So now that you've read my novel, what is your experience with getting

sick while still on SCIG or IVIG? What can I expect?

,

As I'm sure you know, every child is different--but I will tell you about our

experience. My son had CHRONIC sinus/ear/strep infections. He averaged about

15 rounds of antibiotics yearly--not including Rocephin injections at the Ped's

office.

After his first IVIG, he stopped having ear and strep throat infections. He

has still not had one--after three years. The sinus infetions took much longer.

The first year, he had the most--I think he had three or four sinus infections

that year. He now has one or two!! Of course, he still gets colds. Our Immuno

says that IVIG will not help with colds. However, he doesn't get a sinus

infection automatically after every viral infection while on SubQ. It's been a

miracle to see him get colds that DON'T turn into sinus infections!

IVIG just takes a while to work. Hang in there!!

Sandi, Mom to , age 14--CVID

[Guest guest]

Hi ,

I have three boys, 2 1/2, almost 6 , and 8-- all of them have CVID and get

Vivaglobin SubQ weekly. In our expereince (our oldest has been on IVIG or SubQ

for 6 years), each child has responded differently.

Our oldest has not had a significant infection since beginning treatment 6 years

ago (except when he was trialed off-- then he landed back in the hospital within

two months). He is also the one who has had the most severe side effects--

including aseptic meningitis last March that helped us discover SubQ . . .

Our middle son usually has something serious breakthrough about once a year (he

has low IgA-- we think that is the difference). He appears particularly

vulnerable to trep-- if he gets that it almost always progresses to pneumonia--

even after heavy duty antibiotics. Of the three, when he gets sick it is usually

worse for him, and he is more likely to be hospitalized than the other two. He

also has high IgE, and many allergies to food and antibiotics.

And our youngest, who has been on ivig or subq for a little over a year, still

has chronic sinus issues (his IgA is lower than the other two). He has the most

developmental problems, and is starting to show allergies to antibiotics and

other things . . .

So, I guess that just shows that even in the same family it really is different

for each child. I know that probably doesn't answer your question of what to

expect, but I can say that it is definitely so much better than life without the

treatments! Yes they still have issues, but they are not constantly

hospitalized anymore, and their quality of life is so much improved.

I hope your road is smooth!!

, Mom to 3 wth CVID, all on SubQ

weeklyhttp://foxfamilypidd.bravehost.com/

_________________________________________________________________

Shed those extra pounds with MSN and The Biggest Loser!

http://biggestloser.msn.com/

[Guest guest]

Hi ,

Does Jonah have neutropenia? We have issues with this and one of the

precautions is avoiding rectal temps because there is such a high risk of

infection there if the child is neutropenic. You didn't say how old he was, so

that might not be a factor, but it might be worth asking the doctor to check if

he's neutropenic if he hasn't already.

good luck! , mom to 3 with CVID, on SubQ weekly

http://foxfamilypidd.bravehost.com/

_________________________________________________________________

Climb to the top of the charts! Play the word scramble challenge with star

power.

http://club.live.com/star_shuffle.aspx?icid=starshuffle_wlmailtextlink_jan