searching for answers

[Guest guest]

I want to say thanks for all the responses to my previous post - not good news -

I did meet with the leading CML specialist in my area on Monday - and from that

meeting he did confirm that it was not a normal case of CML - it seems that

although the Gleevac is working to block the Ph+ cells from sending blast into

the bloodstream -CML cells in the marrow are cloning itself quite quickly and

most of the wbc that are left are quite immature and not able to fight the

disease...what was 14% in the marrow back in November has now grown to 50% - so

my case seems to be somewhat aggressive in nature and although didn't present

with a high wbc at dx - I currently have a bleed situation that they are trying

to keep under control...they have not suggested any change in the course of

medication as of yet..however I will be emailing Dr. Lipton today myself in

hopes of getting better answers..I just want to say thank you for all the

support you have given me - there truly is nothing like the kindness of

strangers and you all have been wonderful...I'm not sure if I will get to post

much in the coming days - they are searching the registry for a donor and I was

told that it could take up to 3 months to get ready for a transplant and they

are hoping to do what they can to keep the disease at bay long enough for that

to be done...

Please keep me and my family in your prayers in the hopes that I can be well

enough for the transplant to take place.

Cheryl