Guest guest Posted February 10, 2010 Report Share Posted February 10, 2010 I have no sense of humor when it comes to this money-raising scheme. I lost my hair when I had chemo for ovarian cancer in 1995. I was young, had beautiful long (natural) blonde hair. I lost every bit of it including eyebrows, eyelashes, and all body hair. I had a very difficult time dealing with this emotionally. It was the worst time of my life, a real nightmare. We are fortunate that we do not lose hair to this extent with the cml drugs. I would never do this in a lighthearted way. I find it offensive to those who really suffered from severe chemo side effects. Sorry, if I sound bitter, but it all brings back bad horrible memories. I'm sure there are better ways to raise money. in NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2010 Report Share Posted February 10, 2010 , I am truly sorry for all that you have been through. Have you taken this up with LLS, they are the ones that are sponsoring this fund raiser? a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 11/2009 PCR 0.034 #840 Zavie's Zero Club From: nchando@... <nchando@...> Subject: [ ] anti baldacious Date: Wednesday, February 10, 2010, 9:26 AM Â I have no sense of humor when it comes to this money-raising scheme. I lost my hair when I had chemo for ovarian cancer in 1995. I was young, had beautiful long (natural) blonde hair. I lost every bit of it including eyebrows, eyelashes, and all body hair. I had a very difficult time dealing with this emotionally. It was the worst time of my life, a real nightmare. We are fortunate that we do not lose hair to this extent with the cml drugs. I would never do this in a lighthearted way. I find it offensive to those who really suffered from severe chemo side effects. Sorry, if I sound bitter, but it all brings back bad horrible memories. I'm sure there are better ways to raise money. in NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2010 Report Share Posted February 10, 2010 Everyone's journey is different and you have a right to your feelings, no matter what they are. This campaign was started by a person who did lose her hair to chemo. She has been in remission for 3 years, but when she was going through chemo she decided to lose her hair on her terms so she had a party , during which she shaved her hair and also a number of her friends who joined her in solidarity. They raised 20,000 dollars . The idea is to show love and solidarity to those who do have to lose their hair. I've sweated and cramped my way  through two half marathons with my low oxygen delivery system because of my low hemoglobin (just dropped again to 9.7)  and shaving my head is alot less taxing for me, but still a way to continue to raise money for the LLS.  I don't think you sound bitter at all. You are expresing your opinion and your honest  feelings about your experience. You are brave and are standing up for yourself!!! You are correct there are many many ways of raising money, but I admit life gets in the way and my fundraising thoughts fall off the radar. I lost most of my body hair the first year either due to anemia or gleevec, I've lost my skin  color, ( a waiter asked me yesterday  if I had some African American mixed in and I told him not mixed - straight no chaser -both my parents are/ were black) and my hair continues to thin. I've gotten used to not even recognizing the person in the mirror ( periorbital edema, weight gain etc). So i do understand how the side effects can mess with our minds and even our self esteem.  I've been thinking of cutting my hair shorter and dying my hair platinum or purple ( dyeing is another choice) for the fundraiser. Some people have asked how much for me not to shave it. The last thing I want to do is offend anyone.  I just want to raise some money every year as my pay back to the LLS. The hair thing requires much left effort . Tonight, I will be working a bone marrow drive at a college basketball game. In two weeks we will sponsor a bone marrow drive at my job. Hopefully, you know that my heart and the heart of everyone who participates is in the right place. I think most people feel that losing hair for a good cause is a small sacrifice, if they can contribute to saving someone's life. Having two kinds of cancer in one lifetime  is unbeliveable. You are a true survivor. Thank you for sharing your story. ________________________________ From: " nchando@... " <nchando@...> Sent: Wed, February 10, 2010 6:26:06 AM Subject: [ ] anti baldacious  I have no sense of humor when it comes to this money-raising scheme. I lost my hair when I had chemo for ovarian cancer in 1995. I was young, had beautiful long (natural) blonde hair. I lost every bit of it including eyebrows, eyelashes, and all body hair. I had a very difficult time dealing with this emotionally. It was the worst time of my life, a real nightmare. We are fortunate that we do not lose hair to this extent with the cml drugs. I would never do this in a lighthearted way. I find it offensive to those who really suffered from severe chemo side effects. Sorry, if I sound bitter, but it all brings back bad horrible memories. I'm sure there are better ways to raise money. in NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2010 Report Share Posted February 11, 2010 > > > > Everyone's journey is different and you have a right to your feelings, no matter what they are. This campaign was started by a person who did lose her hair to chemo. She has been in remission for 3 years, but when she was going through chemo she decided to lose her hair on her terms so she had a party , during which she shaved her hair and also a number of her friends who joined her in solidarity. They raised 20,000 dollars . The idea is to show love and solidarity to those who do have to lose their hair. I've sweated and cramped my way  through two half marathons with my low oxygen delivery system because of my low hemoglobin (just dropped again to 9.7)  and shaving my head is alot less taxing for me, but still a way to continue to raise money for the LLS.  _________________________________ I agree with you China, that many people have family or friends that shave off their hair in support of their chemo hair loss, and they see it as a postive thing....the cancer patient is not isolated and alone in this but has the support of others. And then they have the option of wearing wild hats (I had what I called my 'cancer hat' when I had pretty significant interferon thinning....and I never wear a hat! ended up I did not tolerate the inf. that long, too toxic), or colorful scarves, etc. I think it goes with the saying....when you have lemons, make lemonade. I would support any of you that are willing to shave your locks, draw attention to yourself and use that for the good cause of raising funds for research, etc. I have not read the L & L Soc. information about this yet, but I will take a look at it and I expect that it is not intended to offend anyone....it is for those who feel fine doing this. I hope you brave souls will post some photos of your best bald headed smiles!! C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2010 Report Share Posted February 11, 2010 ... I am headed to transplant soon and will lose my hair to the large amounts of chemo...my son and husband are planning to shave their heads with me in solidarity - my daughter is not willing and that's ok - she has long beautiful brown hair...I didn't think I would find this prospect hard to do, but now that the time is getting closer I think I will be sad to lose my hair - but I guess better that than my life...right now my hair is fast turning grey from the cml and I won't be sad to see that go... Cheryl > > > > > > > > Everyone's journey is different and you have a right to your feelings, no matter what they are. This campaign was started by a person who did lose her hair to chemo. She has been in remission for 3 years, but when she was going through chemo she decided to lose her hair on her terms so she had a party , during which she shaved her hair and also a number of her friends who joined her in solidarity. They raised 20,000 dollars . The idea is to show love and solidarity to those who do have to lose their hair. I've sweated and cramped my way  through two half marathons with my low oxygen delivery system because of my low hemoglobin (just dropped again to 9.7)  and shaving my head is alot less taxing for me, but still a way to continue to raise money for the LLS.  > > _________________________________ > > I agree with you China, that many people have family or friends that shave off their hair in support of their chemo hair loss, and they see it as a postive thing....the cancer patient is not isolated and alone in this but has the support of others. And then they have the option of wearing wild hats (I had what I called my 'cancer hat' when I had pretty significant interferon thinning....and I never wear a hat! ended up I did not tolerate the inf. that long, too toxic), or colorful scarves, etc. > > I think it goes with the saying....when you have lemons, make lemonade. I would support any of you that are willing to shave your locks, draw attention to yourself and use that for the good cause of raising funds for research, etc. I have not read the L & L Soc. information about this yet, but I will take a look at it and I expect that it is not intended to offend anyone....it is for those who feel fine doing this. > > I hope you brave souls will post some photos of your best bald headed smiles!! > > C. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2010 Report Share Posted February 11, 2010 how about a video on You Tube????????????// a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 11/2009 PCR 0.034 #840 Zavie's Zero Club From: hey00nanc <ncogan@...> Subject: Re: [ ] anti baldacious Date: Wednesday, February 10, 2010, 9:44 PM  > > > > Everyone's journey is different and you have a right to your feelings, no matter what they are. This campaign was started by a person who did lose her hair to chemo. She has been in remission for 3 years, but when she was going through chemo she decided to lose her hair on her terms so she had a party , during which she shaved her hair and also a number of her friends who joined her in solidarity. They raised 20,000 dollars . The idea is to show love and solidarity to those who do have to lose their hair. I've sweated and cramped my way  through two half marathons with my low oxygen delivery system because of my low hemoglobin (just dropped again to 9.7)  and shaving my head is alot less taxing for me, but still a way to continue to raise money for the LLS.  ____________ _________ _________ ___ I agree with you China, that many people have family or friends that shave off their hair in support of their chemo hair loss, and they see it as a postive thing....the cancer patient is not isolated and alone in this but has the support of others. And then they have the option of wearing wild hats (I had what I called my 'cancer hat' when I had pretty significant interferon thinning.... and I never wear a hat! ended up I did not tolerate the inf. that long, too toxic), or colorful scarves, etc. I think it goes with the saying....when you have lemons, make lemonade. I would support any of you that are willing to shave your locks, draw attention to yourself and use that for the good cause of raising funds for research, etc. I have not read the L & L Soc. information about this yet, but I will take a look at it and I expect that it is not intended to offend anyone....it is for those who feel fine doing this. I hope you brave souls will post some photos of your best bald headed smiles!! C. Quote Link to comment Share on other sites More sharing options...
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