Re: Breakthrough Colds Sinus Issues Etc LONG

January 18, 2008

Michele wrote:

>

> >

> Anyway, last Friday afternoon he started with a clear runny nose, I was

> heartbroken. The good just can't last.

, it helped me to remember that perfectly healthy kids still

catch colds and infections and occasional sinus infections, etc. So,

even with IgG replacement you are still going to see " sickness " . IgG

isn't going to protect him completely.

With Katy, she was so run down and depleted by the time they finally

started IgG replacement that it took months before we saw positive

results and they were very, very gradual. But after a year, she was

definitely not as sick as before and at 3 years she was probably a

little healthier than her peers! There were things going around the

dorm that she would never catch! That was amazing!

Finally, remember that sinus infections set up damaged tissues and

thickening of the walls that make a person more prone to the next

infection. Pneumonias and lung infections do the same thing to the

lungs -- once you get a pneumonia, your chances of getting a 2nd

pneumonia shoot sky high. Same with sinus infections.

Also, the sinuses have a very limited blood supply - so are more

protected by IgA than by IgG. So, Katy still did 1 or 2 sinus

infections per year while on IgG. But the difference was that they

responded to antibiotics within 1 or 2 rounds -- instead of just lasting

all winter.

Hope that helps. And congratulations on getting him feeling better on a

regular basis. It will take a while before you quit panicking everytime

he gets an infection. My thoughts were exactly like yours -- I knew it

was too good to be true!!!! But, it was true -- it's just not

perfection! We have to wait for Heaven for that!!!!

Best wishes as you deal with the infection and get him feeling better.

Sounds like it was definitely time for antibiotic. God will give you

wisdom to deal with this new stage.

In His service,

dale

January 19, 2008

So is what I am hearing that she is planning just a one month course of SCIg to

boost his system?? I just have not heard of that before.

BARBIE

Breakthrough Colds Sinus Issues Etc LONG

Our son 5yo, is IGA deficient and IGG subclass 2 and 3 deficient.

The

Immunologist also believes that he isn't making a " memory " to most

things when he gets sick. His post vaccinations titers responded

borderline to tetanus and pneumonia, but she feels pretty strongly that

his constant sickness and inability to get over anything w/out several

rounds of antibiotics mean he's only responding selectively. I'm not

sure if she can prove this but she's said her goal is to get him better

and not turn him into a pin cushion because no matter what she labels

him as the treatment is the same. So she's put him on IVIG/SCIG, it's

been a month, first the IV then switching to SC the last three Fridays;

today will be our 4th SCIG.

has had runny noses, crusty nose, mild cough, and red lips for

the last 2-3 years. I can't remember the last time his nose wasn't

running, it's just the levels of how bad or how much drainage to the

throat, etc. After his IVIG just before Christmas, the runny nose was

gone, the cough gone, the red lips from sore and licking gone. Amazing,

unbelievable, we were shocked and totally hopeful this would change our

lives. has been on antibiotics at times 3 months straight for

infections and that doesn't count his prophylactic one. After meeting

with the Immunologist last Tuesday her plan now is that if things go

well she start working to take him off some of his meds...our overall

goal.

Anyway, last Friday afternoon he started with a clear runny nose, I was

heartbroken. The good just can't last. It went to lots or runny and

nose blowing all weekend. Monday it turned thick and the cough started.

So as Tuesday was worse I called the Immunologist, increased inhalers,

sinus spray, and added antibiotic so he doesn't go to fever and more

serious infection. But then till I got it filled, the runny nose was

running less and the cough started subsiding with the inhalers. So we

waited on the antibiotic thinking he may handle this one on his own. Dr

called yesterday to see how he was doing and I told her we waited on the

antibiotic, she was OK with that, but wanted us to start it if things

got worse or didn't clear.

This morning he was feeling a little warm, no real fever, but very nasty

attitude and still had some pretty thick stuff, so I broke down and

mixed the antibiotic and he started it.

So now that you've read my novel, what is your experience with getting

sick while still on SCIG or IVIG? What can I expect? I don't want to

be too hopeful, but also don't want to give antibiotics all the time

either. Any words of wisdom?

Thanks,

Michele w/2 in PA

<!--

#ygrp-mkp{

border:1px solid #d8d8d8;font-family:Arial;margin:14px 0px;padding:0px 14px;}

#ygrp-mkp hr{

border:1px solid #d8d8d8;}

#ygrp-mkp #hd{

color:#628c2a;font-size:85%;font-weight:bold;line-height:122%;margin:10px 0px;}

#ygrp-mkp #ads{

margin-bottom:10px;}

#ygrp-mkp .ad{

padding:0 0;}

#ygrp-mkp .ad a{

color:#0000ff;text-decoration:none;}

-->

<!--

#ygrp-sponsor #ygrp-lc{

font-family:Arial;}

#ygrp-sponsor #ygrp-lc #hd{

margin:10px 0px;font-weight:bold;font-size:78%;line-height:122%;}

#ygrp-sponsor #ygrp-lc .ad{

margin-bottom:10px;padding:0 0;}

-->

<!--

#ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean, sans-serif;}

#ygrp-mlmsg table {font-size:inherit;font:100%;}

#ygrp-mlmsg select, input, textarea {font:99% arial, helvetica, clean,

sans-serif;}

#ygrp-mlmsg pre, code {font:115% monospace;}

#ygrp-mlmsg * {line-height:1.22em;}

#ygrp-text{

font-family:Georgia;

}

#ygrp-text p{

margin:0 0 1em 0;}

#ygrp-tpmsgs{

font-family:Arial;

clear:both;}

#ygrp-vitnav{

padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}

#ygrp-vitnav a{

padding:0 1px;}

#ygrp-actbar{

clear:both;margin:25px 0;white-space:nowrap;color:#666;text-align:right;}

#ygrp-actbar .left{

float:left;white-space:nowrap;}

..bld{font-weight:bold;}

#ygrp-grft{

font-family:Verdana;font-size:77%;padding:15px 0;}

#ygrp-ft{

font-family:verdana;font-size:77%;border-top:1px solid #666;

padding:5px 0;

}

#ygrp-mlmsg #logo{

padding-bottom:10px;}

#ygrp-vital{

background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;}

#ygrp-vital #vithd{

font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:upp\

ercase;}

#ygrp-vital ul{

padding:0;margin:2px 0;}

#ygrp-vital ul li{

list-style-type:none;clear:both;border:1px solid #e0ecee;

}

#ygrp-vital ul li .ct{

font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-ri\

ght:.5em;}

#ygrp-vital ul li .cat{

font-weight:bold;}

#ygrp-vital a{

text-decoration:none;}

#ygrp-vital a:hover{

text-decoration:underline;}

#ygrp-sponsor #hd{

color:#999;font-size:77%;}

#ygrp-sponsor #ov{

padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}

#ygrp-sponsor #ov ul{

padding:0 0 0 8px;margin:0;}

#ygrp-sponsor #ov li{

list-style-type:square;padding:6px 0;font-size:77%;}

#ygrp-sponsor #ov li a{

text-decoration:none;font-size:130%;}

#ygrp-sponsor #nc{

background-color:#eee;margin-bottom:20px;padding:0 8px;}

#ygrp-sponsor .ad{

padding:8px 0;}

#ygrp-sponsor .ad #hd1{

font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%\

;}

#ygrp-sponsor .ad a{

text-decoration:none;}

#ygrp-sponsor .ad a:hover{

text-decoration:underline;}

#ygrp-sponsor .ad p{

margin:0;}

o{font-size:0;}

..MsoNormal{

margin:0 0 0 0;}

#ygrp-text tt{

font-size:120%;}

blockquote{margin:0 0 0 4px;}

..replbq{margin:4;}

-->

________________________________________________________________________________\

____

Never miss a thing. Make your home page.

http://www./r/hs

January 19, 2008

Barbie,

No he'll continue the SCIG, and as he gets better, she work at stopping

the other meds. We do 2 inhalers, zertec, nasal spray, prevacid and

singular. It's costing a small fortune even with insurance, but he's

got attention issues and I'm working to eliminate food additives and

anything unnecessary. So I'm glad to see any meds possible go...

By the way has found he likes the inside thigh. He still cries

and is jumpy, but I think it will take a few times not hurting after how

bad the first two were. So we're doing much better.

Re: Breakthrough Colds Sinus Issues Etc LONG

So is what I am hearing that she is planning just a one month course of

SCIg to boost his system?? I just have not heard of that before.

BARBIE

Breakthrough Colds Sinus Issues Etc LONG

Our son 5yo, is IGA deficient and IGG subclass 2 and 3

deficient. The