Shortness of breath

[Guest guest]

Jackie

One possible (perhaps others) reason for shortness of breath.

In CFS, your lymph (immune messengers) juice does not circulate

properly. Your lymph channel runs from behind your belly button , up

your chest, under your left breast, up over your left shoulder.

In CFS a blockage can occur in two places.

First, on your left shoulder where your neck attaches....some people are

sore here, and others have lumps here, of varying sizes....I saw the

pictures in Cheney's office. The lumps can be the size of a small

orange.

Second, it can occur around the left breast, but feels like the middle

of the breast bone. Mine was here. I was short of breath, it hurt sort

of to breath, it was such an effort to breath. It felt like my lungs

hurt.

Perhaps other places in the channel but I don't believe so.

The only remedy is water hydrotherapy. If anybody wants to know what

this is please make a post. I did not try this because I don't have

access to a swimming pool. Also, if you quit doing it, you go back to

where you were before you started.

Laurion

[Guest guest]

In a message dated 6/21/00 2:43:20 PM Central Daylight Time,

french10@... writes:

<< as anyone experienced this as part of CFS? What I'm having is not

quite shortness, but I feel like I'm not getting good breath. It's

hard to explain. I don't have pain down my arm or heaviness on my

chest, so I'm assuming it's not heart related. I just feel like my

breath isn't coming right. I'm wondering if a rebreather mask,

hyperbaric chamber, Hale's breathing exercises, or simply deep

breaths

would help.

Jackie >>

Sleep apnea ????

Jim F Don F

[Guest guest]

..this sounds alot like LE check ,y site maybe.

I have it and i also have very short breath

Jim F

<A HREF= " http://members.aol.com/gfrcatfsh/ " >LYMPHEDEMA LINKS/FREE GAME SITES<

/A>

http://members.aol.com/gfrcatfsh/

[Guest guest]

This feeling is called " dyspnea " , and is very common with CFS.

I found that taking Co-Q10 decreased this symptom for me.

The other thing that always helps me is to do deep yogic breathing,

making sure that your exhalations are longer than your inhalations. I

like to use a count of in 4 - hold 4 - out 8. Other people like 4-8-8,

but I can't hold my breath that long.

Another trick I learned from an Ananda yoga teacher is called " double

breathing " - your inhalation (through the nose) is a short, sharp sniff

followed by a long, slow sniff, until you can't inhale any more. Then

you exhale with the same pattern (through your mouth, saying " ha " ):

short, sharp " ha " followed by a long, sighing " ha " until you can't

exhale any more. This is the fastest way I know of to cut short the

feeling of breathlessness, don't ask me why it works! ;@)

--

el - andrea@...

(IFF " FNORD " appears - remove it from my email address to reply)

" ...wake now! Discover that you are the song that the morning brings... "

[Guest guest]

" Shortness of Breath

In CFS, your lymph (immune messengers) juice does not circulate

properly. Your lymph channel runs from behind your belly button , up

your chest, under your left breast, up over your left shoulder.

In CFS a blockage can occur in two places. First, on your left shoulder

where your neck attaches....some people are sore here, and others have

lumps here,. . . Second, it can occur around the left breast, but feels

like the middle of the breast bone. Mine was here.

Laurion "

Dear Laurion,

Where can I get more info. on this ? Thanks much.

[Guest guest]

on 6/21/00 1:55 PM, Jackie Naiditch at french10@... wrote:

> Has anyone experienced this as part of CFS? What I'm having is not

> quite shortness, but I feel like I'm not getting good breath. It's

> hard to explain. I don't have pain down my arm or heaviness on my

> chest, so I'm assuming it's not heart related. I just feel like my

> breath isn't coming right. I'm wondering if a rebreather mask,

> hyperbaric chamber, Hale's breathing exercises, or simply deep

> breaths

> would help.

Hi again Jackie,

I forgot to mention that what's finally working to alleviate the shortness

of breath/dyspnea is, indeed, O2 therapy through a partial rebreather mask

(a la Cheney), which requires a flow rate of about 8-10 Litres/min. I've

been doing it daily for almost a week now, for about 40 minutes each day.

In fact, I'm doing it right now! That's right, folks, coming to you LIVE

from partial rebreathersville, clocking in at 8 litres/min.

It most *definitely* helps to alleviate the shortness of breath sensation.

Now that I don't feel that way all the time, I'm becoming really aware of

just how often I *was* feeling that way -- and how uncomfortable it is. But

like anything else unpleasant and chronic: one simply learns to ignore it

to a great extent.

Other benefits I've noticed are: less muscular weakness, better feeling in

my head (like there's no cement in there), lighter sensation about the body,

brighter mood.

Take care,

Hud

--

[Guest guest]

Dear Laurion,

Interesting, this is the first time someone mentioned left breastbone.

That's how my whole mess started, with a shart pain, like a caught gas

bubble towards the middle slightly left of my chest, then a few weeks later

the CFS symptoms developed, that was last Sept. when I had a relapse in

April it started once again with that pain and although it was never as bad

as those two times it comes and goes, also the exhaustion which i feel more

in my left arm and shoulder than in the right one. Is that what you mean?

What does one do to ease it?

Judy B.

Re: shortness of breath

> " Shortness of Breath

> In CFS, your lymph (immune messengers) juice does not circulate

> properly. Your lymph channel runs from behind your belly button , up

> your chest, under your left breast, up over your left shoulder.

> In CFS a blockage can occur in two places. First, on your left shoulder

> where your neck attaches....some people are sore here, and others have

> lumps here,. . . Second, it can occur around the left breast, but feels

> like the middle of the breast bone. Mine was here.

> Laurion "

>

> Dear Laurion,

> Where can I get more info. on this ? Thanks much.

>

>

> ------------------------------------------------------------------------

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> ------------------------------------------------------------------------

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

[Guest guest]

A couple of more comments on improving lymph

circulation:

-Acupressure massage is very helpful for this. You

can also use a loofah and scrub up your arms and legs

toward your heart to stimulate circulation.

-It may sound silly, but I had a couple of seaweed

wrap treatments at day spas last year that are said to

improve lymphatics. I felt great for a few days after

each treatment - wish I could afford to do more often!

Jennie

--- ftrpsyd@... wrote:

> " Shortness of Breath

> In CFS, your lymph (immune messengers) juice does

> not circulate

> properly. Your lymph channel runs from behind your

> belly button , up

> your chest, under your left breast, up over your

> left shoulder.

> In CFS a blockage can occur in two places. First, on

> your left shoulder

> where your neck attaches....some people are sore

> here, and others have

> lumps here,. . . Second, it can occur around the

> left breast, but feels

> like the middle of the breast bone. Mine was here.

> Laurion "

>

> Dear Laurion,

> Where can I get more info. on this ? Thanks much.

>

>

__________________________________________________

[Guest guest]

Jackie,

It's usually caused by alkalosis of the blood. I would keep up the

breathing exercises. I hear it can take a couple months before the benefits

become noticeable. The whey protein products help reduce the alkalosis.

Steve B.

Shortness of Breath

> I've been having a lot of this symptom lately--feeling like I'm not

> getting enough oxygen. I use the breathing technique taught by Dr.

> Cheney

> (inhale 4, hold 7, exhale 8), but so far that hasn't helped. Any other

> ideas for help? Also, for those of you who've had this problem, does

> it

> come and go? I actually wake up with it.

>

> Jackie

>

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

[Guest guest]

Potassium Chloride is supposed to help, but you need a prescription. Some

people said they took salt substitute as that has it, but there were some

warnings that it can be dangerous to take too much.

I tend to get it at night. It is much better since I've been doing the

heparin.

Cindi

french10@...

03/12/01 04:19 PM

Please respond to

cc:

Subject: Shortness of Breath

I've been having a lot of this symptom lately--feeling like I'm not

getting enough oxygen. I use the breathing technique taught by Dr.

Cheney

(inhale 4, hold 7, exhale 8), but so far that hasn't helped. Any other

ideas for help? Also, for those of you who've had this problem, does

it

come and go? I actually wake up with it.

Jackie

[Guest guest]

Jackie, I have had it. Archive search would bring up others. Mine went

away with breathing technique you mention. It comes back when I am

particularly stressed and/or tired. I didn't start having it as a symptom

until I started the undenatured wheys. Now it is around when I take

Transfer Factor (one day a week bc it makes me feel real bad). Maybe some

indications as to what causes it but not sure.

> I've been having a lot of this symptom lately--feeling like I'm not

> getting enough oxygen. I use the breathing technique taught by Dr.

> Cheney

> (inhale 4, hold 7, exhale 8), but so far that hasn't helped. Any other

> ideas for help? Also, for those of you who've had this problem, does

> it

> come and go? I actually wake up with it.

>

> Jackie

[Guest guest]

Hi Bev - it will be interesting to hear what Dr A says about the shortness

of breath - you are right to be concerned it needs to be checked out.

You ask about others experience - in the past I have noticed that I

can feel short of breath when my pulse or temperature are higher than usual

, for example when I am low on iron and when in a flare . Do you keep track

of your pulse rate and temperature ? I find it very useful especially when

making any changes in medications etc. Hope you get some answers from Dr

A .

Barbara

Bryarwoode@... wrote:

Hi All,

Since

I started taking Nystain and Sporonox I have had symptoms I never had

before,

specifically the shin splint like pain, terrible weakness in the

knees,

various aches and pains which are very minor in the shoulders, ankles,

etc.

that come and go. But the one that bothers me most is the shortness

of

breath

which seems to be with me more and more. At first I'd have

it when I

got

up, then it was during the morning, and now it seems to be with me more

often.

It saps what little energy and motivation I have and it's hard to

cope

with daily life when you are constantly worried about it.

I am

going to phone Dr. A today but thought I'd see how others deal with this

also.

I have

minor stiffness in my feet and wrists but no pain like most of you

folk

talk about. My major beef is fatigue. I have energy

but can't access

it and

now the shortness of breath. I woke up during the night and

my hand

was

numb but I shook it and it was okay in a few seconds.

My neck

is really stiff, and that would be the most problematic area for

me

I think.

Right now I'm sitting typing and I can rotate my ankle both ways

and

no problems there.

How

to deal with the shortness of breath is an issue and the fatigue and lack

of motivation.

I should go up and change the beds and do laundry today but

it is

hard to focus on it right now. I find I choose my chores carefully

to

conserve

energy.

Any

advice welcome. :>)

Bev

To unsubscribe, email: rheumatic-unsubscribeegroups

[Guest guest]

In a message dated 13/05/01 16:44:38 GMT Daylight Time,

lschroe3@... writes:

> I can breathe....it is just as the day wears on, my breath does not seem to

> " satisfy " me and I need to keep yawning and draw in more air till finely

> something " gives " and I get a decent deep breath. I also have lots of

> heavy, thick phelgm. It is usually whitish in color but has been

> yellow/greenish at times. It is constant and quite embarrassing.

>

Hi ,

These are all interesting articles,

(as my last post confirms).

Strange that a 'lot' of us seem to

be experiencing these symptoms

all at the same time !!

Mike (from the UK)

[Guest guest]

Hi ,

... I can breathe....it is just as the day wears on, my breath does not

seem to " satisfy " me and I need to keep yawning and draw in more air till

finely something " gives " and I get a decent deep breath. I also have lots

of heavy, thick phelgm ...

Your symptoms of yawning and a physical sense of need for more air may

indicate that your body is not getting enough oxygen. Has anything happened

that may have caused you to be anemic? Unfortunately getting enough oxygen

is not just a matter of having enough air to breathe and the ability to

breathe it in. We also need the ability to absorb it into our bloodstream

so that it can be carried to all the cells that need it to live. That's

what is known in medicine as " internal respiration " . Iron is the ingredient

in our diet that we need to make this possible and if we are lacking enough

of it we experience, along with fatigue and a general ill feeling, the

symptoms you describe.

It's possible that you are getting enough of it in your diet, but other

factors are not allowing you to absorb it - one of these factors might be

the medications you are on. If that is the case you might need a supplement.

I think it's worth a shot - along with that visit to the doctor you have

planned.

As for the phlegm, especially your very graphic description of it's nature!,

that sounds like you may have some sort of infection. I would suggest that

you see the doctor asap. With the meds that are typical for PA, infections

can be a serious complication, so don't delay, ok?

I hope this helps - and that you are feeling a bit better today.

[Guest guest]

If you are on MTX there is an article on the internet, that says this is a

very serious side effect and should be checked out at once. I'm sorry that

I don't have the address, but it came up when I searched for PA. Please

check it out. Mitch

[Guest guest]

In a message dated 05/15/2001 6:56:58 AM Eastern Daylight Time,

heather.watson@... writes:

<< your body is not getting enough oxygen. >>

Do you feel rested on waking? If you feel you don't get enough O2 while

sleeping, asking your primary to check for sleep apnea may not be a bad idea.

[Guest guest]

Hi

Yes I am one that suffers from shortness of breath I do have a heart problem

also I get asthma but on going to the Spec the rummy I have found out vioxx can

cause shortness

of breath if that drug can could be some drug your on. Just a thought.

God Bless

Beverley in Australia.

[Guest guest]

When i wake up in the morning i get the shortness of

breath, like i just ran a mile at top speed and all i

did was walk to the bathroom. My reumy says it is

asociated with the inflamation around the lungs. It

has to due with the muscles that are connected to

inflamed areas around the lungs. Just another one of

those IT STINKS things.

Dave Z

[Guest guest]

Tim - for me this was a symptom of adrenal fatigue and

mitral valve prolapse. I take metoprolol 50 mg daily,

CoQ10 200 mg daily, and Cortef 10 mg daily, and I no

longer have the problem. This can also be indicative

of anxiety or panic disorder - klonopin can help this

(I also take .5 mg of this per day).

Good luck - Jennie Floyd

Message: 10

Date: Fri, 26 Apr 2002 12:44:18 -0400

From: candtcampbell@...

Subject: shortness of breath/suffocation

Does anybody else feel shortness of breath to the

point of feeling as

if

you are suffocating? If so, is there a treatment for

that symptom that

you have found helpful?

Tim

=====

Creativity is God's gift to you. What you do with it is your

gift to God. - Bob Moawad

__________________________________________________

[Guest guest]

,

I also had the Harrington rods put in, but my surgery was in 1978. I have

lots of symptoms now and one of those is shortness of breath. I am 37 and have

not worked since 2000. I am in the process of applying for disability so cross

your fingers for me. It is going to be alot of hard struggles trying to get

disability, but I am going to fight the battle. I have a S curve and am fused

from about T3 to L5. My spine is now curving above and below my fusion. My disc

are severly degenerated. I have constant pain in my neck and waist area. My

legs and arms are weak. I sometimes have pain in the whole spinal area. I feel

like I am just a mess. I could go on and on but I am sure everyone else here

knows the symptoms. Well, I hope I helped.

Thanks,

Sherry

[Guest guest]

In a message dated 6/10/2003 9:48:05 PM Eastern Daylight Time,

lschroe3@... writes:

> The last message I posted to this list was asking for anyone and all to

> please tell me if they had this problem and what they and their doctors were

> doing about it. I got zero response. I am praying that this is not the case

> now. I would like to take all the messages to my pulmonary doctor and say

> LOOK....it is not just my weird problem.

>

> Please, please, please write me if you have this problem!

The same think happened to me when I posted this question about two months

ago. Nobody answered my question so I figured it was just me. I also feel like

I cannot take a deep enough breathand it comes and goes. It is funny that it

started when I started the Enbrel. MY allergist tested me today and said my

numbers are ok but I know how I feel. When I asked the rheumy about it he

said he had not heard of this. So far there are a few of us now.

Janet

[Guest guest]

In a message dated 6/10/2003 9:48:05 PM Eastern Daylight Time,

lschroe3@... writes:

> Please, please, please write me if you have this problem! in

> Poulsbo, WA

I forgot to ask you if you are still on the Enbrel?

Janet

[Guest guest]

,

Wow - I am sorry to hear about what you have been thru. I have asthma, so I

do know how scary it feels to be drowning in your own body. I cannot take

Enbrel due to an untreated positive TB test (my dad had TB when I was 5 - that

long ago they did not treat children - especially " as they said " sickly ones) so

I cannot take any of the new meds. So far MTX works. I have an aunt on

Remicade, and had tried everything money can buy, she has terrible lung

capacity,

but the Dr's say she is ok=just like you, but she is a very heavy smoker.

Don't know if this helps,

Take Care,

Carol M.

[Guest guest]

You are not alone.

I am fairly new to the site.

Never formerly introduced myself.

I'm . I have had psoriatic arthritis for 2 years identified and

psoriasis since I was 10 years old, am now 38.

I have just been diagnosed with asthma. I was having the same problems you

described. My blood pressure has been going higher, my pain meds aren't

working as well, I'm off mthx because it stopped working, and I'm waiting on

insurance approval to begin Enbril. I am having problems with blood

sugar...they

can't identify it as diabetes....it does run in the family, but I have had

hypoglycemia before and am having the same symptoms now. This hypoglycemia just

started 3 days ago...was at the dr. yesterday and almost passed out...took one

of

my Mom's sugar pills for diabetes and in about 25 minutes felt better.

Back to the shortness of breath....when we are in pain....and that happens no

matter what medicine we're on to control the over all problem of PA, our

blood pressure gets higher, therefore you can become dizzy, slightly disoriented

and sick to your stomach as well as short of breath.

The difference I found between what my Dr. told me was " high blood pressure

shortness of breath " and the " heavy weight sitting on my chest shortness of

breath " were the same.

Turns out as they reduced my prednisone dosage the asthma I had, which I

didn't know I had, because of the prednisone, is now present and in full force.

I am currently on two inhalers. Was just diagnosed with asthma 3weeks ago.

It's been a struggle having an active three year old and an active 9 year

old....I am a professional opera singer as well.

Sorry for the long e-mail.

I hate it when I miss an e-mail in our group that I wanted to respond to.

Would like to talk more about this if it would help you.

I know all of your comments from the group etc.... sure help me get through

the day.

[Guest guest]

Mu surgeon told me that severe scoliosis happens after 70 degrees. But,

I'm well aware that the pain come long before that!

Are you sure it is 35 degrees? It seems that the curve wouldn't be

sqeezing your lungs yet. I care, we care. Keep writing.

--

Lana

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