Re: Small tonsils and PID?

[Guest guest]

My son had massive infections in his ears and sinuses and adenoids before he was

2 but had very few enlarged lymph nodes and almost nonexistent tonsils. It

basically shows that the body is not able to adequately protect itself by doing

what it would normally do by trapping infection in the nodes or tonsils. A

normal immune system would enlarge the tonsils and be overflowing with a major

response of WBC and inflammation in the tissue. Sadly some untrained doctors

think " Well he does not look sick " because the normal response of oozing cells

and inflammation is not necessarily their. The sinsus would be full because it

has to go somewhere when in gets infected but usually the second line of defense

before it gets into the blood is the body trying to capture it in the lymph

system. ( a very simplified version of what happens_)

BARBIE

Small tonsils and PID?

We went for a second opinion today to a new immuno on the

recommendation of the boys' Mito dr. The immuno asked if my older son

had ever had his tonsils out and I told her no. She then wanted to

know if my younger son had them out with his adenoids...again, no.

She then commented on how small the boys' tonsils were and thought

they may have had them out. She turned to the resident and made a

point to ask him to make sure he got that info down because small or

nonexistant tonsils are " significant " with PID. Does anyone have any

information about this they can share? Why is this finding

significant? Thaks in advance for any information you can share.

Melody, mom to 5 yr old and almost 3 yr old , both with

Mito cytopathy and a ton of other stuff...and little man #3 coming in

7 days or less!

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[Guest guest]

Hi ...

Just wanted to chime in . My 2 boys both have minimal to nonexistant tonsils.

is 10, has major sinus issues, along with hypoplastic sinus, and his PIDD

(hypogamm, antibody deficiency, and neutropenia.) He did have his adenoids out

at 18months, which were quite big, but through all of this his tonsils are still

quite small. Max who is 19months, just had his adenoids out Monday (they were

3+) and his 1st sinus surgery (he has bilateral hypoplastic sinus). He too has

minimal tonsils. He is still in the diagnosing phase for a PIDD, his 1st round

of testing showed T Cell dysfunction and he didn't respond to his vaccines.

Good luck!

Missy

www.caringbridge.org/boggiokids

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[Guest guest]

When my son was in the " searching for a diagnosis " stage, one of the

first things our immunologist noted was his small tonsils. The way

I understood the doctor, the tonsils help to make up the immune

system (something like the thymus makes T-cells) and the fact that

they were so small was indicative of a problem with his immune

system. The fact that he had any tonsils at all helped our immuno

rule out SCID, where apprently there are no tonsils at all. Mark has

had different consults over the years, and they all comment on

his " tiny tonsils " (yes, thank you, I know he does, please do not

contribute to the knot in my stomach). There are some parents on

here who have a lot more in-depth medical knowledge than me, and I'm

sure they will chime in with the specifics!

Hope this helps,

, mom to Mark, CVID, 6

>

> We went for a second opinion today to a new immuno on the

> recommendation of the boys' Mito dr. The immuno asked if my older

son

> had ever had his tonsils out and I told her no. She then wanted to

> know if my younger son had them out with his adenoids...again, no.

> She then commented on how small the boys' tonsils were and thought

> they may have had them out. She turned to the resident and made a

> point to ask him to make sure he got that info down because small

or

> nonexistant tonsils are " significant " with PID. Does anyone have

any

> information about this they can share? Why is this finding

> significant? Thaks in advance for any information you can share.

>

>

> Melody, mom to 5 yr old and almost 3 yr old , both

with

> Mito cytopathy and a ton of other stuff...and little man #3 coming

in

> 7 days or less!

>