Guest guest Posted February 8, 2010 Report Share Posted February 8, 2010 Hi , Best wishes for a safe delivery and a lovely healthy baby. Regards, From: [mailto: ] On Behalf Of d'Araille Sent: Monday, 8 February 2010 11:00 PM Subject: [ ] Enough of CML for the moment at least Japan is not really a representative country to mention due to Hiroshima and Nagasaki. I found an article about connection between radiation and CML occurrence: http://www.journalarchive.jst.go.jp/jnlpdf.php?cdjournal=jrr1960 <http://www.journalarchive.jst.go.jp/jnlpdf.php?cdjournal=jrr1960 & cdvol=32 & noiss\ ue=SUPPLEMENT2 & startpage=14 & lang=en & from=jnlabstract> & cdvol=32 & noissue=SUPPLEMENT2 & startpage=14 & lang=en & from=jnlabstract and an extract from article about CML: The Philadelphia chromosome is an acquired mutation — that is, a person is not born with it and it is not passed on to their children. Exactly why the Philadelphia chromosome forms is unknown in most cases, although exposure to ionizing radiations (such as during the atomic bomb explosions in Japan) has been shown to cause CML. full article here: http://www.apjohncancerinstitute.org/cancer/chronicmye.htm Apart from that what counts is the quantity of EGCG available in green tea one drinks. That's not easily quantifiable as each green tea leaves will have a different amount of this substance available depending on country, region, season, type of tea tree harvested. We don't know how much green tea exactly is consumed in any particular country or by any particular person or the strength of the brew. It's really a guestimation and until there is a solid study done on that we can't say a thing. I can only speak for myself and my case and it looks like I drink enough. In my case drinking green tea lowered WBC count to a normal level and saved my baby from premature birth. I'm yet to have pcr test done to see if EGCG worked on deeper level than just wiping leukemic cells. I'm not claiming anything else apart from what already happened to me and it's all relevant to any young woman who was diagnosed with CML in her 20-ies or 30-ies like myself, especially if diagnosis came with the blood test done during pregnancy. As to statistics that has to be backed up with official figures and carefully analyzed for all possible causes as to why something happens in one part of the World and not the other. I'm not even going there. That's like a science in itself and the results can be open for interpretation and manipulation. I'm just few days away from my due date for a natural birth I never though I would have and I'm going to focus on this entirely. I'm simply nesting and CML does not come into this space. I'll post after the baby arrives. From: Willoughby Sent: Saturday, January 30, 2010 12:25 PM <mailto:%40> Subject: Re: [ ] Re: Apricot kernels While green tea is said to be full of antioxidants, and so may, if that theory is right, be beneficial in improving one's chances of developing any cancer in the first place, there is no evidence that it has any beneficial effect once CML has appeared. The Japanese consume more green tea than any other nation - and their incidence of CML is 5 in 100000. That's actually a little higher than the UK, where it is between 1 and 2. In fact, the overall cancer rate in Japan is a little higher than it is in the UK, which suggests green tea isn't particularly good at cancer prevention either. Of course, other factors are involved too. I like green tea but I would not risk my life just drinking that rather than taking Glivec/Gleevec, which reduced my PCR ratio from 83% to nil in less than 6 months. If anything is a wonder drug, Gleevec is. And, I expect, son, daughter and " other relatives " of Gleevec will also prove to be, Gleevec having led the way. They have revolutionised CML treatment worldwide, and are specifically directed at the mechanism by which CML develops and progresses. Good luck with your pregnancy and dealing with CML but I would second everything Zavie and others have had - see a CML specialist: they really do know their stuff and will give you the best advice. ________________________________ From: Zavie <zmiller@... <mailto:zmiller%40sympatico.ca> > <mailto:%40> Sent: Fri, January 29, 2010 4:37:14 AM Subject: RE: [ ] Re: Apricot kernels Hi Tracey, If green tea, apricot kernals, or any substance was a cure for CML, the doctors (Dr. Druker, Dr. Talpaz, Dr. Goldman, etc) would be the first to embrace it. They are in the business of finding a cure for cancer. It is pure propaganda by those trying to promote their own remedy without any independent studies. I recall that Dr. Talpaz was the man who pioneered the use of Interferon Alpha for CML. Once Gleevec was shown to be a much better and safer drug for the treatment of CML, he immediately switched to prescribing Gleevec to his patients. If anyone would show him that green tea, apricot kernals or snake oil cured CML he would be the first to embrace it and switch his patients to it. I never see any scientific data they these compounds actually work. Zavie Zavie (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem Tel in FL: 561-429-5507 _____ From: groups (DOT) com [mailto:groups (DOT) com] On Behalf Of traceyincanada Sent: January-28-10 9:58 PM groups (DOT) com Subject: [ ] Re: Apricot kernels I've never heard of it and don't think the explanation for the " cover up " sounds logical at all. Governments are fed up with paying for expensive, over priced drugs, to the point where some are refusing coverage completely. We see this in the UK with Tasigna and Sprycel. Incidentally, I've never seen any government advertise or promote any drug. What possible gain would a government have to promote drugs that are bankrupting them? Tracey > > Has anyone heard of apricot kernels as being a cure? > > I've read that doctors swear on them, but they won't publish something so > simple because of government red tape - the government(s) spends billions of > dollars every year promoting expensive and hard drugs, it would be > embarrassing for such a simple thing to be a cure. > > > > Jackie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2010 Report Share Posted February 8, 2010 Hi anna, good idea, no thinking of CML, just concentrate on that wonderful baby you are carrying. Good luck and send us a picture when that baby gets here...Bobby a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 11/2009 PCR 0.034 #840 Zavie's Zero Club From: d'Araille <darajek@...> Subject: [ ] Enough of CML for the moment at least Date: Monday, February 8, 2010, 6:59 AM  Japan is not really a representative country to mention due to Hiroshima and Nagasaki. I found an article about connection between radiation and CML occurrence: http://www.journala rchive.jst. go.jp/jnlpdf. php?cdjournal= jrr1960 & cdvol= 32 & noissue= SUPPLEMENT2 & startpage= 14 & lang=en & from=jnlabstract and an extract from article about CML: The Philadelphia chromosome is an acquired mutation — that is, a person is not born with it and it is not passed on to their children. Exactly why the Philadelphia chromosome forms is unknown in most cases, although exposure to ionizing radiations (such as during the atomic bomb explosions in Japan) has been shown to cause CML. full article here: http://www.apjohnca ncerinstitute. org/cancer/ chronicmye. htm Apart from that what counts is the quantity of EGCG available in green tea one drinks. That's not easily quantifiable as each green tea leaves will have a different amount of this substance available depending on country, region, season, type of tea tree harvested. We don't know how much green tea exactly is consumed in any particular country or by any particular person or the strength of the brew. It's really a guestimation and until there is a solid study done on that we can't say a thing. I can only speak for myself and my case and it looks like I drink enough. In my case drinking green tea lowered WBC count to a normal level and saved my baby from premature birth. I'm yet to have pcr test done to see if EGCG worked on deeper level than just wiping leukemic cells. I'm not claiming anything else apart from what already happened to me and it's all relevant to any young woman who was diagnosed with CML in her 20-ies or 30-ies like myself, especially if diagnosis came with the blood test done during pregnancy. As to statistics that has to be backed up with official figures and carefully analyzed for all possible causes as to why something happens in one part of the World and not the other. I'm not even going there. That's like a science in itself and the results can be open for interpretation and manipulation. I'm just few days away from my due date for a natural birth I never though I would have and I'm going to focus on this entirely. I'm simply nesting and CML does not come into this space. I'll post after the baby arrives. From: Willoughby Sent: Saturday, January 30, 2010 12:25 PM groups (DOT) com Subject: Re: [ ] Re: Apricot kernels While green tea is said to be full of antioxidants, and so may, if that theory is right, be beneficial in improving one's chances of developing any cancer in the first place, there is no evidence that it has any beneficial effect once CML has appeared. The Japanese consume more green tea than any other nation - and their incidence of CML is 5 in 100000. That's actually a little higher than the UK, where it is between 1 and 2. In fact, the overall cancer rate in Japan is a little higher than it is in the UK, which suggests green tea isn't particularly good at cancer prevention either. Of course, other factors are involved too. I like green tea but I would not risk my life just drinking that rather than taking Glivec/Gleevec, which reduced my PCR ratio from 83% to nil in less than 6 months. If anything is a wonder drug, Gleevec is. And, I expect, son, daughter and " other relatives " of Gleevec will also prove to be, Gleevec having led the way. They have revolutionised CML treatment worldwide, and are specifically directed at the mechanism by which CML develops and progresses. Good luck with your pregnancy and dealing with CML but I would second everything Zavie and others have had - see a CML specialist: they really do know their stuff and will give you the best advice. ____________ _________ _________ __ From: Zavie <zmillersympatico (DOT) ca> groups (DOT) com Sent: Fri, January 29, 2010 4:37:14 AM Subject: RE: [ ] Re: Apricot kernels Hi Tracey, If green tea, apricot kernals, or any substance was a cure for CML, the doctors (Dr. Druker, Dr. Talpaz, Dr. Goldman, etc) would be the first to embrace it. They are in the business of finding a cure for cancer. It is pure propaganda by those trying to promote their own remedy without any independent studies. I recall that Dr. Talpaz was the man who pioneered the use of Interferon Alpha for CML. Once Gleevec was shown to be a much better and safer drug for the treatment of CML, he immediately switched to prescribing Gleevec to his patients. If anyone would show him that green tea, apricot kernals or snake oil cured CML he would be the first to embrace it and switch his patients to it. I never see any scientific data they these compounds actually work. Zavie Zavie (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem Tel in FL: 561-429-5507 _____ From: groups (DOT) com [mailto:] On Behalf Of traceyincanada Sent: January-28-10 9:58 PM groups (DOT) com Subject: [ ] Re: Apricot kernels I've never heard of it and don't think the explanation for the " cover up " sounds logical at all. Governments are fed up with paying for expensive, over priced drugs, to the point where some are refusing coverage completely. We see this in the UK with Tasigna and Sprycel. Incidentally, I've never seen any government advertise or promote any drug. What possible gain would a government have to promote drugs that are bankrupting them? Tracey > > Has anyone heard of apricot kernels as being a cure? > > I've read that doctors swear on them, but they won't publish something so > simple because of government red tape - the government(s) spends billions of > dollars every year promoting expensive and hard drugs, it would be > embarrassing for such a simple thing to be a cure. > > > > Jackie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2010 Report Share Posted February 8, 2010 Hi , Congratulations on your soon to be new arrival. It's an experience you will never forget - May God be with you and your new bundle of joy. Very exciting -God's Blessings, Jackie S. ________________________________ From: d'Araille <darajek@...> Sent: Mon, February 8, 2010 5:59:45 AM Subject: [ ] Enough of CML for the moment at least Japan is not really a representative country to mention due to Hiroshima and Nagasaki. I found an article about connection between radiation and CML occurrence: http://www.journala rchive.jst. go.jp/jnlpdf. php?cdjournal= jrr1960 & cdvol= 32 & noissue= SUPPLEMENT2 & startpage= 14 & lang=en & from=jnlabstract and an extract from article about CML: The Philadelphia chromosome is an acquired mutation — that is, a person is not born with it and it is not passed on to their children. Exactly why the Philadelphia chromosome forms is unknown in most cases, although exposure to ionizing radiations (such as during the atomic bomb explosions in Japan) has been shown to cause CML. full article here: http://www.apjohnca ncerinstitute. org/cancer/ chronicmye. htm Apart from that what counts is the quantity of EGCG available in green tea one drinks. That's not easily quantifiable as each green tea leaves will have a different amount of this substance available depending on country, region, season, type of tea tree harvested. We don't know how much green tea exactly is consumed in any particular country or by any particular person or the strength of the brew. It's really a guestimation and until there is a solid study done on that we can't say a thing. I can only speak for myself and my case and it looks like I drink enough. In my case drinking green tea lowered WBC count to a normal level and saved my baby from premature birth. I'm yet to have pcr test done to see if EGCG worked on deeper level than just wiping leukemic cells. I'm not claiming anything else apart from what already happened to me and it's all relevant to any young woman who was diagnosed with CML in her 20-ies or 30-ies like myself, especially if diagnosis came with the blood test done during pregnancy. As to statistics that has to be backed up with official figures and carefully analyzed for all possible causes as to why something happens in one part of the World and not the other. I'm not even going there. That's like a science in itself and the results can be open for interpretation and manipulation. I'm just few days away from my due date for a natural birth I never though I would have and I'm going to focus on this entirely. I'm simply nesting and CML does not come into this space. I'll post after the baby arrives. From: Willoughby Sent: Saturday, January 30, 2010 12:25 PM groups (DOT) com Subject: Re: [ ] Re: Apricot kernels While green tea is said to be full of antioxidants, and so may, if that theory is right, be beneficial in improving one's chances of developing any cancer in the first place, there is no evidence that it has any beneficial effect once CML has appeared. The Japanese consume more green tea than any other nation - and their incidence of CML is 5 in 100000. That's actually a little higher than the UK, where it is between 1 and 2. In fact, the overall cancer rate in Japan is a little higher than it is in the UK, which suggests green tea isn't particularly good at cancer prevention either. Of course, other factors are involved too. I like green tea but I would not risk my life just drinking that rather than taking Glivec/Gleevec, which reduced my PCR ratio from 83% to nil in less than 6 months. If anything is a wonder drug, Gleevec is. And, I expect, son, daughter and " other relatives " of Gleevec will also prove to be, Gleevec having led the way. They have revolutionised CML treatment worldwide, and are specifically directed at the mechanism by which CML develops and progresses. Good luck with your pregnancy and dealing with CML but I would second everything Zavie and others have had - see a CML specialist: they really do know their stuff and will give you the best advice. ____________ _________ _________ __ From: Zavie <zmillersympatico (DOT) ca> groups (DOT) com Sent: Fri, January 29, 2010 4:37:14 AM Subject: RE: [ ] Re: Apricot kernels Hi Tracey, If green tea, apricot kernals, or any substance was a cure for CML, the doctors (Dr. Druker, Dr. Talpaz, Dr. Goldman, etc) would be the first to embrace it. They are in the business of finding a cure for cancer. It is pure propaganda by those trying to promote their own remedy without any independent studies. I recall that Dr. Talpaz was the man who pioneered the use of Interferon Alpha for CML. Once Gleevec was shown to be a much better and safer drug for the treatment of CML, he immediately switched to prescribing Gleevec to his patients. If anyone would show him that green tea, apricot kernals or snake oil cured CML he would be the first to embrace it and switch his patients to it. I never see any scientific data they these compounds actually work. Zavie Zavie (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem Tel in FL: 561-429-5507 _____ From: groups (DOT) com [mailto:] On Behalf Of traceyincanada Sent: January-28-10 9:58 PM groups (DOT) com Subject: [ ] Re: Apricot kernels I've never heard of it and don't think the explanation for the " cover up " sounds logical at all. Governments are fed up with paying for expensive, over priced drugs, to the point where some are refusing coverage completely. We see this in the UK with Tasigna and Sprycel. Incidentally, I've never seen any government advertise or promote any drug. What possible gain would a government have to promote drugs that are bankrupting them? Tracey > > Has anyone heard of apricot kernels as being a cure? > > I've read that doctors swear on them, but they won't publish something so > simple because of government red tape - the government(s) spends billions of > dollars every year promoting expensive and hard drugs, it would be > embarrassing for such a simple thing to be a cure. > > > > Jackie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2010 Report Share Posted February 11, 2010 Hi . Have a safe delivery and please post the pictures and keep us updating on your progress. If I would be in your situation and drinking of green tea would keep my CML under control, I would keep doing what you are doing. I know you do not have PCR results available, but once you do and they are really good and then you have another test done and PCR is lower, I would do what you are doing. If it gets worse, you can always start treatment. Every person is different. Gleevec brings some people to a complete remisson, others relapse within a year. I believe it can be the same with your approach. It may work for you, but it will not for somebody else. Thanks for sharing your story. I am very inspired to hear any updates from you. Livia and again, GOOD LUCK! From: d'Araille <darajek@...> Subject: [ ] Enough of CML for the moment at least Date: Monday, February 8, 2010, 6:59 AM  Japan is not really a representative country to mention due to Hiroshima and Nagasaki. I found an article about connection between radiation and CML occurrence: http://www.journala rchive.jst. go.jp/jnlpdf. php?cdjournal= jrr1960 & cdvol= 32 & noissue= SUPPLEMENT2 & startpage= 14 & lang=en & from=jnlabstract and an extract from article about CML: The Philadelphia chromosome is an acquired mutation — that is, a person is not born with it and it is not passed on to their children. Exactly why the Philadelphia chromosome forms is unknown in most cases, although exposure to ionizing radiations (such as during the atomic bomb explosions in Japan) has been shown to cause CML. full article here: http://www.apjohnca ncerinstitute. org/cancer/ chronicmye. htm Apart from that what counts is the quantity of EGCG available in green tea one drinks. That's not easily quantifiable as each green tea leaves will have a different amount of this substance available depending on country, region, season, type of tea tree harvested. We don't know how much green tea exactly is consumed in any particular country or by any particular person or the strength of the brew. It's really a guestimation and until there is a solid study done on that we can't say a thing. I can only speak for myself and my case and it looks like I drink enough. In my case drinking green tea lowered WBC count to a normal level and saved my baby from premature birth. I'm yet to have pcr test done to see if EGCG worked on deeper level than just wiping leukemic cells. I'm not claiming anything else apart from what already happened to me and it's all relevant to any young woman who was diagnosed with CML in her 20-ies or 30-ies like myself, especially if diagnosis came with the blood test done during pregnancy. As to statistics that has to be backed up with official figures and carefully analyzed for all possible causes as to why something happens in one part of the World and not the other. I'm not even going there. That's like a science in itself and the results can be open for interpretation and manipulation. I'm just few days away from my due date for a natural birth I never though I would have and I'm going to focus on this entirely. I'm simply nesting and CML does not come into this space. I'll post after the baby arrives. From: Willoughby Sent: Saturday, January 30, 2010 12:25 PM groups (DOT) com Subject: Re: [ ] Re: Apricot kernels While green tea is said to be full of antioxidants, and so may, if that theory is right, be beneficial in improving one's chances of developing any cancer in the first place, there is no evidence that it has any beneficial effect once CML has appeared. The Japanese consume more green tea than any other nation - and their incidence of CML is 5 in 100000. That's actually a little higher than the UK, where it is between 1 and 2. In fact, the overall cancer rate in Japan is a little higher than it is in the UK, which suggests green tea isn't particularly good at cancer prevention either. Of course, other factors are involved too. I like green tea but I would not risk my life just drinking that rather than taking Glivec/Gleevec, which reduced my PCR ratio from 83% to nil in less than 6 months. If anything is a wonder drug, Gleevec is. And, I expect, son, daughter and " other relatives " of Gleevec will also prove to be, Gleevec having led the way. They have revolutionised CML treatment worldwide, and are specifically directed at the mechanism by which CML develops and progresses. Good luck with your pregnancy and dealing with CML but I would second everything Zavie and others have had - see a CML specialist: they really do know their stuff and will give you the best advice. ____________ _________ _________ __ From: Zavie <zmillersympatico (DOT) ca> groups (DOT) com Sent: Fri, January 29, 2010 4:37:14 AM Subject: RE: [ ] Re: Apricot kernels Hi Tracey, If green tea, apricot kernals, or any substance was a cure for CML, the doctors (Dr. Druker, Dr. Talpaz, Dr. Goldman, etc) would be the first to embrace it. They are in the business of finding a cure for cancer. It is pure propaganda by those trying to promote their own remedy without any independent studies. I recall that Dr. Talpaz was the man who pioneered the use of Interferon Alpha for CML. Once Gleevec was shown to be a much better and safer drug for the treatment of CML, he immediately switched to prescribing Gleevec to his patients. If anyone would show him that green tea, apricot kernals or snake oil cured CML he would be the first to embrace it and switch his patients to it. I never see any scientific data they these compounds actually work. Zavie Zavie (age 71) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 e-mail: zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem Tel in FL: 561-429-5507 _____ From: groups (DOT) com [mailto:] On Behalf Of traceyincanada Sent: January-28-10 9:58 PM groups (DOT) com Subject: [ ] Re: Apricot kernels I've never heard of it and don't think the explanation for the " cover up " sounds logical at all. Governments are fed up with paying for expensive, over priced drugs, to the point where some are refusing coverage completely. We see this in the UK with Tasigna and Sprycel. Incidentally, I've never seen any government advertise or promote any drug. What possible gain would a government have to promote drugs that are bankrupting them? Tracey > > Has anyone heard of apricot kernels as being a cure? > > I've read that doctors swear on them, but they won't publish something so > simple because of government red tape - the government(s) spends billions of > dollars every year promoting expensive and hard drugs, it would be > embarrassing for such a simple thing to be a cure. > > > > Jackie > > > > Quote Link to comment Share on other sites More sharing options...
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