BMA

[Guest guest]

Dear ,

I agree with , because it is the prudent thing to do. If your doctor

refuses, then look for another oncologist who will listen to you. Some of our

subscribers bring copies of some of the posts to their doctors. I'm sure it

must be a humbling thing for them to accept that they do not know it all.

Sometimes we have to bring the doctors up to speed, especially if they are not

CML specialists. We don't always need to get a BMB, but in your case, I think

it warrants it. Only then can your doctor know where you are in your disease

and if you have mutations. If so, then other measures have to be taken and the

sooner the better. If you are a fairly new patient, then it pays to weigh in on

the advice of people who are really in the know, like , Tracey and Zavie.

(Notice I put them in alphabetical order. LOL) I have not had a BMB in some

time, but have a BMA every visit. Because I am in a trial, it is not an option

for me, hence the reason I have logged so many. Bobby Doyle knows what it means

because she has been in so many trials as well.

I really do feel bad for families here that have lost so many of their members

with CML. I am one of the few CML patients left here in this city. I think my

former doctor lost his last one last month. I think sadder still is that her

daughter works for this same doctor that gave me the bad advice. He still

doesn't " get it " . He once told me that being an oncologist was easy. At one

time I asked him what he thought of a new trial and he said he didn't know, but

when I found out I would tell him. Another time he stopped me in the hallway

and said he had a patient that he wanted to put on Sprycel, but wanted to know

what dose he should put her on. I was even more leary of him after that. Good

luck to you .

Hands & hearts,

Lottie Duthu