Guest guest Posted January 24, 2010 Report Share Posted January 24, 2010 Dear Cheryl, I think we now have a better picture of what you are facing from your latest explanation and I must say that I am impressed with the way you are managing and internalizing all of this information. For me, it took a while to be able to process the information, but in my case, I didn't have a support group or a CML specialist. If the truth be known, I didn't know there were oncologists who specialized in CML, that's how informed I was. I knew next to nothing and my doctor for reasons of his own kept me in the dark and always told me how well I was doing. I didn't even know how to read the cbc's. After joining a support group, I got a real eye opener, that I was not doing well, as I learned how to read my own cbc. I always want to know how and where I stand, so it was very disturbing and disappointing to me when I realized I had been led down the primrose path. I think everyone should have the benefit of seeing a CML expert at least once to confirm or deny what their local oncologist has told you if you decide to stick with him/her for treatment. Some of our subscribers have found that their local oncologists are well informed and are satisfied with their treatment, but sometimes we need to listen to our inner voice. In light of your present circumstance, don't become your lesser self, but stand strong and look to your higher self for your strength. You will find a lot of support here and we hope that whatever you choose to do will be the right decision and it will be an informed one. Everyone here has your best interest at heart, but in the end, the choice is yours. I send you blessings and prayers that all will be done in accordance with the latest and best medicine. Hands & hearts, Lottie Duthu Quote Link to comment Share on other sites More sharing options...
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