Relationships and CML

[Guest guest]

Hi Jackie

 

I was 22 when I was DX in Nov of 2003. My boyfriend ( husband now ) and I were

together for 3 years at the time of DX. He proposed in December and we were

married in July of 2006. We are going on 10 years together and a little over 3

years of marriage.

 

From: Jackie Petropoulos <jackie@...>

Subject: RE: [ ] Relationships and CML

Date: Monday, November 23, 2009, 6:02 PM

 

Hi Everyone

This might seem a bit of an odd question, but can I ask how many of you are

still with your original partners/husbands from when you were first

diagnosed with CML? Or how many have found new partners/husbands?

CML is not an easy disease to live with, psychologically or otherwise, nor

the effects of medicine.

I'm just wondering how many partners/husbands are strong or patient enough

to cope with the day to day effects within a relationship.

Thanking you all so much.

Jackie

[Guest guest]

Hi All

Interesting question ?

I am still with my husband - Yes

Is he still the same man - Yes -

We have been married some 33 years

CML

Has he picked up the slack where I at times cannot do things

and like some others in the big zzzzzzzzzzzz land very early in the evening.

We just work around the issues - not much has to be said - we just get on with

it.

I must admit though - he really got shook up when I was raised to hospital last

time

- I think he suddenly realised CML is a killer if not looked after and managed -

so

he did start to support more after that - even though he still was - just a

realistic moment.

Examples:

Instead of going out at night - we go out in the morning for breakfast or brunch

with friends.

He helps with the chores on the property whereby previously I did most of them.

So the tables turn and it takes a little bit of adjustment -

Do I think he is great - Yep

Does he make me mad at times - Yep

Does he make me laugh - Yes even though his jokes are pathetic - and it cannot

tell a joke which is funny in itself.

Would I exchange him for another model - No Way - Imagine re-training another

model

It is what your view of marriage is - or your partnership is ?

Mine has always been independence and sharing - and it still is and that works

for me.

Keep Well

Sue (Aussie)

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[Guest guest]

Very interesting subject.  I had a nephew, hate to say it, but he was a bit of

a jerk, married to a real sweetie pie, she had cancer and was on chemo for 11

years.  Not once did he go to the hospital with her, he expected her to keep on

with a normal life, sick or not sick, and God knows how many times she lost her

hair.  then he got the same cancer......and bless her heart, she waited on him

hand and foot.  She passed away 4 months after he did. My point being, how much

nicer her life could have been if they shared what they were going through from

the beginning.

Myself, I don't have a significant other, but I do have 6 children.  they have

been there for me 1000% for over 14 years.  when I went to Oregon to be in the

STI trial, one daughter flew out there to be with me twice, another one came out

for a week.  When two years later I was in another trial there, my daughter and

her two girls came with me and stayed one month, and that happened two different

trials.  The same with Houston, when I was going to MDACC.  Three of them were

able to visit from time to time, and now that I am going to U  of Mich, if any

of them, including my daughter in law, have a day off, they go with me.  I

can't say enough about how great they have all been,  The day I was dx, they

all came over and were having a huge cry, I finally had to tell them to knock it

off, I wasn't going anywhere soon, and little did I know how right I was.  I

was 65 then, and next month will be 80, and I'm cooking turkey dinner Thurs. for

29 of

us!  Very thankful to be alive to do it, and thankful also, that they still

all say " Mom's turkey dinner is the best! "   I'm a lucky lady, everyone have a

great holiday.....love, Bobby

a ( Bobby ) Doyle, dob 12/17/29

Brecksville, Ohio, USA

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

o2/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.017

#840 Zavie's Zero Club

From: Sue <hollie@...>

Subject: [ ] Relationships and CML

Date: Tuesday, November 24, 2009, 4:13 PM

 

Hi All

Interesting question ?

I am still with my husband - Yes

Is he still the same man - Yes -

We have been married some 33 years

CML

Has he picked up the slack where I at times cannot do things

and like some others in the big zzzzzzzzzzzz land very early in the evening.

We just work around the issues - not much has to be said - we just get on with

it.

I must admit though - he really got shook up when I was raised to hospital last

time

- I think he suddenly realised CML is a killer if not looked after and managed -

so

he did start to support more after that - even though he still was - just a

realistic moment.

Examples:

Instead of going out at night - we go out in the morning for breakfast or brunch

with friends.

He helps with the chores on the property whereby previously I did most of them.

So the tables turn and it takes a little bit of adjustment -

Do I think he is great - Yep

Does he make me mad at times - Yep

Does he make me laugh - Yes even though his jokes are pathetic - and it cannot

tell a joke which is funny in itself.

Would I exchange him for another model - No Way - Imagine re-training another

model

It is what your view of marriage is - or your partnership is ?

Mine has always been independence and sharing - and it still is and that works

for me.

Keep Well

Sue (Aussie)

__________ Information from ESET NOD32 Antivirus, version of virus signature

database 4634 (20091124) __________

The message was checked by ESET NOD32 Antivirus.

http://www.eset. com

[Guest guest]

I'm tearing up after these last two! (sniff)

On Tue, Nov 24, 2009 at 1:13 PM, Sue <hollie@...> wrote:

>

>

> Hi All

>

> Interesting question ?

>

> I am still with my husband - Yes

>

> Is he still the same man - Yes -

>

> We have been married some 33 years

>

> CML

> Has he picked up the slack where I at times cannot do things

> and like some others in the big zzzzzzzzzzzz land very early in the

> evening.

>

> We just work around the issues - not much has to be said - we just get on

> with it.

>

> I must admit though - he really got shook up when I was raised to hospital

> last time

> - I think he suddenly realised CML is a killer if not looked after and

> managed - so

> he did start to support more after that - even though he still was - just a

> realistic moment.

>

> Examples:

> Instead of going out at night - we go out in the morning for breakfast or

> brunch with friends.

> He helps with the chores on the property whereby previously I did most of

> them.

> So the tables turn and it takes a little bit of adjustment -

>

> Do I think he is great - Yep

> Does he make me mad at times - Yep

> Does he make me laugh - Yes even though his jokes are pathetic - and it

> cannot tell a joke which is funny in itself.

> Would I exchange him for another model - No Way - Imagine re-training

> another model

>

> It is what your view of marriage is - or your partnership is ?

> Mine has always been independence and sharing - and it still is and that

> works for me.

>

> Keep Well

> Sue (Aussie)

>

> __________ Information from ESET NOD32 Antivirus, version of virus

> signature database 4634 (20091124) __________

>

> The message was checked by ESET NOD32 Antivirus.

>

> http://www.eset.com

>

>

[Guest guest]

Hi Jackie:  I was diagnosed in 1998, and my husband and I were married 27 years

at that time.  It was a shock for us as well as the rest of the family, but he

was always there and still is.  He went through my rough time with me with the

Interferon treatments.  Then he took off work everytime I had to go to New York

for my clinical trial for the STI-571.  He always had a way of making me feel

loved and special, especially on the days of my biopsy.  He always looks at the

Positive side of things, and when he sees me getting depressed he just knows how

to perk me up.  Then he got Prostate Cancer, and in turn I was there for him. 

We sit and talk about all the things we have been through with cancer, finances,

etc. We talk about the fact that we are still here.  He is 5 years in

remission, and I am 8 years in remission.

We talk about how blessed we are to be here and have each other.  We just

celebrated 39 years of marriage in Oct.

    I think that nothing will change in a relationship if it had a good

foundation to begin with.  You are really put to the test in so many things

that you go through in life, and thats why some just do not work out when the

going gets tough.

  This was a good subject to be put on the table for everyone to think about.

From: Jackie Petropoulos <jackie@...>

Subject: RE: [ ] Relationships and CML

Date: Monday, November 23, 2009, 9:02 PM

 

Hi Everyone

This might seem a bit of an odd question, but can I ask how many of you are

still with your original partners/husbands from when you were first

diagnosed with CML? Or how many have found new partners/husbands?

CML is not an easy disease to live with, psychologically or otherwise, nor

the effects of medicine.

I'm just wondering how many partners/husbands are strong or patient enough

to cope with the day to day effects within a relationship.

Thanking you all so much.

Jackie