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Another Ariad patient

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I just started Cycle 2, Day 1, so I'm basically through my first month. I am

being treated at OHSU, and I can't say enough positive about the staff and OHSU,

they have been great.

Besides some mild side effects similar to what I had on Gleevec and Sprycel, I

have to say that I'm feeling pretty good. The side effects were mostly in the

first 2 weeks, and been 'normal' now for a couple of weeks.

My platelets are approaching 50k (down from 117k when I started the trial), but

they were 44k on Sprycel so dr.doesn't seem too worried. They went from 56k last

week to 52k this week, so they are probably bottoming out...

My dr. is scheduling a PCR in a couple of week, it wasn't on the initial

schedule, but I'm wondering if he would like to see what is happeing in my

marrow, since I am on the current max dosage of 60 mg. A couple of other posters

in this group are on 15 and 30, and doing quite well.

I'll provide more updated once I have them. Also, a great big thanks to Beth and

Bobby who have been great resources as I entered this unchartered territory and

have been great support !

Hans

dx Dec 08 20/20, 198/200

Gleevec Dec 08 - Jun 09 20/20, 150/200

Sprycel Jun 09 - Oct 09 17/20, 112/200

T315 Mutation detected and decision to discontinue Sprycel

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