Pegulated Interfon and Gleevec Study

[Guest guest]

Anyone else on it? Been on it? How about someone to talk to about how I am

feeling? (Overwhelmed it is actually happening.) Anyone ever go on a study

that didn't really need to be there? I mean, I think I would feel different

it the medication I was on wasn't working - and I needed to go on something

else. This study is just adding a crappy medicine to an already crappy

medicine to hopefully bring about a 'cure'. What was I thinking?? As much as

anyone here - I want a cure!!

I just got my bmb date of March 1st today. About a week later I'll start the

medication (if that is still the plan.)

Thanks guys!

Tammy

[Guest guest]

Tammy,

I did this for 1 1/2 years. Yes it was crappy, but I have not been PCR positive

since. Doctore are still too scared on taking me off everthing, but I'm working

on them.

P.S. I was on interferon for 1 1/2 years before Gleevec was approved.

On Feb 17, 2010, at 10:30 PM, Tammy Ferns wrote:

> Anyone else on it? Been on it? How about someone to talk to about how I am

> feeling? (Overwhelmed it is actually happening.) Anyone ever go on a study

> that didn't really need to be there? I mean, I think I would feel different

> it the medication I was on wasn't working - and I needed to go on something

> else. This study is just adding a crappy medicine to an already crappy

> medicine to hopefully bring about a 'cure'. What was I thinking?? As much as

> anyone here - I want a cure!!

>

> I just got my bmb date of March 1st today. About a week later I'll start the

> medication (if that is still the plan.)

>

> Thanks guys!

>

> Tammy

>

>

[Guest guest]

I also became PCRU on a combo of Gleevec and Interferon, but my study was

approved for 1 year only and I reached PCRU after 10.5 months and they took me

off Interferon almost right away, so after 7 weeks, I lost my PCRU. I believe

that if I could stay on Gleevec + Interferon for a longer time, then maybe

discountinue Gleevec and remain on Interferon for 3 - 5 more months, maybe I

would be PCRU until now. Who knows... p.s. I tolerated Interferon very well. I

was really lucky! My body loved it. I lost weight, almost all that I gained on

Gleevec... I wish I can be back on Gleevec and Interferon... Livia

> Anyone else on it? Been on it? How about someone to talk to about how I am

> feeling? (Overwhelmed it is actually happening.) Anyone ever go on a study

> that didn't really need to be there? I mean, I think I would feel different

> it the medication I was on wasn't working - and I needed to go on something

> else. This study is just adding a crappy medicine to an already crappy

> medicine to hopefully bring about a 'cure'. What was I thinking?? As much as

> anyone here - I want a cure!!

>

> I just got my bmb date of March 1st today. About a week later I'll start the

> medication (if that is still the plan.)

>

> Thanks guys!

>

> Tammy

>

>