Guest guest Posted February 4, 2010 Report Share Posted February 4, 2010 Dear Donna, For folks like Bobby and me, it was a long journey because we started out on Hydrea and then Inteferon and other drugs mixed in with the trials. Had we been able to get the newer TKI's, I'm sure we would have proceeded to get to CCR much sooner. I think it's a mistake to compare yourself to others as Bobby said. We are all different, as you can see that some have reached CCR quickly, and then shortly thereafter reached PCRU. We are all at a different place in our disease. If I remember correctly what you said earlier, you had a rough time when you were diagnosed and were given chemotherapy infusions to bring your counts down. I am not privvy to your CBC, but if you are CCR, then I would not worry about it. Look at how long Bobby and I have survived and our hero Skip in Nova Scotia. Survival to me may not be like the next person. I am very pro-active and my doctors know that because I ask about the new trials and ask how they are doing, believe me I don't want to be in a trial that is not performing. I had enough of those. I am very happy that I have reached CCR, but to tell the truth, I wasn't worried about it before, because how do you measure success? I measure it one day at a time. Keep ahead of the curve by being informed and then relax, you have done all you could. CML is the only disease that has so many treatments, so that is a big plus for us. Take care, but be sure to live your life to the fullest, it's still a pretty good life. Hands & hearts, Lottie Duthu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2010 Report Share Posted February 4, 2010 Very well said, Lottie. I love your closing sentence, " Take care, but be sure to live your life to the fullest, it's still a pretty good life. " I hear ya, girl!! Hugs, JoAnn > > Dear Donna, > For folks like Bobby and me, it was a long journey because we started out on Hydrea and then Inteferon and other drugs mixed in with the trials. Had we been able to get the newer TKI's, I'm sure we would have proceeded to get to CCR much sooner. I think it's a mistake to compare yourself to others as Bobby said. We are all different, as you can see that some have reached CCR quickly, and then shortly thereafter reached PCRU. We are all at a different place in our disease. If I remember correctly what you said earlier, you had a rough time when you were diagnosed and were given chemotherapy infusions to bring your counts down. I am not privvy to your CBC, but if you are CCR, then I would not worry about it. Look at how long Bobby and I have survived and our hero Skip in Nova Scotia. Survival to me may not be like the next person. I am very pro-active and my doctors know that because I ask about the new trials and ask how they are doing, believe me I don't want to be in a trial that is not performing. I had enough of those. I am very happy that I have reached CCR, but to tell the truth, I wasn't worried about it before, because how do you measure success? I measure it one day at a time. > > Keep ahead of the curve > by being informed and then relax, you have done all you could. > CML is the only disease that has so many treatments, so that is a big plus for us. > Take care, but be sure to live your life to the fullest, it's still a pretty good life. > Hands & hearts, > Lottie Duthu > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.