Platelets

[Guest guest]

Dear Virginia,

I see you belong to our " elite " 10 year CML Club. I think it is a great

milestone to have achieved, especially in light of what we were told when we

were diagnosed. I am now at 14.5 years, like the little kids who tells you he

is 3 1/2. As we age, we drop the fractions and when we get older, we go back to

the fractions and our children become like parents. LOL

My doctor always withheld my meds when the platelets dropped below 50. If

they recovered when I had my next CBC, I would know to resume the meds. I have

been on 7 different ones and in 5 trials. I have my CBCs done locally, but go

to MDACC for treatment. I wouldn't be alive today without the doctors I have

seen there. I had to change doctors for every trial and it was hard to let them

go, but it was the protocol. I am finally dumping the local doctor whom I have

seen for all of those years. I am tired of taking their BS and being treated

less than because I left and went to MDACC. When a doctor stops speaking to you

when he sees you, passes you by and does not even acknowledge you, it is time to

exit his premises. I am in the process of getting my records transferred to

the new doctor, but I have to drive to the next town. That is a giant step for

me, like landing on the moon. LOL.

Thank you for your input, I am sure others will chime in with their own

experiences with their platelets. My platelets are so low that if I need

surgery, they have to arrange for pumping me with platelets as well as the

transfusions. Since I have reached CCR, I have not only felt better, but I have

had only 1 transfusion. The Procrit is also helping. Viva CCR & Procrit!!!!!!!

Hands & hearts,

Lottie Duthu