RE: Hoping for the best for you

[Guest guest]

Thanks Lottie! I'm so happy to have friends that care! I have my results

from latest doctor visit. I go back next Thursday. See below and let me

know what you think...

5th BCR ABLE test 12.15.09

Results positive for BCR ABLE at 128% - I'm in the chronic phase.

" The ratio of BCR ABL : G6PHD is 0.2637 this is 128% of the level

typically found in a chronic phase CML in our lab "

Levels when the BCRABLE test was taken on 12.15.09

WBC-4.3

RBC-4.77

HGB-13.4

HCT-40.6%

MCV-85.1

MCH-28.1

MCHC-33.0

RDW-14.2%

Platlets-348

Differential count of granulocytes 61.5%, lymphocytes 34.1%, mid 4.4%

My levels as of 12.30.09 When I was DX my WBC was 78.7

WBC- 4.3

LYM-1.4

MID-0.3

GRAN- 2.6

RBC- 4.83

HGB-13.3

HCT-39.9

MCV 82.7

MCH-27.5

MCHC- 33.3

RDW-14.4

PLT-263

MPV-8.0

Thanks for your help!

Chemo-Sabi

Romero

27 year old male in Santa , California

DX-10.22.09

Hydroxeuya-10.22.09-10.29.09

Gleevec 400MG-10.29.09-11.06.09

Gleevec Reduction 200MG-11.06.09-01.04.10

Gleevec increase 300MG-01.05.10-Present

BCR-ABL-126% or 0.2637

From: Lottie Duthu [mailto:lotajam@...]

Sent: Wednesday, January 06, 2010 9:27 PM

Romero,

Subject: Hoping for the best for you

Dear ,

I picked one letter that was sent to me and I am sending you an

excerpt from it to get a general idea of why we are concerned about your

treatment. There are many stories out there from patients who were not

given honest answers and the best care. If something doesn't add up,

it's poor arithmetic and you can't cook the books.

" After almost three years and with the help of the group I have become a

strong advocate. But maybe he just needs to see another warrior with

puffy eyes. I can show him the pictures of when I had my pumpkin

swollen face. I just really feel like emotionally, he is taking a

beating. I wish he would post his complete results so you, Zavie and

Tracey can take a look at them. I just want him to see he has a good

quality of life ahead of him. Sometimes when you don't have many years

under your belt it is easy to think it is the end of the world. "

Looking out for Chemo Sabi,

Lottie Duthu

Age 81, diagnosed 7/96 at age 67.