Hereditary Angioedema? Other causes of swelling? IVIG On Hold!

[Guest guest]

Henry has had 3 episodes of very severe facial swelling - one at the infusion

center right before he was suppose to get his IVIG. He is being tested for

Hereditary Angioedema - a rare complement disorder - but meanwhile his IVIG is

on hold as the doc at the infusion center, his immunologist, neurologist, etc

all agree that he is at a huge risk of a life threatening reaction.

Does anyone have any experience with this?

Thanks!

Betsy - mom to Henry - 10 yr old - CVID - IVIG on hold, Fatty Acid Oxidation

Defect and possible MSUD, possible HAE, Epilepsy, Asthma, Allergies (this is

getting ridiculous) and Sammy - 4 yr old - low IgG