Guest guest Posted January 6, 2010 Report Share Posted January 6, 2010 Dear Chemo-Sabi, You have us all worried about you, the way you are being shunted about. You need to be on a drug that will stabalize you in the short run, too. What seems to be the problem with switching drugs? We look after our own and we just think you are getting the run around. My CML buddies are asking what can we do to help . Gleevec is not for everyone. What is keeping them from changing you to the new Ariad trial drug, or even Tasigna. In time some of the side effects go away, but you need to see someone who is willing to try something different. I have been on 7 different drugs in my CML lifetime and finally found a shoe that fits. Why don't you shoot an email to Dr. Druker with your medical information and ask him what he thinks of this situation. He will answer you. I stayed with an oncologist for 4 years because I thought he knew what he was doing. Now all of his patients have died off and I am the only one standing and that tells me a whole lot, because I have lived twice as long as his longest living patient. This is your life, how do you want to live it? Find the best and stay the course. Hands & hearts, Lottie Quote Link to comment Share on other sites More sharing options...
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