Just returned from MD & T-Shirts

[Guest guest]

Just returned from Houston.  Saw Dr. Jabbur - was a little disapointed as I

thought I would be able to have a longer discussion with him.  Talked with his

nurse longer than I did him.

With all they have going on, guess I was expecting a lot of information I hadn't

heard before.  Anyway, BMB results hopefully next week.  Dr. jumped me right up

to Tasgina (was suprised) because he said it was the only one that didn't have

the fatigue side effects as Gleevec.  Kind of scary that I can't take until

after an EKG to use for base line as this treatment seems to be causing heart

problems????  He spoke with my local oncologist about what he wanted to do and

would work with her.  She doesn't have EKG?? had to go to local

doctor. Interested to see if she will work with him or not.  Not sure why they

didn't go ahead and do it at MD . 

I know this is suppose to be a great facility, so I'll wait and see how the

conversation of my BMB test goes.  Maybe my expectations were too high. 

 

As for the T Shirts.  I thought we could have some fun with members making

design suggestions on paper and then I'd post for everyone to vote on.  I can

take a image someone wants to handdraw on paper and generate to digital design.

 

DEADLINE TO INPUT - FEB 1.

 

 

Barbara Hundley

Fayetteville, GA

http://personalizedforu.com

http://my-personal-assist.com

 

[Guest guest]

Hi Barbara,

I too am a patient under Dr. Jabbour.  I've seen him a couple times now and the

visits were pretty well the same each time.  Quick.  However I was pleased

each time that he took the time to explain himself multiple times and found a

way to relate the info to me when I didn't understand something.          

                                              Another

thing I liked is that he took the time at the end to make sure I didn't have any

further questions before he left.  

Kay, his nurse has been very quick & amp; responsive to answer my emails when I

have questions also.  

I was happy with my visits there, but I'm still new to the CML game, so if

anyone knows of things that some docs don't do, that could make an experience

better, please share.

Thanks to everyone in the group!

Danny

-- Sent from my Palm Prē

Barbara Hundley wrote:

 

Just returned from Houston.  Saw Dr. Jabbur - was a little disapointed as I

thought I would be able to have a longer discussion with him.  Talked with his

nurse longer than I did him.

With all they have going on, guess I was expecting a lot of information I hadn't

heard before.  Anyway, BMB results hopefully next week.  Dr. jumped me right

up to Tasgina (was suprised) because he said it was the only one that didn't

have the fatigue side effects as Gleevec.  Kind of scary that I can't take

until after an EKG to use for base line as this treatment seems to be causing

heart problems????  He spoke with my local oncologist about what he wanted to

do and would work with her.  She doesn't have EKG?? had to go to local

doctor. Interested to see if she will work with him or not.  Not sure why

they didn't go ahead and do it at MD . 

I know this is suppose to be a great facility, so I'll wait and see how the

conversation of my BMB test goes.  Maybe my expectations were too high. 

 

As for the T Shirts.  I thought we could have some fun with members making

design suggestions on paper and then I'd post for everyone to vote on.  I can

take a image someone wants to handdraw on paper and generate to digital design.

 

DEADLINE TO INPUT - FEB 1.

 

 

Barbara Hundley

Fayetteville, GA

http://personalizedforu.com

http://my-personal-assist.com