This wonderful ecomony and access to treatment

[Guest guest]

We live in CA and the state is really getting hit hard with all the stuff

going on and state resources could dry up as soon as next month according to

the governor. I'm wondering how this will impact medi-cal (medicaid) and

those of us who use it to pay for treatment for our children. Do you think

the state could start denying IG treatment or just not paying for it because

of lack of funds? I know we had a really hard time even getting trained on

SCIG because the state was taking so long to pay and no one was willing to

train outside of the hospital just because medi-cal/CCS was taking so long

to reimburse. What do we do if that happens? dd had to live in a bubble

before she started IVIG and she still got severe infections even after being

kept isolated. She simply can not live without IG therapy and have any

quality of life. I know there is no way I could even pay for SCIG until

after I finish school which isn't for 3-4 years yet. What do people do when

they can't get treatment?

8 CVID

Lilly 28 mo, who knows anymore! was CVID but now has normal IG but has

obvious B cell issues