Re: Oral steroids for sinus infection?

[Guest guest]

Blake is put on them every time he has what is called " pansinusitis " ths is

where all sinus cavities are " full "

Right now he has double Pneumonia . Both of his lungs are filled with fluid in

the bottoms of them....talk about a Miserable Holiday season!!! But we are

everso Gratefull & Thankfull that we are able to awaken & say, " Thank You God

for this blessed Morning!!!! "

 

when Blake has a sinus infection that is stubborn, he is given Ceftin(with dye

free benadryl due to allergy to Cephalsporines) then they add Oral Cipro(500mg

2x's daily) if these don't clear teh infection with in 7 days, he is placed on

IV antibiotics. 

Blake is unable to digest the antibiotics orally, but we give it a shot each

time, just to see if his " whatever " is gonna kick in!!!

Hope she gets to feeling better fast!!!

mom to blake 16, SCID with complete T-Cell Dysfunction(sub-q 2xs weekly),

SDS,Autism, ADHD/OCD/ODD LOTS of other issues!!!

http://www3.caringbridge.org/sc/blakester

Come & see WHY he is called,

" The greatest Adventure of MY Lifetime!!!!!

 

 

Happy Thanksgiving to EVERYONE!!!!

" Children are like butterflies in the wind.

Some fly higher than others, BUT

each one flies the best they can!!!! "

From: Becki Rion <rionfam@...>

Subject: Oral steroids for sinus infection?

Date: Friday, November 28, 2008, 4:52 PM

Anyone ever been prescribed oral steroids for their kiddos sinus

infection? I took Reagon to pulmo week before last and her PFT's were

down due to her head being all stopped up and cruddy. Her dr. put her

on 20 mg X2 day of prednisone for 3 days and then 20 mg once aday for 2

days and Omnicef. She was doing great for 5 days on steroids and first

3 days off of them...now she is starting to get wet cough again and

nose flaring when she's running around. She is still on the Omnicef

and seems to feel fine...just having asthma like symptoms agian. As is

the story of my life...the drs. office is closed for Thanksgiving. I

guess I shouldn't worry since she is running around and feels

good...just wondering if maybe she needed a longer burst of steroids??

She has only had one mild sinus infection before, so the sinus issues

are new to us and I don't know what the norm on treatment is for them.

Becki

Reagon 7 yrs. CVID

[Guest guest]

Here's the thing. Steroids are going to bring down swelling and inflammation

anywhere. Sinuses, joints, lungs, any tissue. So they can help shrink swollen

sinus tissue so that she can breath better plus they could help open up her

chest so that it doesn't get infected. It could also affect her eating, blood

sugar, white count and set her up for opportunistic infections so it's a trade

off of sorts.

Ursula - mom to (16) and Macey (13,CVID)

http://www.caringbridge.org/visit/maceyholleman

[Guest guest]

I sure do wish they would come up with a " wonder drug " that had all

the wonderful effects of steroids without the bad side effects!

Reagon is only 7 but already knows she is going to feel like a whole

different kid when she is on steroids. Her feet and knees don't

hurt, her head opens up and her cough goes away...she feels

great..then we get to the end of the dose and reality hits as all her

inflammation settles back in. Uggh! Do getting IV steroid bursts

have as bad of side effects??

Becki

>

>

> Here's the thing. Steroids are going to bring down swelling and

inflammation anywhere. Sinuses, joints, lungs, any tissue. So they

can help shrink swollen sinus tissue so that she can breath better

plus they could help open up her chest so that it doesn't get

infected. It could also affect her eating, blood sugar, white count

and set her up for opportunistic infections so it's a trade off of

sorts.

>

> Ursula - mom to (16) and Macey (13,CVID)

>

> http://www.caringbridge.org/visit/maceyholleman

>

>

>

>

>

>

>

[Guest guest]

yes.

Ursula - mom to (16) and Macey (13,CVID)

http://www.caringbridge.org/visit/maceyholleman

@...: rionfam@...: Sat, 29 Nov 2008 00:59:05

+0000Subject: Re: Oral steroids for sinus infection?

I sure do wish they would come up with a " wonder drug " that had all the

wonderful effects of steroids without the bad side effects! Reagon is only 7

but already knows she is going to feel like a whole different kid when she is on

steroids. Her feet and knees don't hurt, her head opens up and her cough goes

away...she feels great..then we get to the end of the dose and reality hits as

all her inflammation settles back in. Uggh! Do getting IV steroid bursts have as

bad of side effects?? Becki>> > Here's the thing. Steroids are going to bring down

swelling and inflammation anywhere. Sinuses, joints, lungs, any tissue. So they

can help shrink swollen sinus tissue so that she can breath better plus they

could help open up her chest so that it doesn't get infected. It could also

affect her eating, blood sugar, white count and set her up for opportunistic

infections so it's a trade off of sorts.> > Ursula - mom to (16) and Macey

(13,CVID)> > http://www.caringbridge.org/visit/maceyholleman> > > > > > >

[Guest guest]

Hi,

Just thought I'd chime in here regarding stubborn sinus infections. My son has

been off and on (mostly on) antibiotics for years for chronic sinus infections.

Finally about four months ago, it was suggested that we try Septra (reg.

strength) twice a day. We thought we tried everything , but we neglected to try

his med.. It's really worked well, he's down to a maintenance dose of one tablet

at bedtime with no sign of infection.

This is the first time that he's been free of fevers and night sweats for years.

Our ped. thought perhaps he has MRSA or some other form of staph in his sinuses

and we haven't hit it with the right antibiotic yet. I'm keeping my fingers

crossed that she's right ! So far so good...

Take care,

@...: momtoboywholoveshisgoats@...: Fri, 28

Nov 2008 14:08:38 -0800Subject: Re: Oral steroids for sinus infection?

Blake is put on them every time he has what is called " pansinusitis " ths is

where all sinus cavities are " full " Right now he has double Pneumonia . Both of

his lungs are filled with fluid in the bottoms of them....talk about a Miserable

Holiday season!!! But we are everso Gratefull & Thankfull that we are able to

awaken & say, " Thank You God for this blessed Morning!!!! " when Blake has a

sinus infection that is stubborn, he is given Ceftin(with dye free benadryl due

to allergy to Cephalsporines) then they add Oral Cipro(500mg 2x's daily) if

these don't clear teh infection with in 7 days, he is placed on IV antibiotics.

Blake is unable to digest the antibiotics orally, but we give it a shot each

time, just to see if his " whatever " is gonna kick in!!! Hope she gets to feeling

better fast!!!mom to blake 16, SCID with complete T-Cell Dysfunction(sub-q

2xs weekly), SDS,Autism, ADHD/OCD/ODD LOTS of other

issues!!!http://www3.caringbridge.org/sc/blakesterCome & see WHY he is

called, " The greatest Adventure of MY Lifetime!!!!! Happy Thanksgiving to

EVERYONE!!!! " Children are like butterflies in the wind.Some fly higher than

others, BUTeach one flies the best they can!!!! " From: Becki Rion <rionfam@...>Subject:

Oral steroids for sinus infection?@...: Friday,

November 28, 2008, 4:52 PMAnyone ever been prescribed oral steroids for their

kiddos sinus infection? I took Reagon to pulmo week before last and her PFT's

were down due to her head being all stopped up and cruddy. Her dr. put her on 20

mg X2 day of prednisone for 3 days and then 20 mg once aday for 2 days and

Omnicef. She was doing great for 5 days on steroids and first 3 days off of

them...now she is starting to get wet cough again and nose flaring when she's

running around. She is still on the Omnicef and seems to feel fine...just having

asthma like symptoms agian. As is the story of my life...the drs. office is

closed for Thanksgiving. I guess I shouldn't worry since she is running around

and feels good...just wondering if maybe she needed a longer burst of steroids??

She has only had one mild sinus infection before, so the sinus issues are new to

us and I don't know what the norm on treatment is for them.BeckiReagon 7 yrs.

CVID

[Guest guest]

,

That's interesting that you say that...Reagon's immunologist wanted

to put her on Septra, but her pulmonologist thought Omnicef would be

better for a sinus infection. I thought it was working great since

she kept saying her headache was gone, but now that the steroids have

worn off she is saying her head is hurting in the mornings again.

She is not complaining near as bad as she was before the Omnicef,but

I'll be curious to see what happens when she comes off it. They

tried Zyvox for 7 days first and she did great until about day 10 or

12 and then the sinus infection came back with a vengence. I had

already gotten the Septra prescription filled (but had not started

her on it)when her pulmo said she wanted her to do Omnicef instead..I

guess if she relapses after the Omnicef we can try the Septra!

Thanks for the info!

Becki

From:

Becki Rion <rionfam@...>Subject: Oral steroids for sinus

infection?@...: Friday, November 28, 2008, 4:52 PMAnyone

ever been prescribed oral steroids for their kiddos sinus infection?

I took Reagon to pulmo week before last and her PFT's were down due

to her head being all stopped up and cruddy. Her dr. put her on 20 mg

X2 day of prednisone for 3 days and then 20 mg once aday for 2 days

and Omnicef. She was doing great for 5 days on steroids and first 3

days off of them...now she is starting to get wet cough again and

nose flaring when she's running around. She is still on the Omnicef

and seems to feel fine...just having asthma like symptoms agian. As

is the story of my life...the drs. office is closed for Thanksgiving.

I guess I shouldn't worry since she is running around and feels

good...just wondering if maybe she needed a longer burst of

steroids?? She has only had one mild sinus infection before, so the

sinus issues are new to us and I don't know what the norm on

treatment is for them.BeckiReagon 7 yrs. CVID[Non-text portions of

this message have been removed]

>

>

>

>

>

>

>

[Guest guest]

Yes. I friend of mine just ended up with a fungus infection in the sinuses due

to immunocompromise and oral prolonged steroid use. Such a juggling act we

do......

mom to CVIDer, 7

________________________________

From: Ursula Holleman <uahollem@...>

Sent: Friday, November 28, 2008 3:56:37 PM

Subject: RE: Oral steroids for sinus infection?

Here's the thing. Steroids are going to bring down swelling and inflammation

anywhere. Sinuses, joints, lungs, any tissue. So they can help shrink swollen

sinus tissue so that she can breath better plus they could help open up her

chest so that it doesn't get infected. It could also affect her eating, blood

sugar, white count and set her up for opportunistic infections so it's a trade

off of sorts.

Ursula - mom to (16) and Macey (13,CVID)

http://www.caringbr idge.org/ visit/maceyholle man

[Guest guest]

Becki, I may have missed this, but did they culture it? Mark started

a sinus infection last September that didn't respond to any

antibiotics that they were giving him. Finally in March I insisted

on a culture. Turned out he had a very strange bacteria (doctors

were a little shocked, nurses had never even heard of it) in there

that was resistant to the antibiotics he had been taking. They gave

him a different one, and it cleared it up. If it doesn't clear up, I

would ask about ENT referral, who can get up there and get a really

good culture. Good luck! mom to Mark 7 CVID

From:

> Becki Rion <rionfam@>Subject: Oral steroids for sinus

> infection?@: Friday, November 28, 2008, 4:52 PMAnyone

> ever been prescribed oral steroids for their kiddos sinus

infection?

> I took Reagon to pulmo week before last and her PFT's were down due

> to her head being all stopped up and cruddy. Her dr. put her on 20

mg

> X2 day of prednisone for 3 days and then 20 mg once aday for 2 days

> and Omnicef. She was doing great for 5 days on steroids and first 3

> days off of them...now she is starting to get wet cough again and

> nose flaring when she's running around. She is still on the Omnicef

> and seems to feel fine...just having asthma like symptoms agian. As

> is the story of my life...the drs. office is closed for

Thanksgiving.

> I guess I shouldn't worry since she is running around and feels

> good...just wondering if maybe she needed a longer burst of

> steroids?? She has only had one mild sinus infection before, so the

> sinus issues are new to us and I don't know what the norm on

> treatment is for them.BeckiReagon 7 yrs. CVID[Non-text portions of

> this message have been removed]

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

,

We go in for PFT's on Tuesday...I am going to ask them about doing

a culture. They cultured her when all this started about 6 weeks ago

but I think all they checked for was staph. That came back negative,

but they did a short round of Zosyn anyway, which seemed to knock it

down somewhat for about a week, then it came back worse than before.

She is due to have a CT on her sinuses and I was hoping to get that

done before we went to the ENT (we do have a great one). She had

sinus surgery about 2 years ago and the ENT said she'd probably need

another one in the future..I'm wondering if we are at that point

again. This is our first time to battle a sinus infection

though..before everything went to her ears. I just hate the feeling

of " wasting time " over a long weekend when I am pretty sure the

antibiotic they have her on isn't doing the trick!

Becki

From:

> > Becki Rion <rionfam@>Subject: Oral steroids for sinus

> > infection?@: Friday, November 28, 2008, 4:52 PMAnyone

> > ever been prescribed oral steroids for their kiddos sinus

> infection?

> > I took Reagon to pulmo week before last and her PFT's were down

due

> > to her head being all stopped up and cruddy. Her dr. put her on

20

> mg

> > X2 day of prednisone for 3 days and then 20 mg once aday for 2

days

> > and Omnicef. She was doing great for 5 days on steroids and first

3

> > days off of them...now she is starting to get wet cough again and

> > nose flaring when she's running around. She is still on the

Omnicef

> > and seems to feel fine...just having asthma like symptoms agian.

As

> > is the story of my life...the drs. office is closed for

> Thanksgiving.

> > I guess I shouldn't worry since she is running around and feels

> > good...just wondering if maybe she needed a longer burst of

> > steroids?? She has only had one mild sinus infection before, so

the

> > sinus issues are new to us and I don't know what the norm on

> > treatment is for them.BeckiReagon 7 yrs. CVID[Non-text portions

of

> > this message have been removed]

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

The " BEST " treatment for sinus infections is to RINSE the sinuses out several

times a day . We use a Grochen machine with a special tip and a saline powder

with Xylatol it is amazing what it does to keep them clear and healthy so the #

of infections is greatly reduced. There is also a tip for the water pik and a

bottle called Nielmed that work just as well. If you are not doing sinus rinses

then you are only doing half of what can be done to prevent the infections. It

is hard at first to get the kids to do them but after awhile they realize that

it does make them feel better and the number of infections go down radically.

Also since my son gets bloody noses from the nasal sprays ( my Idoc says it is

from the preservatives we use the .25mcg of the inhaled pulmicort in his rinses

and it works fanatastic to reduce the inflammation and prevent the infections.

Antibiotics have a very hard time getting into the sinuses and clearing the

infections.

BARBIE

________________________________

From: Becki Rion <rionfam@...>

Sent: Friday, November 28, 2008 9:26:14 PM

Subject: Re: Oral steroids for sinus infection?

,

That's interesting that you say that...Reagon' s immunologist wanted

to put her on Septra, but her pulmonologist thought Omnicef would be

better for a sinus infection. I thought it was working great since

she kept saying her headache was gone, but now that the steroids have

worn off she is saying her head is hurting in the mornings again.

She is not complaining near as bad as she was before the Omnicef,but

I'll be curious to see what happens when she comes off it. They

tried Zyvox for 7 days first and she did great until about day 10 or

12 and then the sinus infection came back with a vengence. I had

already gotten the Septra prescription filled (but had not started

her on it)when her pulmo said she wanted her to do Omnicef instead..I

guess if she relapses after the Omnicef we can try the Septra!

Thanks for the info!

Becki

From:

Becki Rion <rionfam@... >Subject: Oral steroids for sinus

infection?@...: Friday, November 28, 2008, 4:52 PMAnyone

ever been prescribed oral steroids for their kiddos sinus infection?

I took Reagon to pulmo week before last and her PFT's were down due

to her head being all stopped up and cruddy. Her dr. put her on 20 mg

X2 day of prednisone for 3 days and then 20 mg once aday for 2 days

and Omnicef. She was doing great for 5 days on steroids and first 3

days off of them...now she is starting to get wet cough again and

nose flaring when she's running around. She is still on the Omnicef

and seems to feel fine...just having asthma like symptoms agian. As

is the story of my life...the drs. office is closed for Thanksgiving.

I guess I shouldn't worry since she is running around and feels

good...just wondering if maybe she needed a longer burst of

steroids?? She has only had one mild sinus infection before, so the

sinus issues are new to us and I don't know what the norm on

treatment is for them.BeckiReagon 7 yrs. CVID[Non-text portions of

this message have been removed]

>

>

>

>

>

>

>

[Guest guest]

I wish I could get Reagon to do the sinus rinses! She has yet to

learn how to swim because she can't stand to get water in her nose. I

have often wondered if it is because she doesn't like the feeling or

if it hurts her sinuses to get water in them. I ordered something

made by Pari that is a sinustar. It's kind like a nebulizer but for

the sinuses. It does kind of a saline " mist " instead of a stream of

water. I am hoping Reagon will tolerate it. I haven't received it

yet so we will see.

Becki

- In , Barbara Jimenez <mother5590@...> wrote:

>

> The " BEST " treatment for sinus infections is to RINSE the sinuses

out several times a day . We use a Grochen machine with a special tip

and a saline powder with Xylatol it is amazing what it does to keep

them clear and healthy so the # of infections is greatly reduced.

There is also a tip for the water pik and a bottle called Nielmed

that work just as well. If you are not doing sinus rinses then you

are only doing half of what can be done to prevent the infections. It

is hard at first to get the kids to do them but after awhile they

realize that it does make them feel better and the number of

infections go down radically. Also since my son gets bloody noses

from the nasal sprays ( my Idoc says it is from the preservatives we

use the .25mcg of the inhaled pulmicort in his rinses and it works

fanatastic to reduce the inflammation and prevent the infections.

Antibiotics have a very hard time getting into the sinuses and

clearing the infections.

>

> BARBIE

>

>

>

>

> ________________________________

> From: Becki Rion <rionfam@...>

>

> Sent: Friday, November 28, 2008 9:26:14 PM

> Subject: Re: Oral steroids for sinus infection?

>

>

> ,

> That's interesting that you say that...Reagon' s immunologist

wanted

> to put her on Septra, but her pulmonologist thought Omnicef would

be

> better for a sinus infection. I thought it was working great since

> she kept saying her headache was gone, but now that the steroids

have

> worn off she is saying her head is hurting in the mornings again.

> She is not complaining near as bad as she was before the

Omnicef,but

> I'll be curious to see what happens when she comes off it. They

> tried Zyvox for 7 days first and she did great until about day 10

or

> 12 and then the sinus infection came back with a vengence. I had

> already gotten the Septra prescription filled (but had not started

> her on it)when her pulmo said she wanted her to do Omnicef

instead..I

> guess if she relapses after the Omnicef we can try the Septra!

>

> Thanks for the info!

> Becki

>

> From:

> Becki Rion <rionfam@ >Subject: Oral steroids for sinus

> infection?@: Friday, November 28, 2008, 4:52 PMAnyone

> ever been prescribed oral steroids for their kiddos sinus

infection?

> I took Reagon to pulmo week before last and her PFT's were down due

> to her head being all stopped up and cruddy. Her dr. put her on 20

mg

> X2 day of prednisone for 3 days and then 20 mg once aday for 2 days

> and Omnicef. She was doing great for 5 days on steroids and first 3

> days off of them...now she is starting to get wet cough again and

> nose flaring when she's running around. She is still on the Omnicef

> and seems to feel fine...just having asthma like symptoms agian. As

> is the story of my life...the drs. office is closed for

Thanksgiving.

> I guess I shouldn't worry since she is running around and feels

> good...just wondering if maybe she needed a longer burst of

> steroids?? She has only had one mild sinus infection before, so the

> sinus issues are new to us and I don't know what the norm on

> treatment is for them.BeckiReagon 7 yrs. CVID[Non-text portions of

> this message have been removed]

> >

> >

> >

> >

> >

> >

> >