Guest guest Posted January 28, 2010 Report Share Posted January 28, 2010 Hello all! I've been on Gleevec for CML since April 2003. Within 9 months I reached CCR and have stayed there ever since. I still experience bone and muscle pain, muscle spasms, fatigue, and various other side effects. I spoke to my onc about stopping the Gleevec and he was not happy with that. He seems to think that by doing this I'm risking my life. I feel that IF the CML were to return I can easily go back on Gleevec or I know I have other options. Has anyone else gone off Gleevec and stayed in remission without the aid of other meds? I live in Jersey. Can anyone reccomend a CML specialist? Thanks for your help! Jenn Quote Link to comment Share on other sites More sharing options...
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