RE: post infusion headache

[Guest guest]

, I would certainly report it to her doctor just so he/she can

check and see if anything was different yesterday. Are you writing down

lot numbers and all the details for each infusion? For Katy, that would

mean that they ran it just a little too fast for her system to tolerate.

Was it any shorter yesterday? It also could mean that she's got

something brewing (a bug of some kind) and the IgG is attacking it. It

wasn't terribly unusual for Katy to occasionally have a nasty headache

post infusion. We treated with Tylenol because Katy couldn't use

Benadryl -- but I understand that Benadryl help some people more. Hope

it goes away soon. But, yes, I would call the doctor just so it goes in

the chart.

In His service,

dale

osdbmom wrote:

>

>

...shortly after infusion,

> she complained of headache,

[Guest guest]

Ibuprofen and Benadryl worked for my kids while on IVIG. would get

headaches for 2 days and would often puke. ph got bad headaches, too.

We started doing 2 doses of IV Benadryl during infusion and found that it

helped the headaches a lot.and then followed up with Ibuprofen as soon as we

got home (Hem would only give Tylenol in hosp.) ph had gone 3 years

without a reaction to IVIG and then had a severe reaction in the hospital

right before we switched to SCIG. I think that each time you go, you run

the risk of side effects.

SCIG has been great-no headaches or anything other than a bit of redness at

the injection sites. Increasing fluids prior to IVIG also helped a bit.

Peace be with you,

Pattie

May your troubles be less, and your blessings be more, and nothing but

happiness come through your door. ~ Irish blessing

[Guest guest]

I'll tell you what works for us. We put HeadOn on his temples. It does work. You

can find it at a drug store. Also, a hot shower seems to help. Did they run it

faster this time, or switch products? I think he would be OK to go to sleep,

always escaped in sleep. Good luck and prayers,

@...: knmb2@...: Tue, 17 Feb 2009

22:44:05 -0500Subject: Post infusion headache

I have a quick question. My son (12 yrs old with CVID) has been receiving IVIG

since he is 5. Only once, when switching from Polygam to Gammagard, did we ever

have a severe headache after infusion. My son's IVIG was yesterday, during the

day in school he got a severe headache. He does have a sinus infection and we

got a new antibiotic today, the infection was not bad. Tonight the headache is

back and worse. Gave him motrin, nothing changed. Now I am not sure if the

headache is sinus or infusion related. I am afraid to let him go to sleep...is

there anything I should be doing? His neck doesn't hurt and he has no

fever???Any suggestions would be helpful.Thanks!Kim[Non-text portions of this

message have been removed]

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[Guest guest]

Ursula,

Earlier today, he was complaining in his face and eyes, but tonight, he was

holding the back of his head and said it hurt all over.

He is laying down and says it is a little better. Should I be calling someone

or just watch him close...

Thanks!

~Kim

RE: Post infusion headache

Where is he complaining of the headache? I think that would help me determine

if it was reaction or sinus, regardless of other symptoms.

Ursula Holleman

mom to (16) and Macey (13)

www.caringbridge.org/visit/maceyholleman