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Cortisol levels

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I have a question about cortisol levels too. My daughter has been on

steroids a lot over the last several months. She has chronic lung disease and

often

needs them for her lungs. Last time she weaned off of them, she got into resp

distress within a couple of days, so they put her back on, (she was in ICU),

and told us to wean her down. When she got down to 2.5 mg of Prednisone they

did a cortisol level. It was 6.55, (norm 4.2-38.4). The plan was to check

her level and then decide if they would leave her on long-term steroids or do a

slow wean. Right now we're in a holding pattern because the pulmonologist

wants to consult with the endocrinologist to make a decision. Does anyone have

an idea or opinion about her cortisol level? Since it was in a normal range

does that mean it would be safe to wean the steroids? Or would it be expected

to be normal while on steroids? Thank you for your help~~

Belinda

Mom to Lacey, 20, Cornelia de Lange Syndrome, CVID

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