Guest guest Posted December 28, 2008 Report Share Posted December 28, 2008 Earlier this year my daughter, Cassidy, was diagnosed with oral lichen planus by a dermatologist. The dermatologist explained that it's basically just inflamation and not dangerous or anything. They sent us home with some gel to put on her tongue, Protopic, and said it would take up to three months to clear up even with treating daily. The inflamation LOOKS like Thrush, but isn't - it's characterized by fuzzy white patches on the sides of Cassidy's tongue. I notice that when she's on a heavy IV antibiotic course, the stuff tends to disappear. It's been gone for months and months now, but has flared up again in the last few days and now I am seeing a patch on the tip of her tongue as well. Just curious if anyone else's child has had this? Is it related to CVID? Noone else in the CF community seems to have it so it's not CF related as far as I can tell. I'd appreciate any advice/experiences, Thanks Jenn Mom to Cassidy, 4yrs w/CF, G-tube & CVID Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 Hi Jenn, From what I understand it is considered an auto-immune problem (although I don't think they know for sure), which is not uncommon in people with immune deficiencies. Lichen Planus can be associated with Lupus, vitiligo, alopecia, and various liver disorders. And sometimes it's just there by itself for no reason. Usually it's not a big issue, but it can take a long time for it to go away. (NEMO carrier) Mom to Hayden (14-unknown PID) Evan (14-unknown PID) Conner (14-NEMO; transplanted 8/17/07 - from an anonymous donor) Kelsey (12-unknown PID and NEMO carrier) Wife to (unknown PID) www.caringbridge.org/visit/smithkids Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 THank you so much for the response, I really appreciate it! Jenn mom to Cassidy, 4yrs w/CF, G-tube & CVID > > Hi Jenn, > From what I understand it is considered an auto-immune problem (although I don't think they know for sure), which is not uncommon in people with immune deficiencies. Lichen Planus can be associated with Lupus, vitiligo, alopecia, and various liver disorders. And sometimes it's just there by itself for no reason. Usually it's not a big issue, but it can take a long time for it to go away. > > (NEMO carrier) > Mom to Hayden (14-unknown PID) > Evan (14-unknown PID) > Conner (14-NEMO; transplanted 8/17/07 - from an anonymous donor) > Kelsey (12-unknown PID and NEMO carrier) > Wife to (unknown PID) > www.caringbridge.org/visit/smithkids > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 THank you so much for the response, I really appreciate it! Jenn mom to Cassidy, 4yrs w/CF, G-tube & CVID > > Hi Jenn, > From what I understand it is considered an auto-immune problem (although I don't think they know for sure), which is not uncommon in people with immune deficiencies. Lichen Planus can be associated with Lupus, vitiligo, alopecia, and various liver disorders. And sometimes it's just there by itself for no reason. Usually it's not a big issue, but it can take a long time for it to go away. > > (NEMO carrier) > Mom to Hayden (14-unknown PID) > Evan (14-unknown PID) > Conner (14-NEMO; transplanted 8/17/07 - from an anonymous donor) > Kelsey (12-unknown PID and NEMO carrier) > Wife to (unknown PID) > www.caringbridge.org/visit/smithkids > > Quote Link to comment Share on other sites More sharing options...
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