Temp regulation and excessive sleeping

[Guest guest]

Hi everyone, I hope you are all having a healthy holiday!

Nick is 6 and has CVID, we are at a pretty good place with infections currently

(altho we have been fighting the same sinus infection for 4 months now) but

nothing serious recently. At Nick's last check up with the immuno we were

discussing his temp regulation issues and the fact that he still needs a nap

everyday (he sleeps an avg of 14 to 16 hours a day, even on non school days) I

noticed on Nick's most recent set of labs that are to be drawn on the 29th there

are a lot of new things added that appear to be complement related and others I

am not sure of.

I am just wondering if it is normal and if your pid kid also can't maintain

their own temp out in the cold or if their body temp rises if they are over

dressed? Are they still sleeping a lot?

Thanks for any help.. we have just been dealing with things as they come along

but now the immuno says they might be neurologic or metabolic related.

Amy,

mom to Nick, 6, CVID