Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 forgot to sign my email. Sorry, Catharine Beal sub=q pumps How many are using the ESP60 pump for Sub-Q? It is the Excelsior pump. Blake has nothing but trouble from thsi pump from the beginning. At first Coram(infusion company) wanted to blame it on Blake & saying that his blood clotting issues were the reason to would beep every 3- 6 mins. We would get him going & then bam star beeping. We were told by the Immuno & Ped. that that was not the case & told Coram to not give this excuse....Sub-Q is just that waht clotting disorders blake have deal with his veins & arteries! Then they tried to say it was the needle set. He was using Quad furcated sets with the wings 9mm. Now he is using the Norfolk 6mm quad set. No change. I got to looking in to portable syringe pumps & have been talking to the company that sells these & Coram. I could not get a pricing on these. & coram says they do not know IF they can try these for Blake it is called The Corono Super PID. It is the ONLY pump that is FDA approved for Sub-Q. It is tiny(palm of the hand) the instruction manual is on line & there is pictures if you are interested....... I was also told that they are used ONLY for sub-Q IgG therapy!! www.intrapump.com When speaking to the nurse/rep. she said Coram has just went to using the ESP60 & stocked up on them not realizing they were not exactly the pump to use for sub-q & especially the Vivoglobin.. But I know that is just to gear me in to pushing to get her product. You can call & talk to Robin(PA) & she will give the info. 1-800-630-845-7867. She was very informative & told me that if Coram will not take my pushing then to tell them I will go to BioRX & they can provide everthing coram does....they are Coram's competor with SCIG. The website for BioRX is biorx.com Is any one else un happy with their pump or having the problems I mentioned with Blake? Thanks, mom to Blake 16(might as well admit it ti myself & go on!!!), SCID with Complete T-Cell Dysfunction, Asperger's, SID, CAPD, Severe Asthma, GERD, Genetic Prothrombin Deffect, Factor V Leiden, MTHFR & G to A Deffects......making Straight A's in Ninth grade!!!! http://www3.caringbridge.org/sc/blakester ________________________________________________________________________ More new features than ever. Check out the new AOL Mail ! - http://webmail.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 I have no clue how to log on and answer this question but here is a link to a few of the pumps that you can use. We use the graseby pump for scig and love it. No problems. Northcoast home healthcare supplies us and has not ever given us a hard time about pumps, etc. They too are great. Let me know if you have any other questions www.rainbowbabies.org/subcu In the middle of the page you will find a link labeled " pumps and needles labeled for sub-cu " . I think you will find it very helpful. sub=q pumps How many are using the ESP60 pump for Sub-Q? It is the Excelsior pump. Blake has nothing but trouble from thsi pump from the beginning. At first Coram(infusion company) wanted to blame it on Blake & saying that his blood clotting issues were the reason to would beep every 3- 6 mins. We would get him going & then bam star beeping. We were told by the Immuno & Ped. that that was not the case & told Coram to not give this excuse....Sub-Q is just that waht clotting disorders blake have deal with his veins & arteries! Then they tried to say it was the needle set. He was using Quad furcated sets with the wings 9mm. Now he is using the Norfolk 6mm quad set. No change. I got to looking in to portable syringe pumps & have been talking to the company that sells these & Coram. I could not get a pricing on these. & coram says they do not know IF they can try these for Blake it is called The Corono Super PID. It is the ONLY pump that is FDA approved for Sub-Q. It is tiny(palm of the hand) the instruction manual is on line & there is pictures if you are interested....... I was also told that they are used ONLY for sub-Q IgG therapy!! www.intrapump.com When speaking to the nurse/rep. she said Coram has just went to using the ESP60 & stocked up on them not realizing they were not exactly the pump to use for sub-q & especially the Vivoglobin.. But I know that is just to gear me in to pushing to get her product. You can call & talk to Robin(PA) & she will give the info. 1-800-630-845-7867. She was very informative & told me that if Coram will not take my pushing then to tell them I will go to BioRX & they can provide everthing coram does....they are Coram's competor with SCIG. The website for BioRX is biorx.com Is any one else un happy with their pump or having the problems I mentioned with Blake? Thanks, mom to Blake 16(might as well admit it ti myself & go on!!!), SCID with Complete T-Cell Dysfunction, Asperger's, SID, CAPD, Severe Asthma, GERD, Genetic Prothrombin Deffect, Factor V Leiden, MTHFR & G to A Deffects......making Straight A's in Ninth grade!!!! http://www3.caringbridge.org/sc/blakester ________________________________________________________________________ More new features than ever. Check out the new AOL Mail ! - http://webmail.aol.com Quote Link to comment Share on other sites More sharing options...
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